New to the Group

[Guest guest]

In a message dated 4/27/2006 8:14:47 A.M. Eastern Daylight Time,

Barbara.T.Mellert@... writes:

A conductive loss means there are problems with the front part of the ear

canal - the

little bones (hammer, anvil, stirrup), etc. I'm nearly sure that a

conductive loss usually isn't as severe and can sometimes be corrected

with surgery - others will correct me if I'm wrong! :-)

Our Ian has a conductive loss. And from what we've been told by many world

-class doctors, a purely conductive loss usually gets no more severe than 60-70

dbs and many of the issues associated with it can indeed be addressed with

surgery. But what Fiona described does not sound to me like a middle ear

issue. Simply the level of loss indicates to me that it is more. The problem

with a BAHA implant for someone with nerve damage (SNL) is that there is nothing

to receive the vibrations. A conductive loss involves those little vibrating

bones, not the nerves and a BAHA bypasses them. So, I doubt that is an

option .... however, that doesn't mean I'm right. If it's even a possibility

that

you're considering, then I'd find doctors who know about BAHAs.

Our doctors at Columbia Presbyterian are specialists in middle ear issues.

If you're anywhere near NYC and want to contact them, please do. Dr.s Keller

and Haddad are wonderful doctors. Informed and compassionate, they don't talk

down to you and are really really good.

Best -- Jill

[Guest guest]

Thanks to all for the warm welcome and useful suggestions! I will look for

the book by Carol Flexer that was suggested. I was surprised to hear about

hearing aid options for people with unilateral hearing loss. The ENT surgeon

who did the ear part of my daughter’s surgery told us that nothing would

help and that, from his perspective, we should just focus on preserving the

hearing in the other ear. It’s nice to know that there might well be options

to look into if she finds that her learning is suffering.

By the way, what does SNL stand for?

Thanks again,

Fiona.

_____

From: Listen-Up [mailto:Listen-Up ] On Behalf

Of EskiLvr

Sent: Wednesday, April 26, 2006 7:58 PM

To: Listen-Up

Subject: RE: Re: new to the group

Hello, Fiona!

Cheryl wrote:

>>In addition to the BAHA, there is also a new type of hearing aid

called a Transear, specifically made for people with unilateral

losses. Your daughter might want to consider that too. I am looking

into it for myself and/or my daughter, who inherited the same loss I

have. I called the audi yesterday but haven't heard back from her. <<

Cheryl, you beat me to it! :-)

My son has a complete nerve loss in his left ear, cause unknown (he’s

7 ½). My other son’s godfather lost his hearing in his right ear at the age

of 6 due to meningitis, and I actually met him in college – so I have

indirect classroom experience at both the elementary and post-secondary

levels with unilateral hearing loss. :-)

The company that developed the TransEar is in the process of switching

manufacturers of the unit, so getting new ones made has been a bit delayed.

is the second in line to be fitted for one, and we should hear

something in the next 10 days (we have to make sure that his ear is big

enough to support the TransEar oscillator). The website for the TransEar is

www.transear.com <http://www.transear.com/> .

As far as school/college: my friend would ask his professors to provide

copies of any outlines that they put up on the overheads, especially in

bigger classes. We went to a Jesuit university here in Omaha that usually

had small classes (no more than 20 people once you got to higher level

classes – and anything over 75 was really pretty rare). For the

bigger-sized classes, we would usually share notes anyway. One thing I

would suggest is that you buy your daughter a recorder and have her work

with her professors to have them place the recorder close to their lecturing

post during class – that way she can always listen to the lecture again

later (heck - *I* would have loved to have done that in my higher level poli

sci courses ). You could also look into the EduLink FM System by Phonak –

it’s an FM system that was designed for kids with ADD, and doesn’t block the

ear canal of the “good” ear (a common problem in FM systems for wearers who

need to be mobile and who don’t have an existing hearing aid that can be

modified to carry an FM receiver). got his for school about 6 weeks

ago, and after the initial adjustment period, he’s found that it makes a

world of difference for him.

Good luck to you (and nice to meet you!),

Kris

Mom to (7 y.o., Profound/Complete SNL, Left Ear) and Ethan (6 y.o.,

hearing)

[Guest guest]

Hi Fiona - SNL (sometimes you'll see it as SNHL) is sensori-neural

hearing loss. There are generally two types of hearing loss - SNL and

conductive - although you can also have both. , who's an audiology

student and mom in GA, I'm sure can explain this better than me! SNL

means there's a problem with the cochlea which is the seashell part of

the inner ear. My boys both have SNL - we believe there's a problem with

the hair cells in the cochlea. Folks with SNL usually have a more severe

loss (my boys' losses are profound and severe/profound). A conductive

loss means there are problems with the front part of the ear canal - the

little bones (hammer, anvil, stirrup), etc. I'm nearly sure that a

conductive loss usually isn't as severe and can sometimes be corrected

with surgery - others will correct me if I'm wrong! :-)

I'm glad you found us!

