Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 In a message dated 4/27/2006 8:14:47 A.M. Eastern Daylight Time, Barbara.T.Mellert@... writes: A conductive loss means there are problems with the front part of the ear canal - the little bones (hammer, anvil, stirrup), etc. I'm nearly sure that a conductive loss usually isn't as severe and can sometimes be corrected with surgery - others will correct me if I'm wrong! :-) Our Ian has a conductive loss. And from what we've been told by many world -class doctors, a purely conductive loss usually gets no more severe than 60-70 dbs and many of the issues associated with it can indeed be addressed with surgery. But what Fiona described does not sound to me like a middle ear issue. Simply the level of loss indicates to me that it is more. The problem with a BAHA implant for someone with nerve damage (SNL) is that there is nothing to receive the vibrations. A conductive loss involves those little vibrating bones, not the nerves and a BAHA bypasses them. So, I doubt that is an option .... however, that doesn't mean I'm right. If it's even a possibility that you're considering, then I'd find doctors who know about BAHAs. Our doctors at Columbia Presbyterian are specialists in middle ear issues. If you're anywhere near NYC and want to contact them, please do. Dr.s Keller and Haddad are wonderful doctors. Informed and compassionate, they don't talk down to you and are really really good. Best -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Thanks to all for the warm welcome and useful suggestions! I will look for the book by Carol Flexer that was suggested. I was surprised to hear about hearing aid options for people with unilateral hearing loss. The ENT surgeon who did the ear part of my daughter’s surgery told us that nothing would help and that, from his perspective, we should just focus on preserving the hearing in the other ear. It’s nice to know that there might well be options to look into if she finds that her learning is suffering. By the way, what does SNL stand for? Thanks again, Fiona. _____ From: Listen-Up [mailto:Listen-Up ] On Behalf Of EskiLvr Sent: Wednesday, April 26, 2006 7:58 PM To: Listen-Up Subject: RE: Re: new to the group Hello, Fiona! Cheryl wrote: >>In addition to the BAHA, there is also a new type of hearing aid called a Transear, specifically made for people with unilateral losses. Your daughter might want to consider that too. I am looking into it for myself and/or my daughter, who inherited the same loss I have. I called the audi yesterday but haven't heard back from her. << Cheryl, you beat me to it! :-) My son has a complete nerve loss in his left ear, cause unknown (he’s 7 ½). My other son’s godfather lost his hearing in his right ear at the age of 6 due to meningitis, and I actually met him in college – so I have indirect classroom experience at both the elementary and post-secondary levels with unilateral hearing loss. :-) The company that developed the TransEar is in the process of switching manufacturers of the unit, so getting new ones made has been a bit delayed. is the second in line to be fitted for one, and we should hear something in the next 10 days (we have to make sure that his ear is big enough to support the TransEar oscillator). The website for the TransEar is www.transear.com <http://www.transear.com/> . As far as school/college: my friend would ask his professors to provide copies of any outlines that they put up on the overheads, especially in bigger classes. We went to a Jesuit university here in Omaha that usually had small classes (no more than 20 people once you got to higher level classes – and anything over 75 was really pretty rare). For the bigger-sized classes, we would usually share notes anyway. One thing I would suggest is that you buy your daughter a recorder and have her work with her professors to have them place the recorder close to their lecturing post during class – that way she can always listen to the lecture again later (heck - *I* would have loved to have done that in my higher level poli sci courses ). You could also look into the EduLink FM System by Phonak – it’s an FM system that was designed for kids with ADD, and doesn’t block the ear canal of the “good” ear (a common problem in FM systems for wearers who need to be mobile and who don’t have an existing hearing aid that can be modified to carry an FM receiver). got his for school about 6 weeks ago, and after the initial adjustment period, he’s found that it makes a world of difference for him. Good luck to you (and nice to meet you!), Kris Mom to (7 y.o., Profound/Complete SNL, Left Ear) and Ethan (6 y.o., hearing) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Hi Fiona - SNL (sometimes you'll see it as SNHL) is sensori-neural hearing loss. There are generally two types of hearing loss - SNL and conductive - although you can also have both. , who's an audiology student and mom in GA, I'm sure can explain this better than me! SNL means there's a problem with the cochlea which is the seashell part of the inner ear. My boys both have SNL - we believe there's a problem with the hair cells in the cochlea. Folks with SNL usually have a more severe loss (my boys' losses are profound and severe/profound). A conductive loss means there are problems with the front part of the ear canal - the little bones (hammer, anvil, stirrup), etc. I'm nearly sure that a conductive loss usually isn't as severe and can sometimes be corrected with surgery - others will correct me if I'm wrong! :-) I'm glad you found us! Take care Barbara Fiona Penman wrote: > Thanks to all for the warm welcome and useful suggestions! I will look for > the book by Carol Flexer that was suggested. I was surprised to hear about > hearing aid options for people with unilateral hearing loss. The ENT surgeon > who did the ear part of my daughter’s surgery told us that nothing would > help and that, from his perspective, we should just focus on preserving the > hearing in the other ear. It’s nice to know that there might well be options > to look into if she finds that her learning is suffering. > > By the way, what does SNL stand for? > > Thanks again, > > Fiona. