Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 , A couple of questions about your shoes.... 1) do you have the newer style Markell shoes where the ankle area is padded and the heel is bumped out a little bit? You can go to the Markell website and print out the shoe sizing chart and stick 's feet on there to see what size he should be in (I think at his young age, you'll want them pretty close to what he needs, just a little bit big for room to grow) 2) There are instructions on how to form the plastizode insert in the files section under the brace instructions (also at http://pages.ivillage.com/ponseti_links) you can print this off and take it to your orthotist to see if they made the foam insert the right way. There are pictures of the plastizode insert at that site too, also in the files section under the FAB folder. You can also order plastizode inserts from American Prosthetics & Orthotics in Iowa City. They're all hand " shaved " to fit the shoes on the FAB. I hope this helps. You might also want to grab some of those Band- Aid Blister Block pads to have on hand just in case you need them. Hopefully some others will have input for you too! & > Well, I'm having problems with 's shoes again. His heels are > flat when I put them on, but they won't stay that way. When he kicks his > legs, I can see his heels moving a little. I have the strap as tight as I > can get it and I'm actually going to add another hole on each side so I can > make it a bit more tighter. I have the laces in there now so that the bow > is actually at his toes rather than his ankle. He used to have padding in > there to keep his heels from coming out, but I took it out because it was > stopping his foot from going all the way to the back of the shoe, and we > determined that his heel was rubbing on it. This is what caused his blister > and what caused the beginning of another one on the other foot. His heels > slipped so much last night that they were almost out of his shoes this > morning. We're seriously considering ordering the shoes even > though we don't know if the insurance company will help cover them or not > and money is tight right now, but I'm at my wits end with these stupid > shoes. Anyone have any advice that might help keep his heels from moving? > We go back to the doctor in two weeks and I am going to mention it to him > too. I'm actually beginning to wonder if the fact that they're actually at > least one size larger than he needs has anything to do with it. > > Thanks! > > and > BCF 03/25/2004 > DBB 23/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 You know, it sounds like the shoes are just too big for him. I would try a smaller pair before spending the $350 for shoes. Mostly because of the $. The shoes shouldn't be 1 size larger than he needs. Was this to save $ or a recommendation from the Orthotics department? Either way, they should fit him properly and if it means smaller shoes then get them right away. Also, have you enlarged the tongue keeper slit so the tongue sits at or under the top of the boot? Might help some during the waiting for smaller shoes. If it were me I'd insist on smaller shoes. What size is he wearing right now anyway? Hang in there , it always gets better :~} Darbi and are almost exactly one year apart. Her birthday is 3/28/03 so you're about exactly where I was at this time last year. Time really does fly. I assure you that! I just realized it was 2 years ago (about to the day) that I got pg with her in the first place. Wow! > Kori Mama of Kenton 6/98 Merek 3/00 Darbi 3/03 - Rt. CF - DBB 12hr/day (¨`·.·´¨) `·.¸(¨`·.·´¨) `·.¸.·´ At 01:15 PM 6/28/2004, you wrote: >Well, I'm having problems with 's shoes again. His heels are >flat when I put them on, but they won't stay that way. When he kicks his >legs, I can see his heels moving a little. I have the strap as tight as I >can get it and I'm actually going to add another hole on each side so I can >make it a bit more tighter. I have the laces in there now so that the bow >is actually at his toes rather than his ankle. He used to have padding in >there to keep his heels from coming out, but I took it out because it was >stopping his foot from going all the way to the back of the shoe, and we >determined that his heel was rubbing on it. This is what caused his blister >and what caused the beginning of another one on the other foot. His heels >slipped so much last night that they were almost out of his shoes this >morning. We're seriously considering ordering the shoes even >though we don't know if the insurance company will help cover them or not >and money is tight right now, but I'm at my wits end with these stupid >shoes. Anyone have any advice that might help keep his heels from moving? >We go back to the doctor in two weeks and I am going to mention it to him >too. I'm actually beginning to wonder if the fact that they're actually at >least one size larger than he needs has anything to do with it. > >Thanks! > > and >BCF 03/25/2004 >DBB 23/7 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 The orthotist decided on the size so he'd have room to grow into them. There's about 3/4 of an inch