Take care

Barbara

Fiona Penman wrote:

> Thanks to all for the warm welcome and useful suggestions! I will look for

> the book by Carol Flexer that was suggested. I was surprised to hear about

> hearing aid options for people with unilateral hearing loss. The ENT surgeon

> who did the ear part of my daughter’s surgery told us that nothing would

> help and that, from his perspective, we should just focus on preserving the

> hearing in the other ear. It’s nice to know that there might well be options

> to look into if she finds that her learning is suffering.

>

> By the way, what does SNL stand for?

>

> Thanks again,

>

> Fiona.

>

>

[Guest guest]

>

> Thanks to all for the warm welcome and useful suggestions! I will

look for

> the book by Carol Flexer that was suggested. I was surprised to hear

about

> hearing aid options for people with unilateral hearing loss. The ENT

surgeon

> who did the ear part of my daughter's surgery told us that nothing would

> help and that, from his perspective, we should just focus on

preserving the

> hearing in the other ear. It's nice to know that there might well be

options

> to look into if she finds that her learning is suffering.

>

> By the way, what does SNL stand for?

>

> Thanks again,

>

> Fiona.

>

>

>

> _____

I think they just came out with the Transear in the US in December.

It may not work for every type of unilateral loss. I'm getting the

Carol Flexor book thru interlibrary loan before I go out and buy it.

It's expensive and I want to make sure I'm really going to find it

useful before I buy it.

Cheryl

[Guest guest]

>

> Thanks to all for the warm welcome and useful suggestions! I will

look for

> the book by Carol Flexer that was suggested. I was surprised to hear

about

> hearing aid options for people with unilateral hearing loss. The ENT

surgeon

> who did the ear part of my daughter's surgery told us that nothing would

> help and that, from his perspective, we should just focus on

preserving the

> hearing in the other ear. It's nice to know that there might well be

options

> to look into if she finds that her learning is suffering.

>

> By the way, what does SNL stand for?

>

> Thanks again,

>

> Fiona.

>

>

>

> _____

I think they just came out with the Transear in the US in December.

It may not work for every type of unilateral loss. I'm getting the

Carol Flexor book thru interlibrary loan before I go out and buy it.

It's expensive and I want to make sure I'm really going to find it

useful before I buy it.

Cheryl

[Guest guest]

Fiona:

For what it's worth, it sounds like the majority of ENTs don't recognize

that there are options to address profound unilateral loss. I believe that

the BAHA was only approved by the FDA for use in this manner (to assist

people with unilateral loss *and* an intact outer ear structure) in 2002 or

so, and the TransEar only got approved last July. My son's otologist is a

leading specialist in our region, and his staff had only heard rumblings

about the TransEar unit - I happened to stumble on it when I was doing a

search on the web, and asked about it. That's how the ball got rolling for

us.

As far as SNL - Barbara's answer was so much better than what I would have

said. ;-) 's loss is definitely due to inner ear nerve damage -

testing showed that the nerves in his left ear are completely unresponsive,

resulting in what is also referred to as a " dead ear. " His left ear is

beautifully formed, but for all intents and purposes, it's a very handy

holder for his glasses.

(Well, when he hasn't managed to break the " unbreakable " frames, that is.)

Hugs to you,

Kris

Mom to (7 y.o., Complete/Profound SNL, Left Ear) and Ethan (6 y.o.,

hearing)

_____

From: Listen-Up [mailto:Listen-Up ] On Behalf

Of Fiona Penman

Sent: Thursday, April 27, 2006 7:03 AM

To: Listen-Up

Subject: RE: Re: new to the group

Thanks to all for the warm welcome and useful suggestions! I will look for

the book by Carol Flexer that was suggested. I was surprised to hear about

hearing aid options for people with unilateral hearing loss. The ENT surgeon

who did the ear part of my daughter's surgery told us that nothing would

help and that, from his perspective, we should just focus on preserving the

hearing in the other ear. It's nice to know that there might well be options

to look into if she finds that her learning is suffering.

By the way, what does SNL stand for?

Thanks again,

Fiona.

[Guest guest]

Fiona:

For what it's worth, it sounds like the majority of ENTs don't recognize

that there are options to address profound unilateral loss. I believe that

the BAHA was only approved by the FDA for use in this manner (to assist

people with unilateral loss *and* an intact outer ear structure) in 2002 or

so, and the TransEar only got approved last July. My son's otologist is a

leading specialist in our region, and his staff had only heard rumblings

about the TransEar unit - I happened to stumble on it when I was doing a

search on the web, and asked about it. That's how the ball got rolling for

us.

As far as SNL - Barbara's answer was so much better than what I would have

said. ;-) 's loss is definitely due to inner ear nerve damage -

testing showed that the nerves in his left ear are completely unresponsive,

resulting in what is also referred to as a " dead ear. " His left ear is

beautifully formed, but for all intents and purposes, it's a very handy

holder for his glasses.

(Well, when he hasn't managed to break the " unbreakable " frames, that is.)

