Hugs

[Guest guest]

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Must vary in different states? perhaps? gosh - I am not sure on this- all I

know is - I have been housebound for 2 yrs and trying since first

hospitalization to get SSI- papers galore filled out many times and then a

denial and more hospitalizations etc- and then a rehearing date attempt but

never heard from them again so decided to get a lawyer - which due to custody

etc battles - was definitely not something I wanted to do- I am a legal

assistant by degree and hate the legal system lol- go figure.... Anyhow- I spoke

with lawyer a few days ago on the telephone and they've sent some papers to me

which I do have the aid of someone very sweet to me offering her help- yet I

need to get my info to her so she can do that help------ ( ive been feeling so

rotten lately- not just the EDS- kids are sharing their colds with me etc.......

I so far have avoided the cold but have the beginnings of stomach flu- which in

turn tears my colitis back up for a couple weeks ...... weeeeeeeeeeee--------

but it could be worse thats for sure.

Back to the SSI garb lol- the lawyer stated the hearing is April- hmmmmmm -

have the date here in these papers- and that I am definitely to be there.

I've only been denied once and really had not heard from them in a year before

I got the lawyer to find out why nothing was being done....

My doctor see's no reason for this delay- he rolls his eyes at their delay to

tell you the truth lol-

I will contact - I am having difficulty with aol e-mail addresses for

some reason but- I can contact him on Aol instant messenger- I really just

haven't turned the chat program on much lately- have been busy redoing sites

when I feel well enough to tackle them..... I am also in his group- plus have

his information on my ehlers page so see no problem with it, but- my son was

never really doctor diagnosed to have EDS - but its pretty obvious to anyone

now......... Some are still stating it has nothing to do with EDS - feels like

you cant win for losing at times.....

Hugssss Back to you ........ and if you see before I do - please

send a wave to him from me and tell him sure but I have not passworded it yet so

he may want to use the inside link instead so EDS users will not have to use a

password..... I will check for him on Aol instant messenger sometime today and

also tomorrow if I dont see him on today.

Hope everyone is feeling as well as can be today- Love TJ

TJ, on the third attempt you go before the judge, not the second. But I got

an attorney anyway. I figured it would help. I don't know how much work they

actually did. But at least their Letterhead was on top of everything and it

let SSA know I meant business. Yes you do have to be there with your

attorney before the judge, but mine didn't go that far. I f had been denied

this time that would have been my next step too. But I still owe the lawyer

25% of my total reward, dated back to Sept.2002.

Lots of luck and best wishes with it!

Heim wants to know if he can put your son's website in his service

guide for hidden disabilities and EDS. He told me to sat Hello to you! If

it's OK his e-mail address is Daddio5600@...

Lot's of Hugs for you, S.

>

> You won it on appeal after first denial without going to judge? I have

enlisted aid of lawyer as well and the secretary said I must be there at the

hearing.....>

>

> TJ

>

> Debbi,

> No I did not have to go before the judge, I won it on my appeal after my

> first denial, but I hired an attorney anyway. So it must have helped. I

was

> sure since I was turned down the first time I would be turned down

again,

> even though my case was solid and strong, so many surgeries and

everything

> else. My husband took me to the bank today to deposit my check, It was a

> truley WONDERFUL felling!!!! You can still get it if your young, just

have

> all the documentation and use the SSA law 14.06. EDS falls under this

> heading of undifferentiated connective tissue disorders. These are

termed so

> severe they have to give you disability. You can look it up under

> www.ssa.gov

> Good luck, I hope you get a date soon! I'll be thinking of you.

> Hugs, S.

>

>

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