Re: Back From Iowa City - Great Appointment!

[Guest guest]

Your email build a lot of hope as my daughter has just done her

second cast with Dr. calburn in Pleasenton. He is such a great

doctor however i am very worried from the bars. I feel that casting

and tenetomy is not what really concerns me as the bars.

Anyway thanks for your email

Heidi & (1/5/04) Unilateral clubfoot

> Hi Everyone,

> We just returned from our long trek to Iowa City. We decided to

> break the travels up by staying over in Illinois, Iowa and then in

> Illinois again on the way back. Dr. Ponseti looked great and was

in

> great spirits. He is a very busy man. I guess last Monday he had

> 12 appointments! When we were there, there were 2 babies waiting

to

> be casted. One was from Vegas and the other was from Florida I

> believe. The couple from Vegas found out about Dr. Ponseti

through

> their pediatrician. I told them how lucky they were to have

> received that recommendation. They were thrilled to see Zach's

> foot - and couldn't believe that they had to be told which one was

> the clubfoot. Provided a lot of hope for them, and made them

> realized how blessed they are to have been able to travel to Iowa

> City and be treated by Dr. Ponseti.

>

> Zach's appointment went very well. Dr. Ponseti was very impressed

> with the flexibility of his foot. The size difference in his feet

> is almost immeasurable - as is the difference in his calves.

We'll

> never have to buy two different sized shoes - phew! His bar time

> was reduced to nights only - what a relief! It's amazing that at

> one point we were in the bar for 23 hours a day - not really

feeling

> we could see the light at the end of the tunnel, and here we are

> today, not quite two years later, and we only have to wear the bar

> for 10 hours a day. That feels like nothing! It went so fast.

For

> those of you who are experiencing the woes of first time bar

usage,

> I know how frustrating it is - trust me, we all do. But you will

> grow so accustomed to it, and the time really will fly! It was so

> great to watch Zach nap WITHOUT the bar! Although he did have

> some troubles falling asleep, which we attribute to not having the

> bar on - my how we've come full circle (couldn't sleep when we

first

> put it on him two years ago and now he can't sleep without it).

>

> Only a few gliches in the trip - check engine light came on in

> Indiana - nothing happened, so we drove with it on the entire trip

> basically. Our hotel stay in Illinois on the way there

> was...interesting. We were in an end unit next to the door

leading

> outside, needless to say it continued to slam shut over and over

> again until about 1:00 a.m. (2:00 a.m. our time!). We did get our

> money back after many complaints. Other than that - it was a

great

> trip. Glad to be home though!

>

> Won't have to go back until next summer! Dr. Ponseti sounded

> very hopeful that Zach will be out of the bar by age 3 - I

mentioned

> how we've been hearing it's been extended and he said only in

> certain circumstances, and Zach probably won't be one of them.

>

> Thanks for your continued support!

>

> Holly

> Zachary 7/27/02

> Unilateral Right Clubfoot

> Treated by Dr. Ponseti

> DBB nighttime only

> #2 Due: 1/8

[Guest guest]

Your email build a lot of hope as my daughter has just done her

second cast with Dr. calburn in Pleasenton. He is such a great

doctor however i am very worried from the bars. I feel that casting

and tenetomy is not what really concerns me as the bars.

Anyway thanks for your email

Heidi & (1/5/04) Unilateral clubfoot

> Hi Everyone,

> We just returned from our long trek to Iowa City. We decided to

> break the travels up by staying over in Illinois, Iowa and then in

> Illinois again on the way back. Dr. Ponseti looked great and was

in

> great spirits. He is a very busy man. I guess last Monday he had

> 12 appointments! When we were there, there were 2 babies waiting

to

> be casted. One was from Vegas and the other was from Florida I

> believe. The couple from Vegas found out about Dr. Ponseti

through

> their pediatrician. I told them how lucky they were to have

> received that recommendation. They were thrilled to see Zach's

> foot - and couldn't believe that they had to be told which one was

> the clubfoot. Provided a lot of hope for them, and made them

> realized how blessed they are to have been able to travel to Iowa

> City and be treated by Dr. Ponseti.

