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Update on our first tip to Iowa City.

Dr Ponseti said that Tori does have atypical cf but that they seem

flexible which is good. He put her in another set of cast and boy

was I surprised, her last set of cast from the previous Dr was no

ware near as turned out as what her feet are now. She was ok during

the casting but started crying about 3 hours from home and has been

crying ever sense. On Wednesday and Thursday she would sleep for an

hour or two then wake up and cry for a ½ hour to an hour. There is

nothing I could do to get her to stop crying. Is this normal? She is

still plenty fussy but seems to be doing a little better today. We

go back for a cast change on Monday is she going to be like this

again after the next set of cast? She never cried like this for her

initial set of castings but her feet weren't turned out near as far.

After cast on Monday we will have the Tenotomy on Thursday then after

the 3 week cast we will be in the Markell shoes. Is anyone going to

be in Iowa City next week? I don't think I can adequately type how

hard this has been but I know that you all have been there too.

Thanks,

Tori 1/30/04 bilateral cf, back in cast

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