Guest guest Posted June 28, 2006 Report Posted June 28, 2006 Low B12? The research seems to suggest that blood levels may be different from actual amounts absorbed. Just a thought... Newell -------------- Original message ---------------------- > Brainstorm with me? DS is still exhausted. It's been about 2 months now. > We've been gf for 6 months. He also tested sensitive to dairy, eggs, soy and > yeast, so we eliminated those months ago as well. Blood tests show no Lyme > disease, mono, thyroid problem. Ferritin is on the low end of normal, so he > may benefit from iron supplements which we started over a week ago. > > > > His mood seems good to me, though one doctor wants to call this depression. > He simply feels too tired to even leave the house. His bones feel like lead, > he says, though he doesn't report joint pain or body aches except mild > achiness. His sleep cycle was very off for a while, but he's sleeping well > now. He doesn't have sleep apnea-I've experienced that before and have sat > listening to him sleep. > > > > Any other ideas come to mind that I can research? He's 13, well into > puberty, but that can't explain this level of fatigue. > > > Brainstorm with me? DS is still exhausted. It’s been about 2 months now. We’ve been gf for 6 months. He also tested sensitive to dairy, eggs, soy and yeast, so we eliminated those months ago as well. Blood tests show no Lyme disease, mono, thyroid problem. Ferritin is on the low end of normal, so he may benefit from iron supplements which we started over a week ago. His mood seems good to me, though one doctor wants to call this depression. He simply feels too tired to even leave the house. His bones feel like lead, he says, though he doesn’t report joint pain or body aches except mild achiness. His sleep cycle was very off for a while, but he’s sleeping well now. He doesn’t have sleep apnea—I’ve experienced that before and have sat listening to him sleep. Any other ideas come to mind that I can research? He’s 13, well into puberty, but that can’t explain this level of fatigue. Laurie lbilyeu@... Learn More Share Feedback Recent Activity · 20 New Members · 1 New Files Visit Your Group Quote
Guest guest Posted June 28, 2006 Report Posted June 28, 2006 Low B12? The research seems to suggest that blood levels may be different from actual amounts absorbed. Just a thought... Newell -------------- Original message ---------------------- > Brainstorm with me? DS is still exhausted. It's been about 2 months now. > We've been gf for 6 months. He also tested sensitive to dairy, eggs, soy and > yeast, so we eliminated those months ago as well. Blood tests show no Lyme > disease, mono, thyroid problem. Ferritin is on the low end of normal, so he > may benefit from iron supplements which we started over a week ago. > > > > His mood seems good to me, though one doctor wants to call this depression. > He simply feels too tired to even leave the house. His bones feel like lead, > he says, though he doesn't report joint pain or body aches except mild > achiness. His sleep cycle was very off for a while, but he's sleeping well > now. He doesn't have sleep apnea-I've experienced that before and have sat > listening to him sleep. > > > > Any other ideas come to mind that I can research? He's 13, well into > puberty, but that can't explain this level of fatigue. > > > Brainstorm with me? DS is still exhausted. It’s been about 2 months now. We’ve been gf for 6 months. He also tested sensitive to dairy, eggs, soy and yeast, so we eliminated those months ago as well. Blood tests show no Lyme