Hugs to you,

Kris

Mom to (7 y.o., Complete/Profound SNL, Left Ear) and Ethan (6 y.o.,

hearing)

_____

From: Listen-Up [mailto:Listen-Up ] On Behalf

Of Fiona Penman

Sent: Thursday, April 27, 2006 7:03 AM

To: Listen-Up

Subject: RE: Re: new to the group

Thanks to all for the warm welcome and useful suggestions! I will look for

the book by Carol Flexer that was suggested. I was surprised to hear about

hearing aid options for people with unilateral hearing loss. The ENT surgeon

who did the ear part of my daughter's surgery told us that nothing would

help and that, from his perspective, we should just focus on preserving the

hearing in the other ear. It's nice to know that there might well be options

to look into if she finds that her learning is suffering.

By the way, what does SNL stand for?

Thanks again,

Fiona.

[Guest guest]

I only heard about the Transear because of Kris :-) The ENT and audi

have not responded yet to my messages, so perhaps they need to

" google " it for themselves. :-)

Cheryl

[Guest guest]

I only heard about the Transear because of Kris :-) The ENT and audi

have not responded yet to my messages, so perhaps they need to

" google " it for themselves. :-)

Cheryl

[Guest guest]

Just wanted to let you know that I'm NOT an audiology student, just a mom who

wishes she were an audiology student! (I really am an RN though working on a

masters in public health) Another mom, Angie is an audiology student in Kansas.

I think Fiona's daughter may have true neural hearing loss because with an

acoustic neuroma, the acoustic nerve is often removed as this is where the

tumor (acoustic neuroma) is located. So I'm not sure if bone conduction would

help, since the outer, middle and inner ear are all normal but the nerve has

been cut. Perhaps one of the bicros systems that would take info from the deaf

side and send it to the hearing aid on the " good side " might be of some use.

in GA

Re: Re: new to the group

>

>Hi Fiona - SNL (sometimes you'll see it as SNHL) is sensori-neural

>hearing loss. There are generally two types of hearing loss - SNL and

>conductive - although you can also have both. , who's an audiology

>student and mom in GA, I'm sure can explain this better than me! SNL

>means there's a problem with the cochlea which is the seashell part of

>the inner ear. My boys both have SNL - we believe there's a problem with

>the hair cells in the cochlea. Folks with SNL usually have a more severe

>loss (my boys' losses are profound and severe/profound). A conductive

>loss means there are problems with the front part of the ear canal - the

>little bones (hammer, anvil, stirrup), etc. I'm nearly sure that a

>conductive loss usually isn't as severe and can sometimes be corrected

>with surgery - others will correct me if I'm wrong! :-)

>

>I'm glad you found us!

>

>Take care

>Barbara

>

>Fiona Penman wrote:

>> Thanks to all for the warm welcome and useful suggestions! I will look for

>> the book by Carol Flexer that was suggested. I was surprised to hear about

>> hearing aid options for people with unilateral hearing loss. The ENT surgeon

>> who did the ear part of my daughter?s surgery told us that nothing would

>> help and that, from his perspective, we should just focus on preserving the

>> hearing in the other ear. It?s nice to know that there might well be options

>> to look into if she finds that her learning is suffering.

>>

>> By the way, what does SNL stand for?

>>

>> Thanks again,

>>

>> Fiona.

>>

>>

>

>

>

>

>All messages posted to this list are private and confidential. Each post is

the intellectual property of the author and therefore subject to copyright

restrictions.

>

[Guest guest]

You're right, , the neurosurgeon explained that when the tumor uses

the same blood supply as the acoustic nerve, total removal of the tumor will

result in destruction of the nerve. It wasn't a total surprise as we knew

prior to surgery that she had a 50/50 chance of hearing loss. But thanks for

the info anyway.

Fiona.

_____

From: Listen-Up [mailto:Listen-Up ] On Behalf

Of pcknott@...

Sent: Thursday, April 27, 2006 10:03 AM

To: Listen-Up

Subject: Re: Re: new to the group

Just wanted to let you know that I'm NOT an audiology student, just a mom

who wishes she were an audiology student! (I really am an RN though working

on a masters in public health) Another mom, Angie is an audiology student

in Kansas. I think Fiona's daughter may have true neural hearing loss

because with an acoustic neuroma, the acoustic nerve is often removed as

this is where the tumor (acoustic neuroma) is located. So I'm not sure if

bone conduction would help, since the outer, middle and inner ear are all

normal but the nerve has been cut. Perhaps one of the bicros systems that

would take info from the deaf side and send it to the hearing aid on the

" good side " might be of some use. in GA

Re: Re: new to the group

>

>Hi Fiona - SNL (sometimes you'll see it as SNHL) is sensori-neural

>hearing loss. There are generally two types of hearing loss - SNL and

>conductive - although you can also have both. , who's an audiology

>student and mom in GA, I'm sure can explain this better than me! SNL

>means there's a problem with the cochlea which is the seashell part of

>the inner ear. My boys both have SNL - we believe there's a problem with

>the hair cells in the cochlea. Folks with SNL usually have a more severe

>loss (my boys' losses are profound and severe/profound). A conductive

>loss means there are problems with the front part of the ear canal - the

>little bones (hammer, anvil, stirrup), etc. I'm nearly sure that a

>conductive loss usually isn't as severe and can sometimes be corrected

>with surgery - others will correct me if I'm wrong! :-)

>

>I'm glad you found us!

