Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 AFO's take at least a week to make. What's up with pressure sores? Where are they on her feet? If they're in the heel area you just cut a hole and voila! no more pressure. But baby stays in the DBB. AFO's don't work well to maintain correction, they certainly don't flatten out feet as far as I've ever heard. According to many who have tried them they're absolutely worthless and a waste of $. There's a thread from about 6w ago called *AFO's Suck!*, search the archives for it. I have to ask though, since her feet aren't flattened out enough right now... what makes the dr. think the AFO's are going to do the trick? Sounds like she needs some more corrective casts to me. How do you feel about all this? Do you really think the AFO will solve your problems with the shoes? I'm sorry if I forgot what's going on with you. I get people confused a lot! Kori At 05:11 PM 8/31/2004, you wrote: >Well we went to our apt yesterday and her doctor is going to put her >in AFO's for a while until we can get her feet flattened out a >little more and get rid of the pressure sores. If anyone has had >experience with AFO's let me know. >Thanks. > >Mia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 AFO's DO SUCK! Search the archives and please do answer Kori's questions, I am curious to know the answers also. Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 AFO's DO SUCK! Search the archives and please do answer Kori's questions, I am curious to know the answers also. Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 First off, AFO's will not relieve pressure on the heels. Friction maybe...not pressure. Ponder how that would be possible for a minute. Because they are molded for the foot? They are still hard and lay right on the foot for hours at a time, so how does that work? Second off, if the feet won't properly fit into the DBB then does making something that fits the foot in its current position sound like a good way to fix the underlying problem? More like Band-aid isn't it? (If they tell you about some " tether " trick...RUN! RUN AWAY AS FAST AS YOU CAN! It's a lie...I actually fell for it!) Third off, if you think casting is a better idea it probably is. Speak up! You are your child's best advocate. If you are already second guessing...your gut is just going to get louder and louder. Only by then you will have wasted time, money and effort. Email Dr. Ponseti...what could it hurt? Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 First off, AFO's will not relieve pressure on the heels. Friction maybe...not pressure. Ponder how that would be possible for a minute. Because they are molded for the foot? They are still hard and lay right on the foot for hours at a time, so how does that work? Second off, if the feet won't properly fit into the DBB then does making something that fits the foot in its current position sound like a good way to fix the underlying problem? More like Band-aid isn't it? (If they tell you about some " tether " trick...RUN! RUN AWAY AS FAST AS YOU CAN! It's a lie...I actually fell for it!) Third off, if you think casting is a better idea it probably is. Speak up! You are your child's best advocate. If you are already second guessing...your gut is just going to get louder and louder. Only by then you will have wasted time, money and effort. Email Dr. Ponseti...what could it hurt? Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 First off, AFO's will not relieve pressure on the heels. Friction maybe...not pressure. Ponder how that would be possible for a minute. Because they are molded for the foot? They are still hard and lay right on the foot for hours at a time, so how does that work? Second off, if the feet won't properly fit into the DBB then does making something that fits the foot in its current position sound like a good way to fix the underlying problem? More like Band-aid isn't it? (If they tell you about some " tether " trick...RUN! RUN AWAY AS FAST AS YOU CAN! It's a lie...I actually fell for it!) Third off, if you think casting is a better idea it probably is. Speak up! You are your child's best advocate. If you are already second guessing...your gut is just going to get louder and louder. Only by then you will have wasted time, money and effort. Email Dr. Ponseti...what could it hurt? Freeman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2004 Report Share Posted August 31, 2004 Hey Kori, I'm not sure what to think really. Her pressure sores are on the back of her heals. I thought more casting would be good idea as well, but was reluctant to say anything since I didn't have much info on the AFO's. The base of her feet are still so tight that she doesn't fit correctly into the DBB. Do you think if we cast a few more times it will help with that? Opinions would be appreciated. I wonder if i should email Ponseti and see what his take is on the whole thing. Mia -- In nosurgery4clubfoot , " frogabog " wrote: > AFO's take at least a week to make. What's up with pressure sores? Where > are they on her feet? If they're in the heel area you just cut a hole and > voila! no more pressure. But baby stays in the DBB. AFO's don't work well > to maintain correction, they certainly don't flatten out feet as far as > I've ever heard. According to many who have tried them they're absolutely > worthless and a waste of $. There's a thread from about 6w ago called > *AFO's Suck!