RE: Question.

[Guest guest]

In a message dated 1/8/2004 6:49:31 PM Central Standard Time,

c-clark05@... writes:

Let the Dr come to me, that is willing to fight for him. I could let the

press know I am willing to help educate the Dr about his condition, and don't

expect them to know very much about it. Just be willing to learn and help me get

this kid where he needs to go to get the needed help. The top two hospitals in

my state have given up on him. I need to take him out of state. I need a Dr

with some guts to fight my insurance. Do you think it could work?

This is just my personal opinion, Cindy, but I don't think that would work.

I don't think the doctor would come to you. Most of them think much too

highly of themselves to do something like that. They want you begging at their

doorstep. Here's another thought - and it's just that, a thought: what about a

young doctor, one who is newly out of medical school? They don't usually have

many patients, and most want to learn so badly, want to make a name for

themselves. If they don't have to answer to a clinic, or nasty head doctor,

perhaps

someone like that would be best. I think they are the most willing to learn

and to research new problems. Once they establish clients and patients, it's

taken years, and by then, they're too busy, and think too much of themselves

to admit they may not know it all! My doctor was quite young when I started

with him - I'm not sure how long he'd been out of school, but he was young.

He's always been willing to listen to me. Once I'd proven I wasn't a total

idiot

and DID know something about my own body and medicine, he was very open to my

suggestions for the most part. I still have him. It's just a thought.

Love Lana

" 'Be who you are and say what you feel because those

who mind don't matter and those who matter don't mind.' "

Dr. Suess

[Guest guest]

" I need a Dr that will go the extra mile. Cindy C. "

My dear God, hear us out! I'm so sad that I'm not the only one facing

these problems with docs; I thought that was a problem of my county.

I recommend that you should do whatever you feel better for your son,

what ever this is, but I humbly think you should ask him too, if he

wands to go public (press or tv).

I remember my childhood and don't be mistaken, even in my adulthood; my

mother was the one running to the doctors with me, now it is her or

mostly my husband. It is a special bond that we have developed, she and

I that separated us from the rest of the world whenever we had to make a

crucial decision about me, you see she always asked me and respected my

decisions even at my very yang age. When I was in pain after unexplained

dislocation and I was still in pain 6 months later and on, and on. she

and my father were the only ones wandering why and of course believing

me? It took 21 years before I was diagnosed correctly, but she did it,

she found the doctor to separate EDS from rheumatoid disease.

I totally agree with Barb as I'm 30 years old and I still haven't stop

looking for a doctor, I've traveled through the hole country and now

I'll travel in another one! You should visit not one or tow but all of

them, you never know, you could find a doctor who is a " human being "

too, and who knows, maybe he could live near you!!! So give it a shot

and at the end, you and Dylan would be the ones, to make the decisions.

It is a long trip. I'm sure you already have this special bond with

Dylan, and it is " magic " , I know, you just need good shoes to visit all

of them and lots of energy and most of all LUCK!!! You can do it!

Love Tia

P.S. From my point of view it is important that the doctor should be

middle age so that even if he is not educated in EDS he would be willing

to do so (web, reading ect).

[Guest guest]

From: llchriste@...

Here's another thought - and it's just that, a thought: what about a

young doctor, one who is newly out of medical school?

That is a very good idea. I will deffinatly act on it. Thank you.

Cindy C.