Hi All! A Lurker is Peeking Out!

[Guest guest]

Hi all. I'm a lupus veteran who has occasionally read posts here and

thought I'd pull my head up of the sand (or fog, as we lupies are

sometimes known to be in!) and join in. I'm 34, divorced with no

kids and have been dx with sle for almost 16 years. I also have

fibro as well as completely destroyed ankle and wrist joints. Isn't

that avascular necrosis just a lovely parting gift from prednisone?

(my evil nemesis!!!) To the newly dx, make sure to take those

calcium and bone supplements. I was dx when I was 19 and didn't

fully understand how much my lack of understanding and taking care of

myself then would affect me now. My absolute main problems have been

major fatigue, joint problems and kidney problems. The kidneys

thankfully are doing much better, as I've been taking cyclosporine

for about 13 years now (no transplant). My dream is to someday be

able to go back to work but it's very difficult. I've tried three

times but my body just gets too worn down. Well, that's enough about

me and I can't wait to get to know all of you!

Painfree days and nights full of sleep (huh? what's that?) to all of

you!

Tricia