Jump to content

Re : PH Question

Rate this topic

Guest guest

Recommended Posts

I am still trying to get doctors to put me on SOMETHING for the PH I was

diagnosed with in October but actually have had since June. The doctor is

hesitant because he doesn't want me passing out or something...Where is his

head. So there is no treatment for me??? I am having a bad time with breathing

for a few months now and I think I have heard from others it would help being on

this type of medicine not only the breathing, but allow me to walk around better

with less SOB. Talk about mismanaged care- I have been on 4LPM since June of

2007. The oxygen company told me today they only received a script for 2 LPM.

Our power was out and I asked them to call the doctor since I was saving my cell

phone for emergencies. But imagine that-all this time and the doc doesn't even

KNOW what I am on??? I see him every 2 months! Guess I have to make some

serious decisions here-soon. Getting pretty sucky breathing. Bad enough with the

muscle disease and trying to fight everything all at once. Thanks for

listening....wish doctors were better around here...........


Diane PF,Raynauds,Sjorgrens,PM 2006 PH 2008

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Create New...