disease, mono, thyroid problem. Ferritin is on the low end of normal, so he may benefit from iron supplements which we started over a week ago. His mood seems good to me, though one doctor wants to call this depression. He simply feels too tired to even leave the house. His bones feel like lead, he says, though he doesn’t report joint pain or body aches except mild achiness. His sleep cycle was very off for a while, but he’s sleeping well now. He doesn’t have sleep apnea—I’ve experienced that before and have sat listening to him sleep. Any other ideas come to mind that I can research? He’s 13, well into puberty, but that can’t explain this level of fatigue. Laurie lbilyeu@... Learn More Share Feedback Recent Activity · 20 New Members · 1 New Files Visit Your Group Quote
Guest guest Posted June 28, 2006 Report Posted June 28, 2006 Good point. B12 and folate are also fine. He'd hate iron IVs, the needle-phobe. But maybe I can find a more absorbable oral version and hope there's some function in the bowel. Laurie lbilyeu@... Re: Ideas on fatigue? > Brainstorm with me? DS is still exhausted. It's been about 2 months > now. We've been gf for 6 months. He also tested sensitive to dairy, > eggs, soy and yeast, so we eliminated those months ago as well. > Blood tests show no Lyme disease, mono, thyroid problem. Ferritin > is on the low end of normal, so he may benefit from iron > supplements which we started over a week ago. I'd suspect the iron. Oral iron may not help if you've only been GF for six months. It's worth a try, but keep monitoring it. I found that getting IV iron REALLY helped me a lot. I've been GF for nearly two years, but oral supplementation did diddly squat for my levels. The IVs weren't exactly fun, but I'm a whole new person. Have his B12 checked, along with his folate levels. ygg Quote
Guest guest Posted June 28, 2006 Report Posted June 28, 2006 Good point. B12 and folate are also fine. He'd hate iron IVs, the needle-phobe. But maybe I can find a more absorbable oral version and hope there's some function in the bowel. Laurie lbilyeu@... Re: Ideas on fatigue? > Brainstorm with me? DS is still exhausted. It's been about 2 months > now. We've been gf for 6 months. He also tested sensitive to dairy, > eggs, soy and yeast, so we eliminated those months ago as well. > Blood tests show no Lyme disease, mono, thyroid problem. Ferritin > is on the low end of normal, so he may benefit from iron > supplements which we started over a week ago. I'd suspect the iron. Oral iron may not help if you've only been GF for six months. It's worth a try, but keep monitoring it. I found that getting IV iron REALLY helped me a lot. I've been GF for nearly two years, but oral supplementation did diddly squat for my levels. The IVs weren't exactly fun, but I'm a whole new person. Have his B12 checked, along with his folate levels. ygg Quote
Guest guest Posted June 28, 2006 Report Posted June 28, 2006 If you find an answer to this, I'd love to know! I was diagnosed 3 years ago, in my early 40's. I have been GF ever since, and I'm STILL experiencing debilitating fatigue. I've had extensive testing for thyroid, anemia, heart, lungs and everything else under the sun. No answers yet. I've been battling fatigue at varying levels since college. Perhaps some of that was due to the undiagnosed celiac, but now what? My legs often feel as though I've just run a marathon, even though I've walked 1 flight of stairs. (I'm not terribly fit, but I'm not overweight, either.) I also feel very sore and achey everyday. If I wasn't aware of the damage it would