Guest guest Posted July 25, 2003 Report Posted July 25, 2003 Hi DJ, Along with Gail's excellent advice, I would also ask the endo, if the TSH is within what he considers the normal range for someone who has not yet had surgery, could something else be causing the fatigue and the other " hypo " systems that you described earlier? Just to give one example, high blood calcium can produce symptoms that are vey similar to being " hypo " and s/he should check this, and any other possibilities, before your surgery. As Gail writes, there is light at the end of the tunnel, and once you have had surgery and RAI and are on the right dose of thyroxine you should soon feel much better than you do now. Best wishes, Judith (British in Holland) dx 1965 > > I need some encouragement that this constant fatigue will subside > > once I get this surgery done (next Wed, TT) and onto thyroid meds. > > My bloodwork showed that thyroid was fine, not hypo, although I have > > all the symptoms and have felt like crap for months and months... Quote
Guest guest Posted May 10, 2005 Report Posted May 10, 2005 Hello Sabina Welcome to the group. Your husband's kidney function is still pretty good, as evidenced by his serum creatinine, and his proteinuria is very mild. I was like that the first 15 years or so with IgAN. Sometimes, I think that the things people are on these days have some influence on causing symptoms like fatigue (ACE inhibitors and other blood pressure drugs, the large quantities of fish oil, oral steroids, immunosuppressants, etc.). However, while it's difficult to relate it to having IgAN specifically, I always did notice during my military career that I tired far more easily than the average person. I remember so many times when the other guys were all ready to go out on the town after a hard day's work and all I wanted to do was to stay on the base or on the ship and sleep. I was on no medications at all in those days, therefore I know it wasn't related to medication. As the old Zen saying goes, " when you are hungry, eat. When you are weary, sleep " . So, I just slept :-) Fatigue is a common subject in this group though, so, I suspect that it IS a factor among IgAN patients, independent of the level of actual renal insufficiency, and that having one's blood pressure lowered artificially just adds to it. Pierre Fatigue > Hello everyone, > many thanks for this very helpful place. > I would like to ask one question. > > My husband was diagnosed with IgaN one year ago. He is checked regularly > by his Neph and his lab results remain stable and do not change much - > creatinin around 125 mmol/l and protein around 0,5g / 24h. He is on very > moderate low-protein diet, on 2 different ACE inhibitors and on fish oil. > However last 3 - 4 months he feels tired. He sleeps every night at least > 7 - 8 hours but in the afternoons he has to rest again for 60 - 90 > minutes. If not he is very tired. He also need much more time to recover > from any exercice or sports activity (mountain bike, hiking, golf etc.). > Is that normal with IgaN or should we change something in the diet? > > Many thanks for any answer and help. > > Regards > Sabina > Quote
Guest guest Posted May 10, 2005 Report Posted May 10, 2005 Hello Sabina Welcome to the group. Your husband's kidney function is still pretty good, as evidenced by his serum creatinine, and his proteinuria is very mild. I was like that the first 15 years or so with IgAN. Sometimes, I think that the things people are on these days have some influence on causing symptoms like fatigue (ACE inhibitors and other blood pressure drugs, the large quantities of fish oil, oral steroids, immunosuppressants, etc.). However, while it's difficult to relate it to having IgAN specifically, I always did notice during my military career that I tired far more easily than the average person. I remember so many times when the other guys were all ready to go out on the town after a hard day's work and all I wanted to do was to stay on the base or on the ship and sleep. I was on no medications at all in those days, therefore I know it wasn't related to medication. As the old Zen saying goes, " when you are hungry, eat. When you are weary, sleep " . So, I just slept :-) Fatigue is a common subject in this group though, so, I suspect that it IS a factor among IgAN patients, independent of the level of actual renal insufficiency, and that having one's blood pressure lowered artificially just adds to it. Pierre Fatigue > Hello everyone, > many thanks for this very helpful place. > I would like to ask one question. > > My husband was diagnosed with IgaN one year ago. He is checked regularly > by his Neph and his lab results remain stable and do not change much - > creatinin around 125 mmol/l and protein around 0,5g / 24h. He is on very > moderate low-protein diet, on 2 different ACE inhibitors and on fish oil. > However last 3 - 4 months he feels tired. He sleeps every night at least > 7 - 8 hours but in the afternoons he has to rest again for 60 - 90 > minutes. If not he is very tired. He also need much more time to recover > from any exercice or sports activity (mountain bike, hiking, golf etc.). > Is that normal with IgaN or should we change something in the diet? > > Many thanks for any answer and help. > > Regards > Sabina > Quote