from the tips of his toes to the very end of the shoes. Is that too much? I know I don't have that much room in my shoes. His first pair were 000 and he would have fit in the 00, but the orthotist put him in size 0 so he'd have room to grow. I did increase the tongue keeper slit. I even tried taking the tongue completely out and that didn't help either. Our doctor has suggested getting the shoes twice already because he really thinks they'd be better for . We'd definitely have to keep the shoes we have, even if we get smaller ones, since we've modified them a bit. : ) I'd be happy if is heels would just stay put. I think the reason I have a bit of a problem with his left foot is because the inside edge of it tips up a bit. I asked the doctor about it and he said it's because of the muscle imbalance that caused his clubfoot in the first place. Until is actually walking and walking for a while, the doc won't know if the imbalance will fix itself or if he'll need to have tendon transfer surgery. and BCF 03/25/2004 DBB 23/7 Re: Shoe problems You know, it sounds like the shoes are just too big for him. I would try a smaller pair before spending the $350 for shoes. Mostly because of the $. The shoes shouldn't be 1 size larger than he needs. Was this to save $ or a recommendation from the Orthotics department? Either way, they should fit him properly and if it means smaller shoes then get them right away. Also, have you enlarged the tongue keeper slit so the tongue sits at or under the top of the boot? Might help some during the waiting for smaller shoes. If it were me I'd insist on smaller shoes. What size is he wearing right now anyway? Hang in there , it always gets better :~} Darbi and are almost exactly one year apart. Her birthday is 3/28/03 so you're about exactly where I was at this time last year. Time really does fly. I assure you that! I just realized it was 2 years ago (about to the day) that I got pg with her in the first place. Wow! > Kori Mama of Kenton 6/98 Merek 3/00 Darbi 3/03 - Rt. CF - DBB 12hr/day (¨`·.·´¨) `·.¸(¨`·.·´¨) `·.¸.·´ At 01:15 PM 6/28/2004, you wrote: >Well, I'm having problems with 's shoes again. His heels are >flat when I put them on, but they won't stay that way. When he kicks his >legs, I can see his heels moving a little. I have the strap as tight as I >can get it and I'm actually going to add another hole on each side so I can >make it a bit more tighter. I have the laces in there now so that the bow >is actually at his toes rather than his ankle. He used to have padding in >there to keep his heels from coming out, but I took it out because it was >stopping his foot from going all the way to the back of the shoe, and we >determined that his heel was rubbing on it. This is what caused his blister >and what caused the beginning of another one on the other foot. His heels >slipped so much last night that they were almost out of his shoes this >morning. We're seriously considering ordering the shoes even >though we don't know if the insurance company will help cover them or not >and money is tight right now, but I'm at my wits end with these stupid >shoes. Anyone have any advice that might help keep his heels from moving? >We go back to the doctor in two weeks and I am going to mention it to him >too. I'm actually beginning to wonder if the fact that they're actually at >least one size larger than he needs has anything to do with it. > >Thanks! > > and >BCF 03/25/2004 >DBB 23/7 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 OK - call me an alarmist... but all this sounds... well... like there's some problems all around. First off, 3/4 " ??? no, no, no... *Maybe* half an inch. Which would put the big toes just inside the leather and that's even pretty darn big if you ask me. Darbi has had shoes that big before. But not 3/4 " too big, much bigger than 1/2 " and I imagine she too would slip. I wouldn't worry about these shoes and the modifications. If you get smaller shoes you'll need these eventually. HOWEVER... since they insisted he needed *room to grow* they should not charge you for the correct size. That's their job, to fit the child PROPERLY. You as the parent should not have to know how to fit these shoes for your child for them. Want me to call and get on their case for you? :~} Second... the inside heel is turning in/up? What? And this isn't call for additional casting? The only treatment option is the tendon transfer? RUN!!! RUN far away as fast as you can! This doc wants to cut your child's foot open if he's not willing to cast again to get proper correction. That's plain weird if you ask me. All this with the shoes not staying on, slipping and blisters... well I would hazard a guess that he needs more casting and proper correction. Follow your instinct and get a second opinion. You yourself said you have a problem with the correction. If you're worried, it sounds like it's worth a second opinion to me. Especially since they talk about surgery and waiting and seeing. Bunk! Kori At 03:08 PM 6/28/2004, you wrote: >The orthotist decided on the size so he'd have room to grow into them. >There's about 3/4 of an inch from the tips of