(No subject)

[Guest guest]

Hi Naomi,

Thanks for the feedback. There's definitely a lot of information already

available to parents who have internet access, but not to those who don't. I

see this as a bit like the Back to Sleep campaign, bicycle helmet campaign

and the safety seat campaign, all of which were directed by an alum of my

college who works at Children's Hospital in DC. I heard her speak at an

alumni function last year... I'm going to try and locate her name and

contact her...

I have printed out the 32 page Global Help booklet and taken it to my

pediatrician and my ob-gyn. My pediatrician reported they see a clubfoot

baby every 3 months. It is a large practice in a large county in Northern

Virginia (over 1 million).

I like the section of the Global Help booklet geared towards parents, but I

don't think most parents are going to wade through all the other info. Plus,

the parents' info. is pretty limited. It doesn't address the practical

issues we face, such as what type of car seat, swing, high chair, clothing,

etc.

I was looking at 's site on ivillage, and most of the documents there

would be very useful to include.

Thanks for offering your grant writing skills. We will definitely need to

secure funding for printing and distribution.

Best, Joanne

Message: 11

Date: Sun, 5 Sep 2004 21:43:51 -0700 (PDT)

Subject: Re: Re:many thanks!--booklet

Joanne--

I think this is a good idea. I seem to recall someone posting the

beginnings of

something like this about a year ago. I'm pretty sure it's in the files or

links.

I recently read, on a french website, that in France they distribute a

little

booklet to parents of children born with clubfoot. It's called something

like

" Oliver's Nice Feet " and tells about what to expect as far as treatment

goes,

tips about buying clothing, how other people will react, long-term

prognosis,

that kind of thing. It sounds like it's sort of cutesy. I'm trying to get

a

copy sent to me.

Let me know what I can do. I have some experience with grant writing that

might

come in handy.

Naomi

The Family

Naomi Hannah Jonah(06/20/03, bilateral clubfoot, FAB 16/7)

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