Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 Becky writes, > I have lived with un-nameable fear my whole life. I recall being as young > (old?) as 16 and staring out the big picture window in the front of the > house, thinking, " There's a whole big world out there & I'm too scared to > join it. " I know how you feel. I felt the same way but I wanted to get out of the house and into that world. I got out but I married at 18. I have been very lucky with my husband. It took many years but I did get out into that big world. I have traveled all over the world. I have done many things that I thought that I never would do. But inside I am still scared. I was thinking today what it would be like to not be depressed. I have been depressed all of my life. What would it be like to live without depression? To be free of that load that I carry day after day. To be like other people. I will never know and because of the fibro the big world is mostly closed to me and will not reopen. Take care, Irene Books may well be the only true magic Alice Hoffman. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 Becky writes, > I have lived with un-nameable fear my whole life. I recall being as young > (old?) as 16 and staring out the big picture window in the front of the > house, thinking, " There's a whole big world out there & I'm too scared to > join it. " I know how you feel. I felt the same way but I wanted to get out of the house and into that world. I got out but I married at 18. I have been very lucky with my husband. It took many years but I did get out into that big world. I have traveled all over the world. I have done many things that I thought that I never would do. But inside I am still scared. I was thinking today what it would be like to not be depressed. I have been depressed all of my life. What would it be like to live without depression? To be free of that load that I carry day after day. To be like other people. I will never know and because of the fibro the big world is mostly closed to me and will not reopen. Take care, Irene Books may well be the only true magic Alice Hoffman. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 Date: Fri, 29 Mar 2002 20:01:18 -0000 Subject: scared How do I tell someone that this will pass? I recall feeling very out of control of my own body. I have some it back - not all. And I have had a recent relapse from which I am trying to climb up and out yet again. The footing is muddy and the ground comes out from beneath me. It is drizzling and the roots I cling to are slippery. I can't see it, but I sense this river of bottomless mud beneath me. Oh yes, I know this feeling. Its beyond horrible; its a nightmare while you are awake. This disorder ( and all the related disorders) are more insidious than snakes and the fight for your life is very real no matter what some sh*thead with a medical degree might say. ******************************************************************* It seems several people are experienceing the same things at this time: Fear. I have lived with un-nameable fear my whole life. I recall being as young (old?) as 16 and stareing out the big picture window in the front of the house, thinking, " There's a whole big world out there & I'm too scared to join it. " It wasn't like that for me 24/7, and it isn't now, either. However, I think I HAVE grown more... mmmm... cautious than I was when young. When young, I drank & did drugs to feel " A Part Of " . Today, I go to the mental health people, I go to therapy, I take prescribed for me medications, and I pray a lot. For all who are experienceing fear... You have my prayers. You have my sympathy & empathy. You have my hand, if you need someone to walk with you, or someone to help pull you up from the pit with the mud in it... Becky " There are only two ways to live your life.One is as though nothing is a miracle. The other is as though everything is a miracle. " ~Albert Einstein~*We are all visitors to this time, this place,We are just passing through.Our purpose here is to observe,to learn,to grow,to LOVE...and then we return home.~Aborigine philosophy~8^) If anyone speaks badly of you~Live so no one will believe it. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 Date: Fri, 29 Mar 2002 20:01:18 -0000 Subject: scared How do I tell someone that this will pass? I recall feeling very out of control of my own body. I have some it back - not all. And I have had a recent relapse from which I am trying to climb up and out yet again. The footing is muddy and the ground comes out from beneath me. It is drizzling and the roots I cling to are slippery. I can't see it, but I sense this river of bottomless mud beneath me. Oh yes, I know this feeling. Its beyond horrible; its a nightmare while you are awake. This disorder ( and all the related disorders) are more insidious than snakes and the fight for your life is very real no matter what some sh*thead with a medical degree might say. ******************************************************************* It seems several people are experienceing the same things at this time: Fear. I have lived with un-nameable fear my whole life. I recall being as young (old?) as 16 and stareing out the big picture window in the front of the house, thinking, " There's a whole big world out there & I'm