his toes to the very end of >the shoes. Is that too much? I know I don't have that much room in my >shoes. His first pair were 000 and he would have fit in the 00, but the >orthotist put him in size 0 so he'd have room to grow. I did increase the >tongue keeper slit. I even tried taking the tongue completely out and that >didn't help either. Our doctor has suggested getting the shoes >twice already because he really thinks they'd be better for . >We'd definitely have to keep the shoes we have, even if we get smaller ones, >since we've modified them a bit. : ) I'd be happy if is heels would just >stay put. > >I think the reason I have a bit of a problem with his left foot is because >the inside edge of it tips up a bit. I asked the doctor about it and he >said it's because of the muscle imbalance that caused his clubfoot in the >first place. Until is actually walking and walking for a while, >the doc won't know if the imbalance will fix itself or if he'll need to have >tendon transfer surgery. > > and >BCF 03/25/2004 >DBB 23/7 > > > Re: Shoe problems > > >You know, it sounds like the shoes are just too big for him. I would try a >smaller pair before spending the $350 for shoes. Mostly because >of the $. The shoes shouldn't be 1 size larger than he needs. Was this to >save $ or a recommendation from the Orthotics department? Either way, they >should fit him properly and if it means smaller shoes then get them right >away. Also, have you enlarged the tongue keeper slit so the tongue sits at >or under the top of the boot? Might help some during the waiting for >smaller shoes. If it were me I'd insist on smaller shoes. What size is he >wearing right now anyway? > >Hang in there , it always gets better :~} Darbi and are >almost exactly one year apart. Her birthday is 3/28/03 so you're about >exactly where I was at this time last year. Time really does fly. I >assure you that! I just realized it was 2 years ago (about to the day) >that I got pg with her in the first place. Wow! > > > > > >Kori >Mama of >Kenton 6/98 >Merek 3/00 >Darbi 3/03 - Rt. CF - DBB 12hr/day > (¨`·.·´¨) > `·.¸(¨`·.·´¨) > `·.¸.·´ > > > > > > > At 01:15 PM 6/28/2004, you wrote: > >Well, I'm having problems with 's shoes again. His heels are > >flat when I put them on, but they won't stay that way. When he kicks his > >legs, I can see his heels moving a little. I have the strap as tight as I > >can get it and I'm actually going to add another hole on each side so I can > >make it a bit more tighter. I have the laces in there now so that the bow > >is actually at his toes rather than his ankle. He used to have padding in > >there to keep his heels from coming out, but I took it out because it was > >stopping his foot from going all the way to the back of the shoe, and we > >determined that his heel was rubbing on it. This is what caused his >blister > >and what caused the beginning of another one on the other foot. His heels > >slipped so much last night that they were almost out of his shoes this > >morning. We're seriously considering ordering the shoes even > >though we don't know if the insurance company will help cover them or not > >and money is tight right now, but I'm at my wits end with these stupid > >shoes. Anyone have any advice that might help keep his heels from moving? > >We go back to the doctor in two weeks and I am going to mention it to him > >too. I'm actually beginning to wonder if the fact that they're actually at > >least one size larger than he needs has anything to do with it. > > > >Thanks! > > > > and > >BCF 03/25/2004 > >DBB 23/7 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 I did find mention of the tendon transfer procedure mentioned on Dr. Ponseti's site, which I pasted here -- (Relapses are common in severe clubfeet and are probably caused by the same pathology that initiated the deformity, but they may easily be corrected by manipulation and two to three plaster casts. When a second relapse occurs and the tibialis anterior muscle has a strong supinatory action, the tendon must be transferred to the third cuneiform. This transfer prevents further relapse and corrects the anteroposterior talcocalcaneal angle, thereby greatly reducing the need for tarsal release) -- so it is needed sometimes. 's feet are flat on the floor when there is weight on them, but the one foot tips up to the inside when his foot is picked up. Our doctor said that it usually corrects itself and is caused by the inside muscle being stronger than the outside muscle and this causes the foot to tip. This is also the cause of his clubfoot. They need to see if his foot continues to tip like that after he's walking, so if surgery is recommended for this, it won't be until he's between 2 and 4 years old. The doctor isn't rushing surgery or really even talking about it. It was just mentioned that it was a possibility when he gets older. I think his feet are corrected, I just think there's a problem with the shoes and getting them on him properly. We're most likely going to have to go back to the brace shop and work with them to get these darn things fitted properly. We go back to the orthopedist in two weeks and