Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 hi DEB,,, WELL I HAVE BEEN USING MY CANE WELL THE FIRST I SAW ANY FAMILY MEMBERS WHEN I WENT TO MY AUNTS WAKE YESTERDAY. WELL AS YOU WELL KNOW EVERYONE HAD A COMMENT I ENDED UP GOING OUT SIDE WITH MY NIEPHEW WHO IS 45 WITH A TYPE OF RSD ... ALL HE SAID TO ME WAS GET USED TO RUDE PEOPLE BUT I CRIED ALSO... HE MAKES THE MOST BEAUTIFUL CANES AND HE MADE ME A WALKING STICK SO I CAN WALK IN THE YARD...ITS ALL HAND CARVED SO BEAUTIFUL.. NOW HE IS MAKING ME A CUSTOM CANE IT WAS SUCH A SURPRISE BUT HE THOUGHT IT WOULD BRIGHTEN MY DAY...SO PLEASE HANG IN THERE .....WE ALL HAVE HAD THIS ONCE AND A WHILE ..... ITS HARD GETTING USE TO THE CHANGE IN OUR LIVES AND I HAVE A HARD TIME WITH IT TOO... BUT I HAVE TO REALIZE THAT GOD WILL GET ME THRU SOME HOW.... SOFT HUGS TO ALL PAMducotedm@... wrote: and Barbara, I read your posts and saw that all of us are going through the same kinds of reality adjustments. I got my cane this week and went to a wedding last night. It hit me when someone said somthing about my disability. I came home and cried all over again. It seems family members do not understand but to them if it helps it's good. Thank you both for sharing your feelings. It makes me feel better knowing that I am not alone feeling like this.Love ya,DebbiePS I deleted much of the original message as our reminder said. I hope I did it correctly.> > > Date: 2004/11/14 Sun PM 03:17:05 EST> To: <RSD-CRPSofAmerica >> Subject: Re: Re:.> > It was like the good news was that they had validated my having a disability and the bad news was that they had validated my having a disability. I guess I'm in a place right now where nothing feels like good news. Just so hard, these days. > > Barbara,> I think we all hit a place when you are faced with the fact that this> disease is a disability, mine was when I got my walker, but for my husband> was when the neighbor built me a ramp. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 hi DEB,,, WELL I HAVE BEEN USING MY CANE WELL THE FIRST I SAW ANY FAMILY MEMBERS WHEN I WENT TO MY AUNTS WAKE YESTERDAY. WELL AS YOU WELL KNOW EVERYONE HAD A COMMENT I ENDED UP GOING OUT SIDE WITH MY NIEPHEW WHO IS 45 WITH A TYPE OF RSD ... ALL HE SAID TO ME WAS GET USED TO RUDE PEOPLE BUT I CRIED ALSO... HE MAKES THE MOST BEAUTIFUL CANES AND HE MADE ME A WALKING STICK SO I CAN WALK IN THE YARD...ITS ALL HAND CARVED SO BEAUTIFUL.. NOW HE IS MAKING ME A CUSTOM CANE IT WAS SUCH A SURPRISE BUT HE THOUGHT IT WOULD BRIGHTEN MY DAY...SO PLEASE HANG IN THERE .....WE ALL HAVE HAD THIS ONCE AND A WHILE ..... ITS HARD GETTING USE TO THE CHANGE IN OUR LIVES AND I HAVE A HARD TIME WITH IT TOO... BUT I HAVE TO REALIZE THAT GOD WILL GET ME THRU SOME HOW.... SOFT HUGS TO ALL PAMducotedm@... wrote: and Barbara, I read your posts and saw that all of us are going through the same kinds of reality adjustments. I got my cane this week and went to a wedding last night. It hit me when someone said somthing about my disability. I came home and cried all over again. It seems family members do not understand but to them if it helps it's good. Thank you both for sharing your feelings. It makes me feel better knowing that I am not alone feeling like this.Love ya,DebbiePS I deleted much of the original message as our reminder said. I hope I did it correctly.> > > Date: 2004/11/14 Sun PM 03:17:05 EST> To: <RSD-CRPSofAmerica >> Subject: Re: Re:.