Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 , We actually have the yahoo chat going - it's at 9:00 p.m. I don't know if we're doing it every night, or specific nights. I went in on Saturday and Sunday night. Holly Zachary 7/27/02 > > > Actually, ALOT of people have this problem. Some have had to go > > thru several doctors before finding the right one for them. There > > are surgery doctors and there are non-surgery doctors and if you > > have a surgery doc nothing will convince them otherwise most of > the > > time. It is very sad, because they refuse to admit that there is > > another way. > > > > > > You said that he has had 3 surgeries already (amazing at such a > > young age, IMO) What were the surgeries/what was done? > > > > > > Angel > > > > > > new to group > > > > > > > > > Hi my name is and I have a son with Bi-lateral club > feet. > > > His name is Tyler. He is now 18 months and we have been through > 3 > > > surgeries, countless castings, braces and dennis brown shoes > with > > > bar. His doc says if he is not walking this month he is > thinking > > of > > > doing another surgery. I looked on the internet and found a > place > > > here that helps kids with special needs and found that they came > > to > > > the house and now has started physical therepy. In my searches > on > > > the internet I also found Shriner's hospital. I have gotten him > > an > > > appt. hoping to get a second opinion. This last pair of shoes > his > > > doc put him in knowing that his heel did not fit into the bottom > > of > > > the shoe. His doc even took xrays and seen that his heel was > not > > > fitting into the shoe and he said to just let it go for a month > > and > > > hope that the shoes with the bar would help. I didn't think > this > > > was right. Tyler has not wore the shoes in the past couple of > > weeks > > > cause they do not fit right. I am hoping that not too much > damage > > > will have been done. He goes to the Shriner's hospital the 27th > of > > > this month. I just don't want to go back to his regular > > orthopedic > > > doc cause I don't want him to do surgery on Tyler. He is an > > > pediatric orthopedic surgeon so I think that his first thought > is > > > surgery and I am hoping maybe correction can be obtained in > > another > > > way. I was just wondering if anyone else has had probs with > docs > > > like this? I also thought it would be good to know that we are > > not > > > alone in going through what we have and will go through. > > > > > > > > > thanks > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 How do u get into the yahoo chat??? Armstrong williamanddeantesmom99_02@...> wrote:Well I joined the group for messages and stuff but because I dont use aol I can not join in the chats. Why dont we just use the chat rooms that yahoo has set up for the clubfeet? It would make it easier on everyone.. Because everyone on here has a yahoo id im sure of.. and its 10 times simpler than aol. Aol is a pain in the butt.. And I for one dont have the money to use aol There are 22 messages in this issue. Topics in this digest: 1. Tenotomy for premature baby From: " iditwagner " 2. Re: Re: new to group From: Robin Lane 3. Re: new to group From: " pammi_kay " 4. Re: Re: Chat 8:00 p.m. From: Robin Lane 5. Re: new to group From: " " 6. Re: Does anyone have an appointment with Dr.Dobbs July 15th??? From: " Kathy Gutierrez " 7. Re: Tenotomy for premature baby From: " kitaki " 8. Re: Re: new to group From: " kitaki " 9. Re: Re: Chat 8:00 p.m. From: Tichauer 10. Re: Chat 8:00 p.m. From: " littlebrat2002 " 11. Re: Does anyone get SSI benefits for their children with clubbed feet? From: " littlebrat2002 " 12. Re: Re: Chat 8:00 p.m. From: " Kori Rush " 13. Re: Chat 8:00 p.m. From: " Marilouise Tozier " 14. Re: new to group From: " littlebrat2002 " 15. Re: Chat 8:00 p.m. From: " Holly " 16. Re: Re: Chat 8:00 p.m. From: Tichauer 17. Re: Chat 8:00 p.m. From: " Marilouise Tozier " 18. Re: Does anyone have an appointment with Dr.Dobbs July 15th??? From: " pammi_kay " 19. Re: Does anyone have an appointment with Dr.Dobbs July 15th??? From: " pammi_kay " 20. Re: UGH. Will it ever end!?! From: MJZ28SS@... 