we're also going to talk to him about all this stuff. I also actually measured wrong too. I didn't measure from his big toe. It does appear to be about 1/2 inch, maybe a tad more than that, but I think we're still going to ask for the smaller size shoes for him. and BCF 03/25/2004 DBB 23/7 Re: Shoe problems OK - call me an alarmist... but all this sounds... well... like there's some problems all around. First off, 3/4 " ??? no, no, no... *Maybe* half an inch. Which would put the big toes just inside the leather and that's even pretty darn big if you ask me. Darbi has had shoes that big before. But not 3/4 " too big, much bigger than 1/2 " and I imagine she too would slip. I wouldn't worry about these shoes and the modifications. If you get smaller shoes you'll need these eventually. HOWEVER... since they insisted he needed *room to grow* they should not charge you for the correct size. That's their job, to fit the child PROPERLY. You as the parent should not have to know how to fit these shoes for your child for them. Want me to call and get on their case for you? :~} Second... the inside heel is turning in/up? What? And this isn't call for additional casting? The only treatment option is the tendon transfer? RUN!!! RUN far away as fast as you can! This doc wants to cut your child's foot open if he's not willing to cast again to get proper correction. That's plain weird if you ask me. All this with the shoes not staying on, slipping and blisters... well I would hazard a guess that he needs more casting and proper correction. Follow your instinct and get a second opinion. You yourself said you have a problem with the correction. If you're worried, it sounds like it's worth a second opinion to me. Especially since they talk about surgery and waiting and seeing. Bunk! Kori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 I know they are pricey but the shoes really do solve a lot of these issues and if it avoids sores, regression and/or surgery, they are worth the money. My son had terrible pressure sores and was in constant pain in the " regular " boots. He went hysterical putting them on each time. The boots were off more than on due to the pain they caused and the sores needing time to heal. 's shoes fit like a soft glove and I have had NO issues since starting them. No pain, no discomfort, no sores. My baby wears them like a second-skin. He doesn't complain when I put them on him, either, he sits happily and goes off to play like normal soon as I'm done with the buckles. s. Re: Shoe problems > > >You know, it sounds like the shoes are just too big for him. I would try a >smaller pair before spending the $350 for shoes. Mostly because >of the $. The shoes shouldn't be 1 size larger than he needs. Was this to >save $ or a recommendation from the Orthotics department? Either way, they >should fit him properly and if it means smaller shoes then get them right >away. Also, have you enlarged the tongue keeper slit so the tongue sits at >or under the top of the boot? Might help some during the waiting for >smaller shoes. If it were me I'd insist on smaller shoes. What size is he >wearing right now anyway? > >Hang in there , it always gets better :~} Darbi and are >almost exactly one year apart. Her birthday is 3/28/03 so you're about >exactly where I was at this time last year. Time really does fly. I >assure you that! I just realized it was 2 years ago (about to the day) >that I got pg with her in the first place. Wow! > > > > > >Kori >Mama of >Kenton 6/98 >Merek 3/00 >Darbi 3/03 - Rt. CF - DBB 12hr/day > (¨`·.·´¨) > `·.¸(¨`·.·´¨) > `·.¸.·´ > > > > > > > At 01:15 PM 6/28/2004, you wrote: > >Well, I'm having problems with 's shoes again. His heels are > >flat when I put them on, but they won't stay that way. When he kicks his > >legs, I can see his heels moving a little. I have the strap as tight as I > >can get it and I'm actually going to add another hole on each side so I can > >make it a bit more tighter. I have the laces in there now so that the bow > >is actually at his toes rather than his ankle. He used to have padding in > >there to keep his heels from coming out, but I took it out because it was > >stopping his foot from going all the way to the back of the shoe, and we > >determined that his heel was rubbing on it. This is what caused his >blister > >and what caused the beginning of another one on the other foot. His heels > >slipped so much last night that they were almost out of his shoes this > >morning. We're seriously considering ordering the shoes even > >though we don't know if the insurance company will help cover them or not > >and money is tight right now, but I'm at my wits end with these stupid > >shoes. Anyone have any advice that might help keep his heels from moving? > >We go back to the doctor in two weeks and I am going to mention it to him > >too. I'm actually beginning to wonder if the fact that they're actually at > >least one size larger than he needs has anything to do with it. > > > >Thanks! > > > > and > >BCF 03/25/2004 > >DBB 23/7 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 I know they are pricey but the shoes really do solve a lot of these issues and if it avoids sores, regression and/or surgery, they are worth the money. My son had terrible pressure sores and was in constant pain in the " regular " boots. He went hysterical putting them on each time. The boots were off more than on due to the pain they caused and the sores needing time to heal. 