too scared to join it. " It wasn't like that for me 24/7, and it isn't now, either. However, I think I HAVE grown more... mmmm... cautious than I was when young. When young, I drank & did drugs to feel " A Part Of " . Today, I go to the mental health people, I go to therapy, I take prescribed for me medications, and I pray a lot. For all who are experienceing fear... You have my prayers. You have my sympathy & empathy. You have my hand, if you need someone to walk with you, or someone to help pull you up from the pit with the mud in it... Becky " There are only two ways to live your life.One is as though nothing is a miracle. The other is as though everything is a miracle. " ~Albert Einstein~*We are all visitors to this time, this place,We are just passing through.Our purpose here is to observe,to learn,to grow,to LOVE...and then we return home.~Aborigine philosophy~8^) If anyone speaks badly of you~Live so no one will believe it. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2002 Report Share Posted March 29, 2002 Date: Fri, 29 Mar 2002 20:01:18 -0000 Subject: scared How do I tell someone that this will pass? I recall feeling very out of control of my own body. I have some it back - not all. And I have had a recent relapse from which I am trying to climb up and out yet again. The footing is muddy and the ground comes out from beneath me. It is drizzling and the roots I cling to are slippery. I can't see it, but I sense this river of bottomless mud beneath me. Oh yes, I know this feeling. Its beyond horrible; its a nightmare while you are awake. This disorder ( and all the related disorders) are more insidious than snakes and the fight for your life is very real no matter what some sh*thead with a medical degree might say. ******************************************************************* It seems several people are experienceing the same things at this time: Fear. I have lived with un-nameable fear my whole life. I recall being as young (old?) as 16 and stareing out the big picture window in the front of the house, thinking, " There's a whole big world out there & I'm too scared to join it. " It wasn't like that for me 24/7, and it isn't now, either. However, I think I HAVE grown more... mmmm... cautious than I was when young. When young, I drank & did drugs to feel " A Part Of " . Today, I go to the mental health people, I go to therapy, I take prescribed for me medications, and I pray a lot. For all who are experienceing fear... You have my prayers. You have my sympathy & empathy. You have my hand, if you need someone to walk with you, or someone to help pull you up from the pit with the mud in it... Becky " There are only two ways to live your life.One is as though nothing is a miracle. The other is as though everything is a miracle. " ~Albert Einstein~*We are all visitors to this time, this place,We are just passing through.Our purpose here is to observe,to learn,to grow,to LOVE...and then we return home.~Aborigine philosophy~8^) If anyone speaks badly of you~Live so no one will believe it. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2002 Report Share Posted March 30, 2002 --- patidu@... wrote: > Becky writes, > > > I have lived with un-nameable fear my whole > life. I recall being as young > > (old?) as 16 and staring out the big picture > window in the front of the > > house, thinking, " There's a whole big world > out there & I'm too scared to > > join it. " > > > I know how you feel. I felt the same way but I > wanted to get out of the > house and into that world. I got out but I > married at 18. I have been very > lucky with my husband. It took many years but > I did get out into that big > world. I have traveled all over the world. I > have done many things that I > thought that I never would do. But inside I am > still scared. > > I was thinking today what it would be like to > not be depressed. I have been > depressed all of my life. What would it be like > to live without depression? > To be free of that load that I carry day after > day. To be like other people. > I will never know and because of the fibro the > big world is mostly closed to > me and will not reopen. > > Take care, > Irene > > Books may well be the only true magic > Alice Hoffman. > > > [Non-text portions of this message have been > removed] > > It feels wonderful, Irene. Joanne __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2002 Report Share Posted March 30, 2002 --- patidu@... wrote: > Becky writes, > > > I have lived with un-nameable fear my whole > life. I recall being as young > > (old?) as 16 and staring out the big picture > window in the front of the > > house, thinking, " There's a whole big world > out there & I'm too scared to > > join it. " > > > I know how you feel. I felt the same way but I > wanted to get out of the > house and into that world. I got out but I > married at 18. I have been very > lucky with my husband. It took many years but > I did get out into that big > world. I have traveled all over the world. I > have done many things that I > thought that I never would do. But inside I am > still scared. > > I was thinking today what it would be like to > not be depressed. I have been > depressed all of my life. What would it be like > to live without depression? > To be free of that load that I carry