Re: Marfan emergency cards

[Guest guest]

Both my children have medic alert bracelets as well. They also have the

sport bands and both say Ehlers-Danlos Vascular Type. also has

other issues that are on his, that I had to change after his surgery. His

says the EDS and then Right Horner's Syndrome, No BP, IV or Bloodwork on

Right Arm.

Beth

Re: Marfan emergency cards

> Yes, and they are a good idea for anyone with any chronic

illness/disorder.

> I have the actual Medic Alert brand and they are the FIRST organization

who

> actually knew something about VEDS. They put it right on the bracelet,

and if

> and when a doctor calls, they give all information such as diagnosis',

meds,

> emergency contacts and brief info about the disorder over the phone. For

> vascular it says somethign like this:

> Ehlers-Danlos Syndroem Vascular type, prone to arterial, intestinal, and

> uterine ruptures. Call immediately.

>

> I have one and so do both my children....they have nice " Sport Bands " for

the

> kids.

>

>