's shoes fit like a soft glove and I have had NO issues since starting them. No pain, no discomfort, no sores. My baby wears them like a second-skin. He doesn't complain when I put them on him, either, he sits happily and goes off to play like normal soon as I'm done with the buckles. s. Re: Shoe problems > > >You know, it sounds like the shoes are just too big for him. I would try a >smaller pair before spending the $350 for shoes. Mostly because >of the $. The shoes shouldn't be 1 size larger than he needs. Was this to >save $ or a recommendation from the Orthotics department? Either way, they >should fit him properly and if it means smaller shoes then get them right >away. Also, have you enlarged the tongue keeper slit so the tongue sits at >or under the top of the boot? Might help some during the waiting for >smaller shoes. If it were me I'd insist on smaller shoes. What size is he >wearing right now anyway? > >Hang in there , it always gets better :~} Darbi and are >almost exactly one year apart. Her birthday is 3/28/03 so you're about >exactly where I was at this time last year. Time really does fly. I >assure you that! I just realized it was 2 years ago (about to the day) >that I got pg with her in the first place. Wow! > > > > > >Kori >Mama of >Kenton 6/98 >Merek 3/00 >Darbi 3/03 - Rt. CF - DBB 12hr/day > (¨`·.·´¨) > `·.¸(¨`·.·´¨) > `·.¸.·´ > > > > > > > At 01:15 PM 6/28/2004, you wrote: > >Well, I'm having problems with 's shoes again. His heels are > >flat when I put them on, but they won't stay that way. When he kicks his > >legs, I can see his heels moving a little. I have the strap as tight as I > >can get it and I'm actually going to add another hole on each side so I can > >make it a bit more tighter. I have the laces in there now so that the bow > >is actually at his toes rather than his ankle. He used to have padding in > >there to keep his heels from coming out, but I took it out because it was > >stopping his foot from going all the way to the back of the shoe, and we > >determined that his heel was rubbing on it. This is what caused his >blister > >and what caused the beginning of another one on the other foot. His heels > >slipped so much last night that they were almost out of his shoes this > >morning. We're seriously considering ordering the shoes even > >though we don't know if the insurance company will help cover them or not > >and money is tight right now, but I'm at my wits end with these stupid > >shoes. Anyone have any advice that might help keep his heels from moving? > >We go back to the doctor in two weeks and I am going to mention it to him > >too. I'm actually beginning to wonder if the fact that they're actually at > >least one size larger than he needs has anything to do with it. > > > >Thanks! > > > > and > >BCF 03/25/2004 > >DBB 23/7 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 , Forgive me if I have missed this, but could you tell us WHO the doctor is? I dont believe that there are many out there right now who know about the shoes or what are the reasons for using them, which leads me to believe that your doctor has seen/spoke with Dr Ponseti in the last 6 months. >I think the reason I have a bit of a problem with his left foot is because >the inside edge of it tips up a bit. I asked the doctor about it and he >said it's because of the muscle imbalance that caused his clubfoot in the >first place. Until is actually walking and walking for a while, >the doc won't know if the imbalance will fix itself or if he'll need to have >tendon transfer surgery. I was recently told this very same thing - by Dr Mosca AND Dr Ponseti. From what I gather, this tendency to tip up/walk on the inside of the foot (older children) is relatively common is clubfoot and this IS what decides the ATTT later on. There is no way of knowing at this age, and it is a bit alarming for the doctors to speak so plainly about the ATTT, but I think they are just trying to say there is no way to know right now. The more experienced doctors are now getting very used to the parents knowing a great deal about clubfoot and the Ponseti treatment, so they are more likely to speak frankly than used to be the case, IMHO. Anyway, if you could tell us who the doctor is that is treating , we would be better able to let you know about his experience, as well as that of his orthotists. Angel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 , I am sure you have checked everything, but is the strap that goes across the foot through the lower slit on the sides. Our problem was that we were in the top slit when it was set up by the orthotist. Louisa and Zoe 2-22-04 Right Uni 6-27-99 > Well, I'm having problems with 's shoes again. His heels are > flat when I put them on, but they won't stay that way. When he kicks his > legs, I can see his heels moving a