day after > day. To be like other people. > I will never know and because of the fibro the > big world is mostly closed to > me and will not reopen. > > Take care, > Irene > > Books may well be the only true magic > Alice Hoffman. > > > [Non-text portions of this message have been > removed] > > It feels wonderful, Irene. Joanne __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2002 Report Share Posted March 31, 2002 patidu@... wrote: > I will never know and because of the fibro the big world is mostly closed to > me and will not reopen. I get really upset when I think my traveling days are over. I don't travel well anymore and with just one salary, we don't have much left for things like travel. We are going to save our pennies to try to go on a cruise. I figure at least that way, I can use my scooter and there are things on board ship to do for dh if I don't feel up to doing much. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 Hi, Here is the contact info for a Puerto Rico Ponseti certified doctor. A. Fernandez-, M.D. Zoral St. #200 Montehiedra San , Puerto Rico 00926 Phone: 787 995-3454 Clubfoot is generally not associated with other, more severe problems. Here is a link to doctor Ponseti's website where you will find information on the method. http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html Feel free to ask as many questions as you like. The members in this group are all experiencing or have experienced the same fears and will be a great help in easing your own concerns. Best of luck, Dan Montagano Scared I just found out through sonogram that my little girl has clubfoot (both feet). I am very scared and living in Puerto Rico where sometimes the medical treatment for unique problems is limited, I don't know what to do. The Ponseti method sounds good, does anyone know of any doctors in Puerto Rico who practice it? When the obstetrician discovered it he had us do an amneosentisis to discard other chromosone problems, he said all the other bones and formations look fine. What are the chances that clubfoot is an inicator of a more severe problem? Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 Hi, Here is the contact info for a Puerto Rico Ponseti certified doctor. A. Fernandez-, M.D. Zoral St. #200 Montehiedra San , Puerto Rico 00926 Phone: 787 995-3454 Clubfoot is generally not associated with other, more severe problems. Here is a link to doctor Ponseti's website where you will find information on the method. http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html Feel free to ask as many questions as you like. The members in this group are all experiencing or have experienced the same fears and will be a great help in easing your own concerns. Best of luck, Dan Montagano Scared I just found out through sonogram that my little girl has clubfoot (both feet). I am very scared and living in Puerto Rico where sometimes the medical treatment for unique problems is limited, I don't know what to do. The Ponseti method sounds good, does anyone know of any doctors in Puerto Rico who practice it? When the obstetrician discovered it he had us do an amneosentisis to discard other chromosone problems, he said all the other bones and formations look fine. What are the chances that clubfoot is an inicator of a more severe problem? Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 Hi, Here is the contact info for a Puerto Rico Ponseti certified doctor. A. Fernandez-, M.D. Zoral St. #200 Montehiedra San , Puerto Rico 00926 Phone: 787 995-3454 Clubfoot is generally not associated with other, more severe problems. Here is a link to doctor Ponseti's website where you will find information on the method. http://www.vh.org/pediatric/patient/orthopaedics/clubfeet/index.html Feel free to ask as many questions as you like. The members in this group are all experiencing or have experienced the same fears and will be a great help in easing your own concerns. Best of luck, Dan Montagano Scared I just found out through sonogram that my little girl has clubfoot (both feet). I am very scared and living in Puerto Rico where sometimes the medical treatment for unique problems is limited, I don't know what to do. The Ponseti method sounds good, does anyone know of any doctors in Puerto Rico who practice it? When the obstetrician discovered it he had us do an amneosentisis to discard other chromosone problems, he said all the other bones and formations look fine. What are the chances that clubfoot is an inicator of a more severe problem? Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 First off take a deep breath. You are ahead of the game because you found out through a sonogram that your baby is to be born with clubfeet, so you have plenty of time to research. Many of us had no idea until our baby was delivered and then tired and emotional had to seek out research. Second, clubfoot is NOTHING to stress about. I would take the clubfoot deformity over the millions of other deformity's out there. It is so correctable and after correction your child will live a normal life and have a normal looking foot. My son started the Ponseti treatment at 2 weeks of age and by 6 weeks he had a fully corrected foot. He still wear shoes with a bar at night (he is 26 months) but that is it. The shoes are a part of his nightime routine