chelation questions/long intro

[Guest guest]

Hello

I have been lurking for awhile, off and on.

I am the mother of 6 kids, three older, out of the home, and our fourth

daughter has autism,

moderate to severe, getting more severe all the time. Our two youngest

are adopted brothers

with special needs, also.

had no vaccines, and was autistic from birth. She was born

with yeast, and we

fought thrush and extreme diaper rashes for almost a year and a half.

My work was as

a wallpaper hanger for 10 yrs. prior to her birth, and I continued to

work throughout my

pregnancy. I suspect now that the pastes are full of mercury, or at

least formaldehyde,

and possibly aluminum and heaven knows what else, since the company

refused to tell me

what was in them.

During my pregnancy, I had a tooth that had amalgam in it break off, and

I had to have the

filling removed, a root canal done, and another amalgam put in! Of

course the dentist said

it wasn’t a problem at all for the baby! Ignorance isn’t bliss, it’s

hell for the other guy.

Anyway, I breastfed her, and when she was about 19 months old, I started

having my

amalgam fillings taken out. I had TONS of amalgam, and it turns out

they were in terrible

shape, having been breaking down and leaching for who knows how long.

Of course, this

dentist didn’t say anything about danger to my child, either. Within a

couple of months of

this dental work, her decline became apparent, but I never correlated it

to the dental work.

She is 13 yrs. old, so there was little information out there about

mercury and autism, and

no one would say the word autism to me, anyway, though I finally pushed

for a diagnosis.

It would be years before I would realize that mercury probably was at

the basis of her

autism, like so many children, since I hadn’t had her vaccinated.

I had put off chelation with because I had heard too many

horror stories

of parents going too fast, no one really knowing how to do this with

kids, and messing up,

etc. etc. Plus, I could never get the gut bugs under control. Finally,

in Feb. of this year, I

had her really stabilized with strict, strict diet (no sugars or

starches whatsoever), so

we started chelation.

We have done 5 rounds of DMSA, 200 mgs. every 4 hours, 3 days on, 11

off. My daughter weighs about 95 lbs. We ran a urine metals test and

it came back with some metals, but all in low range. Interestingly,

mercury was the highest, though within normal limits, yet I have always

felt it was the cause of her autism

(not from vaccines but from my amalgam fillings), but she is 13 yrs.

old, so she

hasn’t had recent exposure that I can think of, so I didn’t expect to

see much, if any at all.

I have had her on a pristine diet most of her life---lots of fresh

fruits and veggies, organic when possible (which isn’t possible very

often, given where we live), lots of onions and garlic in my cooking,

mostly untainted meat (wild game, range-fed chicken and eggs, some

northern Pacific salmon [which could be the source of the mercury]).

Rarely has she had sugar in a refined form, and then very limited, and

has been off all sugars for over a year. I also started giving her a

fresh cilantro/garlic blended with olive oil mash, a heaping teaspoon of

this stuff each day about a year ago.

The first two rounds were wonderful, though she seemed a bit sleepy, but

very responsive on the off days, then we started having the old SIBs and

other problems. I have read some parents’ ideas on chelating with DMSA

that say you should give only 1/8-1/2 mg. per lb. of body weight, which

means I would be giving her more like 50 mgs. instead of 200 mgs.; that

their children don’t have the problems with gut bug hell, etc. this way

and the metals still come out.

I have also heard about giving very low dosing of ALA along with the

DMSA if the child isn’t showing much in the way of metals being

excreted, to mobilize more out of the tissue.

My questions:

Is is possible that I have been very slowly chelating her with diet,

hence the low numbers in the urine test?

Would adding a small amount of ALA help pull more metal along with the

DMSA?

Would lower DMSA in conjunction with ALA lower the gut bug problem?

Would lower dosing still move the metals?

At what point typically is TTFD considered?

Is TTFD used alone, and do you see metals being excreted when you do?

Does TTFD typically show higher metal excretion when used in conjunction

with DMSA?

Is glutathione used all along with chelation?

In advance, THANKS!!!

Marina (hopefully I remembered all my questions!!)

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[Guest guest]

Marina,

Comments interspersed.

S

we started chelation. <br> <br>We have done 5 rounds of DMSA, 200 mgs. every 4

hours, 3 days on, 11<br>off.

>

*That's a really high dose. Andy recommends 1/8-1/2 mg per lb per dose to avoid

redistribution.