>

> Zach's appointment went very well. Dr. Ponseti was very impressed

> with the flexibility of his foot. The size difference in his feet

> is almost immeasurable - as is the difference in his calves.

We'll

> never have to buy two different sized shoes - phew! His bar time

> was reduced to nights only - what a relief! It's amazing that at

> one point we were in the bar for 23 hours a day - not really

feeling

> we could see the light at the end of the tunnel, and here we are

> today, not quite two years later, and we only have to wear the bar

> for 10 hours a day. That feels like nothing! It went so fast.

For

> those of you who are experiencing the woes of first time bar

usage,

> I know how frustrating it is - trust me, we all do. But you will

> grow so accustomed to it, and the time really will fly! It was so

> great to watch Zach nap WITHOUT the bar! Although he did have

> some troubles falling asleep, which we attribute to not having the

> bar on - my how we've come full circle (couldn't sleep when we

first

> put it on him two years ago and now he can't sleep without it).

>

> Only a few gliches in the trip - check engine light came on in

> Indiana - nothing happened, so we drove with it on the entire trip

> basically. Our hotel stay in Illinois on the way there

> was...interesting. We were in an end unit next to the door

leading

> outside, needless to say it continued to slam shut over and over

> again until about 1:00 a.m. (2:00 a.m. our time!). We did get our

> money back after many complaints. Other than that - it was a

great

> trip. Glad to be home though!

>

> Won't have to go back until next summer! Dr. Ponseti sounded

> very hopeful that Zach will be out of the bar by age 3 - I

mentioned

> how we've been hearing it's been extended and he said only in

> certain circumstances, and Zach probably won't be one of them.

>

> Thanks for your continued support!

>

> Holly

> Zachary 7/27/02

> Unilateral Right Clubfoot

> Treated by Dr. Ponseti

> DBB nighttime only

> #2 Due: 1/8

[Guest guest]

Holly,

Thank you for letting me know about the family from Las Vegas in

Iowa City. Here is some of the rest of that story.

Our was born over 5 years ago here in Las Vegas. As we went

through the experience of finding out about the Ponseti method, we

shared what had happened with our pediatricians. We told them that

when they saw another child born with clubfoot that they should

refer them for the Ponseti method.

But since there are about 55,000 pediatricians in the U.S. and only

5,000 children with clubfoot born each year, we figured that each

pediatrician would statistically only see about one new clubfoot

child every 10 years. But if a pediatrician was in a group, then

their group would see a new clubfoot child more often.

Anyway, over the years, as we have taken in our children for shots,

colds, etc. we usually would update our pediatrician in what was

happening in the expansion of the Ponseti method. About 2 months

ago, when I took one of our other children in for a bad cold, our

pediatrician said that they had seen the recent article on the

Ponseti method in the Journal of Pediatrics and realized that was

what we had been telling him about for the past few years. The

abstract of the article from the journal Pediatrics, February 2004

issue, titled " Radical Reduction in the Rate of Extensive Corrective

Surgery for Clubfoot Using the Ponseti Method " can be seen at

http://pediatrics.aappublications.org/cgi/content/abstract/113/2/376

We also took him a copy of the article on the " Effect of the

Internet on the Treatment of Congenital Idiopathic Clubfoot "

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=14575256 & dopt=Abstract

A few weeks later, we got a call from our pedicatrician saying that

he had some parents who had a new baby with clubfoot and wondered if

we would be willing to talk to them. A week or so later, they e-

mailed us and we then talked by phone. They had already decided

that they wanted to use the Ponseti method and to go to Iowa. They

would have been there over the past couple of weeks. It is

interesting that you never know how sharing information on the

Ponseti method will affect things in the future for others.

