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Re: Reintroducing DBB

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We had our dd in the Markell shoes and she continued to escape also.

We had to go into another cast and a Tenotomy and are now in the

shoes. Is she staying in the DBB now? I guess I would just

watch it very closely and if she continues to escape or gets another

blister she may not be fully corrected or she may need to use the

brace. You could always send some pictures to Dr Ponseti

for some reassurance that her correction is still good.

My dd still has not slept through the night, so I can't help you

there.

Tori 1/30/04 atypical bilateral cf brace 23/7

12/7/04 non clubfoot

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We had our dd in the Markell shoes and she continued to escape also.

We had to go into another cast and a Tenotomy and are now in the

shoes. Is she staying in the DBB now? I guess I would just

watch it very closely and if she continues to escape or gets another

blister she may not be fully corrected or she may need to use the

brace. You could always send some pictures to Dr Ponseti

for some reassurance that her correction is still good.

My dd still has not slept through the night, so I can't help you

there.

Tori 1/30/04 atypical bilateral cf brace 23/7

12/7/04 non clubfoot

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We had our dd in the Markell shoes and she continued to escape also.

We had to go into another cast and a Tenotomy and are now in the

shoes. Is she staying in the DBB now? I guess I would just

watch it very closely and if she continues to escape or gets another

blister she may not be fully corrected or she may need to use the

brace. You could always send some pictures to Dr Ponseti

for some reassurance that her correction is still good.

My dd still has not slept through the night, so I can't help you

there.

Tori 1/30/04 atypical bilateral cf brace 23/7

12/7/04 non clubfoot

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Hi Sandy,

I'm sorry you have to deal with a blister! You are right to be so

careful with it; others have said if not taken care of,

blisters can become pressure sores which are very nasty. We also had

a blister early on. We examined the way our son's foot was going in

the shoe, and found that the foot must be rubbing (and therefore

moving)in one area on the heel, which meant we weren't getting the

shoe snug enough on his foot. We were able to put a blister block

bandaid on the area and then tighten his buckle and shoe laces

more. It seemed that this would be too tight, but this helped

keep the foot immobilized in the shoe, which aids in preventing

blisters. He was much happier when we tightened the shoe more. We

found that as the leather softened, we had to buckle the shoe

several notches more than the initial fit (which was in Iowa City).

The blister did clear up slowly and never returned. We also found

that our son, who slept through the night very consistently, did

wake up more during the first month or two (but not terribly fussy),

but he did return to solidly sleeping after that. I was concerned

that you mentioned Lola spent two weeks out of the brace altogether.

Dr. Ponseti says that even a short time out of the brace (days or

less) can result in a reverse of the correction. When there are

blisters, he has the feet put back in casts to maintain the

correction while the blister heals. If you find you are having

trouble again in the brace, you may want to check with your doctor

to be sure the foot has not reversed correction- that will certainly

result in more fussiness or blisters while in the brace!

Caroline, mom to Zeke, bcf, treated by Dr. Ponseti

> Hi all,

>

> My name is Sandy and I have a baby girl who is now 4 months old -

> Her name is Lola. She was born with congenital bilateral clubfoot.

> Her treatment has so far been 5 plaster casts and we are now in

the

> DBB Boots and Bar. She was going OK - but then as time went on she

> was getting a little crankier - and she kept getting her right

foot

> out! She was soon nicknamed houdini. I got told to go and get some

> inserts which I did - however - one our weekly check up Dr Patel

(My

> Ortho Surgeon) became cross when he discovered that the bumper

that

> were put in were incorrect. He got some proper foam inserts put

in.

> He told me to keep a sharp eye on a blister which she had

developed

> and to return in one week. Well - our poor little baby was so

upset

> three days later - not eating, not settling - very out of

character.

> We had been out for most of the day so when we got home I told my

> husband that's it the boots are coming off - she is just not

happy.

> When we finally got them off - to my horror through her bandaid

was a

> small spot of blood! We took it off and her blister was red and

> oozing puss!! The poor thing had an infection!!! She was so

relieved

> when took them off that she actually gave us a beaming smile!! We

> raced her to a Medical Centre (being Sunday afternoon no doctors

> offices were open!) And we were promptly given antibiotics to

clear

> it. Well - as you can imagine I could not put the shoes back on

and I

> rang Dr Patel the next morning - he advised to leave them off

until I

> came back into the hospital to see him - which was four days

later -

> when we did go and see him it was still not healed and he advised

we

> keep them off for another week and them put them on once a scab

> formed and fell off. This eventually happened - she has had them

off

> now for 2.5 weeks! Her feet look fine - i cannot see any obvious

> signs of them turning in again. Anyway - today is day three of

puttin

> them back on - the first day I put them on for one hour off for

one

> hour on for our hour etc etc. Day two we did it for three hours

and

> today we have had them on all day and I will keep them on tonight -

> take them off for a bath and check her heel. So far she has been

not

> too bad. Not as bad as the first time we put them on - however I

am

> dreading tonight and wondering if anybody out there went through a

> similar experience - in having them on for a short while then off

> then on again? She does keep waking herself up in her day naps and

> gets angry and not able to sleep. It's annoying as she has been

> sleeping through the night! Not sure how I will cope without her

> sleeping through again!!

>

> Geez - I have babbled on... any advise I would love to receive!!

>

> Thanks all.

>

> Sandy and Lola

> Melbourne - Australia

> 2nd June 2004

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