seeking advice, suggestions, ideas, anything!

[Guest guest]

Hi, I don't really know what to say here. I've seen numerous dr's

over the past 3 mos and they all tell me basically that i can't be

experiencing any kind of reaction from levoxyl, that it's something

else causing it. I am supposed to be taking 100 mcg of levoxyl a

day, but i can only tolerate 50. I've tried numerous time to take

the 100, but after 3 days or so it is just too strong in my system.

I'm not supposed to feel it at all or to be able to even tell it's

there. It causes panic attacks, extreme anxiety, about 8 hrs after i

take it i get very hot like i was when i was hyperthyroid. An hour

and a half or so after i take it i feel like my brain is cooking, i

feel very speedy, as if i've taken several caffine pills. I don't do

well on caffine either, in fact i completely cut caffine out of my

diet a few years ago. One cup of coffee makes me all shaky and

nervous. I stopped taking the levoxyl all together for 4 days a

couple weeks ago just because i felt i had to, and after a couple

days all the anxiety went away. I felt sooooo much better, but after

the 4th day or so the hypo symptoms came back as far as the stiff

muscles, and muscle cramps, and my face feeling puffy, things like

that. The levoxyl definately helps with the hypo symptoms, but i

don't want to feel like i'm losing my mind in order for my body to

feel normal. I'm going to have to take this stuff for the rest of my

life as i'm sure is the case with most if not all of us, i just want

to take something that i can take, i don't care what it is. Does

anyone have any idea why levoxyl would cause these side effects in me

or what i can tell the endo in order for him to take it seriously,

what kind of tests i can have him run in order to determine if

somethign else is not right. It's almost as if i have too much t3 in

my body after 8 hrs or so, i don't know it's so hard to describe. My

mother, and one sister both take synthroid and " can't even tell it's

in their system " i whish that were the case with me. I don't mind

taking whatever i need to take, i just want to be able to take it. I

don't currently have insurance, so basically i have to deal with this

one endocranologist. So far he hasn't been at all sympathetic, i've

only been able to talk to his nurse though thus far. She relays the

messages, and all i've gotten from him is " keep taking it " I've

gained 40 lbs since the rai treatments 4 mos ago or so, i want to

start working out again, I'd love to have my life back. I actually

felt better when i hade graves i think. needless to say i'm more

than a little frustrated. I may have repeated some of this in earlier

posts, and if it's getting redundent i appologize, i'm just at a loss

as to what to do here. I just want to be able to go out and function

everyday. Anyway, thanks for you time, and advice.

Mike