do to my liver, I would be taking Ibuprofen everyday, in large doses. I get tired of complaining to my doctor about the same old thing (although she's generous in giving referrals to specialists), but I think of how long the celiac was just a " vague set of symptoms " , and I suppose I must continue to search for answers. I would be interested in hearing from anyone else who has had similar symptoms? And perhaps a diagnosis?! > > Brainstorm with me? DS is still exhausted. It's been about 2 months now. > We've been gf for 6 months. He also tested sensitive to dairy, eggs, soy and > yeast, so we eliminated those months ago as well. Blood tests show no Lyme > disease, mono, thyroid problem. Ferritin is on the low end of normal, so he > may benefit from iron supplements which we started over a week ago. > > > > His mood seems good to me, though one doctor wants to call this depression. > He simply feels too tired to even leave the house. His bones feel like lead, > he says, though he doesn't report joint pain or body aches except mild > achiness. His sleep cycle was very off for a while, but he's sleeping well > now. He doesn't have sleep apnea-I've experienced that before and have sat > listening to him sleep. > > > > Any other ideas come to mind that I can research? He's 13, well into > puberty, but that can't explain this level of fatigue. > > > > Laurie > > lbilyeu@... > > _____ > > Learn > <http://us.lrd.yahoo.com/_ylc=X3oDMTJsMDAxMTQyBF9TAzk3MzU5NzE0BF9wAzE EZ3JwSW > QDOTQwOTU0OARncnBzcElkAzE2MDI0NjM1NDkEc2VjA25jbW9kBHNsawNpbmZvBHN0aW1 lAzExNT > E1MzgyMDY-;_ylg=1/SIG=11gd5l5o4/**http% 3a/groups.yahoo.com/local/newemail.ht > ml> More > > Share > <http://us.lrd.yahoo.com/_ylc=X3oDMTJtb200NzJ0BF9TAzk3MzU5NzE0BF9wAzI EZ3JwSW > QDOTQwOTU0OARncnBzcElkAzE2MDI0NjM1NDkEc2VjA25jbW9kBHNsawNmZGJjawRzdGl tZQMxMT > UxNTM4MjA2;_ylg=1/SIG=11im36rmb/**http% 3a/surveylink.yahoo.com/wix/p1412899. > aspx> Feedback > > Recent Activity > > * 20 > > New > <http://us.lrd.yahoo.com/_ylc=X3oDMTJmbTExZ21xBF9TAzk3MzU5NzE0BGdycEl kAzk0MD > k1NDgEZ3Jwc3BJZAMxNjAyNDYzNTQ5BHNlYwN2dGwEc2xrA3ZtYnJzBHN0aW1lAzExNTE 1MzgyMD > Y-;_ylg=1/SIG=11kp8554l/**http% 3a/groups.yahoo.com/group/SillyYaks/members> > Members > > * 1 > > New > <http://us.lrd.yahoo.com/_ylc=X3oDMTJncXVtcXI5BF9TAzk3MzU5NzE0BGdycEl kAzk0MD > k1NDgEZ3Jwc3BJZAMxNjAyNDYzNTQ5BHNlYwN2dGwEc2xrA3ZmaWxlcwRzdGltZQMxMTU xNTM4Mj > A2;_ylg=1/SIG=11i8568t6/**http% 3a/groups.yahoo.com/group/SillyYaks/files> > Files > > Visit > <http://us.lrd.yahoo.com/_ylc=X3oDMTJlOXUyZ3BzBF9TAzk3MzU5NzE0BGdycEl kAzk0MD > k1NDgEZ3Jwc3BJZAMxNjAyNDYzNTQ5BHNlYwN2dGwEc2xrA3ZnaHAEc3RpbWUDMTE1MTU zODIwNg > --;_ylg=1/SIG=11c1dnklc/**http% 3a/groups.yahoo.com/group/SillyYaks> Your > Group > > Quote
Guest guest Posted June 28, 2006 Report Posted June 28, 2006 If you find an answer to this, I'd love to know! I was diagnosed 3 years ago, in my early 40's. I have been GF ever since, and I'm STILL experiencing debilitating fatigue. I've had extensive testing for thyroid, anemia, heart, lungs and everything else under the sun. No answers yet. I've been battling fatigue at varying levels since college. Perhaps some of that was due to the undiagnosed celiac, but now what? My legs often feel as though I've just run a marathon, even though I've walked 1 flight of stairs. (I'm not terribly fit, but I'm not overweight, either.) I also feel very sore and achey everyday. If I wasn't aware of the damage it would do to my liver, I would be taking Ibuprofen everyday, in large doses. I get tired of complaining to my doctor about the same old thing (although she's generous in giving referrals to specialists), but I think of how long the celiac was just a " vague set of symptoms " , and I suppose I must continue to search for answers. I would be interested in hearing from anyone else who has had similar symptoms? And perhaps a diagnosis?! > > Brainstorm with me? DS is still exhausted. It's been about 2 months now. > We've been gf for 6 months. He also tested sensitive to dairy, eggs, soy and > yeast, so we eliminated those months ago as well. Blood tests show no Lyme > disease, mono, thyroid problem. Ferritin is on the low end of normal, so he > may benefit from iron supplements which we started over a week ago. > > > > His mood seems good to me, though one doctor wants to call this depression. > He simply feels too tired to even leave the house. His bones feel like lead, > he says, though he doesn't report joint pain or body aches except mild > achiness. His sleep cycle was very off for a while, but he's sleeping well > now. He doesn't have sleep apnea-I've experienced that before and have sat > listening to him sleep. > > > > Any other ideas come to mind that I can research? He's 13, well into > puberty, but that can't explain this level of fatigue. > > > > Laurie > > lbilyeu@... > > _____ > > Learn > <http://us.lrd.yahoo.com/_ylc=X3oDMTJsMDAxMTQyBF9TAzk3MzU5NzE0BF9wAzE EZ3JwSW > QDOTQwOTU0OARncnBzcElkAzE2MDI0NjM1NDkEc2VjA25jbW9kBHNsawNpbmZvBHN0aW1 lAzExNT > E1MzgyMDY-;_ylg=1/SIG=11gd5l5o4/**http% 3a/groups.yahoo.com/local/newemail.ht > ml> More > > Share > <http://us.lrd.yahoo.com/_ylc=X3oDMTJtb200NzJ0BF9TAzk3MzU5NzE0BF9wAzI EZ3JwSW > QDOTQwOTU0OARncnBzcElkAzE2MDI0NjM1NDkEc2VjA25jbW9kBHNsawNmZGJjawRzdGl tZQMxMT > UxNTM4MjA2;_ylg=1/SIG=11im36rmb/**http% 3a/surveylink.yahoo.com/wix/p1412899. > aspx> Feedback > > Recent Activity > > * 20 > > New > <http://us.lrd.yahoo.com/_ylc=X3oDMTJmbTExZ21xBF9TAzk3MzU5NzE0BGdycEl kAzk0MD > k1NDgEZ3Jwc3BJZAMxNjAyNDYzNTQ5BHNlYwN2dGwEc2xrA3ZtYnJzBHN0aW1lAzExNTE 1MzgyMD > Y-;_ylg=1/SIG=11kp8554l/**http% 3a/groups.yahoo.com/group/SillyYaks/members> > Members > > * 1 > > New > <http://us.lrd.yahoo.com/_ylc=X3oDMTJncXVtcXI5BF9TAzk3MzU5NzE0BGdycEl kAzk0MD > k1NDgEZ3Jwc3BJZAMxNjAyNDYzNTQ5BHNlYwN2dGwEc2xrA3ZmaWxlcwRzdGltZQMxMTU xNTM4Mj > A2;_ylg=1/SIG=11i8568t6/**http% 3a/groups.yahoo.com/group/SillyYaks/files> > Files > > Visit > <http://us.lrd.yahoo.com/_ylc=X3oDMTJlOXUyZ3BzBF9TAzk3MzU5NzE0BGdycEl kAzk0MD > k1NDgEZ3Jwc3BJZAMxNjAyNDYzNTQ5BHNlYwN2dGwEc2xrA3ZnaHAEc3RpbWUDMTE1MTU zODIwNg > --;_ylg=1/SIG=11c1dnklc/**http% 3a/groups.yahoo.com/group/SillyYaks> Your > Group > > Quote
Guest guest Posted June 28, 2006 Report Posted June 28, 2006 Is it possible that in addition to celiac disease, you are experiencing fibromyalgia? It is also considered an autoimmune disorder. As far as the 13 year old is concerned, that is the way my celiac fatigue manifests. That bones like lead thing, very good way to describe it. Is he getting enough to eat and are you certain there aren't any cross-contamination issues? I get fatigued before I get any other symptoms when I have been " glutened " . > > > > Brainstorm with me? DS is still exhausted. It's been about 2 > months now. > > We've been gf for 6 months. He also tested sensitive to dairy, > eggs, soy and > > yeast, so we eliminated those months ago as well. Blood tests show > no Lyme > > disease, mono, thyroid problem. Ferritin is on the low end of > normal, so he > > may benefit from iron supplements which we started over a week ago. > > > > > > > > His mood seems good to me, though one doctor wants to call