Re: Have you gotten to the point?

[Guest guest]

Cindy,

I kind of chuckled to myself when I read this post. The doctors never seem

to know, yet often they like to act as though they do. When was in

the hospital, Dermatology came up and asked if they could see him. It was

one of the staff physicians along with about 4 or 5 others, a mixture of

residents and interns. I said, sure, but he doesn't have the type of EDS

that has skin issues, at least sure doesn't have any.

Beth

Have you gotten to the point?

> That when at a new Dr that doesn't know jack S..t about EDS, that you just

( under your breath of course) you just laugh at them. Endro yesterday, the

Dr said he knew very little of EDS and continually kept trying to hold

Dylan's hand and stretch the skin off it. (his skin isn't stretchy) Is that

all they know?..... Dylan and I just looked at each other and had that, why

bother telling them, look between us. The Drs you know you are going too see

again, of course you try to teach them what they are willing to learn, but

the one time Drs?... It's getting old.

> And the stiae marks? " ,,,,,,Well of course he has stretch marks he has

gained 20 pounds and grew an inch " . Give me a break please!!!! Can we please

see a real Dr????

> Cindy C.

>

>

>

[Guest guest]

Hi Cindy,

>:-X !!!!!!!!! I'm sorry Fridays appt was such a waste of time and

energy. REALLY! >:-L foaming at the mouth here! I grew an inch

every month for 6 months straight in the prime of my growth spurt

when I was 13 and I didn't get one stretch mark. And yikes, the

photos of Dylans marks sure look OwChY!

In regards to skin issues in general... I don't have stretchy skin

everywhere. I have doughy, stretchy, thin, skin on the upper, inner

portion of my arms, and thin, mildly stretchy skin on my hands. I'll

have to take photos I guess. My ankles are scarred with shaving

nicks from the SUMMER... still! Microscopic nicks that I couldn't

even see the cut but bleed leave dot scars about this big: { } So

I'm not really sure what Im stuck with here. I'm labeled as severe

systemic HMS but I have gastro symptoms, high heart rate and

palpations, fainted, speech issues, etc. etc. and don't think

its 'benign hms'.

Hope you have better luck with the next Dr. SHEESH! By the way, any

luck with finding a new family Dr.? And how is the energy work

progressing!?

Take care Cindy,

-Rhea