21. Re: Tenotomy for premature baby (shoes donations for tiny feet) From: " iditwagner " 22. Re: Does anyone get SSI benefits for their children with clubbed feet? From: " Lundsten " ________________________________________________________________________ ________________________________________________________________________ Message: 1 Date: Sat, 10 Jul 2004 14:52:12 -0000 From: " iditwagner " Subject: Tenotomy for premature baby Hello, Hello, my friends daughter decided to come out when she was 29 weeks in her mom's belly (-: they started the casting pretty soon after that and she is about to have the Tenotomy a week from today. – this is one week before her " original " due date. Her parents already know they might have problems with shoes size.- any ideas? Dose anyone no if it is safe to go through tenotomy at this point? Can it be too early for the ligaments? Thanks Idit, mom to Oshri, 10 month. BL ClubFoot, heavy DBB for 16/24 hours.. http://truly_clubfoot.tripod.com - website in Hebrew. To see the photos click on the leftist link on the top frame. ________________________________________________________________________ ________________________________________________________________________ Message: 2 Date: Sat, 10 Jul 2004 08:35:20 -0700 (PDT) From: Robin Lane Subject: Re: Re: new to group Hi Angel, That Dr. Mosca is something isn't he? I am so impressed with his knowledge. I know he hasn't been doing the Ponseti method but about 5 years, but what he knows about club foot is astounding. That is great information about how to stimulate the tendon to get it to stretch. And when he showed that her little boy's foot was not relapsing, it is the femoral torsion that is causing his unusual gate, I said a little prayer of thanks that we ended up in his office. Just over a year ago, we walked into his office for what we thought was a consultation for surgery and found out that Rose's foot could be corrected without surgery. We so won the lottery that day! Our little girl is so busy all the time and her foot looks so great. I have to really look to tell her feet apart. Her club foot still has all that extra skin and of course she has the little scar from the tenotony, but otherwise, her feet loot so great. It is too early to tell if there will be much of a size difference. I don't care from the standpoint of buying two pairs of shoes or whatever, we do what we have to do for our kids. I just don't want her to get made fun of when she gets to school. Although, my little red-headed girl is pretty tough and she already holds her own with the older kids at daycare. Also, Angel, I felt so bad for you when you posted about Kai's blister on his foot. I truly hope it is a flaw in the shoe as they suspect. If his foot is growing and the strap is rubbing, that may be all it is. Rose gets funny marks on her feet from time to time, and every time I see a wierd red spot, my heart stops. Then I have to check and see which foot it is on : ), Take care, Robin & Rose 3/11/03 Right club foot. kitaki wrote: Dr Mosca and Dr Ponseti both told me the same thing. They both also said that just because it is imballanced now (18 mo) doesnt mean it wont straighten out. Dr M said to stimulate the outside of the foot/ankle by tickling it to try to get him to stretch is foot in that direction. Both doc's said to use high-tops for everyday shoes to help keep the ankle straight, thereby stretching the inside tendon. Both also concurred that it would be some time yet before it was known if he would need the ATTT. Angel > Hi Angel and , > > I just wanted to drop in here and tell you what I found out recently. At Rose's last appointment with Dr. Mosca, he explained to me that we have two major tendons on the tops of our foot and in a normal foot, they work together to raise the foot. In about 30% of club foot children, one tendon is stronger than the other and this causes the foot to be raised sideways instead of straight up and down. That is were the ATTT surgery comes in because they take the strong tendon and cross it over to foot and attach it to the other side so the foot lifts properly. Lucky for us Rose does not have this problem but I just thought it was very good information. > > Robin & Rose > 3/12/03 > right club foot > > kitaki wrote: > As a side note, both Dr Mosca and Dr Ponseti have mentioned that Kai may need the ATTT in the future, but they are talking a few years. He is also 18 months. Even then, sometimes casting can manage/correct the sittuation without needing to resort to the ATTT. Recently someone on list reported that they had thought an ATTT was needed, but after Dr Ponseti casted, it was not needed - the child was 3, I think. > > Angel > new to group > > > > > > Hi my name is and