Re: 's Update! & Questions

[Guest guest]

Oops - you are right. My daughter was dx with hypotonia. Early

Intervention is great. In every state the program works a little

different and each state calls their program something different (in

Missouri it is called First Steps). My daughter gets all her therapy

through this program. In some states the program is completely free

and in other states it can cost. For us, Sophie was evaluated for

what services she needed and for how often she needed the services.

Once she is approved for services, we search a matrix of therapist in

the area. We are able to contact the therapist to find one in which

we are comfortable with. The therapists are either associated with a

hospital, a company or self-employed. It is definitely something you

should look into. Here's a link to the Michigan's program called

Early On.

http://www.michigan.gov/mde/0,1607,7-140-43092_6809-127141--,00.html

HTH,

Elaine

> >

> > Hello everyone!

> > went to see a new pediatric neurologist, which my husband and

> > I felt so comfortable as soon as she came in the door. She also

> > specializes in pediatric sleep so that was great. She said that

> > was very spastic (stiff). I know that there is a form of

> > Cerebral Palsy that says spastic. And she said that by him being

> > only 6 1/2 months, honestly doctors don't like to say CP at that

> > age. She also noticed that he keeps his hand tight fisted, but he

> > will open to grab, but he can't hold it long. She checked his feet

> > and noticed that he is still clenching his toes to a finger and he

> > shouldn't be at this point because that can cause a problem when

> > walking down the line. She also mentioned Hypertonia??? What's the

> > difference between hypertonia and spastic. I was very shocked

> > yesterday, and forgot to ask. She wrote him a script for

> > Occupational Therapy, due to his low sucking and eating skills. What

> > is really the difference between OT & PT? He does PT now. She wrote

> > him a script also for clodine(spelling incorrect, i think)It is a

> > med to help him get into a sleep schedule, and then he will be

> > weined off. I hate that part, and haven't gotten the script filled.

> > As much as I need sleep to function, and as well, I hate to

> > give him a medication. Also he is getting another 24 hour EEG that

> > he will go home with for 24 hours. Any advice, answers will be

> > greatly appreciated!

> >

> > Tequisha

> > Mother of , 6 1/2 months

> >

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