this > depression. > > He simply feels too tired to even leave the house. His bones feel > like lead, > > he says, though he doesn't report joint pain or body aches except > mild > > achiness. His sleep cycle was very off for a while, but he's > sleeping well > > now. He doesn't have sleep apnea-I've experienced that before and > have sat > > listening to him sleep. > > > > > > > > Any other ideas come to mind that I can research? He's 13, well > into > > puberty, but that can't explain this level of fatigue. > > > > > > > > Laurie > > > > <mailto:lbilyeu@> lbilyeu@ > > > > _____ > > > > Learn > > > <http://us.lrd.yahoo.com/_ylc=X3oDMTJsMDAxMTQyBF9TAzk3MzU5NzE0BF9wAzE > EZ3JwSW > > > QDOTQwOTU0OARncnBzcElkAzE2MDI0NjM1NDkEc2VjA25jbW9kBHNsawNpbmZvBHN0aW1 > lAzExNT > > E1MzgyMDY-;_ylg=1/SIG=11gd5l5o4/**http% > 3a/groups.yahoo.com/local/newemail.ht > > ml> More > > > > Share > > > <http://us.lrd.yahoo.com/_ylc=X3oDMTJtb200NzJ0BF9TAzk3MzU5NzE0BF9wAzI > EZ3JwSW > > > QDOTQwOTU0OARncnBzcElkAzE2MDI0NjM1NDkEc2VjA25jbW9kBHNsawNmZGJjawRzdGl > tZQMxMT > > UxNTM4MjA2;_ylg=1/SIG=11im36rmb/**http% > 3a/surveylink.yahoo.com/wix/p1412899. > > aspx> Feedback > > > > Recent Activity > > > > * 20 > > > > New > > > <http://us.lrd.yahoo.com/_ylc=X3oDMTJmbTExZ21xBF9TAzk3MzU5NzE0BGdycEl > kAzk0MD > > > k1NDgEZ3Jwc3BJZAMxNjAyNDYzNTQ5BHNlYwN2dGwEc2xrA3ZtYnJzBHN0aW1lAzExNTE > 1MzgyMD > > Y-;_ylg=1/SIG=11kp8554l/**http% > 3a/groups.yahoo.com/group/SillyYaks/members> > > Members > > > > * 1 > > > > New > > > <http://us.lrd.yahoo.com/_ylc=X3oDMTJncXVtcXI5BF9TAzk3MzU5NzE0BGdycEl > kAzk0MD > > > k1NDgEZ3Jwc3BJZAMxNjAyNDYzNTQ5BHNlYwN2dGwEc2xrA3ZmaWxlcwRzdGltZQMxMTU > xNTM4Mj > > A2;_ylg=1/SIG=11i8568t6/**http% > 3a/groups.yahoo.com/group/SillyYaks/files> > > Files > > > > Visit > > > <http://us.lrd.yahoo.com/_ylc=X3oDMTJlOXUyZ3BzBF9TAzk3MzU5NzE0BGdycEl > kAzk0MD > > > k1NDgEZ3Jwc3BJZAMxNjAyNDYzNTQ5BHNlYwN2dGwEc2xrA3ZnaHAEc3RpbWUDMTE1MTU > zODIwNg > > --;_ylg=1/SIG=11c1dnklc/**http% > 3a/groups.yahoo.com/group/SillyYaks> Your > > Group > > > > Quote
Guest guest Posted June 28, 2006 Report Posted June 28, 2006 Is it possible that in addition to celiac disease, you are experiencing fibromyalgia? It is also considered an autoimmune disorder. As far as the 13 year old is concerned, that is the way my celiac fatigue manifests. That bones like lead thing, very good way to describe it. Is he getting enough to eat and are you certain there aren't any cross-contamination issues? I get fatigued before I get any other symptoms when I have been " glutened " . > > > > Brainstorm with me? DS is still exhausted. It's been about 2 > months now. > > We've been gf for 6 months. He also tested sensitive to dairy, > eggs, soy and > > yeast, so we eliminated those months ago as well. Blood tests show > no Lyme > > disease, mono, thyroid problem. Ferritin is on the low end of > normal, so he > > may benefit from iron supplements which we started over a week ago. > > > > > > > > His mood seems good to me, though one doctor wants to call this > depression. > > He simply feels too tired to even leave the house. His bones feel > like lead, > > he says, though he doesn't report joint pain or body aches except > mild > > achiness. His sleep cycle was very off for a while, but he's > sleeping well > > now. He doesn't have sleep apnea-I've experienced that before and > have sat > > listening to him sleep. > > > > > > > > Any other ideas come to mind that I can research? He's 13, well > into > > puberty, but that can't explain this level of fatigue. > > > > > > > > Laurie > > > > <mailto:lbilyeu@> lbilyeu@ > > > > _____ > > > > Learn > > > <http://us.lrd.yahoo.com/_ylc=X3oDMTJsMDAxMTQyBF9TAzk3MzU5NzE0BF9wAzE > EZ3JwSW > > > QDOTQwOTU0OARncnBzcElkAzE2MDI0NjM1NDkEc2VjA25jbW9kBHNsawNpbmZvBHN0aW1 > lAzExNT > > E1MzgyMDY-;_ylg=1/SIG=11gd5l5o4/**http% > 3a/groups.yahoo.com/local/newemail.ht > > ml> More > > > > Share > > > <http://us.lrd.yahoo.com/_ylc=X3oDMTJtb200NzJ0BF9TAzk3MzU5NzE0BF9wAzI > EZ3JwSW > > > QDOTQwOTU0OARncnBzcElkAzE2MDI0NjM1NDkEc2VjA25jbW9kBHNsawNmZGJjawRzdGl > tZQMxMT > > UxNTM4MjA2;_ylg=1/SIG=11im36rmb/**http% > 3a/surveylink.yahoo.com/wix/p1412899. > > aspx> Feedback > > > > Recent Activity > > > > * 20 > > > > New > > > <http://us.lrd.yahoo.com/_ylc=X3oDMTJmbTExZ21xBF9TAzk3MzU5NzE0BGdycEl > kAzk0MD > > > k1NDgEZ3Jwc3BJZAMxNjAyNDYzNTQ5BHNlYwN2dGwEc2xrA3ZtYnJzBHN0aW1lAzExNTE > 1MzgyMD > > Y-;_ylg=1/SIG=11kp8554l/**http% > 3a/groups.yahoo.com/group/SillyYaks/members> > > Members > > > > * 1 > > > > New > > > <http://us.lrd.yahoo.com/_ylc=X3oDMTJncXVtcXI5BF9TAzk3MzU5NzE0BGdycEl > kAzk0MD > > > k1NDgEZ3Jwc3BJZAMxNjAyNDYzNTQ5BHNlYwN2dGwEc2xrA3ZmaWxlcwRzdGltZQMxMTU > xNTM4Mj > > A2;_ylg=1/SIG=11i8568t6/**http% > 3a/groups.yahoo.com/group/SillyYaks/files> > > Files > > > > Visit > > > <http://us.lrd.yahoo.com/_ylc=X3oDMTJlOXUyZ3BzBF9TAzk3MzU5NzE0BGdycEl > kAzk0MD > > > k1NDgEZ3Jwc3BJZAMxNjAyNDYzNTQ5BHNlYwN2dGwEc2xrA3ZnaHAEc3RpbWUDMTE1MTU > zODIwNg > > --;_ylg=1/SIG=11c1dnklc/**http% > 3a/groups.yahoo.com/group/SillyYaks> Your > > Group > > > > Quote
Guest guest Posted June 28, 2006 Report Posted June 28, 2006 My herbalist put me on Slippery Elm and B6 to aid in healing my bowel, probiotics to correct the bacterial levels, I-X (a vegetable based iron supplement) for my exaustion, colloidal minerals to help rebuild my strength, and had me drink a lot of plain broth from boiled bone included chicken breast for absorabable protein. My energy began to return and I began to feel like I could eat anything at anytime (but do not dare). I only share this in hope that it will help someone else as well. Tara P.S. Fresh carrot juice is a good overall toner, too. -----Original Message-----From: SillyYaks [mailto:SillyYaks ] On Behalf Of Laurie BilyeuSent: June 28, 2006 10:23 PMTo: SillyYaks Subject: RE: Ideas on fatigue? Good point. B12 and folate are also fine. He'd hate iron IVs, theneedle-phobe. But maybe I can find a more absorbable oral version and hopethere's some function in the bowel.Laurielbilyeu (AT) uuma (DOT) org-----Original Message-----From: SillyYaks [mailto:SillyYaks ] On BehalfOf eye of newtSent: Wednesday, June 28, 2006 9:21 PMTo: SillyYaks Subject: Re: Ideas on fatigue?> Brainstorm with me? DS is still exhausted. It's been about 2 months > now. We've been gf for 6 months. He also tested sensitive to dairy, > eggs, soy and yeast, so we eliminated those months ago as well. > Blood tests show no Lyme disease, mono, thyroid problem. Ferritin > is on the low end of normal, so he may benefit from iron > supplements which we started over a week ago.I'd suspect the iron. Oral iron may not help if you've only been GF for six months. It's worth a try, but keep monitoring it. I found that getting IV iron REALLY helped me a lot. I've been GF for nearly two years, but oral supplementation did diddly squat for my levels. The IVs weren't exactly fun, but I'm a whole new person. :)Have his B12 checked, along with his folate levels.ygg Quote