so it isn't an issue. Please don't let this stress you out for the rest of your pregnancy. The doctor has already ruled out other deformities with the amnio, so the ONLY thing you are dealing with is clubfoot that is correctable! My aunt told me when my child was born and I was shooken up not to worry and to thank god he was born with all his parts, some just need a little adjusting. It is so true I thank god all I had to deal with was clubfoot! > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: Scared >Date: Thu, 20 May 2004 14:11:41 -0000 > >I just found out through sonogram that my little girl has clubfoot >(both feet). I am very scared and living in Puerto Rico where >sometimes the medical treatment for unique problems is limited, I >don't know what to do. The Ponseti method sounds good, does anyone >know of any doctors in Puerto Rico who practice it? > >When the obstetrician discovered it he had us do an amneosentisis to >discard other chromosone problems, he said all the other bones and >formations look fine. What are the chances that clubfoot is an >inicator of a more severe problem? > >Help! > > _________________________________________________________________ MSN Toolbar provides one-click access to Hotmail from any Web page – FREE download! http://toolbar.msn.click-url.com/go/onm00200413ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 PLEASE don't let it stress you too much. Keep yourself healthy and as stress free as you can. As said it is so correctable and your little one will run and play like the other children! At first it sounds like a lot when you read about casts and bars, but when you actually experience it, it is so manageable. Before you know it the casts have come and gone and you are onto your bar routine. I think it took me longer to get used to it than it did our daughter, but she has had it for almost 4 weeks now and doing great! Keep your chin up and take it one day at a time. Stay positive for yourself and your baby! We are here for you. Louisa and Zoe 2-22-04 right unilater clubfoot. > I just found out through sonogram that my little girl has clubfoot > (both feet). I am very scared and living in Puerto Rico where > sometimes the medical treatment for unique problems is limited, I > don't know what to do. The Ponseti method sounds good, does anyone > know of any doctors in Puerto Rico who practice it? > > When the obstetrician discovered it he had us do an amneosentisis to > discard other chromosone problems, he said all the other bones and > formations look fine. What are the chances that clubfoot is an > inicator of a more severe problem? > > Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 Hi there, Welcome to the group. Your feelings are exactly what I felt when I was pregnant. The sonogram i had at 16 weeks said my daughter would have one clubfoot. I was so upset. I didn't understand how this could happen. Then the doctor who didn't know much about clubfoot did say it was treatable but it could be a sign of more problems wrong with the baby. He didn't see anything but wanted me to do an amnio. I said no at first. I was to scared since there is a risk of miscarriage with the amnio. Then I went in at 20 weeks and the sonogram said she had two clubbed feet now. Again, I was hysterical. I worried and stressed out the whole pregnancy. I was miserable. I researched about clubbed feet and found this board. It has been a god sent. Around 30 weeks I had enough. I was not worried about the clubbed feet anymore but was worried about what else could be wrong with her. So I had the amnio at 30 weeks along. I thought since I was that far along if I was to miscarry then the baby would have a greater chance to live. After the amnio I was so nervous and scared and had contractions off and on that whole 2 weeks waiting for the results. Then they came back that she was perfectly healthy nothing was wrong chromosonally. So I got on the ball and found a ponseti trained doctor. The ortho in my town wanted to cast her but I refused because he said he did the ponseti method but after asking him questions that the board and Dr.Ponseti told me to ask I knew he was not practicing it all the way. So I found someone 3 hours away who was on Dr.Ponseti's approved list. It was the best decision I have ever made. I would of went directly to Iowa if I had to. Now that I found out there was ways to fly free and stuff. I called up the ponseti doctor told her my story and she told me to call her right when the baby was born. I did and they got me in ASAP and we started casting a week after she was born. Now Isabella is 19 months old and is running around like crazy. Her feet look normal. She started walking at 12 months just like all my other kids. She wasn't behind on anything. So Please try to hang in there. You are on the right track on finding a doctor early and have successful treatment. No matter how much the doctors around where you live say they do the ponseti method. I personally would go to one on Dr.Ponseti's list. They have been trained and had to go through procedures to get on that list. You won't regret it. Remember it is nothing you did. Isabella was perfectly normal when she came out other than her feet. She does have a small innocent heart murmur but they said it wasn't contributed to her clubbed