Question on meds

[Guest guest]

Hi everyone --

I have been reading the posts re meds. I was on the Duragesic patch

a few years ago and quickly moved up to a high dose. My primary doc

was not happy with this because he thought I should only take meds

when I needed them. So, I went off them and switched to Talwin.

None of the meds worked very well. I have been on just about

everything all of you have mentioned. Currently, I am on 100 mg MS

contin three times day, and occasionally double the dose as needed.

Also, I have a ketamine cream and lidoderm patches. The blocks no

longer work so I had an SCS implanted in June. Still, there is not

much relief from pain. Although after last weekend without the MS

Contin, I guess it does work some. Are any of you ever truly free of

pain, even for an hour or two? I am at a point where the pain is

running and ruining my life. The RSD is spreading and I think it is

now affecting my skin.

Has anyone experienced the changes in skin, etc, that are supposed to

come with some cases of advanced RSD? If so, would you please

describe the changes? Also, if you are having any luck with meds

relieving your pain, would you please let me know what you take? I

would like to ask my pain doc to try again with meds. I don't think

I am getting as much relief as I can. (Can you believe, my primary

doc has once again mentioned amputation!)

Sorry if I am a downer lately. It seems like every day I find out

something else I can no longer do without causing severe pain. I am

not having a very good year with this monster and some days I hang by

a thread. Wouldn't it be nice for all of us if someone came up with

a cure or a real treatment for RSD next year? Well, God bless you

all and grant you many soft hugs and pain free days.

If I don't write before then, I hope you all have a blessed holiday.

Thank you for being there for me when I've needed you most.

Love, Helen