Re: Being (long distance) Family Support

[Guest guest]

Hi ,

Thanks for responding. It is quite a shock that you had already had

contact with Bridgette. I am not sure if her doctor is following

the exact same procedure that is discussed on the board, but it

sounds like it. The changes have been extreme.

I forwarded your email to her, and hopefully she will get back with

you. As you probably know, she is swamped with the two kids so

doesnt have much time for internet.

Anyway, thanks again and please let me know if you think of anything

that I can do to help her out.

Sally

(Logan's & Meegan's Grandma " Boo " )

[Guest guest]

Aw, poor Bridgett. I so understand where she is at. My 1st son (now six years

old) was born with BCF and it ws a shock to us as well. I felt totally guilty

about it like I'd done something wrong. I wracked my brain trying to think of

any toxic exposure, etc., that may have caused me to harm him inutero, but

there was nothing - and the fact was, (is) it's not the parent's fault when this

happens. It's just one of them little things. I bawled all the way in to the

first dr. appointment a week after his birth convinced I was at fault but every

doctor so far has assured me it's not the parent's fault.

On the bright side, club foot is VERY treatable. But.....(there's always a

but).....it is very crucial to get the right help early on. There are several

methods to " cure " club foot, but only one " right way " in our opinion....that's

to see a Dr. Ponseti authorized dealer. haha. I know from experience. A

so-called club foot doctor worked on my 1st son and messed his feet up

bad....ya, worse than they were when he was born. When he was two years old Dr.

Ponseti was able to help, but the results are not nearly the perfection we would

have had (should have had) and his feet hurt to this day. My 2nd son was

also born with bilateral cf and we went straight to Dr. Ponseti to get them done

right.

Keep reading this board, encourage your daughter to read here too, adn to post

any questions she may have. It's so important she find the right care right now

before damage is done to those precious little feet! The best way for her to

relieve her sense of guilt I think is to find the best treatment and focus her

energy on fixing the problem. The military may not pay for it, but it's worth

anything she has to pay out of pocket to get this done right the first time with

out surgery, etc.

Best Wishes to you all,

s.

Being (long distance) Family Support

Hello All,

I found your group while searching for ways to help support my

daughter (Bridgette) and son-in-law ().

Hope you can give some suggestions on how to be supportive to them.

Logan's story: He was born on June 5th (at Camp Pendleton Military

Hospital - Daddy is Lcpl in the marines)

He was born with bilateral club foot, it was a shock to all. He was

referred to Dr. Cassidy at San Diego Military Hospital. Received

first casts on July 7th. He had the tendon snipped this past Friday

August 13th.

We, their whole family, live in Michigan. My husband and I were

there the week he got his first casts.

I know that my daughter blames herself for Logan not

being " perfect " . And even tho everyone tells her it is not her

fault, we have not " been there " .

Logan has a big sister (Meegan). She is 2 1/2.

I have tried to be as supportive as possible via long distance phone

calls, but am not there for " on hand " help.

Please send any suggestions that you may have.

Thanks,

Sally

(Logan & Meegan's Grandma " Boo " )

[Guest guest]

Aw, poor Bridgett. I so understand where she is at. My 1st son (now six years

old) was born with BCF and it ws a shock to us as well. I felt totally guilty

about it like I'd done something wrong. I wracked my brain trying to think of

any toxic exposure, etc., that may have caused me to harm him inutero, but

there was nothing - and the fact was, (is) it's not the parent's fault when this

happens. It's just one of them little things. I bawled all the way in to the

first dr. appointment a week after his birth convinced I was at fault but every

doctor so far has assured me it's not the parent's fault.

On the bright side, club foot is VERY treatable. But.....(there's always a

but).....it is very crucial to get the right help early on. There are several

methods to " cure " club foot, but only one " right way " in our opinion....that's

to see a Dr. Ponseti authorized dealer. haha. I know from experience. A

so-called club foot doctor worked on my 1st son and messed his feet up

bad....ya, worse than they were when he was born. When he was two years old Dr.

Ponseti was able to help, but the results are not nearly the perfection we would

have had (should have had) and his feet hurt to this day. My 2nd son was

also born with bilateral cf and we went straight to Dr. Ponseti to get them done

right.

