Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Joy, Thank you so much for sharing Rose's story. Right now Becky is only 2 1/2, but it gives me lots of hope on what to look forward to when she is 5! , mommy to Becky 11/12/01 bilateral clubfoot -- In nosurgery4clubfoot , " loulee3412 " wrote: > Hi Joy, > > Thank you for sharing Rose's story. I am so pleased that the PT is > helping with her strength. I will keep this in mind as Zoe grows. > She is righty only, so I have concerns/questions that can only be > answered with time. I couldn't see the pictures, but will try again > later. > > Take care, > Louisa > 6-27-99 > Zoe 2-22-04 RCF FAB 18/7 > > > > A little background: > > > > Rose was born with a left clubfoot over 5 years ago. At 10 days > old she > > received her first, crappy below-the-knee cast from the hospital's > on call > > ortho who hadn't seen a case of clubfoot in 8 years. After a > hellish cast > > removal the night before, he was excited to hear she hadn't kicked > the cast > > off, so the next cast stayed on for two weeks. Woo hoo. At around > 2.5 months > > she was referred to a pediatric ortho who was 3 hours away. He > said the ortho > > had been casting incorrectly, and the casts should have been above > the knee. > > The ped ortho went on to apply a large fiberglass cast. We were > then to > > alternate visits with the ortho and ped ortho, and to tell the > ortho to apply > > an above-knee cast. > > > > Rose also had x-rays to determine that, yes, she would absolutely > need surgery. > > I remember the ped ortho holding up the x-rays in the window and > explaining > > and showing exactly why it would have to be done. He traced her > foot showing > > what would be done to correct it. ...We will cut this here, pull > this down, > > cut this here, align this. Then she was to wear a large post- > surgical casts > > for 6-8 weeks and go onto wear an AFO for a year. > > > > Didn't happen. At six months of age and only three weeks before > her scheduled > > surgery I called Dr. Ponseti. Thanks to 's encouragement > that it was NOT > > too late. Rose received a cast from Dr. P, and it responded > marvelously. > > After the first cast, Dr. P said her foot looked fantastic, and she > could have > > her tenotomy now. We started wearing the brace a week after she > would have > > gone through surgery. > > > > So, anyway, a little longer winded than I planned, but Rose wore > the FAB till > > she was 2.5. At that age, Dr. Ponseti was concerned that she had > loose > > ligaments and at that time we discontinued using the FAB. > > > > Rose is 5 1/2 now and in kindergarten! Having fun. Anyway, she > has started > > physical therapy this year. We saw Dr. Ponseti in June, and he > wasn't very > > happy with how her foot looked. He did not recommend PT, but he > did suggest > > roller-skating to stretch that inside tendon. Rose's toes were > really turning > > in because the large inside tendon is tightening. Fortunately, her > heel was > > still down, and she had a fairly good range of motion, so we didn't > have any > > talks of surgery. Dr. P felt she was too old to start bracing > again. > > > > As for the physical therapy it isn't to help her foot so much as it > is to > > strengthen her entire leg. Rose's doctor was concerned that her > leg was > > significantly weaker than her right leg. She couldn't hop very > much on the > > clubfoot leg. So we decided to go ahead with the PT, and I have > noticed the > > leg has gained strength. Hopscotch is one of the exersizes she > does. She > > is doing some tiptoes and using a rubberband to push against. > Anyone have any > > thoughts on the physical therapy? Parents of older children with > unilateral cf > > have you dealt with a weaker leg due to the cf? Also, does anyone > with older > > cf have leg length difference? Rose has a very small leg length > difference, > > and we are thinking of using an insert in her shoe. > > > > I think when we saw Dr. Ponseti, Rose must have been going through > a major > > growth spurt. I have some pictures to share of her foot. The > first two > > pictures are from June prior to seeing Dr. P. The next five are > pictures > > before starting any PT, and they look straighter (we've been > praying hard). > > Here is the link: > > > > > http://pg.photos.yahoo.com/ph/joybelle15/album?.dir=mail&.src=ph&stor e > =&prodid=&.done=http%3a//pg.photos.yahoo.com/ph//my_photos > > > > I believe we'll be going to the symposium in November. For awhile, > I was > > feeling really depressed about the appearance of Rose's foot. I > have now > > gained a more positive perspective, but at the time it was tough! > This got lot > > longer than I expected, and I have things to get done. Better get > to them. > > > > So sorry I don't keep up here as much as I should. > > > > Joy > > Rose 1-30-99 > > Iris 2-28-01 > > Spencer 3-12-03 > > > > > > ===== > > http://www.geocities.com/joybelle15/rosesclubfootpage.html > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2004 Report Share Posted September 16, 2004 --- loulee3412 loulee3412@...> wrote: > Hi Joy, > > Thank you for sharing Rose's story. I am so pleased that the PT is > helping with her strength. I will keep this in mind as Zoe grows. > She is righty only, so I have concerns/questions that can only be > answered with time. I couldn't see the pictures, but will try again > later. Thank you, Louisa, I'm so glad you enjoyed Rose's story. I think the PT is helping, though she has been kind of a stinker about doing it lately. I don't think we really noticed any difference it strength until she started hopping on one foot regularly and counting. Rose would get into the twenties on her non-clubfoot and only get to 5 or 6 on the clubfoot leg. She can get into the twenties now with both feet, and there isn't as large of a gap. I'm sorry the pictures couldn't be viewed. I will try to re-send a link or something. Joy ===== http://www.geocities.com/joybelle15/rosesclubfootpage.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2004 Report Share Posted September 16, 2004 --- loulee3412 loulee3412@...> wrote: > Hi Joy, > > Thank you for sharing Rose's story. I am so pleased that the PT is > helping with her strength. I will keep this in mind as Zoe grows. > She is righty only, so I have concerns/questions that can only be > answered with time. I couldn't see the pictures, but will try again > later. Thank you, Louisa, I'm so glad you enjoyed Rose's story. I think the PT is helping, though she has been kind of a stinker about doing it lately. I don't think we really noticed any difference it strength until she started hopping on one foot regularly and counting. Rose would get into the twenties on her non-clubfoot and only get to 5 or 6 on the clubfoot leg. She can get into the twenties now with both feet, and there isn't as large of a gap. I'm sorry the pictures couldn't be viewed. I will try to re-send a link or something. Joy ===== http://www.geocities.com/joybelle15/rosesclubfootpage.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2004 Report Share Posted September 16, 2004 --- loulee3412 loulee3412@...> wrote: > Hi Joy, > > Thank you for sharing Rose's story. I am so pleased that the PT is > helping with her strength. I will keep this in mind as Zoe grows. > She is righty only, so I have concerns/questions that can only be > answered with time. I couldn't see the pictures, but will try again > later. Thank you, Louisa, I'm so glad you enjoyed Rose's story. I think the PT is helping, though she has been kind of a stinker about doing it lately. I don't think we really noticed any difference it strength until she started hopping on one foot regularly and counting. Rose would get into the twenties on her non-clubfoot and only get to 5 or 6 on the clubfoot leg. She can get into the twenties now with both feet, and there isn't as large of a gap. I'm sorry the pictures couldn't be viewed. I will try to re-send a link or something. Joy ===== http://www.geocities.com/joybelle15/rosesclubfootpage.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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