thank you for the warm welcome

[Guest guest]

Thank you everyone for the warm welcome,

I'm still in the diagnosis process. All I know for sure at this

point is that I have a connective tissue disease, atrophy, chronic

cell inflamation (dx'd from muscle biopsy)antiphospholipid antibody

syndrome, exercise intolerance (mitochondrial myopathy), positive

ANA, hx of migraine vs TIA vs L'hermitte's. My symptoms seem to wax

and wane coming on with little or no notice and then going away. At

this point I don't know what my final diagnosis will be - I'm still

waiting for the results from the second part of the muscle biopsy

that may or may not give me a definative diagnosis. Along with that

they are looking at Lupus or MS. Anyway, I hope none of you mind

that I picked this chat...it's the closest I could find to what I

have. Ever try to find a support chat much less a book for

mitochondrial myopathy and if anyone knows of one PLEASE pass it on.

Thanks again for the support,

Alice

p.s. action_splat stands for action painting like as in

splattering. It's very therapeutic.