*, search the archives for it. > > I have to ask though, since her feet aren't flattened out enough right > now... what makes the dr. think the AFO's are going to do the > trick? Sounds like she needs some more corrective casts to me. How do you > feel about all this? Do you really think the AFO will solve your problems > with the shoes? I'm sorry if I forgot what's going on with you. I get > people confused a lot! > > > Kori > > > > At 05:11 PM 8/31/2004, you wrote: > >Well we went to our apt yesterday and her doctor is going to put her > >in AFO's for a while until we can get her feet flattened out a > >little more and get rid of the pressure sores. If anyone has had > >experience with AFO's let me know. > >Thanks. > > > >Mia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 I'm laughing when someone wrote run, run, run! Take it from me, I was just there recently myself! We had AFO's and my daughter started relapsing almost immediately!! Not only did I email Dr. Ponseti but I also got a 2nd opinion from Dr. Herzenberg. We had the AFO's about a month and now poor is back in casts. Your situation sounds very similar to ours in that the DBB was not working so we were trying to find another alternative. Because we were uneducated about this at the time, we went to the AFO's and now here we are. We also discovered the problems from the DBB were from her feet not being fully corrected in the first place. Who did you say your doctor was? Dr. Ponseti will tell you the AFO's are not part of the protocol. Please get a 2nd opinion before it is too late and you waste $1500 on AFO's. Yes, you heard correctly $1500 down the toilet! I am still waiting for insurance to reimburse us, but I can't get my hopes up. Please let us know what you decide, but if I were you run, run, run! > Well we went to our apt yesterday and her doctor is going to put her > in AFO's for a while until we can get her feet flattened out a > little more and get rid of the pressure sores. If anyone has had > experience with AFO's let me know. > Thanks. > > Mia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 I'm laughing when someone wrote run, run, run! Take it from me, I was just there recently myself! We had AFO's and my daughter started relapsing almost immediately!! Not only did I email Dr. Ponseti but I also got a 2nd opinion from Dr. Herzenberg. We had the AFO's about a month and now poor is back in casts. Your situation sounds very similar to ours in that the DBB was not working so we were trying to find another alternative. Because we were uneducated about this at the time, we went to the AFO's and now here we are. We also discovered the problems from the DBB were from her feet not being fully corrected in the first place. Who did you say your doctor was? Dr. Ponseti will tell you the AFO's are not part of the protocol. Please get a 2nd opinion before it is too late and you waste $1500 on AFO's. Yes, you heard correctly $1500 down the toilet! I am still waiting for insurance to reimburse us, but I can't get my hopes up. Please let us know what you decide, but if I were you run, run, run! > Well we went to our apt yesterday and her doctor is going to put her > in AFO's for a while until we can get her feet flattened out a > little more and get rid of the pressure sores. If anyone has had > experience with AFO's let me know. > Thanks. > > Mia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 I'm laughing when someone wrote run, run, run! Take it from me, I was just there recently myself! We had AFO's and my daughter started relapsing almost immediately!! Not only did I email Dr. Ponseti but I also got a 2nd opinion from Dr. Herzenberg. We had the AFO's about a month and now poor is back in casts. Your situation sounds very similar to ours in that the DBB was not working so we were trying to find another alternative. Because we were uneducated about this at the time, we went to the AFO's and now here we are. We also discovered the problems from the DBB were from her feet not being fully corrected in the first place. Who did you say your doctor was? Dr. Ponseti will tell you the AFO's are not part of the protocol. Please get a 2nd opinion before it is too late and you waste $1500 on AFO's. Yes, you heard correctly $1500 down the toilet! I am still waiting for insurance to reimburse us, but I can't get my hopes up. Please let us know what you decide, but if I were you run, run, run! > Well we went to our apt yesterday and her doctor is going to put her > in AFO's for a while until we can get her feet flattened out a > little more and get rid of the pressure sores. If anyone has had > experience with AFO's let me know. > Thanks. > > Mia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 The bad news is AFO's dont' do any good. The good news is that the 18 monts of trying them on bought me time to find this site before he was operated on at a younger age like my dr. wanted. But no, they don't do a bit of good - the bar is the magic ingredient I think. s. Re: Addisyn update AFO's DO SUCK! Search the archives and please do answer Kori's questions, I am curious to know the answers also. Freeman Quote Link to comment Share on other sites More sharing options...
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