>

My daughter weighs about 95 lbs. We ran a urine metals test and<br>it came back

with some metals, but all in low range. Interestingly,<br>mercury was the

highest, though within normal limits, yet I have always<br>felt it was the cause

of her autism <br>(not from vaccines but from my amalgam fillings), but she is

13 yrs.<br>old, so she <br>hasn’t had recent exposure that I can think of, so I

didn’t expect to<br>see much, if any at all.<br> <br>

*The body often excretes other metals before it gets to the mercury.

>

I have had her on a pristine diet most of her life---lots of fresh<br>fruits and

veggies, organic when possible (which isn’t possible very<br>often, given where

we live), lots of onions and garlic in my cooking,<br>mostly untainted meat

(wild game, range-fed chicken and eggs, some<br>northern Pacific salmon [which

could be the source of the mercury]).<br>Rarely has she had sugar in a refined

form, and then very limited, and<br>has been off all sugars for over a year. I

also started giving her a<br>fresh cilantro/garlic blended with olive oil mash,

a heaping teaspoon of<br>this stuff each day about a year ago.<br> <br>The first

two rounds were wonderful, though she seemed a bit sleepy, but<br>very

responsive on the off days, then we started having the old SIBs and<br>other

problems.

>

*Sounds like redistribution of the mercury in her body.

>

I have read some parentsEideas on chelating with DMSA<br>that say you should

give only 1/8-1/2 mg. per lb. of body weight, which<br>means I would be giving

her more like 50 mgs. instead of 200 mgs.; that<br>their children don’t have the

problems with gut bug hell, etc. this way<br>and the metals still come out.

<br> <br>I have also heard about giving very low dosing of ALA along with

the<br>DMSA if the child isn’t showing much in the way of metals

being<br>excreted, to mobilize more out of the tissue.<br> <br>My questions:

<br>Is is possible that I have been very slowly chelating her with

diet,<br>hence the low numbers in the urine test?<br> <br>Would adding a small

amount of ALA help pull more metal along with the<br>DMSA? <br> <br>Would lower

DMSA in conjunction with ALA lower the gut bug problem?<br> <br>Would lower

dosing still move the metals?<br>

>

Yes

>

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[Guest guest]

> The first two rounds were wonderful, though she seemed a bit sleepy, but

> very responsive on the off days, then we started having the old SIBs and

> other problems.

Consider that yeast may now be a problem again, you might need to

increase your yeast protocol

http://www.danasview.net/yeast.htm

I have read some parents' ideas on chelating with DMSA

> that say you should give only 1/8-1/2 mg. per lb. of body weight, which

> means I would be giving her more like 50 mgs. instead of 200 mgs.; that

> their children don't have the problems with gut bug hell, etc. this way

> and the metals still come out.

Lower dose generally means lesser yeast issues.

> Would adding a small amount of ALA help pull more metal along with the

> DMSA?

In general, yes.

> Would lower DMSA in conjunction with ALA lower the gut bug problem?

Sometimes yes, other times no.

> Would lower dosing still move the metals?

Yes, altho probably not as quickly.

> At what point typically is TTFD considered?

> Is glutathione used all along with chelation?

I have never used these. My son is recovered with ALA only.

Dana

[Guest guest]

Hello Marina,

> I have been lurking for awhile, off and on.

> I am the mother of 6 kids, three older, out of the home, and our

fourth

> daughter has autism,

> moderate to severe, getting more severe all the time. Our two

youngest

> are adopted brothers

> with special needs, also.

> had no vaccines, and was autistic from birth. She was

born

> with yeast, and we

> fought thrush and extreme diaper rashes for almost a year and a

half.

> My work was as

> a wallpaper hanger for 10 yrs. prior to her birth, and I continued

to

> work throughout my

> pregnancy. I suspect now that the pastes are full of mercury, or

at

> least formaldehyde,

> and possibly aluminum and heaven knows what else, since the company

> refused to tell me

> what was in them.

> During my pregnancy, I had a tooth that had amalgam in it break

off, and

> I had to have the

> filling removed, a root canal done, and another amalgam put in! Of

> course the dentist said

> it wasn't a problem at all for the baby! Ignorance isn't bliss,

it's

> hell for the other guy.

> Anyway, I breastfed her, and when she was about 19 months old, I

started

> having my

> amalgam fillings taken out. I had TONS of amalgam, and it turns

out

> they were in terrible

> shape, having been breaking down and leaching for who knows how

long.

> Of course, this

> dentist didn't say anything about danger to my child, either.

Within a

> couple of months of

> this dental work, her decline became apparent, but I never

correlated it

> to the dental work.

