sarahjane/vics sister /funeral./dawn

[Guest guest]

Hi all Just a quick note to say thankyou for all the

sympathy emails re the death of my dear friend.

The funeral was yesterday, and it was beautiful.They

played the song THE ROSE, that set me off crying, but

it was well attended and my fatherlaw did a great job

on the service.

-jane has been invited by the surgical team at

the hospital to take part in the boat race at the

river that winds round the hospital today.We went and

brought her a giant water pistle so she can super soak

her surgeon!!!!

SJ is doing ok sleep last night with her dressing off,

she took about half an hour to get the dressing off

shes impressed with how small the cut is.

Vicki is just getting over another bout of those tummy

migranes.I have to take her to the doctors today for

an iron injection.ashe has these twice a month.(occh!)

Thankyou once agin for all the kindness.

And like so many others here Dawn come back ok!!!!!!!!

I couldn,t believe to come home from bury my friend to

read all this hurtful stuff.To the person who wrote

what she did i truly hope you re think some of the

things you said.This support group is the family alot

of those with rsd dont have.Support is so vital for

coping.How could you attack the very core of dealing

with pain?I can only presumme you are having a rough

time and had to vent but please think of others.

I know from vickis point of veiw this group is the

link that stops her from thinking in a self piting way

she knows there are others out there worse than her,

that intern inpowers her to face each day.

From a parents point of veiw, any test or treatment

once proven to be safe is alight at the end of the

tunnel.To watch your child suffer and you cant take

that pain away is a slow death for a parent.

If this group didnt exsist there are times i would

walk out!!!

So thankyou to all for being there and lets stay

together!!!!!!!!!!!!!!!!!!!!!!!!

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