Keep reading this board, encourage your daughter to read here too, adn to post

any questions she may have. It's so important she find the right care right now

before damage is done to those precious little feet! The best way for her to

relieve her sense of guilt I think is to find the best treatment and focus her

energy on fixing the problem. The military may not pay for it, but it's worth

anything she has to pay out of pocket to get this done right the first time with

out surgery, etc.

Best Wishes to you all,

s.

Being (long distance) Family Support

Hello All,

I found your group while searching for ways to help support my

daughter (Bridgette) and son-in-law ().

Hope you can give some suggestions on how to be supportive to them.

Logan's story: He was born on June 5th (at Camp Pendleton Military

Hospital - Daddy is Lcpl in the marines)

He was born with bilateral club foot, it was a shock to all. He was

referred to Dr. Cassidy at San Diego Military Hospital. Received

first casts on July 7th. He had the tendon snipped this past Friday

August 13th.

We, their whole family, live in Michigan. My husband and I were

there the week he got his first casts.

I know that my daughter blames herself for Logan not

being " perfect " . And even tho everyone tells her it is not her

fault, we have not " been there " .

Logan has a big sister (Meegan). She is 2 1/2.

I have tried to be as supportive as possible via long distance phone

calls, but am not there for " on hand " help.

Please send any suggestions that you may have.

Thanks,

Sally

(Logan & Meegan's Grandma " Boo " )

[Guest guest]

Aw, poor Bridgett. I so understand where she is at. My 1st son (now six years

old) was born with BCF and it ws a shock to us as well. I felt totally guilty

about it like I'd done something wrong. I wracked my brain trying to think of

any toxic exposure, etc., that may have caused me to harm him inutero, but

there was nothing - and the fact was, (is) it's not the parent's fault when this

happens. It's just one of them little things. I bawled all the way in to the

first dr. appointment a week after his birth convinced I was at fault but every

doctor so far has assured me it's not the parent's fault.

On the bright side, club foot is VERY treatable. But.....(there's always a

but).....it is very crucial to get the right help early on. There are several

methods to " cure " club foot, but only one " right way " in our opinion....that's

to see a Dr. Ponseti authorized dealer. haha. I know from experience. A

so-called club foot doctor worked on my 1st son and messed his feet up

bad....ya, worse than they were when he was born. When he was two years old Dr.

Ponseti was able to help, but the results are not nearly the perfection we would

have had (should have had) and his feet hurt to this day. My 2nd son was

also born with bilateral cf and we went straight to Dr. Ponseti to get them done

right.

Keep reading this board, encourage your daughter to read here too, adn to post

any questions she may have. It's so important she find the right care right now

before damage is done to those precious little feet! The best way for her to

relieve her sense of guilt I think is to find the best treatment and focus her

energy on fixing the problem. The military may not pay for it, but it's worth

anything she has to pay out of pocket to get this done right the first time with

out surgery, etc.

Best Wishes to you all,

s.

Being (long distance) Family Support

Hello All,

I found your group while searching for ways to help support my

daughter (Bridgette) and son-in-law ().

Hope you can give some suggestions on how to be supportive to them.

Logan's story: He was born on June 5th (at Camp Pendleton Military

Hospital - Daddy is Lcpl in the marines)

He was born with bilateral club foot, it was a shock to all. He was

referred to Dr. Cassidy at San Diego Military Hospital. Received

first casts on July 7th. He had the tendon snipped this past Friday

August 13th.

We, their whole family, live in Michigan. My husband and I were

there the week he got his first casts.

I know that my daughter blames herself for Logan not

being " perfect " . And even tho everyone tells her it is not her

fault, we have not " been there " .

Logan has a big sister (Meegan). She is 2 1/2.

I have tried to be as supportive as possible via long distance phone

calls, but am not there for " on hand " help.

Please send any suggestions that you may have.

Thanks,

Sally

(Logan & Meegan's Grandma " Boo " )

[Guest guest]

Thank you for your imput. I just want to be as helpful as I can,

but since we are not close enough to be there physically it has been

quite frustrating. I have forwarded some of the responses that I

have received and have suggested that she become a member to this

board. However, she is quite busy with Logan and Meegan, plus she

supplies child care for another of the military moms. Just keep me

in mind if you think of anything that I could do or say that would

be an encouragment for them.