> She is 13 yrs. old, so there was little information out there about

> mercury and autism, and

> no one would say the word autism to me, anyway, though I finally

pushed

> for a diagnosis.

> It would be years before I would realize that mercury probably was

at

> the basis of her

> autism, like so many children, since I hadn't had her vaccinated.

well, with some people it is the opposite--- they realize that

amalgam is dangerous, but have no idea about vaccines.

Not that this is especially relevant, just a comment on

the lack available info I guess.

>

> I had put off chelation with because I had heard too many

> horror stories

> of parents going too fast, no one really knowing how to do this

with

> kids, and messing up,

> etc. etc. Plus, I could never get the gut bugs under control.

Finally,

> in Feb. of this year, I

> had her really stabilized with strict, strict diet (no sugars or

> starches whatsoever), so

> we started chelation.

>

> We have done 5 rounds of DMSA, 200 mgs. every 4 hours, 3 days on,

11

> off. My daughter weighs about 95 lbs.

I think 200 mg is a high dose.

> We ran a urine metals test and

> it came back with some metals, but all in low range.

Interestingly,

> mercury was the highest, though within normal limits, yet I have

always

> felt it was the cause of her autism

> (not from vaccines but from my amalgam fillings), but she is 13

yrs.

> old, so she

> hasn't had recent exposure that I can think of, so I didn't expect

to

> see much, if any at all.

I would not be discouraged by this result, just keep on

with the DMSA, lower the dose, and see what happens in

a few rounds. Add ALA if you want.

>

> I have had her on a pristine diet most of her life---lots of

fresh

> fruits and veggies, organic when possible (which isn't possible

very

> often, given where we live), lots of onions and garlic in my

cooking,

> mostly untainted meat (wild game, range-fed chicken and eggs, some

> northern Pacific salmon [which could be the source of the

mercury]).

Salmon is relatively low mercury (as fish go).

> Rarely has she had sugar in a refined form, and then very limited,

and

> has been off all sugars for over a year. I also started giving

her a

> fresh cilantro/garlic blended with olive oil mash, a heaping

teaspoon of

> this stuff each day about a year ago.

>

> The first two rounds were wonderful, though she seemed a bit

sleepy, but

> very responsive on the off days, then we started having the old

SIBs and

> other problems. I have read some parents' ideas on chelating with

DMSA

> that say you should give only 1/8-1/2 mg. per lb. of body weight,

which

> means I would be giving her more like 50 mgs. instead of 200 mgs.;

yep.

> that

> their children don't have the problems with gut bug hell, etc.

this way

> and the metals still come out.

yep.

>

> I have also heard about giving very low dosing of ALA along with

the

> DMSA if the child isn't showing much in the way of metals being

> excreted, to mobilize more out of the tissue.

ALA gets mercury out of the brain and CNS. DMSA just gets it

out of the body. Some people like to start with DMSA. But you

do need to use ALA in order to get the junk out of the brain.

>

> My questions:

> Is is possible that I have been very slowly chelating her with

diet,

> hence the low numbers in the urine test?

well, it seems unlikely based on your comments on her

becoming more autistic over time.

The body often/usually does clear out mercury (if there

is not on-going exposure), on its own, in a few years time.

>

> Would adding a small amount of ALA help pull more metal along with

the

> DMSA?

yes, see comments above.

>

> Would lower DMSA in conjunction with ALA lower the gut bug problem?

maybe. although some people have more gut bugs with ALA.

If you think gut bugs are increased or a problem, then do

treat this as much as you can.

>

> Would lower dosing still move the metals?

yes. In fact, it is GOOD to move them slowly.

>

> At what point typically is TTFD considered?

<sigh> that depends on who you are asking. I don't

clain to understand. Some practitioners consider TTFD

immediately, I think.

>

> Is TTFD used alone, and do you see metals being excreted when you

do?

>

> Does TTFD typically show higher metal excretion when used in

conjunction

> with DMSA?

well, as far as I know, no one says that TTFD chelates metals.

Yet it keeps being recommended " instead of " chelation.

I don't know why.

>

> Is glutathione used all along with chelation?

please read the section here on " sulfur and thiols " .

There are several entries about glutathione. It should

help explain I think:

http://home.earthlink.net/~moriam/ANDY_INDEX.html

>

> In advance, THANKS!!!

>

> Marina (hopefully I remembered all my questions!!)

boy, if you can ask ALL your questions in one post, how

come I still have questions after 4 years of this???

good wishes,

Moria