little. I have the strap as tight as I > can get it and I'm actually going to add another hole on each side so I can > make it a bit more tighter. I have the laces in there now so that the bow > is actually at his toes rather than his ankle. He used to have padding in > there to keep his heels from coming out, but I took it out because it was > stopping his foot from going all the way to the back of the shoe, and we > determined that his heel was rubbing on it. This is what caused his blister > and what caused the beginning of another one on the other foot. His heels > slipped so much last night that they were almost out of his shoes this > morning. We're seriously considering ordering the shoes even > though we don't know if the insurance company will help cover them or not > and money is tight right now, but I'm at my wits end with these stupid > shoes. Anyone have any advice that might help keep his heels from moving? > We go back to the doctor in two weeks and I am going to mention it to him > too. I'm actually beginning to wonder if the fact that they're actually at > least one size larger than he needs has anything to do with it. > > Thanks! > > and > BCF 03/25/2004 > DBB 23/7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 If the shoes are too big, would it help to put two pairs of socks on to help fill the gap? Our shoes were also big enough that his toes were 3/4 inch or shorter than the end of the shoe, and until the leather softened so that we could draw it tighter around the heel/ankle area, we used two pairs of socks. I also added padding (the type you put in shoes to make them fit; padded on one side and adhesive on the other; I cut them to fit) to areas of the tongue that would help hold the heel down, if that makes sense. I also remember reading on this list that someone had used a product to soften the leather early on- I think we will do that with the next pair. Or flex them the way people do to new baseball gloves so they fit? Caroline mom to Zeke, 14 mos. bcf Dr. Ponseti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 If the shoes are too big, would it help to put two pairs of socks on to help fill the gap? Our shoes were also big enough that his toes were 3/4 inch or shorter than the end of the shoe, and until the leather softened so that we could draw it tighter around the heel/ankle area, we used two pairs of socks. I also added padding (the type you put in shoes to make them fit; padded on one side and adhesive on the other; I cut them to fit) to areas of the tongue that would help hold the heel down, if that makes sense. I also remember reading on this list that someone had used a product to soften the leather early on- I think we will do that with the next pair. Or flex them the way people do to new baseball gloves so they fit? Caroline mom to Zeke, 14 mos. bcf Dr. Ponseti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 If the shoes are too big, would it help to put two pairs of socks on to help fill the gap? Our shoes were also big enough that his toes were 3/4 inch or shorter than the end of the shoe, and until the leather softened so that we could draw it tighter around the heel/ankle area, we used two pairs of socks. I also added padding (the type you put in shoes to make them fit; padded on one side and adhesive on the other; I cut them to fit) to areas of the tongue that would help hold the heel down, if that makes sense. I also remember reading on this list that someone had used a product to soften the leather early on- I think we will do that with the next pair. Or flex them the way people do to new baseball gloves so they fit? Caroline mom to Zeke, 14 mos. bcf Dr. Ponseti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 , perhaps his foot is not fully corrected? Have you tried standing him flat on his feet to see if he plants his feet flat onto the floor? You should try doing this...if he stands on the outer edge, I'd think that his foot is not fully corrected and could do with an additional cast. You may want to take some photos and email them to Dr. P for his opinion. Daiga > >Well, I'm having problems with 's shoes again. His heels are > >flat when I put them on, but they won't stay that way. When he kicks his > >legs, I can see his heels moving a little. I have the strap as tight as I > >can get it and I'm actually going to add another hole on each side so I can > >make it a bit more tighter. I have the laces in there now so that the bow > >is actually at his toes rather than his ankle. He used to have padding in > >there to keep his heels from coming out, but I took it out because it was > >stopping his foot from going all the way to the back of the shoe, and we > >determined that his heel was rubbing on it. This is what caused his > blister > >and what caused the beginning of another one on the other foot. His heels > >slipped so much last night that they were almost out of his shoes this > >morning. We're seriously considering ordering the shoes even > >though we don't know if the insurance company will help cover them or not > >and money is tight right now, but I'm at my wits end with these stupid > >shoes. Anyone