I have a son with Bi-lateral club feet. > > His name is Tyler. He is now 18 months and we have been through 3 > > surgeries, countless castings, braces and dennis brown shoes with > > bar. His doc says if he is not walking this month he is thinking > of > > doing another surgery. I looked on the internet and found a place > > here that helps kids with special needs and found that they came > to > > the house and now has started physical therepy. In my searches on > > the internet I also found Shriner's hospital. I have gotten him > an > > appt. hoping to get a second opinion. This last pair of shoes his > > doc put him in knowing that his heel did not fit into the bottom > of > > the shoe. His doc even took xrays and seen that his heel was not > > fitting into the shoe and he said to just let it go for a month > and > > hope that the shoes with the bar would help. I didn't think this > > was right. Tyler has not wore the shoes in the past couple of > weeks > > cause they do not fit right. I am hoping that not too much damage > > will have been done. He goes to the Shriner's hospital the 27th of > > this month. I just don't want to go back to his regular > orthopedic > > doc cause I don't want him to do surgery on Tyler. He is an > > pediatric orthopedic surgeon so I think that his first thought is > > surgery and I am hoping maybe correction can be obtained in > another > > way. I was just wondering if anyone else has had probs with docs > > like this? I also thought it would be good to know that we are > not > > alone in going through what we have and will go through. > > > > > > thanks > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 , when you come to this group online and log in, there is a chat link on the left side of your screen - it will take you to the chat section for this group. Just in case you read the group messages through your email, here is the link to the group online: http://health.groups.yahoo.com/group/nosurgery4clubfoot/ Don't forget to log in. Hope this helps, Daiga and Owen, 02/04/03 Unilateral LCF, FAB 14/24 > > > Actually, ALOT of people have this problem. Some have had to go > > thru several doctors before finding the right one for them. There > > are surgery doctors and there are non-surgery doctors and if you > > have a surgery doc nothing will convince them otherwise most of > the > > time. It is very sad, because they refuse to admit that there is > > another way. > > > > > > You said that he has had 3 surgeries already (amazing at such a > > young age, IMO) What were the surgeries/what was done? > > > > > > Angel > > > > > > new to group > > > > > > > > > Hi my name is and I have a son with Bi-lateral club > feet. > > > His name is Tyler. He is now 18 months and we have been through > 3 > > > surgeries, countless castings, braces and dennis brown shoes > with > > > bar. His doc says if he is not walking this month he is > thinking > > of > > > doing another surgery. I looked on the internet and found a > place > > > here that helps kids with special needs and found that they came > > to > > > the house and now has started physical therepy. In my searches > on > > > the internet I also found Shriner's hospital. I have gotten him > > an > > > appt. hoping to get a second opinion. This last pair of shoes > his > > > doc put him in knowing that his heel did not fit into the bottom > > of > > > the shoe. His doc even took xrays and seen that his heel was > not > > > fitting into the shoe and he said to just let it go for a month > > and > > > hope that the shoes with the bar would help. I didn't think > this > > > was right. Tyler has not wore the shoes in the past couple of > > weeks > > > cause they do not fit right. I am hoping that not too much > damage > > > will have been done. He goes to the Shriner's hospital the 27th > of > > > this month. I just don't want to go back to his regular > > orthopedic > > > doc cause I don't want him to do surgery on Tyler. He is an > > > pediatric orthopedic surgeon so I think that his first thought > is > > > surgery and I am hoping maybe correction can be obtained in > > another > > > way. I was just wondering if anyone else has had probs with > docs > > > like this? I also thought it would be good to know that we are > > not > > > alone in going through what we have and will go through. > > > > > > > > > thanks > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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