Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 In a message dated 2/25/04 8:30:11 PM Eastern Standard Time, monica-jb@... writes: << I had to leave as soon as I got out of high school. I was still 17, and joined the Marine Corps just to get away!) Not so with . >> Thank God your children will never have to bear this. I was out of the house before I even graduated........My children will never go thorugh something like that. Hugs, Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Hi, It is hard to have to struggle and work on different issues all the time. It is exhausting... There's many people who just can't relate to such things. I got my diagnosis in 1997. Then I informed my dad, because he does have some signs of EDS. He got really mad at me for suggesting that it maybe came from his side of the family. After that day, he has not mentioned it even once. He just doesn't. Doesn't even ask how it goes with it... Nothing I can do about that, except to accept that that is the way he handles such things. I can't change him, he's way too old for that. And he is definately the type who doesn't want to talk about such things, with one exception, when he got cancer himself a few years ago... Then he got really scared, I guess, and did talk about that for a while... Aase Marit > >The weirdest thing is that dad isn't even mentioning a thing about >it all. It's like he doesn't want to know anything. He has no idea >about where they are in school or what they are doing. >Well, if he deos mention it some day, and is surprised, then tough! >That's one bad thing about all this. I have to deal with it myself. >I'm not well, and so that makes it harder. I just want to sleep. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Hi again , It was just a few ideas. Sometimes that can be helpful in starting your own processes... Just know that you are entitled to demand that the school does things to make it as easy on her as possible. And there are things that can be done to make things a lot easier. I am a real " sucker " for assistive/adaptive technology, because it is my experience that it really makes your life quality a lot higher, it makes you able to do things you wouldn't be able to do without the things and that makes you feel so much better... I can really understand how it must be awful for you to not know what is going to happen now. And there is so much to relate to. Not easy when you are sick yourself. But, remember that for your daughters, it is a really good thing that you have it too, because you can understand them in a way that nobody else can. That is worth a lot when you are a young woman... The support you can give, makes such a difference for your daughters... I agree, she has to get her education. With EDS, it is even more important to get good education. You have to make sure you can use your head to earn money, not your body... And it is possible to get good education even if you have health challenges. You just have to figure out what can be done to make it possible... I look forward to hearing how it goes.... Aase Marit > >Thanks so much. I try so hard to make them comfortable and happy. > >I don't know yet what the school will do for her. I don't even know >what her dr will do for her. Won't know until Monday at the >earliest. That really bugs me. Now knowing. Being in the dark. > >I'll let you know when I know. I do know they have to do SOMETHING >for her. She has to get her education! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Hi, This reminded me of a joke a comedian here told on TV many years ago... I think it is really funny, but I hope it will not be offending to anyone. I think it is just kind of cute... " Todays's youth are like Jesus. They live home until they are 30 and if they do anything, it is a miracle! " I could not agree more. It is wonderful that most kids today don't have to take such responsibilities at a young age... Aase Marit >In a message dated 2/25/04 8:30:11 PM Eastern Standard Time, >monica-jb@... writes: > ><< I had to leave as soon as I got out of high school. I was still 17, and >joined the Marine Corps just to get away!) > Not so with . >> > >Thank God your children will never have to bear this. I was out of the house >before I even graduated........My children will never go thorugh something >like that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2004 Report Share Posted February 26, 2004 Hi, This reminded me of a joke a comedian here told on TV many years ago... I think it is really funny, but I hope it will not be offending to anyone. I think it is just kind of cute... " Todays's youth are like Jesus. They live home until they are 30 and if they do anything, it is a miracle! " I could not agree more. It is wonderful that most kids today don't have to take such responsibilities at a young age... Aase Marit >In a message dated 2/25/04 8:30:11 PM Eastern Standard Time, >monica-jb@... writes: > ><< I had to leave as soon as I got out of high school. I was still 17, and >joined the Marine Corps just to get away!) > Not so with . >> > >Thank God your children will never have to bear this. I was out of the house >before I even graduated........My children will never go thorugh something >like that. Quote Link to comment Share on other sites More sharing options...
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