>

>Take care

>Barbara

>

>Fiona Penman wrote:

>> Thanks to all for the warm welcome and useful suggestions! I will look

for

>> the book by Carol Flexer that was suggested. I was surprised to hear

about

>> hearing aid options for people with unilateral hearing loss. The ENT

surgeon

>> who did the ear part of my daughter?s surgery told us that nothing would

>> help and that, from his perspective, we should just focus on preserving

the

>> hearing in the other ear. It?s nice to know that there might well be

options

>> to look into if she finds that her learning is suffering.

>>

>> By the way, what does SNL stand for?

>>

>> Thanks again,

>>

>> Fiona.

>>

>>

>

>

>

>

>All messages posted to this list are private and confidential. Each post

is the intellectual property of the author and therefore subject to

copyright restrictions.

>

[Guest guest]

You're right, , the neurosurgeon explained that when the tumor uses

the same blood supply as the acoustic nerve, total removal of the tumor will

result in destruction of the nerve. It wasn't a total surprise as we knew

prior to surgery that she had a 50/50 chance of hearing loss. But thanks for

the info anyway.

Fiona.

_____

From: Listen-Up [mailto:Listen-Up ] On Behalf

Of pcknott@...

Sent: Thursday, April 27, 2006 10:03 AM

To: Listen-Up

Subject: Re: Re: new to the group

Just wanted to let you know that I'm NOT an audiology student, just a mom

who wishes she were an audiology student! (I really am an RN though working

on a masters in public health) Another mom, Angie is an audiology student

in Kansas. I think Fiona's daughter may have true neural hearing loss

because with an acoustic neuroma, the acoustic nerve is often removed as

this is where the tumor (acoustic neuroma) is located. So I'm not sure if

bone conduction would help, since the outer, middle and inner ear are all

normal but the nerve has been cut. Perhaps one of the bicros systems that

would take info from the deaf side and send it to the hearing aid on the

" good side " might be of some use. in GA

Re: Re: new to the group

>

>Hi Fiona - SNL (sometimes you'll see it as SNHL) is sensori-neural

>hearing loss. There are generally two types of hearing loss - SNL and

>conductive - although you can also have both. , who's an audiology

>student and mom in GA, I'm sure can explain this better than me! SNL

>means there's a problem with the cochlea which is the seashell part of

>the inner ear. My boys both have SNL - we believe there's a problem with

>the hair cells in the cochlea. Folks with SNL usually have a more severe

>loss (my boys' losses are profound and severe/profound). A conductive

>loss means there are problems with the front part of the ear canal - the

>little bones (hammer, anvil, stirrup), etc. I'm nearly sure that a

>conductive loss usually isn't as severe and can sometimes be corrected

>with surgery - others will correct me if I'm wrong! :-)

>

>I'm glad you found us!

>

>Take care

>Barbara

>

>Fiona Penman wrote:

>> Thanks to all for the warm welcome and useful suggestions! I will look

for

>> the book by Carol Flexer that was suggested. I was surprised to hear

about

>> hearing aid options for people with unilateral hearing loss. The ENT

surgeon

>> who did the ear part of my daughter?s surgery told us that nothing would

>> help and that, from his perspective, we should just focus on preserving

the

>> hearing in the other ear. It?s nice to know that there might well be

options

>> to look into if she finds that her learning is suffering.

>>

>> By the way, what does SNL stand for?

>>

>> Thanks again,

>>

>> Fiona.

>>

>>

>

>

>

>

>All messages posted to this list are private and confidential. Each post

is the intellectual property of the author and therefore subject to

copyright restrictions.

>

[Guest guest]

,

Glad you insisted on the biopsy. You have a great attitude. Keep it up.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

New to the group

Hello everyone--

I recently joined this group and I wanted to tell you a little about

myself. I'm a 41-year-old single mother of two school-aged

daughters who also helps take care of my father who is in the last

stage of Parkinson's. April 24th of this year I was diagnosed with

Stage I infiltrating ductile carcinoma. Since that time, I have had

a mastectomy, 4 rounds of chemo, a prophylactic mastectomy, and have

begun reconstruction.

I was told in early April that I had a BI-RADS 3 lump (10% chance

that it was cancer). Normal protocol for that, I was told, was to

come back in 6 months. I kept thinking that someone has to be in

the 10% and it could be me. I refused and asked for a biopsy at

that time. It was malignant. I am so thankful that I listened to

that voice saying it could be me. What I have already gone through,

quite possibly, could have just been the beginning. Instead, I'll

be finished with my reconstruction and I'll have my hair back by the

end of the year.

I'm looking forward to 2007. Although, as I have said before, I'll

never be the same again. In many ways, that is a good thing. I

look at life as so absolutely awesome now. I don't take any of it

for granted. The sunsets, trees, flowers, breeze, and most of all,

my daughters are more precious and beautiful than ever before.