Thanks for letting us know that they are there.

and (3-17-99)

> Hi Everyone,

> We just returned from our long trek to Iowa City. We decided to

> break the travels up by staying over in Illinois, Iowa and then in

> Illinois again on the way back. Dr. Ponseti looked great and was

in

> great spirits. He is a very busy man. I guess last Monday he had

> 12 appointments! When we were there, there were 2 babies waiting

to

> be casted. One was from Vegas and the other was from Florida I

> believe. The couple from Vegas found out about Dr. Ponseti

through

> their pediatrician. I told them how lucky they were to have

> received that recommendation. They were thrilled to see Zach's

> foot - and couldn't believe that they had to be told which one was

> the clubfoot. Provided a lot of hope for them, and made them

> realized how blessed they are to have been able to travel to Iowa

> City and be treated by Dr. Ponseti.

>

> Zach's appointment went very well. Dr. Ponseti was very impressed

> with the flexibility of his foot. The size difference in his feet

> is almost immeasurable - as is the difference in his calves.

We'll

> never have to buy two different sized shoes - phew! His bar time

> was reduced to nights only - what a relief! It's amazing that at

> one point we were in the bar for 23 hours a day - not really

feeling

> we could see the light at the end of the tunnel, and here we are

> today, not quite two years later, and we only have to wear the bar

> for 10 hours a day. That feels like nothing! It went so fast.

For

> those of you who are experiencing the woes of first time bar

usage,

> I know how frustrating it is - trust me, we all do. But you will

> grow so accustomed to it, and the time really will fly! It was so

> great to watch Zach nap WITHOUT the bar! Although he did have

> some troubles falling asleep, which we attribute to not having the

> bar on - my how we've come full circle (couldn't sleep when we

first

> put it on him two years ago and now he can't sleep without it).

>

> Only a few gliches in the trip - check engine light came on in

> Indiana - nothing happened, so we drove with it on the entire trip

> basically. Our hotel stay in Illinois on the way there

> was...interesting. We were in an end unit next to the door

leading

> outside, needless to say it continued to slam shut over and over

> again until about 1:00 a.m. (2:00 a.m. our time!). We did get our

> money back after many complaints. Other than that - it was a

great

> trip. Glad to be home though!

>

> Won't have to go back until next summer! Dr. Ponseti sounded

> very hopeful that Zach will be out of the bar by age 3 - I

mentioned

> how we've been hearing it's been extended and he said only in

> certain circumstances, and Zach probably won't be one of them.

>

> Thanks for your continued support!

>

> Holly

> Zachary 7/27/02

> Unilateral Right Clubfoot

> Treated by Dr. Ponseti

> DBB nighttime only

> #2 Due: 1/8

[Guest guest]

,

Thanks for telling me that story - that's wonderful that a

pediatrician in your area is recommending his/her patients to seek

the Ponseti method of treatment. Even more wonderful that you have

had a hand in promoting the method, and specifally had a hand in the

parents I saw in Iowa City being there. They looked a bit scared,

as we all did, but after they saw Zachary I really could see a sense

of relief come over them.

Holly

Zachary 7/27/02

#2 Due: 1/8

> > Hi Everyone,

> > We just returned from our long trek to Iowa City. We decided to

> > break the travels up by staying over in Illinois, Iowa and then

in

> > Illinois again on the way back. Dr. Ponseti looked great and

was

> in

> > great spirits. He is a very busy man. I guess last Monday he

had

> > 12 appointments! When we were there, there were 2 babies

waiting

> to

> > be casted. One was from Vegas and the other was from Florida I

> > believe. The couple from Vegas found out about Dr. Ponseti

> through

> > their pediatrician. I told them how lucky they were to have

> > received that recommendation. They were thrilled to see Zach's

> > foot - and couldn't believe that they had to be told which one

was

> > the clubfoot. Provided a lot of hope for them, and made them

> > realized how blessed they are to have been able to travel to

Iowa

> > City and be treated by Dr. Ponseti.

> >

> > Zach's appointment went very well. Dr. Ponseti was very

impressed

> > with the flexibility of his foot. The size difference in his

feet

> > is almost immeasurable - as is the difference in his calves.

> We'll

> > never have to buy two different sized shoes - phew! His bar

time

> > was reduced to nights only - what a relief! It's amazing that

at

> > one point we were in the bar for 23 hours a day - not really

> feeling

> > we could see the light at the end of the tunnel, and here we are

> > today, not quite two years later, and we only have to wear the

bar

> > for 10 hours a day. That feels like nothing! It went so fast.