have any advice that might help keep his heels from moving? > >We go back to the doctor in two weeks and I am going to mention it to him > >too. I'm actually beginning to wonder if the fact that they're actually at > >least one size larger than he needs has anything to do with it. > > > >Thanks! > > > > and > >BCF 03/25/2004 > >DBB 23/7 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 , perhaps his foot is not fully corrected? Have you tried standing him flat on his feet to see if he plants his feet flat onto the floor? You should try doing this...if he stands on the outer edge, I'd think that his foot is not fully corrected and could do with an additional cast. You may want to take some photos and email them to Dr. P for his opinion. Daiga > >Well, I'm having problems with 's shoes again. His heels are > >flat when I put them on, but they won't stay that way. When he kicks his > >legs, I can see his heels moving a little. I have the strap as tight as I > >can get it and I'm actually going to add another hole on each side so I can > >make it a bit more tighter. I have the laces in there now so that the bow > >is actually at his toes rather than his ankle. He used to have padding in > >there to keep his heels from coming out, but I took it out because it was > >stopping his foot from going all the way to the back of the shoe, and we > >determined that his heel was rubbing on it. This is what caused his > blister > >and what caused the beginning of another one on the other foot. His heels > >slipped so much last night that they were almost out of his shoes this > >morning. We're seriously considering ordering the shoes even > >though we don't know if the insurance company will help cover them or not > >and money is tight right now, but I'm at my wits end with these stupid > >shoes. Anyone have any advice that might help keep his heels from moving? > >We go back to the doctor in two weeks and I am going to mention it to him > >too. I'm actually beginning to wonder if the fact that they're actually at > >least one size larger than he needs has anything to do with it. > > > >Thanks! > > > > and > >BCF 03/25/2004 > >DBB 23/7 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 , perhaps his foot is not fully corrected? Have you tried standing him flat on his feet to see if he plants his feet flat onto the floor? You should try doing this...if he stands on the outer edge, I'd think that his foot is not fully corrected and could do with an additional cast. You may want to take some photos and email them to Dr. P for his opinion. Daiga > >Well, I'm having problems with 's shoes again. His heels are > >flat when I put them on, but they won't stay that way. When he kicks his > >legs, I can see his heels moving a little. I have the strap as tight as I > >can get it and I'm actually going to add another hole on each side so I can > >make it a bit more tighter. I have the laces in there now so that the bow > >is actually at his toes rather than his ankle. He used to have padding in > >there to keep his heels from coming out, but I took it out because it was > >stopping his foot from going all the way to the back of the shoe, and we > >determined that his heel was rubbing on it. This is what caused his > blister > >and what caused the beginning of another one on the other foot. His heels > >slipped so much last night that they were almost out of his shoes this > >morning. We're seriously considering ordering the shoes even > >though we don't know if the insurance company will help cover them or not > >and money is tight right now, but I'm at my wits end with these stupid > >shoes. Anyone have any advice that might help keep his heels from moving? > >We go back to the doctor in two weeks and I am going to mention it to him > >too. I'm actually beginning to wonder if the fact that they're actually at > >least one size larger than he needs has anything to do with it. > > > >Thanks! > > > > and > >BCF 03/25/2004 > >DBB 23/7 > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Hi Angel, The doctor's name is A. Ballock. He works out of The Children's Hospital with the Cleveland Clinic Foundation. There's another mom on this list that goes to him too, and I found out from her that he actually did go out and train with Dr. Ponseti. It's good to know that our doctor isn't the only one who mentioned this surgery. and BCF 03/25/2004 DBB 23/7 Re: Shoe problems > , > > Forgive me if I have missed this, but could you tell us WHO the doctor is? I dont believe that there are many out there right now who know about the shoes or what are the reasons for using them, which leads me to believe that your doctor has seen/spoke with Dr Ponseti in the last 6 months. > > >I think the reason I have a bit of a problem with his left foot is because > >the inside edge of it tips up a bit. I asked the doctor about it and he > >said it's because of the muscle imbalance that caused his clubfoot in the > >first place. Until is actually walking and walking for a while, > >the doc won't know if the imbalance will fix itself or if he'll need to have > >tendon transfer surgery. > > I was recently told this very same