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 > > Thanks to all for the warm welcome and useful suggestions! I will look for > the book by Carol Flexer that was suggested. I was surprised to hear about > hearing aid options for people with unilateral hearing loss. The ENT surgeon > who did the ear part of my daughter's surgery told us that nothing would > help and that, from his perspective, we should just focus on preserving the > hearing in the other ear. It's nice to know that there might well be options > to look into if she finds that her learning is suffering. > > By the way, what does SNL stand for? > > Thanks again, > > Fiona. > > > > _____ I think they just came out with the Transear in the US in December. It may not work for every type of unilateral loss. I'm getting the Carol Flexor book thru interlibrary loan before I go out and buy it. It's expensive and I want to make sure I'm really going to find it useful before I buy it. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 > > Thanks to all for the warm welcome and useful suggestions! I will look for > the book by Carol Flexer that was suggested. I was surprised to hear about > hearing aid options for people with unilateral hearing loss. The ENT surgeon > who did the ear part of my daughter's surgery told us that nothing would > help and that, from his perspective, we should just focus on preserving the > hearing in the other ear. It's nice to know that there might well be options > to look into if she finds that her learning is suffering. > > By the way, what does SNL stand for? > > Thanks again, > > Fiona. > > > > _____ I think they just came out with the Transear in the US in December. It may not work for every type of unilateral loss. I'm getting the Carol Flexor book thru interlibrary loan before I go out and buy it. It's expensive and I want to make sure I'm really going to find it useful before I buy it. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Fiona: For what it's worth, it sounds like the majority of ENTs don't recognize that there are options to address profound unilateral loss. I believe that the BAHA was only approved by the FDA for use in this manner (to assist people with unilateral loss *and* an intact outer ear structure) in 2002 or so, and the TransEar only got approved last July. My son's otologist is a leading specialist in our region, and his staff had only heard rumblings about the TransEar unit - I happened to stumble on it when I was doing a search on the web, and asked about it. That's how the ball got rolling for us. As far as SNL - Barbara's answer was so much better than what I would have said. ;-) 's loss is definitely due to inner ear nerve damage - testing showed that the nerves in his left ear are completely unresponsive, resulting in what is also referred to as a " dead ear. " His left ear is beautifully formed, but for all intents and purposes, it's a very handy holder for his glasses. (Well, when he hasn't managed to break the " unbreakable " frames, that is.) Hugs to you, Kris Mom to (7 y.o., Complete/Profound SNL, Left Ear) and Ethan (6 y.o., hearing) _____ From: Listen-Up [mailto:Listen-Up ] On Behalf Of Fiona Penman Sent: Thursday, April 27, 2006 7:03 AM To: Listen-Up Subject: RE: Re: new to the group Thanks to all for the warm welcome and useful suggestions! I will look for the book by Carol Flexer that was suggested. I was surprised to hear about hearing aid options for people with unilateral hearing loss. The ENT surgeon who did the ear part of my daughter's surgery told us that nothing would help and that, from his perspective, we should just focus on preserving the hearing in the other ear. It's nice to know that there might well be options to look into if she finds that her learning is suffering. By the way, what does SNL stand for? Thanks again, Fiona. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Fiona: For what it's worth, it sounds like the majority of ENTs don't recognize that there are options to address profound unilateral loss. I believe that the BAHA was only approved by the FDA for use in this manner (to assist people with unilateral loss *and* an intact outer ear structure) in 2002 or so, and the TransEar only got approved last July. My son's otologist is a leading specialist in our region, and his staff had only heard rumblings about the TransEar unit - I happened to stumble on it when I was doing a search on the web, and asked about it. That's how the ball got rolling for us. As far as SNL - Barbara's answer was so much better than what I would have said. ;-) 's loss is definitely due to inner ear nerve damage - testing showed that the nerves in his left ear are completely unresponsive, resulting in what is also referred to as a " dead ear. " His left ear is beautifully formed, but for all intents and purposes, it's a very handy holder for his glasses. (Well, when he hasn't managed to break the " unbreakable " frames, that is.) Hugs to you, Kris Mom to (7 y.o., Complete/Profound SNL, Left Ear) and Ethan (6 y.o., hearing) _____ From: Listen-Up [mailto:Listen-Up ] On Behalf Of Fiona Penman Sent: Thursday, April 27, 2006 7:03 AM To: Listen-Up Subject: RE: Re: new to the group Thanks to all for the warm welcome and useful suggestions! I will look for the book by Carol Flexer that was suggested. I was surprised to hear about hearing aid options for people with unilateral hearing loss. The ENT surgeon who did the ear part of my daughter's surgery told us that nothing would help and that, from his perspective, we should just focus on preserving the hearing in the other ear. It's nice to know that there might well be options to look into if she finds that her learning is suffering. By the way, what does SNL stand for? Thanks again, Fiona. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 I only heard about the Transear because of Kris :-) The ENT and audi have not responded yet to my messages, so perhaps they need to " google " it for themselves. :-) Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 I only heard about the Transear because of Kris :-) The ENT and audi have not responded yet to my messages, so perhaps they need to " google " it for themselves. :-) Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Just wanted to let you know that I'm NOT an audiology student, just a mom who wishes she were an audiology student! (I really am an RN though working on a masters in public health) Another mom, Angie is an audiology student in Kansas. I think Fiona's daughter may have true neural hearing loss because with an acoustic neuroma, the acoustic nerve is often removed as this is where the tumor (acoustic neuroma) is located. So I'm not sure if bone conduction would help, since the outer, middle and inner ear are all normal but the nerve has been cut. Perhaps one of the bicros systems that would take info from the deaf side and send it to the hearing aid on the " good side " might be of some use. in GA Re: Re: new to the group > >Hi Fiona - SNL (sometimes you'll see it as SNHL) is sensori-neural >hearing loss. There are generally two types of hearing loss - SNL and >conductive - although you can also have both. , who's an audiology >student and mom in GA, I'm sure can explain this better than me! SNL >means there's a problem with the cochlea which is the seashell part of >the inner ear. My boys both have SNL - we believe there's a problem with >the hair cells in the cochlea. Folks with SNL usually have a more severe >loss (my boys' losses are profound and severe/profound). A conductive >loss means there are problems with the front part of the ear canal - the >little bones (hammer, anvil, stirrup), etc. I'm nearly sure that a >conductive loss usually isn't as severe and can sometimes be corrected >with surgery - others will correct me if I'm wrong! :-) > >I'm glad you found us! > >Take care >Barbara > >Fiona Penman wrote: >> Thanks to all for the warm welcome and useful suggestions! I will look for >> the book by Carol Flexer that was suggested. I was surprised to hear about >> hearing aid options for people with unilateral hearing loss. The ENT surgeon >> who did the ear part of my daughter?s surgery told us that nothing would >> help and that, from his perspective, we should just focus on preserving the >> hearing in the other ear. It?s nice to know that there might well be options >> to look into if she finds that her learning is suffering. >> >> By the way, what does SNL stand for? >> >> Thanks again, >> >> Fiona. >> >> > > > > >All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 You're right, , the neurosurgeon explained that when the tumor uses the same blood supply as the acoustic nerve, total removal of the tumor will result in destruction of the nerve. It wasn't a total surprise as we knew prior to surgery that she had a 50/50 chance of hearing loss. But thanks for the info anyway. Fiona. _____ From: Listen-Up [mailto:Listen-Up ] On Behalf Of pcknott@... Sent: Thursday, April 27, 2006 10:03 AM To: Listen-Up Subject: Re: Re: new to the group Just wanted to let you know that I'm NOT an audiology student, just a mom who wishes she were an audiology student! (I really am an RN though working on a masters in public health) Another mom, Angie is an audiology student in Kansas. I think Fiona's daughter may have true neural hearing loss because with an acoustic neuroma, the acoustic nerve is often removed as this is where the tumor (acoustic neuroma) is located. So I'm not sure if bone conduction would help, since the outer, middle and inner ear are all normal but the nerve has been cut. Perhaps one of the bicros systems that would take info from the deaf side and send it to the hearing aid on the " good side " might be of some use. in GA Re: Re: new to the group > >Hi Fiona - SNL (sometimes you'll see it as SNHL) is sensori-neural >hearing loss. There are generally two types of hearing loss - SNL and >conductive - although you can also have both. , who's an audiology >student and mom in GA, I'm sure can explain this better than me! SNL >means there's a problem with the cochlea which is the seashell part of >the inner ear. My boys both have SNL - we believe there's a problem with >the hair cells in the cochlea. Folks with SNL usually have a more severe >loss (my boys' losses are profound and severe/profound). A conductive >loss means there are problems with the front part of the ear canal - the >little bones (hammer, anvil, stirrup), etc. I'm nearly sure that a >conductive loss usually isn't as severe and can sometimes be corrected >with surgery - others will correct me