I'm looking forward to participating in this group. Take care of

yourselves--

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[Guest guest]

Hi ,

Thanks so much for this info! You've put my mind somewhat at ease!

I have my annual mammo on 10/16 and I have also made an appointment with a

specialist for 11/10. I'll send an update after my appointment!

wrote:

Hi Margaret and all the new-comers,

Is something in the water or what? How come so many women are dealing

with breast cancer or the possibility? Please know that if you are

dealing with this, you have come to the right place. There is so much

knowledge and support in this group.

Margaret, microcalcifications in and of themselves are not cancerous.

The radiologist bases his/her diagnosis for further testing based on the

pattern of the microcalcifications.

That said, and given your history, I would push for a needle biopsy. It

can be done by the radiologist in the office with local anesthesia.

Medical personnel can give their opinions, but sometimes you have to go

with your gut.

take care & keep us updated,

The Mayo Clinc web site has this info:

Breast calcifications are tiny calcium deposits within the breast tissue

that appear as white spots on a mammogram. Breast calcifications are

common. Many women have at least one calcification that can be seen on a

mammogram. Although breast calcifications are usually noncancerous

(benign), certain patterns of calcifications — such as tight clusters

with irregular shapes — may indicate breast cancer.

The two main types of breast calcifications are:

Macrocalcifications. They appear as large white dots or dashes on a

mammogram. Macrocalcifications are almost always noncancerous and

require no further follow-up.

Microcalcifications. They appear as very fine white specks on a

mammogram. Microcalcifications are usually noncancerous but can

sometimes be a sign of cancer. The radiologist will look at the size,

shape and pattern of the microcalcifications. If they appear suspicious,

additional mammograms and a biopsy may be needed.

Noncancerous causes of breast calcifications include:

Calcium within the fluid of a noncancerous cyst (milk of calcium)

Calcifications associated with a dilated milk duct

Previous injury to the breast (post-traumatic fat necrosis calcification)

Inflammation due to infection (mastitis)

Skin (dermal) calcifications such as caused by dermatitis or residue

from metallic particles in powders, ointments and deodorants

Radiation therapy for breast cancer

Calcification of the arteries (vascular calcifications)

Calcifications in a fibroadenoma, a noncancerous growth

" Eventually all the pieces will fall into place; until then, laugh at the

confusion, live for the moment, and know that everything happens for a reason. "

[Guest guest]

Very well said nne!~

I have no ideal why I am still around, only by the grace of the all mighty!~

he has other plans for me. I admit to not changing my eating habits,

drinking, smoking habits. Yes I still smoke. Don't judge me. I made my bed

and I will lie in it. I have tried many times to kick the habit but its a

drug and I am addicted. Just like some are abdicated to alcohol. I am stage

4. No cure, just control. I live life to its fullest the best I can. Don't

matter how you live your life, you could go to sleep tonight and not wake up

Sorry just had to put my two cents in.

Hugs and prayers

Carol from n. Michigan

-- Re: Re: New to the group

First of all you CANNOT take all supplements if you are getting chemo. Some

interact and cause problems. I know St Johs Wort is one of them.

Oncs and their nurses spend YEARS going to school to because knowledgeable

about treating patients. My onc told me to eat healthy.

It is not true that everyone gets sick from chemo. I personally did not and

neither did a lot of other ladies.

I really feel you are going to scare the new ladies half to death with

comments like

after that your body is dying inside, literally and

Thinking positively is good but it won't save

your life and either will prayer, I have seen too many people die in

lieu of these things. and

have to be an active participant in your own cause, do not leave it

up the the doctors or God

I totally disagree that prayer and positive thinking will not help to cure

you. Prayer is one of the most powerful things there are and there have been

miracles. If it wern't for God and my docs and the many people that have and

continued to pray for me, I would not be here.

I had 3 freinds ALL with better diagnosis than mine that went to a supposed

miracle cure and all 3 died within a year leaving 9 childern between them.

Ladies, there are NO miracle cures out there.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

Re: New to the group

Barbara, what kind of chemo are you receiving? I did AC and Taxol.

Had a hard time with AC. my friend who was going through it too had

an easy time. She was really overwieght and I am skinny so I don't

know, maybe this had something to do with it!!?? My advice is to

eat very well ,that means organic foods, see a naturopathic doctor

for real health advice, the chemo doctors and nurses know absolutley

nothing about actual health, they will tell you to eat whatever.

This advice should not be followed. Stay away from processed foods,

sugar, salt, any animal products, dairy ets... Food is your biggest

medicinal arsenal right now. Make sure you try to excersize if you

can just walk, that's great. Drink buckets of water every day.

Take the most expensive and best immune supplements possible, take

saunas 3 days after the chemo if you are to recieve injections to

quicker detox the crap from you body. the 2nd or 3rd day after

chemo you can start detoxing the crap from your cells. This is when

you start to feel the effects. Then it gets worse, like the 4th 5th

6th and 7th days are harsh. Usually the 3, 4 5 are the worst, and

they make other days seem easy, but it is all perspective. The work

the chemo does in killing the fast reproducing cells is done in the

first 24-48 hours, after that your body is dying inside, literally,

so it's important to get that crap OUT of your system ASAP. That is

why we feel so bad.

