Re: Re: To Those who have VEDS

[Guest guest]

Helen

Thanks you so much for your thoughts & prayers.

Betty

Re: To Those who have VEDS

> Hi, this is Helen C, from Adelaide, South Oz. My heart goes out to you

and

> your children, Beth and Betty. Especially you Betty with your 17yr old

son.

> (Hope I have the right people!) I have Type III and have often wondered

what

> it would be like to know you have VEDS and what to do about your children.

My

> prayers, good thoughts and best wishes go out to you. I would not like to

be

> in your position. I have had enough problems just with Type III and it is

not

> life threatening as VEDS is and I don't compare my type at all with VEDS.

> I live in Adelaide, South Australia and there are no doctors at all who

> know anything or want to find out anything about EDS. We were only

officially

> diagnosed about 3 yrs ago, by that time my now 21 yr old had done ballet

and

> about 3-4 years of rythmicgymnastics and of course was very good!!! At 20

she

> was having bad back pain and fatigue and is not happy at all to know she

has

> EDS. My now 17 yr old was doing vaulting on horseback and I would cringe

every

> time she did anything and especially when she jumped off. Fortunately

(not

> meaning to sound happy about it but) she ended up with very bad ankles and

had

> prolotherapy which is very painful for us EDSers, she is ok at the moment

and

> she decided herself not to continue. She continues to look after a horse

for

> someone and rides but she knows she has to be careful. One doctor I

asked, " What

> should or shouldn't they do? " and he said, " Let them do what they like! "

As a

> person who did not know about EDS until recently I believe the jobs I

> undertook when younger very much possibly made me much worse today than

perhaps I

> would be and I don't want my children to be going through what I am at my

age of

> 50. I was a nurse back in the seventies, lifting 6' stroke patients by

myself

> and I am only 4' 9 1/2 " and before that I was a caterer lifting huge pots

and

> pans etc. I did the Cordon Bleu Cooking Course in London and we had to

whisk

> meringues and do many other things by hand. Ever tried whisking meringue

by

> hand!? By the time I was about 45 I couldn't even wipe my sink down

because of

> the pain. Fortunately prolotherapy has help me tremendously. So I guess

it

> is relatively easy for us Type III's to tell out children but I realise it

> must be so difficult for you two. My heart goes out to you both and

anyone else

> in the same situation and all I can say is that I am thinking of and

praying

> for you both and to let your heart tell you what to do. Hang in there. I

hope

> you have a lot of support around you.

>

> Gentle Hugs

> Helen C

> South Oz

>

>

>

[Guest guest]

Helen C,

Thanks for your thoughts and encouragement. I know I am fairly quiet on the

list. I don't often say much, but I guess I feel out of place at times as I

don't actually have EDS, although my life is definitely affected and has

been altered and changed forever by it. I am fortunate in that I do have a

lot of support from my family and have had always.

Take care.

Beth

Re: To Those who have VEDS

> Hi, this is Helen C, from Adelaide, South Oz. My heart goes out to you

and

> your children, Beth and Betty.

[Guest guest]

Helen C,

Thanks for your thoughts and encouragement. I know I am fairly quiet on the

list. I don't often say much, but I guess I feel out of place at times as I

don't actually have EDS, although my life is definitely affected and has

been altered and changed forever by it. I am fortunate in that I do have a

lot of support from my family and have had always.

Take care.

Beth

Re: To Those who have VEDS

> Hi, this is Helen C, from Adelaide, South Oz. My heart goes out to you

and

> your children, Beth and Betty.

[Guest guest]

Helen C,

Thanks for your thoughts and encouragement. I know I am fairly quiet on the

list. I don't often say much, but I guess I feel out of place at times as I

don't actually have EDS, although my life is definitely affected and has

been altered and changed forever by it. I am fortunate in that I do have a

lot of support from my family and have had always.

Take care.

Beth

Re: To Those who have VEDS

> Hi, this is Helen C, from Adelaide, South Oz. My heart goes out to you

and

> your children, Beth and Betty.