if I'm wrong! :-) > >I'm glad you found us! > >Take care >Barbara > >Fiona Penman wrote: >> Thanks to all for the warm welcome and useful suggestions! I will look for >> the book by Carol Flexer that was suggested. I was surprised to hear about >> hearing aid options for people with unilateral hearing loss. The ENT surgeon >> who did the ear part of my daughter?s surgery told us that nothing would >> help and that, from his perspective, we should just focus on preserving the >> hearing in the other ear. It?s nice to know that there might well be options >> to look into if she finds that her learning is suffering. >> >> By the way, what does SNL stand for? >> >> Thanks again, >> >> Fiona. >> >> > > > > >All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 You're right, , the neurosurgeon explained that when the tumor uses the same blood supply as the acoustic nerve, total removal of the tumor will result in destruction of the nerve. It wasn't a total surprise as we knew prior to surgery that she had a 50/50 chance of hearing loss. But thanks for the info anyway. Fiona. _____ From: Listen-Up [mailto:Listen-Up ] On Behalf Of pcknott@... Sent: Thursday, April 27, 2006 10:03 AM To: Listen-Up Subject: Re: Re: new to the group Just wanted to let you know that I'm NOT an audiology student, just a mom who wishes she were an audiology student! (I really am an RN though working on a masters in public health) Another mom, Angie is an audiology student in Kansas. I think Fiona's daughter may have true neural hearing loss because with an acoustic neuroma, the acoustic nerve is often removed as this is where the tumor (acoustic neuroma) is located. So I'm not sure if bone conduction would help, since the outer, middle and inner ear are all normal but the nerve has been cut. Perhaps one of the bicros systems that would take info from the deaf side and send it to the hearing aid on the " good side " might be of some use. in GA Re: Re: new to the group > >Hi Fiona - SNL (sometimes you'll see it as SNHL) is sensori-neural >hearing loss. There are generally two types of hearing loss - SNL and >conductive - although you can also have both. , who's an audiology >student and mom in GA, I'm sure can explain this better than me! SNL >means there's a problem with the cochlea which is the seashell part of >the inner ear. My boys both have SNL - we believe there's a problem with >the hair cells in the cochlea. Folks with SNL usually have a more severe >loss (my boys' losses are profound and severe/profound). A conductive >loss means there are problems with the front part of the ear canal - the >little bones (hammer, anvil, stirrup), etc. I'm nearly sure that a >conductive loss usually isn't as severe and can sometimes be corrected >with surgery - others will correct me if I'm wrong! :-) > >I'm glad you found us! > >Take care >Barbara > >Fiona Penman wrote: >> Thanks to all for the warm welcome and useful suggestions! I will look for >> the book by Carol Flexer that was suggested. I was surprised to hear about >> hearing aid options for people with unilateral hearing loss. The ENT surgeon >> who did the ear part of my daughter?s surgery told us that nothing would >> help and that, from his perspective, we should just focus on preserving the >> hearing in the other ear. It?s nice to know that there might well be options >> to look into if she finds that her learning is suffering. >> >> By the way, what does SNL stand for? >> >> Thanks again, >> >> Fiona. >> >> > > > > >All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 , Glad you insisted on the biopsy. You have a great attitude. Keep it up. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com New to the group Hello everyone-- I recently joined this group and I wanted to tell you a little about myself. I'm a 41-year-old single mother of two school-aged daughters who also helps take care of my father who is in the last stage of Parkinson's. April 24th of this year I was diagnosed with Stage I infiltrating ductile carcinoma. Since that time, I have had a mastectomy, 4 rounds of chemo, a prophylactic mastectomy, and have begun reconstruction. I was told in early April that I had a BI-RADS 3 lump (10% chance that it was cancer). Normal protocol for that, I was told, was to come back in 6 months. I kept thinking that someone has to be in the 10% and it could be me. I refused and asked for a biopsy at that time. It was malignant. I am so thankful that I listened to that voice saying it could be me. What I have already gone through, quite possibly, could have just been the beginning. Instead, I'll be finished with my reconstruction and I'll have my hair back by the end of the year. I'm looking forward to 2007. Although, as I have said before, I'll never be the same again. In many ways, that is a good thing. I look at life as so absolutely awesome now. I don't take any of it for granted. The sunsets, trees, flowers, breeze, and most of all, my daughters are more precious and beautiful than ever before. I'm looking forward to participating in this group. Take care of yourselves-- ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.407 / Virus Database: 268.12.12/462 - Release Date: 10/3/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Hi , Thanks so much for this info! You've put my mind somewhat at ease! I have my annual mammo on 10/16 and I have also made an appointment with a specialist for 11/10. I'll send an update after my appointment! wrote: Hi Margaret and all the new-comers, Is something in the water or what? How come so many women are dealing with breast cancer or