No surgery for me~~~~ I'M MAD and AM SAYING SO!

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In a message dated 2/18/2004 8:14:55 AM Pacific Standard Time,

jmgrimse@... writes:

And he said that doing surgery on some one with EDS

would not help anything.

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Jen!

That is NOT necessarily true!

I would get a second opinion if I were you.

I and others have had multiple surgeries with success in most cases.

I say this because I had an interesting experience with my ortho that did 4

surgeries on my shoulders. AFTER I was diagnosed, I went to see him about hip

troubles I was having. I need my records for SSD issues and when I got them

and read them I was shocked! This surgeon that had 4 previous surgeries on my

now stated in my record " THIS IS NOT A SURGICAL PATIENT ANY MORE " .

Augggggggggggh!

Just because I was diagnosed did not all of a sudden change my insides!

That was a perfect example of doctors who cover their own butt for lawsuits

by just saying that EDS should/cant have surgery.

Since that time I have had 3 other various surgeries.....

PLEASE!

You need to make sure that surgery is REALLY out of the question.

I don't advocate surgery but if it will work to relieve the pain and fix an

issue with a joint I say go for it unless you have had bad prior experiences

and/or have issues that you should not have surgery for specific EDS reasons

(healing slow/sutures pull out) stuff like that or you have issues that you

should not have surgery no matter the EDS.

Just my 2 cents of course but it make me mad to hear ::::Doing surgery on

someone with EDS would not help anything.

Augh!!!!!!!!!!!1

Debbi