> For

> > those of you who are experiencing the woes of first time bar

> usage,

> > I know how frustrating it is - trust me, we all do. But you will

> > grow so accustomed to it, and the time really will fly! It was

so

> > great to watch Zach nap WITHOUT the bar! Although he did

have

> > some troubles falling asleep, which we attribute to not having

the

> > bar on - my how we've come full circle (couldn't sleep when we

> first

> > put it on him two years ago and now he can't sleep without it).

> >

> > Only a few gliches in the trip - check engine light came on in

> > Indiana - nothing happened, so we drove with it on the entire

trip

> > basically. Our hotel stay in Illinois on the way there

> > was...interesting. We were in an end unit next to the door

> leading

> > outside, needless to say it continued to slam shut over and over

> > again until about 1:00 a.m. (2:00 a.m. our time!). We did get

our

> > money back after many complaints. Other than that - it was a

> great

> > trip. Glad to be home though!

> >

> > Won't have to go back until next summer! Dr. Ponseti sounded

> > very hopeful that Zach will be out of the bar by age 3 - I

> mentioned

> > how we've been hearing it's been extended and he said only in

> > certain circumstances, and Zach probably won't be one of them.

> >

> > Thanks for your continued support!

> >

> > Holly

> > Zachary 7/27/02

> > Unilateral Right Clubfoot

> > Treated by Dr. Ponseti

> > DBB nighttime only

> > #2 Due: 1/8

[Guest guest]

,

Thanks for telling me that story - that's wonderful that a

pediatrician in your area is recommending his/her patients to seek

the Ponseti method of treatment. Even more wonderful that you have

had a hand in promoting the method, and specifally had a hand in the

parents I saw in Iowa City being there. They looked a bit scared,

as we all did, but after they saw Zachary I really could see a sense

of relief come over them.

Holly

Zachary 7/27/02

#2 Due: 1/8

> > Hi Everyone,

> > We just returned from our long trek to Iowa City. We decided to

> > break the travels up by staying over in Illinois, Iowa and then

in

> > Illinois again on the way back. Dr. Ponseti looked great and

was

> in

> > great spirits. He is a very busy man. I guess last Monday he

had

> > 12 appointments! When we were there, there were 2 babies

waiting

> to

> > be casted. One was from Vegas and the other was from Florida I

> > believe. The couple from Vegas found out about Dr. Ponseti

> through

> > their pediatrician. I told them how lucky they were to have

> > received that recommendation. They were thrilled to see Zach's

> > foot - and couldn't believe that they had to be told which one

was

> > the clubfoot. Provided a lot of hope for them, and made them

> > realized how blessed they are to have been able to travel to

Iowa

> > City and be treated by Dr. Ponseti.

> >

> > Zach's appointment went very well. Dr. Ponseti was very

impressed

> > with the flexibility of his foot. The size difference in his

feet

> > is almost immeasurable - as is the difference in his calves.

> We'll

> > never have to buy two different sized shoes - phew! His bar

time

> > was reduced to nights only - what a relief! It's amazing that

at

> > one point we were in the bar for 23 hours a day - not really

> feeling

> > we could see the light at the end of the tunnel, and here we are

> > today, not quite two years later, and we only have to wear the

bar

> > for 10 hours a day. That feels like nothing! It went so fast.

> For

> > those of you who are experiencing the woes of first time bar

> usage,

> > I know how frustrating it is - trust me, we all do. But you will

> > grow so accustomed to it, and the time really will fly! It was

so

> > great to watch Zach nap WITHOUT the bar! Although he did

have

> > some troubles falling asleep, which we attribute to not having

the

> > bar on - my how we've come full circle (couldn't sleep when we

> first

> > put it on him two years ago and now he can't sleep without it).