Guest guest Posted June 28, 2006 Report Posted June 28, 2006 My herbalist put me on Slippery Elm and B6 to aid in healing my bowel, probiotics to correct the bacterial levels, I-X (a vegetable based iron supplement) for my exaustion, colloidal minerals to help rebuild my strength, and had me drink a lot of plain broth from boiled bone included chicken breast for absorabable protein. My energy began to return and I began to feel like I could eat anything at anytime (but do not dare). I only share this in hope that it will help someone else as well. Tara P.S. Fresh carrot juice is a good overall toner, too. -----Original Message-----From: SillyYaks [mailto:SillyYaks ] On Behalf Of Laurie BilyeuSent: June 28, 2006 10:23 PMTo: SillyYaks Subject: RE: Ideas on fatigue? Good point. B12 and folate are also fine. He'd hate iron IVs, theneedle-phobe. But maybe I can find a more absorbable oral version and hopethere's some function in the bowel.Laurielbilyeu (AT) uuma (DOT) org-----Original Message-----From: SillyYaks [mailto:SillyYaks ] On BehalfOf eye of newtSent: Wednesday, June 28, 2006 9:21 PMTo: SillyYaks Subject: Re: Ideas on fatigue?> Brainstorm with me? DS is still exhausted. It's been about 2 months > now. We've been gf for 6 months. He also tested sensitive to dairy, > eggs, soy and yeast, so we eliminated those months ago as well. > Blood tests show no Lyme disease, mono, thyroid problem. Ferritin > is on the low end of normal, so he may benefit from iron > supplements which we started over a week ago.I'd suspect the iron. Oral iron may not help if you've only been GF for six months. It's worth a try, but keep monitoring it. I found that getting IV iron REALLY helped me a lot. I've been GF for nearly two years, but oral supplementation did diddly squat for my levels. The IVs weren't exactly fun, but I'm a whole new person. :)Have his B12 checked, along with his folate levels.ygg Quote
Guest guest Posted June 28, 2006 Report Posted June 28, 2006 > > Good point. B12 and folate are also fine. He'd hate iron IVs, the > needle-phobe. But maybe I can find a more absorbable oral version and hope > there's some function in the bowel. > > Laurie > lbilyeu@... A " fine " B12 level for my (former) doctor was above 250 - " fine " for me and my ability to stand upright and function is above 500. For reasons unknown to me, the U.S. standard of normal for B12 levels is about 250 to 700, other countries use a standard of 500 to 1100. There is no level of B12 sipplements considered to be toxic, so even if your son's level is within normal range, he, like me, may just need more than that to function. Maureen Quote
Guest guest Posted June 29, 2006 Report Posted June 29, 2006 Hi Laurie, I would seriously look into sleep apnea again. Every doctor told me I didn't have it and even my husband sat and listened to me all night long. Some apnea events are obvious and some are not. For one night - one overnight sleep study - you will know definitively. Given that his fatigue is debilitating, I would say that doing the overnight sleep study is a must. BGLaurie Bilyeu wrote: Brainstorm with me? DS is still exhausted. It’s been about 2 months now. We’ve been gf for 6 months. He also tested sensitive to dairy, eggs, soy and yeast, so we eliminated those months ago as well. Blood tests show no Lyme disease, mono, thyroid problem. Ferritin is on the low end of normal, so he may benefit from iron supplements which we started over a week ago. His mood seems good to me, though one doctor wants to call this depression. He simply feels too tired to even leave the house. His bones feel like lead, he says, though he doesn’t report joint pain or body aches except mild achiness. His sleep cycle was very off for a while, but he’s sleeping well now. He doesn’t have sleep apnea—I’ve experienced that before and have sat listening to him sleep. Any other ideas come to mind that I can research? He’s 13, well into puberty, but that can’t explain this level of fatigue. Laurie lbilyeu@... Learn More Share Feedback Recent Activity · 20 New Members · 1 New Files Visit Your Group Quote