the possibility? Please know that if you are dealing with this, you have come to the right place. There is so much knowledge and support in this group. Margaret, microcalcifications in and of themselves are not cancerous. The radiologist bases his/her diagnosis for further testing based on the pattern of the microcalcifications. That said, and given your history, I would push for a needle biopsy. It can be done by the radiologist in the office with local anesthesia. Medical personnel can give their opinions, but sometimes you have to go with your gut. take care & keep us updated, The Mayo Clinc web site has this info: Breast calcifications are tiny calcium deposits within the breast tissue that appear as white spots on a mammogram. Breast calcifications are common. Many women have at least one calcification that can be seen on a mammogram. Although breast calcifications are usually noncancerous (benign), certain patterns of calcifications — such as tight clusters with irregular shapes — may indicate breast cancer. The two main types of breast calcifications are: Macrocalcifications. They appear as large white dots or dashes on a mammogram. Macrocalcifications are almost always noncancerous and require no further follow-up. Microcalcifications. They appear as very fine white specks on a mammogram. Microcalcifications are usually noncancerous but can sometimes be a sign of cancer. The radiologist will look at the size, shape and pattern of the microcalcifications. If they appear suspicious, additional mammograms and a biopsy may be needed. Noncancerous causes of breast calcifications include: Calcium within the fluid of a noncancerous cyst (milk of calcium) Calcifications associated with a dilated milk duct Previous injury to the breast (post-traumatic fat necrosis calcification) Inflammation due to infection (mastitis) Skin (dermal) calcifications such as caused by dermatitis or residue from metallic particles in powders, ointments and deodorants Radiation therapy for breast cancer Calcification of the arteries (vascular calcifications) Calcifications in a fibroadenoma, a noncancerous growth " Eventually all the pieces will fall into place; until then, laugh at the confusion, live for the moment, and know that everything happens for a reason. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Very well said nne!~ I have no ideal why I am still around, only by the grace of the all mighty!~ he has other plans for me. I admit to not changing my eating habits, drinking, smoking habits. Yes I still smoke. Don't judge me. I made my bed and I will lie in it. I have tried many times to kick the habit but its a drug and I am addicted. Just like some are abdicated to alcohol. I am stage 4. No cure, just control. I live life to its fullest the best I can. Don't matter how you live your life, you could go to sleep tonight and not wake up Sorry just had to put my two cents in. Hugs and prayers Carol from n. Michigan -- Re: Re: New to the group First of all you CANNOT take all supplements if you are getting chemo. Some interact and cause problems. I know St Johs Wort is one of them. Oncs and their nurses spend YEARS going to school to because knowledgeable about treating patients. My onc told me to eat healthy. It is not true that everyone gets sick from chemo. I personally did not and neither did a lot of other ladies. I really feel you are going to scare the new ladies half to death with comments like after that your body is dying inside, literally and Thinking positively is good but it won't save your life and either will prayer, I have seen too many people die in lieu of these things. and have to be an active participant in your own cause, do not leave it up the the doctors or God I totally disagree that prayer and positive thinking will not help to cure you. Prayer is one of the most powerful things there are and there have been miracles. If it wern't for God and my docs and the many people that have and continued to pray for me, I would not be here. I had 3 freinds ALL with better diagnosis than mine that went to a supposed miracle cure and all 3 died within a year leaving 9 childern between them. Ladies, there are NO miracle cures out there. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Re: New to the group Barbara, what kind of chemo are you receiving? I did AC and Taxol. Had a hard time with AC. my friend who was going through it too had an easy time. She was really overwieght and I am skinny so I don't know, maybe this had something to do with it!!?? My advice is to eat very well ,that means organic foods, see a naturopathic doctor for real health advice, the chemo doctors and nurses know absolutley nothing about actual health, they will tell you to eat whatever. This advice should not be followed. Stay away from processed foods, sugar, salt, any animal products, dairy ets... Food is your biggest medicinal arsenal right now. Make sure you try to excersize if you can just walk, that's great. Drink buckets of water every day. Take the most expensive and best immune supplements possible, take saunas 3 days after the chemo if you are to recieve injections to quicker detox the crap from you body. the 2nd or 3rd day after chemo you can start detoxing the crap from your cells. This is when you start to feel the effects. Then it gets worse, like the 4th 5th 6th and 7th days are harsh. Usually the 3, 4 5 are the worst, and they make other days seem easy, but it is all perspective. The work the chemo does in killing the fast reproducing cells is done in the first 24-48 hours, after that your body is dying inside, literally, so