Re: Heard back from Dr. P

[Guest guest]

,

You can try Lexington if you want, but the problem is if the doctor has never

seen, therefore treated, an atypical clubfoot, they will do more damage than

good in the end. At this time there are only a handful of doctors known that

know how to deal with the atypical foot. This includes a few overseas doctors,

Dr Colburn in California, Dr Mosca in Seattle, possibly Dr Herzenberg in

Baltimore (not certain, but very likely) and Dr Ponseti. There are several of

us on list who have children with atypical feet, and all but one, I think, have

ended up in Iowa.

I understand your husband's hesitancy to make that trip, but it may be your best

option. If you would like to read about our experience you can go to our

website at http://adifferentfoot.freeservers.com/ There our several kinds of

atypical clubfoot, and this is just the story of one, but it might give you an

idea of what we faced. We are lucky that by going to Iowa, we were able to

bring our doctor (Dr Mosca) the information on how to treat this and now when we

face additional casting we only have to go to Seattle rather than Iowa.

Feel free to contact me off list if you want. My e-mail address is

m_kitaki@...

Angel

Heard back from Dr. P

Well I finally got an email from Dr. P and it didn't sound too

good. He said that from the pics he thinks Tyler has " atypical " cf

which he says is the hardest form to treat. He also said that we

are going to have to get him the brace because the type of

cf he has does not do well in the others. He said that he don't

think that they would know how to treat the form of cf he has in

Lexington and that he thinks Tyler should be seen by him. I talked

to my hubby and he wants to see what they say in Lexington first.

My first thoughts were to grab Tyler and head to see Dr. P lol. But

guess I have to go with what the boss says. I have Dr. P's phone #

think i will call him and see what he says in more depth and maybe I

can talk hubby into just going to see Dr. P. We will see.

Tyler's mom

Bi Lat. cf

1/14/03

[Guest guest]

,

I'm glad that you heard back from Dr. Ponseti. I also hope that

your dh comes around and sees that treatment by Dr. Ponseti is

probably (definitely) your best decision - I know it's hard to come

to that conclusion, especially when there are so many orthos out

there, but truly, when Dr. Ponseti says they won't be able to treat

Tyler in Lexington, he speaks the truth (and knows his stuff

obviously). Dr. Ponseti would rather you seek treatment at home or

closer to home if possible, he doesn't drag you out his way if he

doesn't feel the need to. I'll keep you in my thoughts and prayers

as you make this decision. I do know sometimes, money can be a

definite restraint, either that or time, etc. - I just hope you can

find a way to make this happen.

Holly

Zachary 7/27/02

Unilateral Right Clubfoot

Treated by Dr. Ponseti

Nights only DBB

#2 Due: 1/8

> Well I finally got an email from Dr. P and it didn't sound too

> good. He said that from the pics he thinks Tyler has " atypical "

cf

> which he says is the hardest form to treat. He also said that we

> are going to have to get him the brace because the type

of

> cf he has does not do well in the others. He said that he don't

> think that they would know how to treat the form of cf he has in

> Lexington and that he thinks Tyler should be seen by him. I

talked

> to my hubby and he wants to see what they say in Lexington first.

> My first thoughts were to grab Tyler and head to see Dr. P lol.

But

> guess I have to go with what the boss says. I have Dr. P's phone

#

> think i will call him and see what he says in more depth and maybe

I

> can talk hubby into just going to see Dr. P. We will see.

>

>

> Tyler's mom

> Bi Lat. cf

> 1/14/03

[Guest guest]

,

I'm sorry to hear that the news was not good from Dr. Ponseti. I'm just writing

to also encourage you to please try to make the trip to Iowa. (Especially since

Tyler's foot is atypical.) We actually have been to the Lexington Shriners and

seen Dr. Talwalkar. Although I do think he is a wonderful man and a very good

doctor, I doubt that he would be able to help Tyler. Our daughter Olivia does

not have an atypical clubfoot (just your " run of the mill clubfoot " although it

is the very severe kind), but Dr. Talwalkar was not able to fully correct her

foot. We made 10 trips from Pennsylvania to Kenutcky and still ended up having

to go to Iowa.

Also, just for your info, I believe Dr. Talwalkar is the only doctor at

Lexington that is practicing the Ponseti method, so if you do decide to try

Lexington, make sure your appointment is with him.

Good luck with whatever you decide!

Jen & Livie (10-18-01 severe left clubfoot corrected at 6.5 months old, released

early from brace at 1.5 years old due to loose ligments, relapsed at 2.5 years

old, recorrected with one two week cast, and now wearing the brace 14-16 hours a

day.)

Heard back from Dr. P

Well I finally got an email from Dr. P and it didn't sound too

good. He said that from the pics he thinks Tyler has " atypical " cf

which he says is the hardest form to treat. He also said that we

are going to have to get him the brace because the type of

cf he has does not do well in the others. He said that he don't

think that they would know how to treat the form of cf he has in

Lexington and that he thinks Tyler should be seen by him. I talked

to my hubby and he wants to see what they say in Lexington first.

My first thoughts were to grab Tyler and head to see Dr. P lol. But

guess I have to go with what the boss says. I have Dr. P's phone #

think i will call him and see what he says in more depth and maybe I

can talk hubby into just going to see Dr. P. We will see.

Tyler's mom

Bi Lat. cf

1/14/03

[Guest guest]

, I am sorry that you have gotten bad news from Dr.P but I

agree totally with everyone who has responded to you. Please Please

get your DH to reconsider going to see Dr.P you can get free flights

with two airlines. One is Angel flights and I forgot what the other

one is but there are people who have used both of them on here.