> > It was like the good news was that they had validated my having a disability and the bad news was that they had validated my having a disability. I guess I'm in a place right now where nothing feels like good news. Just so hard, these days. > > Barbara,> I think we all hit a place when you are faced with the fact that this> disease is a disability, mine was when I got my walker, but for my husband> was when the neighbor built me a ramp. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 I'm writing a Letter for Lyn......well, trying to at this moment (darn back stopped me at this moment), so that she can give a copy to friends and/or family that tells them straight out that just because she has RSD doesn't mean that she's a different person, they just need to make a few "mental" changes themselves to get used to the disability that changed her on the outside.....that she's still the same person on the inside. Once I'm done with it, I could try to post it, or something like it here in the group for everyone else to copy or print off......that way, everyone could use it to show family and friends without having to explain the whole thing over and over again. Tonia -------Original Message------- hi DEB,,, WELL I HAVE BEEN USING MY CANE WELL THE FIRST I SAW ANY FAMILY MEMBERS WHEN I WENT TO MY AUNTS WAKE YESTERDAY. WELL AS YOU WELL KNOW EVERYONE HAD A COMMENT I ENDED UP GOING OUT SIDE WITH MY NIEPHEW WHO IS 45 WITH A TYPE OF RSD ... ALL HE SAID TO ME WAS GET USED TO RUDE PEOPLE BUT I CRIED ALSO... HE MAKES THE MOST BEAUTIFUL CANES AND HE MADE ME A WALKING STICK SO I CAN WALK IN THE YARD...ITS ALL HAND CARVED SO BEAUTIFUL.. NOW HE IS MAKING ME A CUSTOM CANE IT WAS SUCH A SURPRISE BUT HE THOUGHT IT WOULD BRIGHTEN MY DAY...SO PLEASE HANG IN THERE .....WE ALL HAVE HAD THIS ONCE AND A WHILE ..... ITS HARD GETTING USE TO THE CHANGE IN OUR LIVES AND I HAVE A HARD TIME WITH IT TOO... BUT I HAVE TO REALIZE THAT GOD WILL GET ME THRU SOME HOW.... SOFT HUGS TO ALL PAMducotedm@... wrote: and Barbara, I read your posts and saw that all of us are going through the same kinds of reality adjustments. I got my cane this week and went to a wedding last night. It hit me when someone said somthing about my disability. I came home and cried all over again. It seems family members do not understand but to them if it helps it's good. Thank you both for sharing your feelings. It makes me feel better knowing that I am not alone feeling like this.Love ya,DebbiePS I deleted much of the original message as our reminder said. I hope I did it correctly. ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 Hi Tonia, hope you are feeling better. Don' stress about the letter. Just do it when you are ready! Take care of you first, Love, Lyn " Tonia " <iowahillbilly@h...> wrote: > > I'm writing a Letter for Lyn......well, trying to at this moment (darn back > stopped me at this moment), so that she can give a copy to friends and/or > family Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 LAURIE, WHY DO YOU FEAR WHEN YOUR SON SEE'S YOU? WOULD YOU MIND EXPLAINING WHAT MAKES YOU FEARFUL......YOU CAN WRITE ME DIRECT AT HOME....2XHAWKS@... EXCEPT THINK IS NOT IN LARGE CAPS, HECK IF I KNOW.....ANYWAY I AM SORRY LAURIE, I UNDERSTAND. I FIND MY HEART SADDENED BY WHAT I THINK MAY BE 55% OR MORE OF US WITH AT LEAST FAMILY, SPOUSE,FRIENDS THAT HAVE