it's important to get that crap OUT of your system ASAP. That is why we feel so bad. Chemo is poison. You oncologist knows this they just don't want to scare you. Look up the Gerson Therapy and other related non toxic cancer fighting therapies. It's all at your finger tips. If you want to take a personal interest in your own life, especially at stage 3 it's time to get serious, do the research. These therapies have saved terminal cancer patients. Terminal. they work. Integrating is a good idea if you have already gone for the chemo. It (chemo)sits in your tissues and bones for a long time after you finish and the effects can last years, if you live, so it's important to know what you're dealing with and be prepared. The optimum health institute in San diego is a great place also read anything by Dr. Weil. Thinking positively is good but it won't save your life and either will prayer, I have seen too many people die in lieu of these things. I am a firm believer in personal action. You have to be an active participant in your own cause, do not leave it up the the doctors or God. Chemo speeds up the death process for a lot of people. Be educated so you know when you need to make the right decisions about your own life. You will be empowered and have control where you feel there is no control. You can do it but you have to want to. Good luck and big hugs!! K > > > > I just wanted to take a moment to introduce myself. My name is > > Barbara, I am 36, married to a wonderful man and the mother of 3 > > beautiful children. 2 days ago I was diagnosed with stage 3 breast > > cancer and i am to start chemo in 2 days. Does anyone have any > > advice? I am a very upbeat happy person and i know that myself, my > > husband and my children can handle this as we have been through > tough > > things before and we see more to come. I guess the only questions i > > have is what should i expect to happen with chemo? > > Thanks for any replies. > > Hugs & have a wonderful weekend > > Barbara > > > hi i am 51 years old and was diagnosed with breast cancer.ihad a > mastectomy in Aug and my hormone receptors were negative.So i dont > have to have any chemo or radiation.iam pondering reconstruction > surgery so if any one has had it i would like to hear from them. > ---------------------------------------------------------- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.407 / Virus Database: 268.12.13/463 - Release Date: 10/4/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Very well said nne!~ I have no ideal why I am still around, only by the grace of the all mighty!~ he has other plans for me. I admit to not changing my eating habits, drinking, smoking habits. Yes I still smoke. Don't judge me. I made my bed and I will lie in it. I have tried many times to kick the habit but its a drug and I am addicted. Just like some are abdicated to alcohol. I am stage 4. No cure, just control. I live life to its fullest the best I can. Don't matter how you live your life, you could go to sleep tonight and not wake up Sorry just had to put my two cents in. Hugs and prayers Carol from n. Michigan -- Re: Re: New to the group First of all you CANNOT take all supplements if you are getting chemo. Some interact and cause problems. I know St Johs Wort is one of them. Oncs and their nurses spend YEARS going to school to because knowledgeable about treating patients. My onc told me to eat healthy. It is not true that everyone gets sick from chemo. I personally did not and neither did a lot of other ladies. I really feel you are going to scare the new ladies half to death with comments like after that your body is dying inside, literally and Thinking positively is good but it won't save your life and either will prayer, I have seen too many people die in lieu of these things. and have to be an active participant in your own cause, do not leave it up the the doctors or God I totally disagree that prayer and positive thinking will not help to cure you. Prayer is one of the most powerful things there are and there have been miracles. If it wern't for God and my docs and the many people that have and continued to pray for me, I would not be here. I had 3 freinds ALL with better diagnosis than mine that went to a supposed miracle cure and all 3 died within a year leaving 9 childern between them. Ladies, there are NO miracle cures out there. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Re: New to the group Barbara, what kind of chemo are you receiving? I did AC and Taxol. Had a hard time with AC. my friend who was going through it too had an easy time. She was really overwieght and I am skinny so I don't know, maybe this had something to do with it!!?? My advice is to eat very well ,that means organic foods, see a naturopathic doctor for real health advice, the chemo doctors and nurses know absolutley nothing about actual health, they will tell you to eat whatever. This advice should not be followed. Stay away from processed foods, sugar, salt, any animal products, dairy ets... Food is your biggest medicinal arsenal right now. Make sure you try to excersize if you can just walk, that's great. Drink buckets of water every day. Take the most expensive and best immune supplements possible, take saunas 3 days after the chemo if you are to recieve injections to quicker detox the crap from you body. the 2nd or 3rd day after chemo you can start detoxing the crap from your cells. This is when you start to feel the effects. Then it gets worse, like the 4th 5th 6th and 7th days are harsh. Usually the 3, 4 5 are the worst, and they make other