feet. Your baby will be just fine. When she comes out it will be sad and exciting at the same time but after you see her you will not even notice her feet. She will be fixed in a couple months. It don't take long at all. Congratulations and feel free to email me anytime Best Wishes (Mommy to isabella 10-12-02 bilateral cf) > I just found out through sonogram that my little girl has clubfoot > (both feet). I am very scared and living in Puerto Rico where > sometimes the medical treatment for unique problems is limited, I > don't know what to do. The Ponseti method sounds good, does anyone > know of any doctors in Puerto Rico who practice it? > > When the obstetrician discovered it he had us do an amneosentisis to > discard other chromosone problems, he said all the other bones and > formations look fine. What are the chances that clubfoot is an > inicator of a more severe problem? > > Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 I know that many have responded, but I just wanted to extend a hug from San Diego, California. My son was diagnosed at 20 weeks gestation too. Please feel comfortable about reaching out to this group of people. They are amazing! Any question you may have someone here can find the answer. We all have kids with clubfeet and have been where you are now. Know that no matter what your baby girl will be a wonderful sweet beautiful girl and like our kids will have some of the cutest little cubby fat feet. :0) Hang in there Tonya and San Diego, CA Bilateral Clubfeet (both feet were very severe) Scared I just found out through sonogram that my little girl has clubfoot (both feet). I am very scared and living in Puerto Rico where sometimes the medical treatment for unique problems is limited, I don't know what to do. The Ponseti method sounds good, does anyone know of any doctors in Puerto Rico who practice it? When the obstetrician discovered it he had us do an amneosentisis to discard other chromosone problems, he said all the other bones and formations look fine. What are the chances that clubfoot is an inicator of a more severe problem? Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 I know that many have responded, but I just wanted to extend a hug from San Diego, California. My son was diagnosed at 20 weeks gestation too. Please feel comfortable about reaching out to this group of people. They are amazing! Any question you may have someone here can find the answer. We all have kids with clubfeet and have been where you are now. Know that no matter what your baby girl will be a wonderful sweet beautiful girl and like our kids will have some of the cutest little cubby fat feet. :0) Hang in there Tonya and San Diego, CA Bilateral Clubfeet (both feet were very severe) Scared I just found out through sonogram that my little girl has clubfoot (both feet). I am very scared and living in Puerto Rico where sometimes the medical treatment for unique problems is limited, I don't know what to do. The Ponseti method sounds good, does anyone know of any doctors in Puerto Rico who practice it? When the obstetrician discovered it he had us do an amneosentisis to discard other chromosone problems, he said all the other bones and formations look fine. What are the chances that clubfoot is an inicator of a more severe problem? Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2004 Report Share Posted May 22, 2004 I know that many have responded, but I just wanted to extend a hug from San Diego, California. My son was diagnosed at 20 weeks gestation too. Please feel comfortable about reaching out to this group of people. They are amazing! Any question you may have someone here can find the answer. We all have kids with clubfeet and have been where you are now. Know that no matter what your baby girl will be a wonderful sweet beautiful girl and like our kids will have some of the cutest little cubby fat feet. :0) Hang in there Tonya and San Diego, CA Bilateral Clubfeet (both feet were very severe) Scared I just found out through sonogram that my little girl has clubfoot (both feet). I am very scared and living in Puerto Rico where sometimes the medical treatment for unique problems is limited, I don't know what to do. The Ponseti method sounds good, does anyone know of any doctors in Puerto Rico who practice it? When the obstetrician discovered it he had us do an amneosentisis to discard other chromosone problems, he said all the other bones and formations look fine. What are the chances that clubfoot is an inicator of a more severe problem? Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Hi! I also found out thru sonogram about my baby's clubfeet. I live in the Philippines where medical facilities aren't that great either, but there are usually specialists in larger hospitals that have trained in the US. Since the hospital I'm going to give birth in doesn't have one, my plan is to bring the baby for outpatient treatment under his foot doctor when he's two weeks old. From what I know, delaying casting by a few days doesn't really matter. (One way of contacting a specialist... does your country have a national orthopedic association or something similar to a " club " of doctors who specialize in orthopedics? perhaps you can ask your oby-gyn on how to contact that group -- these doctors know each other, so it's just a matter of her referring you to an orthopedic surgeon who can give you the number of the association he belongs to. Then you can ask for a listing of doctors. Or you can call the bigger hospitals and ask for a list of all their orthopedic doctors.) As for chromosomal abnormalties, there are very few sydnromes associated with CF. The most severe, (or is it 's?) syndrome, is usually associated with heart defects, harelips and spina bifida, which the doctor would've caught in the ultrasound where you saw the club feet. I know it's hard not to worry but in all likelihood the amniocentesis is just a precaution. dedet arreissuil arreissuil@...