Chemo is poison. You oncologist knows this they just don't want to

scare you. Look up the Gerson Therapy and other related non toxic

cancer fighting therapies. It's all at your finger tips. If you

want to take a personal interest in your own life, especially at

stage 3 it's time to get serious, do the research. These therapies

have saved terminal cancer patients. Terminal. they work.

Integrating is a good idea if you have already gone for the chemo.

It (chemo)sits in your tissues and bones for a long time after you

finish and the effects can last years, if you live, so it's

important to know what you're dealing with and be prepared. The

optimum health institute in San diego is a great place also read

anything by Dr. Weil. Thinking positively is good but it won't save

your life and either will prayer, I have seen too many people die in

lieu of these things. I am a firm believer in personal action. You

have to be an active participant in your own cause, do not leave it

up the the doctors or God. Chemo speeds up the death process for a

lot of people. Be educated so you know when you need to make the

right decisions about your own life. You will be empowered and have

control where you feel there is no control. You can do it but you

have to want to. Good luck and big hugs!! K

> >

> > I just wanted to take a moment to introduce myself. My name is

> > Barbara, I am 36, married to a wonderful man and the mother of 3

> > beautiful children. 2 days ago I was diagnosed with stage 3

breast

> > cancer and i am to start chemo in 2 days. Does anyone have any

> > advice? I am a very upbeat happy person and i know that myself,

my

> > husband and my children can handle this as we have been through

> tough

> > things before and we see more to come. I guess the only

questions i

> > have is what should i expect to happen with chemo?

> > Thanks for any replies.

> > Hugs & have a wonderful weekend

> > Barbara

> >

> hi i am 51 years old and was diagnosed with breast cancer.ihad a

> mastectomy in Aug and my hormone receptors were negative.So i dont

> have to have any chemo or radiation.iam pondering reconstruction

> surgery so if any one has had it i would like to hear from them.

>

----------------------------------------------------------

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[Guest guest]

Very well said nne!~

I have no ideal why I am still around, only by the grace of the all mighty!~

he has other plans for me. I admit to not changing my eating habits,

drinking, smoking habits. Yes I still smoke. Don't judge me. I made my bed

and I will lie in it. I have tried many times to kick the habit but its a

drug and I am addicted. Just like some are abdicated to alcohol. I am stage

4. No cure, just control. I live life to its fullest the best I can. Don't

matter how you live your life, you could go to sleep tonight and not wake up

Sorry just had to put my two cents in.

Hugs and prayers

Carol from n. Michigan

-- Re: Re: New to the group

First of all you CANNOT take all supplements if you are getting chemo. Some

interact and cause problems. I know St Johs Wort is one of them.

Oncs and their nurses spend YEARS going to school to because knowledgeable

about treating patients. My onc told me to eat healthy.

It is not true that everyone gets sick from chemo. I personally did not and

neither did a lot of other ladies.

I really feel you are going to scare the new ladies half to death with

comments like

after that your body is dying inside, literally and

Thinking positively is good but it won't save

your life and either will prayer, I have seen too many people die in

lieu of these things. and

have to be an active participant in your own cause, do not leave it

up the the doctors or God

I totally disagree that prayer and positive thinking will not help to cure

you. Prayer is one of the most powerful things there are and there have been

miracles. If it wern't for God and my docs and the many people that have and

continued to pray for me, I would not be here.

I had 3 freinds ALL with better diagnosis than mine that went to a supposed

miracle cure and all 3 died within a year leaving 9 childern between them.

Ladies, there are NO miracle cures out there.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

Re: New to the group

Barbara, what kind of chemo are you receiving? I did AC and Taxol.

Had a hard time with AC. my friend who was going through it too had

an easy time. She was really overwieght and I am skinny so I don't

know, maybe this had something to do with it!!?? My advice is to

eat very well ,that means organic foods, see a naturopathic doctor

for real health advice, the chemo doctors and nurses know absolutley

nothing about actual health, they will tell you to eat whatever.

This advice should not be followed. Stay away from processed foods,

sugar, salt, any animal products, dairy ets... Food is your biggest

medicinal arsenal right now. Make sure you try to excersize if you

can just walk, that's great. Drink buckets of water every day.

Take the most expensive and best immune supplements possible, take

saunas 3 days after the chemo if you are to recieve injections to

quicker detox the crap from you body. the 2nd or 3rd day after

chemo you can start detoxing the crap from your cells. This is when

you start to feel the effects. Then it gets worse, like the 4th 5th

6th and 7th days are harsh. Usually the 3, 4 5 are the worst, and

they make other days seem easy, but it is all perspective. The work

the chemo does in killing the fast reproducing cells is done in the

first 24-48 hours, after that your body is dying inside, literally,

so it's important to get that crap OUT of your system ASAP. That is

why we feel so bad.

