No Surgery for me!!!

[Guest guest]

Hello all,

Yesterday I went to see an orthopedic surgeon. I waited in his

waiting room for 2 hours but it was worth the wait. He actually

knew about EDS. he knew the old category system so I told him that

they recatorgized it and that I have EDS III. He said that there

was no reason to do surgery, that it would not help me anyways

because of the EDS. He does want me to go see a physical therapist

to learn how to do some strengthening exercises and how to do them

correctly without hurting myself. He said that I should do them

everyday for the rest of my life. The physical therapy is the only

thing that might help the dislocations and such because if I

strengthen my muscles around the joint the muscles will be able to

help keep the joint stable, or atleast more stable than it is now.

So now I have to find a good therapist that takes my insurance. The

guy he reffered me to only takes PPO and I have POS insurance. I am

trying to get a list of therapists my insurance works with and going

to send the list to the surgeon for him to recommend one off the

list.

This made me start thinking, when I first dislocated something it

was when i was 14 and playing tennis. But the real pain and major

dislocations/subluxations started after I quit working out and

playing sports. I am wondering if the dislocations/subluxations

have gotten worse because I quit working out and playing sports and

leading a more active life. I quit those things because I did not

have the time and then never went back to them because I had gotten

diagnosed and was told not to do those things anymore. But since

getting diagnosed I have been getting increasingly worse pain and

more frequent dislocations/subluxations.

Sorry for the ramble.

Hugs to all!

jen

[Guest guest]

Oh I am pleased for you Jen, I am sure you are relieved. So often, surgery

is not beneficial, or if it is it does not last long, which is frustrating

both for the person with EDS and the surgeon. It really poses a dilemma,

because we want what a good surgical result ought to be, and deserve that

much.

Jill

No Surgery for me!!!

> Hello all,

>

> Yesterday I went to see an orthopedic surgeon. I waited in his

> waiting room for 2 hours but it was worth the wait. He actually

> knew about EDS. he knew the old category system so I told him that

> they recatorgized it and that I have EDS III. He said that there

> was no reason to do surgery, that it would not help me anyways

> because of the EDS. He does want me to go see a physical therapist

> to learn how to do some strengthening exercises and how to do them

> correctly without hurting myself. He said that I should do them

> everyday for the rest of my life. The physical therapy is the only

> thing that might help the dislocations and such because if I

> strengthen my muscles around the joint the muscles will be able to

> help keep the joint stable, or atleast more stable than it is now.

> So now I have to find a good therapist that takes my insurance. The

> guy he reffered me to only takes PPO and I have POS insurance. I am

> trying to get a list of therapists my insurance works with and going

> to send the list to the surgeon for him to recommend one off the

> list.

>

> This made me start thinking, when I first dislocated something it

> was when i was 14 and playing tennis. But the real pain and major

> dislocations/subluxations started after I quit working out and

> playing sports. I am wondering if the dislocations/subluxations

> have gotten worse because I quit working out and playing sports and

> leading a more active life. I quit those things because I did not

> have the time and then never went back to them because I had gotten

> diagnosed and was told not to do those things anymore. But since

> getting diagnosed I have been getting increasingly worse pain and

> more frequent dislocations/subluxations.

>

> Sorry for the ramble.

>

> Hugs to all!

> jen

>

>

>

> To learn more about EDS, visit our website: http://www.ceda.ca

>

>