> wrote: I just found out through sonogram that my little girl has clubfoot (both feet). I am very scared and living in Puerto Rico where sometimes the medical treatment for unique problems is limited, I don't know what to do. The Ponseti method sounds good, does anyone know of any doctors in Puerto Rico who practice it? When the obstetrician discovered it he had us do an amneosentisis to discard other chromosone problems, he said all the other bones and formations look fine. What are the chances that clubfoot is an inicator of a more severe problem? Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Hi! I also found out thru sonogram about my baby's clubfeet. I live in the Philippines where medical facilities aren't that great either, but there are usually specialists in larger hospitals that have trained in the US. Since the hospital I'm going to give birth in doesn't have one, my plan is to bring the baby for outpatient treatment under his foot doctor when he's two weeks old. From what I know, delaying casting by a few days doesn't really matter. (One way of contacting a specialist... does your country have a national orthopedic association or something similar to a " club " of doctors who specialize in orthopedics? perhaps you can ask your oby-gyn on how to contact that group -- these doctors know each other, so it's just a matter of her referring you to an orthopedic surgeon who can give you the number of the association he belongs to. Then you can ask for a listing of doctors. Or you can call the bigger hospitals and ask for a list of all their orthopedic doctors.) As for chromosomal abnormalties, there are very few sydnromes associated with CF. The most severe, (or is it 's?) syndrome, is usually associated with heart defects, harelips and spina bifida, which the doctor would've caught in the ultrasound where you saw the club feet. I know it's hard not to worry but in all likelihood the amniocentesis is just a precaution. dedet arreissuil arreissuil@...> wrote: I just found out through sonogram that my little girl has clubfoot (both feet). I am very scared and living in Puerto Rico where sometimes the medical treatment for unique problems is limited, I don't know what to do. The Ponseti method sounds good, does anyone know of any doctors in Puerto Rico who practice it? When the obstetrician discovered it he had us do an amneosentisis to discard other chromosone problems, he said all the other bones and formations look fine. What are the chances that clubfoot is an inicator of a more severe problem? Help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Hi! I also found out thru sonogram about my baby's clubfeet. I live in the Philippines where medical facilities aren't that great either, but there are usually specialists in larger hospitals that have trained in the US. Since the hospital I'm going to give birth in doesn't have one, my plan is to bring the baby for outpatient treatment under his foot doctor when he's two weeks old. From what I know, delaying casting by a few days doesn't really matter. (One way of contacting a specialist... does your country have a national orthopedic association or something similar to a " club " of doctors who specialize in orthopedics? perhaps you can ask your oby-gyn on how to contact that group -- these doctors know each other, so it's just a matter of her referring you to an orthopedic surgeon who can give you the number of the association he belongs to. Then you can ask for a listing of doctors. Or you can call the bigger hospitals and ask for a list of all their orthopedic doctors.) As for chromosomal abnormalties, there are very few sydnromes associated with CF. The most severe, (or is it 's?) syndrome, is usually associated with heart defects, harelips and spina bifida, which the doctor would've caught in the ultrasound where you saw the club feet. I know it's hard not to worry but in all likelihood the amniocentesis is just a precaution. dedet arreissuil arreissuil@...> wrote: I just found out through sonogram that my little girl has clubfoot (both feet). I am very scared and living in Puerto Rico where sometimes the medical treatment for unique problems is limited, I don't know what to do. The Ponseti method sounds good, does anyone know of any doctors in Puerto Rico who practice it? When the obstetrician discovered it he had us do an amneosentisis to discard other chromosone problems, he said all the other bones and formations look fine. What are the chances that clubfoot is an inicator of a more severe problem? Help! Quote Link to comment Share on other sites More sharing options...
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