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Re: Re: Fatigue-

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In a message dated 2/12/04 1:46:59 PM Eastern Standard Time,

llchriste@... writes:

<< He IS going to the conference, isn't he?? >>

Yes, yes, and YES!!!!!!! He is so excited! I wish every child could have

the opportunity to attend. He is just looking so forward to seeing some of his

friends. I don't have the heart to tell them they may not be there. He will

meet new ones though too! The next issue of the Loose Connections will have a

little something for the kids (Kidz Corner) and you will find some of the

comments has said to me about the conference. It is so important for the

kids to see that they are not different, that there are others like themselves

who can understand, and to have fun while doing that! We are shaping up to

have a pretty impressive kids program this year too! I am really excited. We

have a local pediatrician's (Pediatric Rheumatologist) office nurses and staff

volunteering to help with the kids. It will be great to have healthcare

professionals who work with kids all the time, especially who work with kids

with

rheumatological problems. We also have some volunteers in Early Childhood

education helping too, with projects and games for free time when the kids don't

have workshops.

Wait to you all get the Loose Connections/Registration Packet........it is

awesome. We have really outdone ourselves, I think!

Hugs,

Sue

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