Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Wow! Its been a long time since I have been here, way to long. I am hoping that , and both Theresa's and others may remember me and Kavan's story. For those of you who don't, here is a brief synopsis: My name is Tina Byrd, I am the mother of eight wonderful kids: Kassandra (13) Kameron (11) Korbin ( 9) Kristianna( 8) Kataryna and KAVAN (3 y.o. b/g twins) Kaleb ( 2) Konnor (13 mos.) *My husband, kids and I live in Muncie, IN, very near the campus of Ball State University and approx. one hour north of Indianapolis, IN. Our twin son Kavan was born with bilateral clubfoot on 6-25-00. We initially sought tx from a local orthopod who believed in the 'Kite' method and unsuccessfully manipulated and casted our son for over six weeks with short leg casts. At the end of the time, I was frustrated and discouraged and found Dr. Ponseti ( a long story). The next week we were off to Iowa! Kavan was successfully treated and was an 'example baby' for over 30 orthopods from all around the country when he had his tenotomy. We fell deeply in love and grateful to Dr. Ponseti and continued to stay in touch with him and his wife. Kavan's big claim to fame is that he on the UPPER, RIGHT corner of the Ponseti Quilt that adorns the ortho clinic at the U of I hospital! I was able to start a local support group of sorts and helped four others from our area avoid the same fate we had encountered and even had the pleasure of personally taking two of them to Iowa! AFter a rough couple of years and two more babies after the twins, I drifted away from being online (mostly due to time constraints of being a stay at home momma of 8 active blessings under age 13!) and therefore lost contact with all of my old friends at this site, I am just hoping you will remember me! We unfortunately experienced a setback and last week made our first trek back to Iowa in almost 2 years. Kavan had regressed and is back in casts at 3 1/2 years. OUr local orthopod felt that he was ready to come out of the bar at 32 months of age, and due to the craziness of our life at that time, I did NOT make the trip to Iowa that I should of and went with the local opinion, instead of PAPA PONSETI that I only trusted previous to that. Kavan went into a HUGE growth spurt at that time as well, and Dr. Ponseti feels that surely had a lot to do with the regression. Although he did RIGHTLY chastise me for my poor decision regarding the bar...I so feel like I let my precious son and Dr. P. down. IN any event, I used to be a huge part of this site and would like to be again! I accidentally registered for the wrong site when trying to join last week, so both Theresa's please disregard the repeat info and thanks so much for your posts! I did not get the post until after Iowa trip however, and that is why I did not respond to you (Jakob's momma.. btw, congrats on baby #2 on the way!) are you still around? I remember my sweet friend with baby Eisabella, although her momma's name has left me (stinks to be memory challenged at 37!), can anyone help me there? My email is: kbyrd915@... and I would love to hear from my old friends and look forward to getting to know all the rest of you! Thanks and it is good to be back! Tina and Kavan Josiah (born: 6-25-00, bilateral cf) Quote Link to comment Share on other sites More sharing options...
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