Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 Hi Carolyn - I will certainly keep your son in my prayers. I learned something new the other day when I had my son checked out by a Pediactric Rheumy at Emory Childrens Hospital in Atlanta. They ran a JRA test on my son and I was thrilled it was negative until the doctor told me this. In children with JRA under the age of 18, 95% will test negative although they clearly have RA. They will later test positive after age 18. This was disheartening to me. However he does not believe my son has JRA - thank the Lord! He also does not think he has Lupus. So far he's been dx'd with Hypermobile & Hyperflexible Joints which causes continuous tendonitis and sprains - thus the joint and muscle pain. I wish you and your son the best of luck and painfree days. I know how tough it can be to see your child so sick. You feel so helpless. Just know that Lupus is NOT a death sentence. Also, they are making advances everyday. Maybe by the time he's an adult there WILL be a cure. Please post in here as much as you need to - to vent, cry, ask, laugh or celebrate. We take it all! Blessings, Jerri n LUPIES , " \(Brat\) " <squacken@r...> wrote: > My Name is Carolyn, I am not really sure how to use > Yahoo but I hope to caught on soon. Quote Link to comment Share on other sites More sharing options...
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