EITHER TURNED BACK ON US OR AT BEST IGNORE AND OR OFFER NO SUPPORT. I FIND IT CONFUSING THAT SO MANY STRUGGLE WITH AT LEAST ONE OF THESE SITUATIONS IN OUR LIVES. AM I IN ERROR THINKING IT IS THAT HIGH? HOPE I AM IN ERROR AS SURE MAKES ME SAD. JUST ASKING.....IS PAINFUL SO DON'T FEEL HAVE TO RESPOND IF ANYONE HAS THIS PROBLEM...NOT TRYING TO HURT PEOPLE BY ASKING TO TALK ABOUT IT BUT LAURIE YOUR WORDS JUST MAKE ME SO SAD FOR YOU. AND FOR ALL OTHERS IN SITUATIONS SIMILAR. PLEASE TAKE CARE LAURIE. JOANN KELLYS MOMMA Re: Re-disabled Hi Deb, Yes I find it to that life and body changes are hard adjustments. I think I haven't seen my son in 4 years and he doesn't even know that I'm using wheelchair. He now is living here in my town. Just hasn't gotten around to see me yet. I fear the day he see's me. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 LAURIE, WHY DO YOU FEAR WHEN YOUR SON SEE'S YOU? WOULD YOU MIND EXPLAINING WHAT MAKES YOU FEARFUL......YOU CAN WRITE ME DIRECT AT HOME....2XHAWKS@... EXCEPT THINK IS NOT IN LARGE CAPS, HECK IF I KNOW.....ANYWAY I AM SORRY LAURIE, I UNDERSTAND. I FIND MY HEART SADDENED BY WHAT I THINK MAY BE 55% OR MORE OF US WITH AT LEAST FAMILY, SPOUSE,FRIENDS THAT HAVE EITHER TURNED BACK ON US OR AT BEST IGNORE AND OR OFFER NO SUPPORT. I FIND IT CONFUSING THAT SO MANY STRUGGLE WITH AT LEAST ONE OF THESE SITUATIONS IN OUR LIVES. AM I IN ERROR THINKING IT IS THAT HIGH? HOPE I AM IN ERROR AS SURE MAKES ME SAD. JUST ASKING.....IS PAINFUL SO DON'T FEEL HAVE TO RESPOND IF ANYONE HAS THIS PROBLEM...NOT TRYING TO HURT PEOPLE BY ASKING TO TALK ABOUT IT BUT LAURIE YOUR WORDS JUST MAKE ME SO SAD FOR YOU. AND FOR ALL OTHERS IN SITUATIONS SIMILAR. PLEASE TAKE CARE LAURIE. JOANN KELLYS MOMMA Re: Re-disabled Hi Deb, Yes I find it to that life and body changes are hard adjustments. I think I haven't seen my son in 4 years and he doesn't even know that I'm using wheelchair. He now is living here in my town. Just hasn't gotten around to see me yet. I fear the day he see's me. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2004 Report Share Posted November 15, 2004 LAURIE, WHY DO YOU FEAR WHEN YOUR SON SEE'S YOU? WOULD YOU MIND EXPLAINING WHAT MAKES YOU FEARFUL......YOU CAN WRITE ME DIRECT AT HOME....2XHAWKS@... EXCEPT THINK IS NOT IN LARGE CAPS, HECK IF I KNOW.....ANYWAY I AM SORRY LAURIE, I UNDERSTAND. I FIND MY HEART SADDENED BY WHAT I THINK MAY BE 55% OR MORE OF US WITH AT LEAST FAMILY, SPOUSE,FRIENDS THAT HAVE EITHER TURNED BACK ON US OR AT BEST IGNORE AND OR OFFER NO SUPPORT. I FIND IT CONFUSING THAT SO MANY STRUGGLE WITH AT LEAST ONE OF THESE SITUATIONS IN OUR LIVES. AM I IN ERROR THINKING IT IS THAT HIGH? HOPE I AM IN ERROR AS SURE MAKES ME SAD. JUST ASKING.....IS PAINFUL SO DON'T FEEL HAVE TO RESPOND IF ANYONE HAS THIS PROBLEM...NOT TRYING TO HURT PEOPLE BY ASKING TO TALK ABOUT IT BUT LAURIE YOUR WORDS JUST MAKE ME SO SAD FOR YOU. AND FOR ALL OTHERS IN SITUATIONS SIMILAR. PLEASE TAKE CARE LAURIE. JOANN KELLYS MOMMA Re: Re-disabled Hi Deb, Yes I find it to that life and body changes are hard adjustments. I think I haven't seen my son in 4 years and he doesn't even know that I'm using wheelchair. He now is living here in my town. Just hasn't gotten around to see me yet. I fear the day he see's me. Laurie Quote Link to comment Share on other sites More sharing options...
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