Aase Marit=Re: Low BP and painful feet ...

[Guest guest]

Hey Aase Marit,

I'm doing fine , thanks!

POTS which stands for Postural Orthostatic Tachycardia, is an autonomic

system dysfunction. There are various kinds but with this one, which is common

with

EDSers, the heart rate soars but the BP either stays the same. It is made

worse by things like hot weather, hot baths, standing, etc... Dr.

Goldstein

at NIH is doing wonderful research with it all. I was his first EDS with POTS

patient and he wrote an article just about the EDS and POTS connection.

With EDS, he feels he has proven that the blood vessals are extra stretchy

also so blood is able to pool at a quick and abnormallly large degree causing

the wierd sensations in the hands and feet... also causes some of the

discoloration in the skin. Presyncope is the almost faintng feeling that happens

so

often. It is a most unpleasant, and at times embarrassing thing to have happen.

Especially when it is really syncope!!

Hope this explains it a little!!

There is a great list on dysautonomia at www. EDNF.

n a message dated 2/14/04 9:21:27 AM Eastern Standard Time,

aase.m@... writes:

>

>

>

> Hi ,

>

> How are you doing???

>

> Can you please explain this??? What does POTS mean? Also what do you

> mean by your hands and feet feeling weird? With presyncope, do you

> mean that you almost fainted? You got me interested here... I do have

> quite a bit of dizziness and do have funny things happening with

> hands and feet, so...

>

>

> Aase Marit

>

> & amp;gt;In a message dated 2/13/04 3:55:53 PM Eastern Standard Time,

> & amp;gt;kdavis@... writes:

> & amp;gt;

> & amp;gt; & amp;gt; & amp;gt;Does anyone get bad foot pain when their BP drops?

Caro

> & amp;gt; & amp;gt;

> & amp;gt; & amp;gt; No, but I am guessing maybe you are getting the blood pooling

in

> your feet.

> & amp;gt; & amp;gt;

> & amp;gt;

> & amp;gt;That is what I was going to say. I have very severe blood pooling

> according

> & amp;gt;to testing at NIH that measured it. I know on the tilt table testing

> & amp;gt;when I was

> & amp;gt;first diagnosed with POTS, they asked me about my hands or feet

feeling

> & amp;gt;wierd. My hands felt wierd and that was the blood pooling too. My

> & amp;gt;legs felt it some

> & amp;gt;but I had syncope or presyncope so I wasn't focusing on my feet by

that

> & amp;gt;point, sorry!

> & amp;gt;

> & amp;gt;Do you have POTS?

> & amp;gt;

> & amp;gt;