Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 Thank you to everyone who has welcomed me into the group and has offered assistance with doctors, etc. I though I'd do a general reply rather than flood the list with inidividual ones. I hope I don't forget anyone, though. - I'm really appreciative of your offer! I wasn't expecting to find anyone with information exactly in my neck of the woods! I'll keep my fingers crossed that he's (a) heard of Dr. Kiline, and ( heard that Dr. Kline knows a lot about EDS. Bonnie - how nice to see another SLP. I'm curious to see the results of your study (I know it takes a long time to compile them, though). Lana - Is Ultram strictly a pain releiver or does it have anti- inflammatory benefits too? I suspect I need to buy a prescription drug guide sometime in the near future... B. - I requested a referral to a rheumatologist instead of a geneticist because of two reasons: 1. I though a referral to the rheum. would be easier to get and 2. From what I understand the genes haven't been identified for HEDS so I thought that maybe the geneticist was the second step to confirm a rheum's diagnosis. Do you think I have incorrect info? And who do you think would be more appropriate to refer me to a geneticist... the rheum or my primary care physician? It gets awfully confusing! Barbara - I admire that EDS Today will be writing the articles you mentioned. My husband and I had decided agains children years ago, before I had even herad of EDS, and even though my body has been falling apart for quite sometime, that wasn't part of our decision process. I consider myself lucky in that regard, because I know that there are people out there who want to have children and are really struggling with the decision to do so because of EDS (and other medical conditions too). The more informed people's decisions can be the better!! I have to admit, though, some days I think having a human child would be easier than having my canine one!! At least humans learn to talk and can tell you what tehy want, as well as understand what we want them to do... Sorry if I missed anyone! Thanks again for the warm welcome into your group! Quote Link to comment Share on other sites More sharing options...
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