Re: Re: Visit with Dr. Dobbs

[Guest guest]

Pam

Don't be hard on yourself. Yes, we get the service for free but does that mean

we should get inferiour service? Not at all! The Shriners Hospitals are known to

be some of the best hospitals around with some of the best doctors in their

fields. No one, wheather they pay or not should feel like they deserve anything

less then the best care for themselves and their families. This is North

America! We live in the richest country in the world, we pride ourselves on

being fair and non-judgmental, or at least as a Canadian I believe both Canada

and the States are similar in that belief.

You should expect the best care. There is no way we would expect to get poor

service from our dentist, or our car repair man, or our family doctor. Don't

expect less from the Shriners. All 4 of my children go to the Shriners for

treatments for Brittle Bones. I know they are the best Hospitals and have the

best doctors. I have never found doctors as good and as knowledgeable as I have

found at the Shriners, in both Canada and here.

So good for you in being brave enough to step up and talk to Dr. Dobbs. He needs

to know from us if his team is with him or not, so that he can provide us with

the best care he has been trained to give our children.

Bravo!

pammi_kay pammi_kay@...> wrote:

The information here helps me to make informed decisions for 's

care. It's been helping me do that for almost 3 years now! Thanks

for the encouragement. It bothers me to vent or complain considering

it's Shriner's. Did you get my reply to your e-mail?

Pam and (8-12-01)

> Pam-

>

> I totally understand your frustration. Good job sticking up for

your son!

> Informed parents are so valuable! This board is a great way to get

info and

> I am so thankful for it'.

>

>

>

> Visist with Dr. Dobbs

>

>

> > Just returned from a visit to Shriner's with Dr. Dobbs. He said

> > 's feet look great. Before we saw him the nurse sent us to

the

> > shop to get his shoes and brace length checked. Usually things go

> > okay (I say ususally because we have had problems before) with the

> > brace shop. But I am not happy with them right now. The

orthotist

> > had us to put 's shoes on and he said okay, they are fine. I

> > said, " No, we have had these shoes for 8 months now and he is

> > begining to pull one of his feet out in the early morning hours

> > because they are uncomfortable and he says it's too tight. " (He's

> > almost 3--he's pretty good about telling you what's wrong.) His

toes

> > on one foot come to almost the end of the shoe, but are not

hanging

> > off. This is usually where he begins feeling uncomfortable. Well

> > the orthotist says these are a size 5 right? And I say yes and he

> > says these shoes don't come any larger that that. (And thankfully

> > due to the time I spend on this board each day trying to keep up

with

> > all the latest on caring for my child) I say no, that's not

correct,

> > these shoes go up to a size 8 and due to an increase in some kids

> > relapsing due to growth spurts when they are in their third year

> > Markwell has put a size 8 1/2 and 9 into production. So he goes

and

> > looks and comes back and said I was wrong I found a size 5 1/2,

but I

> > don't know what you're going to do after that because my

supervisor

> > doesn't order them past that. Isn't the Dr. going to be taking

him

> > out of them soon anyway. I said I don't know I haven't seen the

Dr.

> > yet, but I know we're not getting out of them now because he is

still

> > tolerating them well and the risk for relapse is too high for

me. We

> > also can't extend the length of his bar any and according to the

way

> > Dr. Dobbs checks it it is exactly right right now. The orthotis

said

> > it's actually too wide right now because HE (the orthotist)

measures

> > from the middle of his leg and not from his heels. So we have a

> > shoes that are a half size bigger and a bar that has no room to

> > grow. We definitely won't make it six months on that. I'm not

upset

> > with Dr. Dobbs he said to e-mail him as soon as we start to see

that

> > he is going to have problems. But the brace shop upsets me.

Bracing

> > is such an important part of this treatment. We have worked so

hard,

> > never missed a night in the shoes and they almost have an attitude

> > like sorry, can't help you anymore. They should be encouraging

and

> > trying to do things to help not be an obstacle you have to

overcome.

> > Don't get me wrong, I am so thankful to Shriner's. We were able

to

> > see Dr. Dobbs and not have to fight our insurance and pay out of

> > network. And when I first went there I would never dream of

> > complaining over anything they did. I am so thankful for what

they

> > have done for us, but you don't want results comprimised. If I

> > didn't know the things that I do I probably would have a different

> > attitude toward the shoes like why do we still need them? That

guy

> > didn't even know they come that big and he's an orthotist and he

> > thinks it's time for not to have them anymore. But

thankfully

> > from reading this board I know better. But what about the next

> > person?

> >

> > Pam and (8-12-01)

> >

> >

> >

> >

> >

> >

> >