> >

> > Only a few gliches in the trip - check engine light came on in

> > Indiana - nothing happened, so we drove with it on the entire

trip

> > basically. Our hotel stay in Illinois on the way there

> > was...interesting. We were in an end unit next to the door

> leading

> > outside, needless to say it continued to slam shut over and over

> > again until about 1:00 a.m. (2:00 a.m. our time!). We did get

our

> > money back after many complaints. Other than that - it was a

> great

> > trip. Glad to be home though!

> >

> > Won't have to go back until next summer! Dr. Ponseti sounded

> > very hopeful that Zach will be out of the bar by age 3 - I

> mentioned

> > how we've been hearing it's been extended and he said only in

> > certain circumstances, and Zach probably won't be one of them.

> >

> > Thanks for your continued support!

> >

> > Holly

> > Zachary 7/27/02

> > Unilateral Right Clubfoot

> > Treated by Dr. Ponseti

> > DBB nighttime only

> > #2 Due: 1/8

[Guest guest]

,

Thanks for telling me that story - that's wonderful that a

pediatrician in your area is recommending his/her patients to seek

the Ponseti method of treatment. Even more wonderful that you have

had a hand in promoting the method, and specifally had a hand in the

parents I saw in Iowa City being there. They looked a bit scared,

as we all did, but after they saw Zachary I really could see a sense

of relief come over them.

Holly

Zachary 7/27/02

#2 Due: 1/8

> > Hi Everyone,

> > We just returned from our long trek to Iowa City. We decided to

> > break the travels up by staying over in Illinois, Iowa and then

in

> > Illinois again on the way back. Dr. Ponseti looked great and

was

> in

> > great spirits. He is a very busy man. I guess last Monday he

had

> > 12 appointments! When we were there, there were 2 babies

waiting

> to

> > be casted. One was from Vegas and the other was from Florida I

> > believe. The couple from Vegas found out about Dr. Ponseti

> through

> > their pediatrician. I told them how lucky they were to have

> > received that recommendation. They were thrilled to see Zach's

> > foot - and couldn't believe that they had to be told which one

was

> > the clubfoot. Provided a lot of hope for them, and made them

> > realized how blessed they are to have been able to travel to

Iowa

> > City and be treated by Dr. Ponseti.

> >

> > Zach's appointment went very well. Dr. Ponseti was very

impressed

> > with the flexibility of his foot. The size difference in his

feet

> > is almost immeasurable - as is the difference in his calves.

> We'll

> > never have to buy two different sized shoes - phew! His bar

time

> > was reduced to nights only - what a relief! It's amazing that

at

> > one point we were in the bar for 23 hours a day - not really

> feeling

> > we could see the light at the end of the tunnel, and here we are

> > today, not quite two years later, and we only have to wear the

bar

> > for 10 hours a day. That feels like nothing! It went so fast.

> For

> > those of you who are experiencing the woes of first time bar

> usage,

> > I know how frustrating it is - trust me, we all do. But you will

> > grow so accustomed to it, and the time really will fly! It was

so

> > great to watch Zach nap WITHOUT the bar! Although he did

have

> > some troubles falling asleep, which we attribute to not having

the

> > bar on - my how we've come full circle (couldn't sleep when we

> first

> > put it on him two years ago and now he can't sleep without it).

> >

> > Only a few gliches in the trip - check engine light came on in

> > Indiana - nothing happened, so we drove with it on the entire

trip

> > basically. Our hotel stay in Illinois on the way there

> > was...interesting. We were in an end unit next to the door

> leading

> > outside, needless to say it continued to slam shut over and over

> > again until about 1:00 a.m. (2:00 a.m. our time!). We did get

our

> > money back after many complaints. Other than that - it was a

> great

> > trip. Glad to be home though!

> >

> > Won't have to go back until next summer! Dr. Ponseti sounded

> > very hopeful that Zach will be out of the bar by age 3 - I

> mentioned

> > how we've been hearing it's been extended and he said only in

> > certain circumstances, and Zach probably won't be one of them.

> >

> > Thanks for your continued support!

> >

> > Holly

> > Zachary 7/27/02

> > Unilateral Right Clubfoot

> > Treated by Dr. Ponseti

> > DBB nighttime only

> > #2 Due: 1/8