Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Gosh it's breaking my heart here. It doesn't sound normal to me but I have no experience here... please let us know how it goes. Be brave! s. Today's report on Thank you to all of you who have asked how is doing today! I just didn't expect it to be this bad. She's a little better today but still will put NO weight on her left leg/foot at all! And heaven forbid I should try to " bend " her foot up or down. The shaking and screams are horrible I expected her to be sensitive but this almost seems like something is wrong. When should I be worried enough to call Dr. H?? She is actually better when she has the DBB on -- I guess because nothing can touch her foot or move it much. She still fusses sometimes depending on how she is sitting or being held. She still will not crawl with or without the DBB. I have never had a cast in my life so I have NO idea what she is going through. Please tell me this is " normal " ! Thanks! Marilouise 9/9/03, LCF, DBB 23/7 Owen and 3/20/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Gosh it's breaking my heart here. It doesn't sound normal to me but I have no experience here... please let us know how it goes. Be brave! s. Today's report on Thank you to all of you who have asked how is doing today! I just didn't expect it to be this bad. She's a little better today but still will put NO weight on her left leg/foot at all! And heaven forbid I should try to " bend " her foot up or down. The shaking and screams are horrible I expected her to be sensitive but this almost seems like something is wrong. When should I be worried enough to call Dr. H?? She is actually better when she has the DBB on -- I guess because nothing can touch her foot or move it much. She still fusses sometimes depending on how she is sitting or being held. She still will not crawl with or without the DBB. I have never had a cast in my life so I have NO idea what she is going through. Please tell me this is " normal " ! Thanks! Marilouise 9/9/03, LCF, DBB 23/7 Owen and 3/20/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Gosh it's breaking my heart here. It doesn't sound normal to me but I have no experience here... please let us know how it goes. Be brave! s. Today's report on Thank you to all of you who have asked how is doing today! I just didn't expect it to be this bad. She's a little better today but still will put NO weight on her left leg/foot at all! And heaven forbid I should try to " bend " her foot up or down. The shaking and screams are horrible I expected her to be sensitive but this almost seems like something is wrong. When should I be worried enough to call Dr. H?? She is actually better when she has the DBB on -- I guess because nothing can touch her foot or move it much. She still fusses sometimes depending on how she is sitting or being held. She still will not crawl with or without the DBB. I have never had a cast in my life so I have NO idea what she is going through. Please tell me this is " normal " ! Thanks! Marilouise 9/9/03, LCF, DBB 23/7 Owen and 3/20/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Marilouise, It really is normal. What I also like to do with Tyler is let him have the shoes off on the carpet or in the grass. That way they get some touch and the more they have that the more they will desensitize. And like I said the soft, I mean very soft, brush worked well with Tyler. Have you tried massaging them with lotion when you take the shoes off? I do that with Tyler as well and he seems to be ok with it. We are going through alot of the same things although Tyler has had all this before so I don't know if that is why it is not as bad for us or not. He is still really sensitive though. He flinches alot when I take his socks off and he doesn't like the flexing therepy either, so I just do it until he absolutely just can't take it, which is not very long, but I figure a little is better then none and we will work our way up to alot. Tyler's mommy bi lat atypical cf 1/14/03 new brace 9/9/04 4/12/94 non cf 5/24/95 non cf > Gosh it's breaking my heart here. It doesn't sound normal to me but I have no experience here... please let us know how it goes. Be brave! > s. > > Today's report on > > > Thank you to all of you who have asked how is doing today! > I just didn't expect it to be this bad. She's a little better today > but still will put NO weight on her left leg/foot at all! And > heaven forbid I should try to " bend " her foot up or down. The > shaking and screams are horrible I expected her to be sensitive > but this almost seems like something is wrong. When should I be > worried enough to call Dr. H?? > She is actually better when she has the DBB on -- I guess because > nothing can touch her foot or move it much. She still fusses > sometimes depending on how she is sitting or being held. She still > will not crawl with or without the DBB. I have never had a cast in > my life so I have NO idea what she is going through. Please tell me > this is " normal " ! > > Thanks! > > Marilouise > 9/9/03, LCF, DBB 23/7 > Owen and 3/20/99 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Marilouise, It really is normal. What I also like to do with Tyler is let him have the shoes off on the carpet or in the grass. That way they get some touch and the more they have that the more they will desensitize. And like I said the soft, I mean very soft, brush worked well with Tyler. Have you tried massaging them with lotion when you take the shoes off? I do that with Tyler as well and he seems to be ok with it. We are going through alot of the same things although Tyler has had all this before so I don't know if that is why it is not as bad for us or not. He is still really sensitive though. He flinches alot when I take his socks off and he doesn't like the flexing therepy either, so I just do it until he absolutely just can't take it, which is not very long, but I figure a little is better then none and we will work our way up to alot. Tyler's mommy bi lat atypical cf 1/14/03 new brace 9/9/04 4/12/94 non cf 5/24/95 non cf > Gosh it's breaking my heart here. It doesn't sound normal to me but I have no experience here... please let us know how it goes. Be brave! > s. > > Today's report on > > > Thank you to all of you who have asked how is doing today! > I just didn't expect it to be this bad. She's a little better today > but still will put NO weight on her left leg/foot at all! And > heaven forbid I should try to " bend " her foot up or down. The > shaking and screams are horrible I expected her to be sensitive > but this almost seems like something is wrong. When should I be > worried enough to call Dr. H?? > She is actually better when she has the DBB on -- I guess because > nothing can touch her foot or move it much. She still fusses > sometimes depending on how she is sitting or being held. She still > will not crawl with or without the DBB. I have never had a cast in > my life so I have NO idea what she is going through. Please tell me > this is " normal " ! > > Thanks! > > Marilouise > 9/9/03, LCF, DBB 23/7 > Owen and 3/20/99 > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Hi , Thank you again. I did the soft bristle brush with her last night but she only tolerated it for about 2 minutes. I think my biggest concern is the refusal to unbend her leg and put weight on it. My DH is actually getting angry with me about the whole thing because I am trying to *push* her alittle bit by touching her foot and trying to get her to stand (with and without the DBB on), etc. I can't stand to see her cry either but I also know that if I just ignore the sensitivity, it is also not going to get any better. did roll over last night in her crib. That's the first time she's done any independent movement in the DBB. She didn't scream when she did it but she did cry enough that I went to check on her. So Tyler just had another tenotomy too? Sorry but I forget everybody's stories sometimes. Marilouise 9/9/03, LCF, DBB 23/7 Owen and 3/20/99 > > Gosh it's breaking my heart here. It doesn't sound normal to me > but I have no experience here... please let us know how it goes. > Be brave! > > s. > > > > Today's report on > > > > > > Thank you to all of you who have asked how is doing > today! > > I just didn't expect it to be this bad. She's a little better > today > > but still will put NO weight on her left leg/foot at all! And > > heaven forbid I should try to " bend " her foot up or down. The > > shaking and screams are horrible I expected her to be > sensitive > > but this almost seems like something is wrong. When should I be > > worried enough to call Dr. H?? > > She is actually better when she has the DBB on -- I guess because > > nothing can touch her foot or move it much. She still fusses > > sometimes depending on how she is sitting or being held. She > still > > will not crawl with or without the DBB. I have never had a cast > in > > my life so I have NO idea what she is going through. Please tell > me > > this is " normal " ! > > > > Thanks! > > > > Marilouise > > 9/9/03, LCF, DBB 23/7 > > Owen and 3/20/99 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Marilouise, After Lyssa had her second tenotomy, she hated anyone touching her feet or her legs. She would scream like she was in extreme pain. When we stretched her feet she would scream. After about 4 weeks she would only cry a little, and it got better and better. So have faith it will get easiler and less painfull for . Try giving her a little Tylenol. Kathy and Lyssa (8/7/03, BCF DBB 12hr/day) Marilouise Tozier verylittlebrain@...> wrote: Hi , Thank you again. I did the soft bristle brush with her last night but she only tolerated it for about 2 minutes. I think my biggest concern is the refusal to unbend her leg and put weight on it. My DH is actually getting angry with me about the whole thing because I am trying to *push* her alittle bit by touching her foot and trying to get her to stand (with and without the DBB on), etc. I can't stand to see her cry either but I also know that if I just ignore the sensitivity, it is also not going to get any better. did roll over last night in her crib. That's the first time she's done any independent movement in the DBB. She didn't scream when she did it but she did cry enough that I went to check on her. So Tyler just had another tenotomy too? Sorry but I forget everybody's stories sometimes. Marilouise 9/9/03, LCF, DBB 23/7 Owen and 3/20/99 > > Gosh it's breaking my heart here. It doesn't sound normal to me > but I have no experience here... please let us know how it goes. > Be brave! > > s. > > > > Today's report on > > > > > > Thank you to all of you who have asked how is doing > today! > > I just didn't expect it to be this bad. She's a little better > today > > but still will put NO weight on her left leg/foot at all! And > > heaven forbid I should try to " bend " her foot up or down. The > > shaking and screams are horrible I expected her to be > sensitive > > but this almost seems like something is wrong. When should I be > > worried enough to call Dr. H?? > > She is actually better when she has the DBB on -- I guess because > > nothing can touch her foot or move it much. She still fusses > > sometimes depending on how she is sitting or being held. She > still > > will not crawl with or without the DBB. I have never had a cast > in > > my life so I have NO idea what she is going through. Please tell > me > > this is " normal " ! > > > > Thanks! > > > > Marilouise > > 9/9/03, LCF, DBB 23/7 > > Owen and 3/20/99 > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Hi Kathy, Thanks! Sounds like what is doing. Guess I need to stock up on the Tylenol and Motrin Marilouise 9/9/03, LCF, DBB 23/7 Owen and 3/20/99 > > > Gosh it's breaking my heart here. It doesn't sound normal to me > > but I have no experience here... please let us know how it > goes. > > Be brave! > > > s. > > > > > > Today's report on > > > > > > > > > Thank you to all of you who have asked how is doing > > today! > > > I just didn't expect it to be this bad. She's a little better > > today > > > but still will put NO weight on her left leg/foot at all! And > > > heaven forbid I should try to " bend " her foot up or down. The > > > shaking and screams are horrible I expected her to be > > sensitive > > > but this almost seems like something is wrong. When should I be > > > worried enough to call Dr. H?? > > > She is actually better when she has the DBB on -- I guess > because > > > nothing can touch her foot or move it much. She still fusses > > > sometimes depending on how she is sitting or being held. She > > still > > > will not crawl with or without the DBB. I have never had a cast > > in > > > my life so I have NO idea what she is going through. Please > tell > > me > > > this is " normal " ! > > > > > > Thanks! > > > > > > Marilouise > > > 9/9/03, LCF, DBB 23/7 > > > Owen and 3/20/99 > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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