Guest guest Posted June 29, 2006 Report Posted June 29, 2006 Hi Laurie, I would seriously look into sleep apnea again. Every doctor told me I didn't have it and even my husband sat and listened to me all night long. Some apnea events are obvious and some are not. For one night - one overnight sleep study - you will know definitively. Given that his fatigue is debilitating, I would say that doing the overnight sleep study is a must. BGLaurie Bilyeu wrote: Brainstorm with me? DS is still exhausted. It’s been about 2 months now. We’ve been gf for 6 months. He also tested sensitive to dairy, eggs, soy and yeast, so we eliminated those months ago as well. Blood tests show no Lyme disease, mono, thyroid problem. Ferritin is on the low end of normal, so he may benefit from iron supplements which we started over a week ago. His mood seems good to me, though one doctor wants to call this depression. He simply feels too tired to even leave the house. His bones feel like lead, he says, though he doesn’t report joint pain or body aches except mild achiness. His sleep cycle was very off for a while, but he’s sleeping well now. He doesn’t have sleep apnea—I’ve experienced that before and have sat listening to him sleep. Any other ideas come to mind that I can research? He’s 13, well into puberty, but that can’t explain this level of fatigue. Laurie lbilyeu@... Learn More Share Feedback Recent Activity · 20 New Members · 1 New Files Visit Your Group Quote
Guest guest Posted June 29, 2006 Report Posted June 29, 2006 No kidding? We could call that “silent” sleep apnea, eh? J OK, I’ll put sleep disorder back on the list to chat about. I had a sleep study myself years ago (trying to diagnose…) and think it will be a challenge to get him through one, but he’s a challenge now too….. Laurie lbilyeu@... From: SillyYaks [mailto:SillyYaks ] On Behalf Of BG Sent: Thursday, June 29, 2006 2:32 AM To: SillyYaks Subject: Re: Ideas on fatigue? Hi Laurie, I would seriously look into sleep apnea again. Every doctor told me I didn't have it and even my husband sat and listened to me all night long. Some apnea events are obvious and some are not. For one night - one overnight sleep study - you will know definitively. Given that his fatigue is debilitating, I would say that doing the overnight sleep study is a must. BG Quote
Guest guest Posted June 29, 2006 Report Posted June 29, 2006 No kidding? We could call that “silent” sleep apnea, eh? J OK, I’ll put sleep disorder back on the list to chat about. I had a sleep study myself years ago (trying to diagnose…) and think it will be a challenge to get him through one, but he’s a challenge now too….. Laurie lbilyeu@... From: SillyYaks [mailto:SillyYaks ] On Behalf Of BG Sent: Thursday, June 29, 2006 2:32 AM To: SillyYaks Subject: Re: Ideas on fatigue? Hi Laurie, I would seriously look into sleep apnea again. Every doctor told me I didn't have it and even my husband sat and listened to me all night long. Some apnea events are obvious and some are not. For one night - one overnight sleep study - you will know definitively. Given that his fatigue is debilitating, I would say that doing the overnight sleep study is a must. BG Quote
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