Guest guest Posted May 10, 2005 Report Posted May 10, 2005 I take coenzyme Q10 (not all the time just when I need some energy or I've been flagging), it's in all of us and is used to metabolise sugars. It's a bit pricey but works better than anything else and has no discernable side effects I can quantify, though apparently it helps lower blood pressure. I have taken this when doing some rather extreme sporting activities and it worked well, and you don't get any kind of hang over afterwards. As with all these things though, if in doubt, check with your nephro. Bizarrely it appears if you try and do more with IgAN you can cope better with the fatigue, so the usual advice is to keep fit as you can, a pain and hard work but it's worth it. jeff > Hello everyone, > many thanks for this very helpful place. > I would like to ask one question. > > My husband was diagnosed with IgaN one year ago. He is checked regularly by his Neph and his lab results remain stable and do not change much - creatinin around 125 mmol/l and protein around 0,5g / 24h. He is on very moderate low-protein diet, on 2 different ACE inhibitors and on fish oil. > However last 3 - 4 months he feels tired. He sleeps every night at least 7 - 8 hours but in the afternoons he has to rest again for 60 - 90 minutes. If not he is very tired. He also need much more time to recover from any exercice or sports activity (mountain bike, hiking, golf etc.). Is that normal with IgaN or should we change something in the diet? > > Many thanks for any answer and help. > > Regards > Sabina Quote
Guest guest Posted May 10, 2005 Report Posted May 10, 2005 I am glad you posted this question. I too have been recently diagnosed with IgaN but I am on NO MEDS yet. I also get VERY tired this past year or so. I have NEVER been one to need a nap in the afternoon and I have found myself falling asleep sitting straight up because I get so tired. I did ask my Neph if my new diagnosis could be the cause of this and he told me NO. He said maybe I need more sleep at night. I felt like a whipped puppy sitting in his office. I get my sleep at night but still does not help me. I sure can't wait to see what others here have to say when they answer your question. Because now my husband thinks I am being LAZY. Heidi Fatigue Hello everyone, many thanks for this very helpful place. I would like to ask one question. My husband was diagnosed with IgaN one year ago. He is checked regularly by his Neph and his lab results remain stable and do not change much - creatinin around 125 mmol/l and protein around 0,5g / 24h. He is on very moderate low-protein diet, on 2 different ACE inhibitors and on fish oil. However last 3 - 4 months he feels tired. He sleeps every night at least 7 - 8 hours but in the afternoons he has to rest again for 60 - 90 minutes. If not he is very tired. He also need much more time to recover from any exercice or sports activity (mountain bike, hiking, golf etc.). Is that normal with IgaN or should we change something in the diet? Many thanks for any answer and help. Regards Sabina To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote
Guest guest Posted May 10, 2005 Report Posted May 10, 2005 I am glad you posted this question. I too have been recently diagnosed with IgaN but I am on NO MEDS yet. I also get VERY tired this past year or so. I have NEVER been one to need a nap in the afternoon and I have found myself falling asleep sitting straight up because I get so tired. I did ask my Neph if my new diagnosis could be the cause of this and he told me NO. He said maybe I need more sleep at night. I felt like a whipped puppy sitting in his office. I get my sleep at night but still does not help me. I sure can't wait to see what others here have to say when they answer your question. Because now my husband thinks I am being LAZY. Heidi Fatigue Hello everyone, many thanks for this very helpful place. I would like to ask one question. My husband was diagnosed with IgaN one year ago. He is checked regularly by his Neph and his lab results remain stable and do not change much - creatinin around 125 mmol/l and protein around 0,5g / 24h. He is on very moderate low-protein diet, on 2 different ACE inhibitors and on fish oil. However last 3 - 4 months he feels tired. He sleeps every night at least 7 - 8 hours but in the afternoons he has to rest again for 60 - 90 minutes. If not he is very tired. He also need much more time to recover from any exercice or sports activity (mountain bike, hiking, golf etc.). Is that normal with IgaN or should we change something in the diet? Many thanks for any answer and help. Regards Sabina To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote
Guest guest Posted May 10, 2005 Report Posted May 10, 2005 Heidi, I had the same problem it wasn't that I didn't get enough sleep I have sleep apany. In my sleep they found I would stop breathing for several seconds before starting again. I stopped breathing 155 times during the night the longest period was 20 seconds. This leaves you tired because your heart has to work extra to keep oxygen level up. -Ray Heidi wrote:I am glad you posted this question. I too have been recently diagnosed with IgaN but I am on NO MEDS yet. I also get VERY tired this past year or so. I have NEVER been one to need a nap in the afternoon and I have found myself falling asleep sitting straight up because I get so tired. I did ask my Neph if my new diagnosis could be the cause of this and he told me NO. He said maybe I need more sleep at night. I felt like a whipped puppy sitting in his office. I get my sleep at night but still does not help me. I sure can't wait to see what others here have to say when they answer your question. Because now my husband thinks I am being LAZY. Heidi Fatigue Hello everyone, many thanks for this very helpful place. I would like to ask one question. My husband was diagnosed with IgaN one year ago. He is checked regularly by his Neph and his lab results remain stable and do not change much - creatinin around 125 mmol/l and protein around 0,5g / 24h. He is on very moderate low-protein diet, on 2 different ACE inhibitors and on fish oil. However last 3 - 4 months he feels tired. He sleeps every night at least 7 - 8 hours but in the afternoons he has to rest again for 60 - 90 minutes. If not he is very tired. He also need much more time to recover from any exercice or sports activity (mountain bike, hiking, golf etc.). Is that normal with IgaN or should we change something in the diet? Many thanks for any answer and help. Regards Sabina To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote
Guest guest Posted May 10, 2005 Report Posted May 10, 2005 Heidi, I had the same problem it wasn't that I didn't get enough sleep I have sleep apany. In my sleep they found I would stop breathing for several seconds before starting again. I stopped breathing 155 times during the night the longest period was 20 seconds. This leaves you tired because your heart has to work extra to keep oxygen level up. -Ray Heidi wrote:I am glad you posted this question. I too have been recently diagnosed with IgaN but I am on NO MEDS yet. I also get VERY tired this past year or so. I have NEVER been one to need a nap in the afternoon and I have found myself falling asleep sitting straight up because I get so tired. I did ask my Neph if my new diagnosis could be the cause of this and he told me NO. He said maybe I need more sleep at night. I felt like a whipped puppy sitting in his office. I get my sleep at night but still does not help me. I sure can't wait to see what others here have to say when they answer your question. Because now my husband thinks I am being LAZY. Heidi Fatigue Hello everyone, many thanks for this very helpful place. I would like to ask one question. My husband was diagnosed with IgaN one year ago. He is checked regularly by his Neph and his lab results remain stable and do not change much - creatinin around 125 mmol/l and protein around 0,5g / 24h. He is on very moderate low-protein diet, on 2 different ACE inhibitors and on fish oil. However last 3 - 4 months he feels tired. He sleeps every night at least 7 - 8 hours but in the afternoons he has to rest again for 60 - 90 minutes. If not he is very tired. He also need much more time to recover from any exercice or sports activity (mountain bike, hiking, golf etc.). Is that normal with IgaN or should we change something in the diet? Many thanks for any answer and help. Regards Sabina To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote
Guest guest Posted May 10, 2005 Report Posted May 10, 2005 Heidi, I had the same problem it wasn't that I didn't get enough sleep I have sleep apany. In my sleep they found I would stop breathing for several seconds before starting again. I stopped breathing 155 times during the night the longest period was 20 seconds. This leaves you tired because your heart has to work extra to keep oxygen level up. -Ray Heidi wrote:I am glad you posted this question. I too have been recently diagnosed with IgaN but I am on NO MEDS yet. I also get VERY tired this past year or so. I have NEVER been one to need a nap in the afternoon and I have found myself falling asleep sitting straight up because I get so tired. I did ask my Neph if my new diagnosis could be the cause of this and he told me NO. He said maybe I need more sleep at night. I felt like a whipped puppy sitting in his office. I get my sleep at night but still does not help me. I sure can't wait to see what others here have to say when they answer your question. Because now my husband thinks I am being LAZY. Heidi Fatigue Hello everyone, many thanks for this very helpful place. I would like to ask one question. My husband was diagnosed with IgaN one year ago. He is checked regularly by his Neph and his lab results remain stable and do not change much - creatinin around 125 mmol/l and protein around 0,5g / 24h. He is on very moderate low-protein diet, on 2 different ACE inhibitors and on fish oil. However last 3 - 4 months he feels tired. He sleeps every night at least 7 - 8 hours but in the afternoons he has to rest again for 60 - 90 minutes. If not he is very tired. He also need much more time to recover from any exercice or sports activity (mountain bike, hiking, golf etc.). Is that normal with IgaN or should we change something in the diet? Many thanks for any answer and help. Regards Sabina To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote
Guest guest Posted May 10, 2005 Report Posted May 10, 2005 I allways felt tired before being diagnosed with IGA. I actually went to see my family doctor prior to being diagnosed because my wife was telling me she's tired of seeing me tired.:-) I asked both my family doctor and my neph if kidney disease was the the reason and both said no. My neph took it a step further and sent me to get a heart doppler ultra sound and said if they didn't find anything wrong he would call me a wimp. He was joking of course. They found nothing wrong with the heart so now I just try and push through the tiredness. Some days I feel great, but somedays, like someone else said, feels like the energy is just being sucked out of me. Maybe stress?? I wish my better half had an intrest in the symptoms of IGA instead of calling me bump on a log sometimes. Gordon Quote
Guest guest Posted May 10, 2005 Report Posted May 10, 2005 I allways felt tired before being diagnosed with IGA. I actually went to see my family doctor prior to being diagnosed because my wife was telling me she's tired of seeing me tired.:-) I asked both my family doctor and my neph if kidney disease was the the reason and both said no. My neph took it a step further and sent me to get a heart doppler ultra sound and said if they didn't find anything wrong he would call me a wimp. He was joking of course. They found nothing wrong with the heart so now I just try and push through the tiredness. Some days I feel great, but somedays, like someone else said, feels like the energy is just being sucked out of me. Maybe stress?? I wish my better half had an intrest in the symptoms of IGA instead of calling me bump on a log sometimes. Gordon Quote
Guest guest Posted May 10, 2005 Report Posted May 10, 2005 I allways felt tired before being diagnosed with IGA. I actually went to see my family doctor prior to being diagnosed because my wife was telling me she's tired of seeing me tired.:-) I asked both my family doctor and my neph if kidney disease was the the reason and both said no. My neph took it a step further and sent me to get a heart doppler ultra sound and said if they didn't find anything wrong he would call me a wimp. He was joking of course. They found nothing wrong with the heart so now I just try and push through the tiredness. Some days I feel great, but somedays, like someone else said, feels like the energy is just being sucked out of me. Maybe stress?? I wish my better half had an intrest in the symptoms of IGA instead of calling me bump on a log sometimes. Gordon Quote
Guest guest Posted May 10, 2005 Report Posted May 10, 2005 Gordon, There are a lot of us bumps on that log :-) Pierre RE: Fatigue >I allways felt tired before being diagnosed with IGA. I actually went > to see my family doctor prior to being diagnosed because my wife was > telling me she's tired of seeing me tired.:-) I asked both my family > doctor and my neph if kidney disease was the the reason and both said > no. My neph took it a step further and sent me to get a heart doppler > ultra sound and said if they didn't find anything wrong he would call > me a wimp. He was joking of course. They found nothing wrong with the > heart so now I just try and push through the tiredness. Some days I > feel great, but somedays, like someone else said, feels like the energy > is just being sucked out of me. Maybe stress?? I wish my better half > had an intrest in the symptoms of IGA instead of calling me bump on a > log sometimes. > > Gordon > > Quote
Guest guest Posted May 10, 2005 Report Posted May 10, 2005 Gordon, There are a lot of us bumps on that log :-) Pierre RE: Fatigue >I allways felt tired before being diagnosed with IGA. I actually went > to see my family doctor prior to being diagnosed because my wife was > telling me she's tired of seeing me tired.:-) I asked both my family > doctor and my neph if kidney disease was the the reason and both said > no. My neph took it a step further and sent me to get a heart doppler > ultra sound and said if they didn't find anything wrong he would call > me a wimp. He was joking of course. They found nothing wrong with the > heart so now I just try and push through the tiredness. Some days I > feel great, but somedays, like someone else said, feels like the energy > is just being sucked out of me. Maybe stress?? I wish my better half > had an intrest in the symptoms of IGA instead of calling me bump on a > log sometimes. > > Gordon > > Quote
Guest guest Posted July 9, 2006 Report Posted July 9, 2006 Hi, mentioned that she has been battling fatigue for a long time. I have PBC short for primary biliary cirrhosis. The cirrhosis is the 4th stage of the disease. It's a disease of the bile ducts and is autoimmune of unknown origin. It's also genetic and primarily a woman's disease. I don't want to alarm you, but one of the first symptoms is fatigue and itching. They say the fatigue of PBC is one of the worse of any disease. It is also being researched by some doctors. Since I have gone GF, my fatigue is much better, and my last blood tests were within normal limits for the first time since 1982!! You might want to research PBC and see if any symptoms fit. One of the blood tests they look at is Alkaline Phosphatase, and the marker for PBC is an AMA test. A few people have PBC and their AMA is negative. If it's positive, you have PBC. Doctors are becoming more aware of it, and women are getting diagnosis much younger which is a blessing. The sooner your diagnosed, the quicker you can get on Urso (the medication for it) that slows the progression. Since they have started people on Urso, fewer and fewer people progress to liver transplant stage. Donna S. Quote
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