days seem easy, but it is all perspective. The work the chemo does in killing the fast reproducing cells is done in the first 24-48 hours, after that your body is dying inside, literally, so it's important to get that crap OUT of your system ASAP. That is why we feel so bad. Chemo is poison. You oncologist knows this they just don't want to scare you. Look up the Gerson Therapy and other related non toxic cancer fighting therapies. It's all at your finger tips. If you want to take a personal interest in your own life, especially at stage 3 it's time to get serious, do the research. These therapies have saved terminal cancer patients. Terminal. they work. Integrating is a good idea if you have already gone for the chemo. It (chemo)sits in your tissues and bones for a long time after you finish and the effects can last years, if you live, so it's important to know what you're dealing with and be prepared. The optimum health institute in San diego is a great place also read anything by Dr. Weil. Thinking positively is good but it won't save your life and either will prayer, I have seen too many people die in lieu of these things. I am a firm believer in personal action. You have to be an active participant in your own cause, do not leave it up the the doctors or God. Chemo speeds up the death process for a lot of people. Be educated so you know when you need to make the right decisions about your own life. You will be empowered and have control where you feel there is no control. You can do it but you have to want to. Good luck and big hugs!! K > > > > I just wanted to take a moment to introduce myself. My name is > > Barbara, I am 36, married to a wonderful man and the mother of 3 > > beautiful children. 2 days ago I was diagnosed with stage 3 breast > > cancer and i am to start chemo in 2 days. Does anyone have any > > advice? I am a very upbeat happy person and i know that myself, my > > husband and my children can handle this as we have been through > tough > > things before and we see more to come. I guess the only questions i > > have is what should i expect to happen with chemo? > > Thanks for any replies. > > Hugs & have a wonderful weekend > > Barbara > > > hi i am 51 years old and was diagnosed with breast cancer.ihad a > mastectomy in Aug and my hormone receptors were negative.So i dont > have to have any chemo or radiation.iam pondering reconstruction > surgery so if any one has had it i would like to hear from them. > ---------------------------------------------------------- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.407 / Virus Database: 268.12.13/463 - Release Date: 10/4/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Wow!!! I joined this group to see what the response would be. I have to say that having received 226 emails in 3 days I am blown away. I am not a Breast Cancer patient. I am a 39 year old healthy mother of two small children (aged 4 & 3). I work for Curves for Women, where this month for Breast Cancer Awareness month my Manager & I dyed our hair bright pink & I will be shaving my head on Halloween. I've so far raised over $2000 Canadian & I hope to get to $3000 by the end of the month. Next week we have organised a Breast Health workshop too in order to highlight the importance of taking the time to do self examination & book regular mammograms. My maternal Grandmother died of Breast Cancer & I fit into six risk categories. Raising money for the Canadian Breast Cancer Foundation has taken on a new meaning for me since I read all your emails. You are all incredibly brave, strong women & all I can say is that you are in my prayers & I wish you all my love & hope. Regards Jackie --------------------------------- All-new Yahoo! Mail - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Also a 4 yr survivor. Operation in 2002 , then chemo 8 treatments and 1 month of radiation ... Went on tamoxifin Dec 2002 to Oct 2003 and then arimidex...I was getting alot of cramps in legs and swelling in my feet...also a little weight gain.. Once in awhile I get a cramp in leg and not much swelling in feet...On arimidex I have to take calcium because I have a slight bone loss...Most of the time I feel ok... Cat... Note: forwarded message attached. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 Jan, Welcome to the group. We were all where you are now. Its scary, fear of the unknown is the worst. Once you can get the biopsy results you will know where you go from there. Breast cancer is NOT the death sentence it was once thought to be. I had my surgery May 24, 1990. I had infiltrating ductal carcinoma. A 2.5cm mass. I had 23 nodes removed and one came back positive. I had 6 mo of chemo (12 treatments) no radiation or reconstruction. I was 44 at the time and will turn 61 shortly. We have a sister group that is mostly Stage IV ladies and there are ladies in there doing well under the circumstances. There is even one lady who has no evidence of disease! I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com New to the group On October 18, 2006, I had a negative mammogram and ultrasound. The report came back with possible breast carcinoma in both breasts. I have an appointment with a specialist. The radiologist told me a biopsy was probably a certainty. Since then I have been reading all the information that I can. I take one step at a time and one day at a time. I covet all your prayers. My husband is very supportive, which is a blessing indeed. This is new territory for both of us. All the help and suggestions are appreciated. November 2, 2006 is my next appointment. Take care and