thing - by Dr Mosca AND Dr Ponseti. From what I gather, this tendency to tip up/walk on the inside of the foot (older children) is relatively common is clubfoot and this IS what decides the ATTT later on. There is no way of knowing at this age, and it is a bit alarming for the doctors to speak so plainly about the ATTT, but I think they are just trying to say there is no way to know right now. The more experienced doctors are now getting very used to the parents knowing a great deal about clubfoot and the Ponseti treatment, so they are more likely to speak frankly than used to be the case, IMHO. > > Anyway, if you could tell us who the doctor is that is treating , we would be better able to let you know about his experience, as well as that of his orthotists. > > Angel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 , I have not seen anything (good or bad) about your doctor - which only means that he does not have many patients that are at this group and that he hasnt written any papers on the subject of clubfoot/Ponseti management. It is good that he trained with Dr Ponseti and the fact that he knows about the sandalls says that he is likely still in contact with/following Ponseti, which is another good thing. Still, were I you I would go ahead and send pics to Dr Ponseti. I only say this because he is very good at determining the root of a problem, and has the most experience in seeing unusual things that may come along with non-surgical correction. It is not second guessing your current doctor, it is only looking for more information. I have done it - in fact, I actually had to take Kai to see Dr P because our regular doctor was not familiar with the specific problem with Kai's foot (for that fact, Dr Ponseti was not very familiar with it!) Angel Re: Shoe problems > , > > Forgive me if I have missed this, but could you tell us WHO the doctor is? I dont believe that there are many out there right now who know about the shoes or what are the reasons for using them, which leads me to believe that your doctor has seen/spoke with Dr Ponseti in the last 6 months. > > >I think the reason I have a bit of a problem with his left foot is because > >the inside edge of it tips up a bit. I asked the doctor about it and he > >said it's because of the muscle imbalance that caused his clubfoot in the > >first place. Until is actually walking and walking for a while, > >the doc won't know if the imbalance will fix itself or if he'll need to have > >tendon transfer surgery. > > I was recently told this very same thing - by Dr Mosca AND Dr Ponseti. From what I gather, this tendency to tip up/walk on the inside of the foot (older children) is relatively common is clubfoot and this IS what decides the ATTT later on. There is no way of knowing at this age, and it is a bit alarming for the doctors to speak so plainly about the ATTT, but I think they are just trying to say there is no way to know right now. The more experienced doctors are now getting very used to the parents knowing a great deal about clubfoot and the Ponseti treatment, so they are more likely to speak frankly than used to be the case, IMHO. > > Anyway, if you could tell us who the doctor is that is treating , we would be better able to let you know about his experience, as well as that of his orthotists. > > Angel > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Oops....It's actually R. Ballock. : ) and BCF 03/25/2004 DBB 23/7 Re: Shoe problems > > > > , > > > > Forgive me if I have missed this, but could you tell us WHO the doctor is? > I dont believe that there are many out there right now who know about the > shoes or what are the reasons for using them, which leads me to > believe that your doctor has seen/spoke with Dr Ponseti in the last 6 > months. > > > > >I think the reason I have a bit of a problem with his left foot is > because > > >the inside edge of it tips up a bit. I asked the doctor about it and he > > >said it's because of the muscle imbalance that caused his clubfoot in the > > >first place. Until is actually walking and walking for a > while, > > >the doc won't know if the imbalance will fix itself or if he'll need to > have > > >tendon transfer surgery. > > > > I was recently told this very same thing - by Dr Mosca AND Dr Ponseti. > >From what I gather, this tendency to tip up/walk on the inside of the foot > (older children) is relatively common is clubfoot and this IS what decides > the ATTT later on. There is no way of knowing at this age, and it is a bit > alarming for the doctors to speak so plainly about the ATTT, but I think > they are just trying to say there is no way to know right now. The more > experienced doctors are now getting very used to the parents knowing a great > deal about clubfoot and the Ponseti treatment, so they are more likely to > speak frankly than used to be the case, IMHO. > > > > Anyway, if you could tell us who the doctor is that is treating > , we would be better able to let you know about his experience, > as well as that of his orthotists. > > > > Angel > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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