Kris in Hawaii/ relapse?

[Guest guest]

Hello All!!!

Sorry I have not written sooner...But it has been a busy few days with all

the stuff going on about my son's feet:)

As everyone knows I had wrote last about talking to my son's Dr. about the

information Dr. P had sent back to me after looking at the pictures I sent.

I called and talked with his secraty, told her that I had been in touch with

Dr. Ponseti, and wanted to share the information with him. Since he was not

available..(he was in sergury that day) I got his e-mail address and sent

everything to him .

He did get back to me...but on the computor, not by phone:) It was a great way

to get this over with!!! Since I was so worried ...Anyhow, we are going tomorow

for his first casting:) and will be getting 3 or 4, depending on how they look

after the 3rd. My Dr. also has been in touch with Dr. P. and they are CC ing all

our e-mails and I will be taking pictures of the progress so Dr. P. can see. My

Dr. was really good about all this and he is in contact with Dr. Ponseti often.

The funny thing is, I still do not know if its a relapse or if the feet did not

fully correct? I will have to ask Dr. tomorow.

Has anyone been in castings at 22 mo? Can anyone give me a heads up on what I'm

in for? My son is very active, nd not being able to get around will not sit well

with him:) What things can I do to make him comfortable, and what can I do to

entertain & keep busy?

How am I going to bath him? AHHHH

Everything is happening all at once, Trying to get the perfect day to cast, and

not messing up his time needed with the specialist that are cking him on all

kinds of stuff, but mostly to find if he is Autistic. I'm sorry this is so

long....!!

Thank you all for the information and suport through all this!!! I don't know

where we would be without it:)

So, if anyone can give us a little insite on what to expect, I could really use

it...

thanks, Carole & Baby Kris

born w/ Bilateral CF 6-11-02