Chemo is poison. You oncologist knows this they just don't want to

scare you. Look up the Gerson Therapy and other related non toxic

cancer fighting therapies. It's all at your finger tips. If you

want to take a personal interest in your own life, especially at

stage 3 it's time to get serious, do the research. These therapies

have saved terminal cancer patients. Terminal. they work.

Integrating is a good idea if you have already gone for the chemo.

It (chemo)sits in your tissues and bones for a long time after you

finish and the effects can last years, if you live, so it's

important to know what you're dealing with and be prepared. The

optimum health institute in San diego is a great place also read

anything by Dr. Weil. Thinking positively is good but it won't save

your life and either will prayer, I have seen too many people die in

lieu of these things. I am a firm believer in personal action. You

have to be an active participant in your own cause, do not leave it

up the the doctors or God. Chemo speeds up the death process for a

lot of people. Be educated so you know when you need to make the

right decisions about your own life. You will be empowered and have

control where you feel there is no control. You can do it but you

have to want to. Good luck and big hugs!! K

> >

> > I just wanted to take a moment to introduce myself. My name is

> > Barbara, I am 36, married to a wonderful man and the mother of 3

> > beautiful children. 2 days ago I was diagnosed with stage 3

breast

> > cancer and i am to start chemo in 2 days. Does anyone have any

> > advice? I am a very upbeat happy person and i know that myself,

my

> > husband and my children can handle this as we have been through

> tough

> > things before and we see more to come. I guess the only

questions i

> > have is what should i expect to happen with chemo?

> > Thanks for any replies.

> > Hugs & have a wonderful weekend

> > Barbara

> >

> hi i am 51 years old and was diagnosed with breast cancer.ihad a

> mastectomy in Aug and my hormone receptors were negative.So i dont

> have to have any chemo or radiation.iam pondering reconstruction

> surgery so if any one has had it i would like to hear from them.

>

----------------------------------------------------------

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Checked by AVG Free Edition.

Version: 7.1.407 / Virus Database: 268.12.13/463 - Release Date: 10/4/2006

[Guest guest]

Wow!!!

I joined this group to see what the response would be. I have to say that

having received 226 emails in 3 days I am blown away.

I am not a Breast Cancer patient. I am a 39 year old healthy mother of two

small children (aged 4 & 3). I work for Curves for Women, where this month for

Breast Cancer Awareness month my Manager & I dyed our hair bright pink & I will

be shaving my head on Halloween. I've so far raised over $2000 Canadian & I

hope to get to $3000 by the end of the month.

Next week we have organised a Breast Health workshop too in order to highlight

the importance of taking the time to do self examination & book regular

mammograms.

My maternal Grandmother died of Breast Cancer & I fit into six risk

categories. Raising money for the Canadian Breast Cancer Foundation has taken

on a new meaning for me since I read all your emails.

You are all incredibly brave, strong women & all I can say is that you are in

my prayers & I wish you all my love & hope.

Regards

Jackie

---------------------------------

All-new Yahoo! Mail - Fire up a more powerful email and get things done faster.

[Guest guest]

Also a 4 yr survivor. Operation in 2002 , then chemo 8 treatments and 1 month

of radiation ... Went on tamoxifin Dec 2002 to Oct 2003 and then arimidex...I

was getting alot of cramps in legs and swelling in my feet...also a little

weight gain.. Once in awhile I get a cramp in leg and not much swelling in

feet...On arimidex I have to take calcium because I have a slight bone

loss...Most of the time I feel ok...

Cat...

Note: forwarded message attached.

[Guest guest]

Jan,

Welcome to the group. We were all where you are now. Its scary, fear of the

unknown is the worst. Once you can get the biopsy results you will know where

you go from there. Breast cancer is NOT the death sentence it was once thought

to be.

I had my surgery May 24, 1990. I had infiltrating ductal carcinoma. A 2.5cm

mass. I had 23 nodes removed and one came back positive. I had 6 mo of chemo (12

treatments) no radiation or reconstruction. I was 44 at the time and will turn

61 shortly.

We have a sister group that is mostly Stage IV ladies and there are ladies in

there doing well under the circumstances. There is even one lady who has no

evidence of disease!

I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

New to the group

On October 18, 2006, I had a negative mammogram and ultrasound. The report

came back with possible breast carcinoma in both breasts. I have an appointment

with a specialist. The radiologist told me a biopsy was probably a certainty.

Since then I have been reading all the information that I can. I take one step

at a time and one day at a time. I covet all your prayers.

My husband is very supportive, which is a blessing indeed. This is new

territory for both of us. All the help and suggestions are appreciated. November

2, 2006 is my next appointment.

Take care and my prayers are with you, too.

Jan jkoelsch1950

Jan Koelsch

---------------------------------

All-new Yahoo! Mail - Fire up a more powerful email and get things done

faster.

[Guest guest]

Jan,

Welcome to the group. We were all where you are now. Its scary, fear of the

unknown is the worst. Once you can get the biopsy results you will know where

you go from there. Breast cancer is NOT the death sentence it was once thought

to be.

