Re: Re: Low BP and painful feet ... 43/32/75 or lower :-)

[Guest guest]

WHOW! Caro, that is re--lly high BP. Mine is always low and then becomes even

lower. When they take my BP, they always turn to me and with a concerned

voice ask " Do you run low? " That is if they can even get my BP.

It's kinda fun to watch their concerned, quizzacle faces until they ask me!

In a message dated 2/14/2004 1:44:43 PM Eastern Standard Time,

CDillardda@... writes:

In a message dated 2/13/2004 11:50:21 PM Eastern Standard Time,

Mdmssmile@... writes:

> I have very severe blood pooling according to testing at NIH that measured

> it ... they asked me about my hands or feet feeling weird. My hands felt

> weird and that was the blood pooling too

Did I mention my low BP has been as low as 39/20? My feet can ache,

especially the right one over some veins. I discovered this by checking my BP

at

various times. It always happens when the BP is low. Perhaps after a long

walk, or

due to the long walk. Then later, when laying down, I will have the foot pain

and/or spasms. Once my BP goes back to my usual high I am okay.

> Do you have POTS?

>

Yes, I suppose :-(.

My BP <<sometimes>> drops when I stand and my heart rate increases. For me

that is brief and also my lifesaver considering my typical high BP.

Yesterday,

my typical BP at my EDS knowledgeable GP doctors office was 230/150/73. No

one

was upset. Well, hey, it was better than the last time when I clocked in at

280/150. [My high is now 300/200 -- typical for Autonomic Dysreflexia in an

EDSer with rubber blood vessels :-<]. Usually, I will feel and look great. It

is

the uninformed nurse assistants who get upset -- until they find out I am

that

EDS lady. Nowadays, they just smile in awe at me and whisper EDSer :-). Caro.

[Guest guest]

WHOW! Caro, that is re--lly high BP. Mine is always low and then becomes even

lower. When they take my BP, they always turn to me and with a concerned

voice ask " Do you run low? " That is if they can even get my BP.

It's kinda fun to watch their concerned, quizzacle faces until they ask me!

In a message dated 2/14/2004 1:44:43 PM Eastern Standard Time,

CDillardda@... writes:

In a message dated 2/13/2004 11:50:21 PM Eastern Standard Time,

Mdmssmile@... writes:

> I have very severe blood pooling according to testing at NIH that measured

> it ... they asked me about my hands or feet feeling weird. My hands felt

> weird and that was the blood pooling too

Did I mention my low BP has been as low as 39/20? My feet can ache,

especially the right one over some veins. I discovered this by checking my BP

at

various times. It always happens when the BP is low. Perhaps after a long

walk, or

due to the long walk. Then later, when laying down, I will have the foot pain

and/or spasms. Once my BP goes back to my usual high I am okay.

> Do you have POTS?

>

Yes, I suppose :-(.

My BP <<sometimes>> drops when I stand and my heart rate increases. For me

that is brief and also my lifesaver considering my typical high BP.

Yesterday,

my typical BP at my EDS knowledgeable GP doctors office was 230/150/73. No

one

was upset. Well, hey, it was better than the last time when I clocked in at

280/150. [My high is now 300/200 -- typical for Autonomic Dysreflexia in an

EDSer with rubber blood vessels :-<]. Usually, I will feel and look great. It

is

the uninformed nurse assistants who get upset -- until they find out I am

that

EDS lady. Nowadays, they just smile in awe at me and whisper EDSer :-). Caro.

[Guest guest]

WHOW! Caro, that is re--lly high BP. Mine is always low and then becomes even

lower. When they take my BP, they always turn to me and with a concerned

voice ask " Do you run low? " That is if they can even get my BP.

It's kinda fun to watch their concerned, quizzacle faces until they ask me!

In a message dated 2/14/2004 1:44:43 PM Eastern Standard Time,

CDillardda@... writes:

In a message dated 2/13/2004 11:50:21 PM Eastern Standard Time,

Mdmssmile@... writes:

> I have very severe blood pooling according to testing at NIH that measured

> it ... they asked me about my hands or feet feeling weird. My hands felt

> weird and that was the blood pooling too

Did I mention my low BP has been as low as 39/20? My feet can ache,

especially the right one over some veins. I discovered this by checking my BP

at

various times. It always happens when the BP is low. Perhaps after a long

walk, or

due to the long walk. Then later, when laying down, I will have the foot pain

and/or spasms. Once my BP goes back to my usual high I am okay.

> Do you have POTS?

>

Yes, I suppose :-(.

My BP <<sometimes>> drops when I stand and my heart rate increases. For me

that is brief and also my lifesaver considering my typical high BP.

Yesterday,

my typical BP at my EDS knowledgeable GP doctors office was 230/150/73. No

one

was upset. Well, hey, it was better than the last time when I clocked in at

280/150. [My high is now 300/200 -- typical for Autonomic Dysreflexia in an

EDSer with rubber blood vessels :-<]. Usually, I will feel and look great. It

is

the uninformed nurse assistants who get upset -- until they find out I am

that

EDS lady. Nowadays, they just smile in awe at me and whisper EDSer :-). Caro.

[Guest guest]

In a message dated 2/14/2004 4:29:45 PM Eastern Standard Time,

Mdmssmile@... writes:

> WHOW! Caro, that is re--lly high BP

Yup!

In addition to my appointment at St. 's University Institute of generic

medicine in March, yesterday I was given a referral to an Institute of

neuroscience. My EDS knowledgeable doctor was telling me I am really really

REALLY

rare.

Caro