my prayers are with you, too. Jan jkoelsch1950 Jan Koelsch --------------------------------- All-new Yahoo! Mail - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 Jan, Welcome to the group. We were all where you are now. Its scary, fear of the unknown is the worst. Once you can get the biopsy results you will know where you go from there. Breast cancer is NOT the death sentence it was once thought to be. I had my surgery May 24, 1990. I had infiltrating ductal carcinoma. A 2.5cm mass. I had 23 nodes removed and one came back positive. I had 6 mo of chemo (12 treatments) no radiation or reconstruction. I was 44 at the time and will turn 61 shortly. We have a sister group that is mostly Stage IV ladies and there are ladies in there doing well under the circumstances. There is even one lady who has no evidence of disease! I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com New to the group On October 18, 2006, I had a negative mammogram and ultrasound. The report came back with possible breast carcinoma in both breasts. I have an appointment with a specialist. The radiologist told me a biopsy was probably a certainty. Since then I have been reading all the information that I can. I take one step at a time and one day at a time. I covet all your prayers. My husband is very supportive, which is a blessing indeed. This is new territory for both of us. All the help and suggestions are appreciated. November 2, 2006 is my next appointment. Take care and my prayers are with you, too. Jan jkoelsch1950 Jan Koelsch --------------------------------- All-new Yahoo! Mail - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 Jan, Welcome to the group. We were all where you are now. Its scary, fear of the unknown is the worst. Once you can get the biopsy results you will know where you go from there. Breast cancer is NOT the death sentence it was once thought to be. I had my surgery May 24, 1990. I had infiltrating ductal carcinoma. A 2.5cm mass. I had 23 nodes removed and one came back positive. I had 6 mo of chemo (12 treatments) no radiation or reconstruction. I was 44 at the time and will turn 61 shortly. We have a sister group that is mostly Stage IV ladies and there are ladies in there doing well under the circumstances. There is even one lady who has no evidence of disease! I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com New to the group On October 18, 2006, I had a negative mammogram and ultrasound. The report came back with possible breast carcinoma in both breasts. I have an appointment with a specialist. The radiologist told me a biopsy was probably a certainty. Since then I have been reading all the information that I can. I take one step at a time and one day at a time. I covet all your prayers. My husband is very supportive, which is a blessing indeed. This is new territory for both of us. All the help and suggestions are appreciated. November 2, 2006 is my next appointment. Take care and my prayers are with you, too. Jan jkoelsch1950 Jan Koelsch --------------------------------- All-new Yahoo! Mail - Fire up a more powerful email and get things done faster. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Is it typical to receive resistance when asking for T3 only? Aimee > > Hello and welcome > > >I will schedule an appt with the doc to ask for T3 only, but feel like I need some study or something more official to explain to my doc that I really do have a RT3 issue. Any thoughts? > > The holtorf link from the web site does talk about ratios I think. > > > >Should I totally drop my Naturethroid even before I start T3 only? > > I would sugges that you carry on taking it till you start T3. > > Nick > > -- > > for more information on RT3 and Thyroid Resistance go to > > www.thyroid-rt3.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Is it typical to receive resistance when asking for T3 only? Aimee > > Hello and welcome > > >I will schedule an appt with the doc to ask for T3 only, but feel like I need some study or something more official to explain to my doc that I really do have a RT3 issue. Any thoughts? > > The holtorf link from the web site does talk about ratios I think. > > > >Should I totally drop my Naturethroid even before I start T3 only? > > I would sugges that you carry on taking it till you start T3. > > Nick > > -- > > for more information on RT3 and Thyroid Resistance go to > > www.thyroid-rt3.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 Is it typical to receive resistance when asking for T3 only? Aimee > > Hello and welcome > > >I will schedule an appt with the doc to ask for T3 only, but feel like I need some study or something more official to explain to my doc that I really do have a RT3 issue. Any thoughts? > > The holtorf link from the web site does talk about ratios I think. > > > >Should I totally drop my Naturethroid even before I start T3 only? > > I would sugges that you carry on taking it till you start T3. > > Nick > > -- > > for more information on RT3 and Thyroid Resistance go to > > www.thyroid-rt3.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2010 Report Share Posted May 24, 2010 For doctors that believe in T4 only, yes. For more natural and better informed doctors no. -- http://nthadrenalsweb.org/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://faqhelp.webs.com/ http://health.groups.yahoo.com/group/RT3_T3/ http://www.thyroid-rt3.com/ http://groups.yahoo.com/group/HypoPets/ http://www.stopthethyroidmadness.com/ Quote Link to comment Share on other sites More sharing options...
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