I had my surgery May 24, 1990. I had infiltrating ductal carcinoma. A 2.5cm

mass. I had 23 nodes removed and one came back positive. I had 6 mo of chemo (12

treatments) no radiation or reconstruction. I was 44 at the time and will turn

61 shortly.

We have a sister group that is mostly Stage IV ladies and there are ladies in

there doing well under the circumstances. There is even one lady who has no

evidence of disease!

I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

New to the group

On October 18, 2006, I had a negative mammogram and ultrasound. The report

came back with possible breast carcinoma in both breasts. I have an appointment

with a specialist. The radiologist told me a biopsy was probably a certainty.

Since then I have been reading all the information that I can. I take one step

at a time and one day at a time. I covet all your prayers.

My husband is very supportive, which is a blessing indeed. This is new

territory for both of us. All the help and suggestions are appreciated. November

2, 2006 is my next appointment.

Take care and my prayers are with you, too.

Jan jkoelsch1950

Jan Koelsch

---------------------------------

All-new Yahoo! Mail - Fire up a more powerful email and get things done

faster.

[Guest guest]

Jan,

Welcome to the group. We were all where you are now. Its scary, fear of the

unknown is the worst. Once you can get the biopsy results you will know where

you go from there. Breast cancer is NOT the death sentence it was once thought

to be.

I had my surgery May 24, 1990. I had infiltrating ductal carcinoma. A 2.5cm

mass. I had 23 nodes removed and one came back positive. I had 6 mo of chemo (12

treatments) no radiation or reconstruction. I was 44 at the time and will turn

61 shortly.

We have a sister group that is mostly Stage IV ladies and there are ladies in

there doing well under the circumstances. There is even one lady who has no

evidence of disease!

I will keep you in my prayers.

Hugs

nne

Breast Cancer Patients Soul Mates for Life

http://www.geocities.com/chucky5741/breastcancerpatients.html

BreastCancerStories.com

http://www.breastcancerstories.com/content/view/433/161/

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

Check out my other ornaments at

www.geocities.com/chucky5741/bcornament.html

Lots of info and gifts at:

www.cancerclub.com

New to the group

On October 18, 2006, I had a negative mammogram and ultrasound. The report

came back with possible breast carcinoma in both breasts. I have an appointment

with a specialist. The radiologist told me a biopsy was probably a certainty.

Since then I have been reading all the information that I can. I take one step

at a time and one day at a time. I covet all your prayers.

My husband is very supportive, which is a blessing indeed. This is new

territory for both of us. All the help and suggestions are appreciated. November

2, 2006 is my next appointment.

Take care and my prayers are with you, too.

Jan jkoelsch1950

Jan Koelsch

---------------------------------

All-new Yahoo! Mail - Fire up a more powerful email and get things done

faster.

[Guest guest]

Is it typical to receive resistance when asking for T3 only?

Aimee

>

> Hello and welcome

>

> >I will schedule an appt with the doc to ask for T3 only, but feel like I need

some study or something more official to explain to my doc that I really do have

a RT3 issue. Any thoughts?

>

> The holtorf link from the web site does talk about ratios I think.

> >

> >Should I totally drop my Naturethroid even before I start T3 only?

>

> I would sugges that you carry on taking it till you start T3.

>

> Nick

>

> --

>

> for more information on RT3 and Thyroid Resistance go to

>

> www.thyroid-rt3.com

>

[Guest guest]

Is it typical to receive resistance when asking for T3 only?

Aimee

>

> Hello and welcome

>

> >I will schedule an appt with the doc to ask for T3 only, but feel like I need

some study or something more official to explain to my doc that I really do have

a RT3 issue. Any thoughts?

>

> The holtorf link from the web site does talk about ratios I think.

> >

> >Should I totally drop my Naturethroid even before I start T3 only?

>

> I would sugges that you carry on taking it till you start T3.

>

> Nick

>

> --

>

> for more information on RT3 and Thyroid Resistance go to

>

> www.thyroid-rt3.com

>

[Guest guest]

Is it typical to receive resistance when asking for T3 only?

Aimee

>

> Hello and welcome

>

> >I will schedule an appt with the doc to ask for T3 only, but feel like I need

some study or something more official to explain to my doc that I really do have

a RT3 issue. Any thoughts?

>

> The holtorf link from the web site does talk about ratios I think.

> >

> >Should I totally drop my Naturethroid even before I start T3 only?

>

> I would sugges that you carry on taking it till you start T3.

>

> Nick

>

> --

>

> for more information on RT3 and Thyroid Resistance go to

>

> www.thyroid-rt3.com

>

[Guest guest]

For doctors that believe in T4 only, yes. For more natural and better

informed doctors no.

--

http://nthadrenalsweb.org/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://faqhelp.webs.com/

http://health.groups.yahoo.com/group/RT3_T3/

http://www.thyroid-rt3.com/

http://groups.yahoo.com/group/HypoPets/

http://www.stopthethyroidmadness.com/