Thanks again,

Sally

(Logan's & Meegan's Grandma " Boo)

[Guest guest]

Sally,

I look back 6 1/2 years ago when my first son was born and the best

thing my parents did for us was to just encourage us and listen to

what was going on. They have never treated Jakob any different

because of his feet (as none of us should anyway). When we would

visit while Jakob was in his brace, they never tried to tell us he was

uncomfortable and we should take it off. We all knew it was the best

thing for him and it was a non negotiable thing.

You're doing a great thing by trying to inform yourself so you can

understand what Bridgette tells you after doctor's visits.

Congratulations on you precious new grandson.

> Hello All,

>

> I found your group while searching for ways to help support my

> daughter (Bridgette) and son-in-law ().

>

> Hope you can give some suggestions on how to be supportive to them.

>

> Logan's story: He was born on June 5th (at Camp Pendleton Military

> Hospital - Daddy is Lcpl in the marines)

> He was born with bilateral club foot, it was a shock to all. He was

> referred to Dr. Cassidy at San Diego Military Hospital. Received

> first casts on July 7th. He had the tendon snipped this past Friday

> August 13th.

>

> We, their whole family, live in Michigan. My husband and I were

> there the week he got his first casts.

>

> I know that my daughter blames herself for Logan not

> being " perfect " . And even tho everyone tells her it is not her

> fault, we have not " been there " .

>

> Logan has a big sister (Meegan). She is 2 1/2.

>

> I have tried to be as supportive as possible via long distance phone

> calls, but am not there for " on hand " help.

>

> Please send any suggestions that you may have.

>

> Thanks,

> Sally

> (Logan & Meegan's Grandma " Boo " )

[Guest guest]

,

Thank you for your response. I have tried to learn as much as I can

just so Bridgette has someone to confide in. Logan is in his last

set of casts and has been measured for his shoes and brace.

Bridgette keeps me updated with emailed photos after each cast

change. She really likes her doctor and staff. I have forwarded

some of the emails I have received from the board, and I think that

this will help her too.

By the way, congratulations on your newest addition. Make sure and

spoil him as much as possible. It won't be long and he will be a

teenager (lol).

Sally

(Logan's & Meegan's Grandma " Boo " )

-- In nosurgery4clubfoot , teresam@m... wrote:

> Sally,

>

> I look back 6 1/2 years ago when my first son was born and the best

> thing my parents did for us was to just encourage us and listen to

> what was going on. They have never treated Jakob any different

> because of his feet (as none of us should anyway). When we would

> visit while Jakob was in his brace, they never tried to tell us he

was

> uncomfortable and we should take it off. We all knew it was the

best

> thing for him and it was a non negotiable thing.

>

> You're doing a great thing by trying to inform yourself so you can

> understand what Bridgette tells you after doctor's visits.

> Congratulations on you precious new grandson.

>

>

>

>

> > Hello All,

> >

> > I found your group while searching for ways to help support my

> > daughter (Bridgette) and son-in-law ().

> >

> > Hope you can give some suggestions on how to be supportive to

them.

> >

> > Logan's story: He was born on June 5th (at Camp Pendleton

Military

> > Hospital - Daddy is Lcpl in the marines)

> > He was born with bilateral club foot, it was a shock to all. He

was

> > referred to Dr. Cassidy at San Diego Military Hospital.

Received

> > first casts on July 7th. He had the tendon snipped this past

Friday

> > August 13th.

> >

> > We, their whole family, live in Michigan. My husband and I were

> > there the week he got his first casts.

> >

> > I know that my daughter blames herself for Logan not

> > being " perfect " . And even tho everyone tells her it is not her

> > fault, we have not " been there " .

> >

> > Logan has a big sister (Meegan). She is 2 1/2.

> >

> > I have tried to be as supportive as possible via long distance

phone

> > calls, but am not there for " on hand " help.

> >

> > Please send any suggestions that you may have.

> >

> > Thanks,

> > Sally

> > (Logan & Meegan's Grandma " Boo " )