Isabella has seen Dr.Talwalker and he seems like a nice man but I

don't agree with the way he treats clubbed foot. I fell in my opinion

and I hope I don't sound to rude but I feel if you see Dr.Talwalker

you will be making a very big mistake. You need to consider what is

best for your child and I think seeing Dr.P will be the best for

everyones child who has this problem. You don't want your son to go

through a long process and then end up not getting corrected right

and having more problems and possibly surgery which could of all been

prevented. As one mother said her daughter wasn't treated properly

with Dr.Talwalker that to me is one to many. I hope I didn't hurt any

feelings. I am just such a firm believer in getting a ponseti trained

doctor or Dr.P himself.

Best of Luck

(Mommy to Isabella 10-12-02 bilateral cf)

> ,

>

> I'm sorry to hear that the news was not good from Dr. Ponseti. I'm

just writing to also encourage you to please try to make the trip to

Iowa. (Especially since Tyler's foot is atypical.) We actually have

been to the Lexington Shriners and seen Dr. Talwalkar. Although I do

think he is a wonderful man and a very good doctor, I doubt that he

would be able to help Tyler. Our daughter Olivia does not have an

atypical clubfoot (just your " run of the mill clubfoot " although it

is the very severe kind), but Dr. Talwalkar was not able to fully

correct her foot. We made 10 trips from Pennsylvania to Kenutcky and

still ended up having to go to Iowa.

>

> Also, just for your info, I believe Dr. Talwalkar is the only

doctor at Lexington that is practicing the Ponseti method, so if you

do decide to try Lexington, make sure your appointment is with him.

>

> Good luck with whatever you decide!

>

> Jen & Livie (10-18-01 severe left clubfoot corrected at 6.5 months

old, released early from brace at 1.5 years old due to loose

ligments, relapsed at 2.5 years old, recorrected with one two week

cast, and now wearing the brace 14-16 hours a day.)

> Heard back from Dr. P

>

>

> Well I finally got an email from Dr. P and it didn't sound too

> good. He said that from the pics he thinks Tyler has " atypical "

cf

> which he says is the hardest form to treat. He also said that we

> are going to have to get him the brace because the type

of

> cf he has does not do well in the others. He said that he don't

> think that they would know how to treat the form of cf he has in

> Lexington and that he thinks Tyler should be seen by him. I

talked

> to my hubby and he wants to see what they say in Lexington

first.

> My first thoughts were to grab Tyler and head to see Dr. P lol.

But

> guess I have to go with what the boss says. I have Dr. P's phone

#

> think i will call him and see what he says in more depth and

maybe I

> can talk hubby into just going to see Dr. P. We will see.

>

>

> Tyler's mom

> Bi Lat. cf

> 1/14/03

>

>

>

>

[Guest guest]

I know you have heard this from a lot of people already, but I also encourage

you to make the trip to see Dr. Ponseti . We have made 6 trips since the middle

of March from Ohio to Iowa and have not been disappointed. It is a long trip

but the results are well worth it! We drove but I know a number of people have

used the Angel Flights. The Mc House in Iowa City is wonderful

also. The staff is always so kind. I just needed to share my opinion! Best

of Luck with your decision.

Bridget

2/20/04 bl cf sandals 20/7

littlebrat2002 littlebrat2002@...> wrote:

Well I finally got an email from Dr. P and it didn't sound too

good. He said that from the pics he thinks Tyler has " atypical " cf

which he says is the hardest form to treat. He also said that we

are going to have to get him the brace because the type of

cf he has does not do well in the others. He said that he don't

think that they would know how to treat the form of cf he has in

Lexington and that he thinks Tyler should be seen by him. I talked

to my hubby and he wants to see what they say in Lexington first.

My first thoughts were to grab Tyler and head to see Dr. P lol. But

guess I have to go with what the boss says. I have Dr. P's phone #

think i will call him and see what he says in more depth and maybe I

can talk hubby into just going to see Dr. P. We will see.

Tyler's mom

Bi Lat. cf

1/14/03

[Guest guest]

I went to Iowa from Oklahoma about five times for my first, and have gone

three times already for my 2nd.......definitely worth the drive/money.

s.

Re: Heard back from Dr. P

I know you have heard this from a lot of people already, but I also encourage

you to make the trip to see Dr. Ponseti . We have made 6 trips since the middle

of March from Ohio to Iowa and have not been disappointed. It is a long trip

but the results are well worth it! We drove but I know a number of people have

used the Angel Flights. The Mc House in Iowa City is wonderful

also. The staff is always so kind. I just needed to share my opinion! Best

of Luck with your decision.

Bridget

2/20/04 bl cf sandals 20/7

littlebrat2002 littlebrat2002@...> wrote:

Well I finally got an email from Dr. P and it didn't sound too

good. He said that from the pics he thinks Tyler has " atypical " cf

which he says is the hardest form to treat. He also said that we

are going to have to get him the brace because the type of

cf he has does not do well in the others. He said that he don't

think that they would know how to treat the form of cf he has in

Lexington and that he thinks Tyler should be seen by him. I talked

to my hubby and he wants to see what they say in Lexington first.

My first thoughts were to grab Tyler and head to see Dr. P lol. But

guess I have to go with what the boss says. I have Dr. P's phone #

think i will call him and see what he says in more depth and maybe I

can talk hubby into just going to see Dr. P. We will see.

Tyler's mom

Bi Lat. cf

1/14/03