Re: Tell me this gets better?????

[Guest guest]

, I know what a struggle it can be at the beginning of the

bracing and I feel for you hon!

For sleeping, try propping his legs up by putting a pillow or towel

(rolled up receiving blankets) under his knees so that his back lays

flat. That may help to make him a little more comfortable.

When I used to put Owen into his infant carrier, I would hold his bar

so that his feet were in the air and make sure that his bottom fit

snug into the back...once his bum was in, then I would lower the bar

and let his legs rest whereever they did.

Others will probably have some practical solutions as well! Hang in

there!

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/24

> Hello,

>

> had his casts off yesterday. It is lovely to see his

little

> legs and feet at last. However, he HATES the boots, just as I have

> been warned. He cries constantly, sometimes quite hysterically.

Last

> night I only got 2 or 3 hours sleep - lying in the living room on

the

> chair with on top of me. He simply would NOT go in his

crib,

> even though this was all he knew for his night sleeps. In fact, he

> would not lie on his back at all, and would only rest on my tummy.

I

> know it is unsafe to let a baby sleep on their stomachs, so I'm too

> nervous to put him down like that. Please tell me he will get used

to

> this quickly, and learn to sleep again!!!

>

> Also, how do I know if I'm getting the straps too tight? He squirms

> out of his boots quite quickly, and I had to redo the process

several

> times during the night. Even the nurse at the docs office had a

hard

> time getting him in his boots, and we landed up going home without

> them on! So now I have them REALLY tight, but I worry that I could

be

> cutting off the blood supply. With his socks on, I have no way of

> telling if blood is circulating or not.

>

> Another question.... with the bar on now, he doesn't fit into his

car

> seat. Either his legs are way up in the air, or his bottom is not

> snug at the back of the seat. Any suggestions? Do I need to get

> another car seat?

>

> Thanks,

> and bc

[Guest guest]

Hi ,

I am new to the group but not the routine. Ava is 1week in her DBB.

The first 24hrs is a nightmare. The cries are if they are being hurt

terrible. I noticed when I would lift Ava's legs together with her

it settled her a bit. Can only imagine the feeling of having your

legs being pinned down. Usually the first day is the worse and yes it

really does get better. As far as the car seat I roll up a blanket

and tuck it under her legs so they are not up in the air and her

hinny is down in the seat. Hope it helps.

KK

Livi

Ava dbb 1wk.

---

In nosurgery4clubfoot , " linda07033 "

wrote:

> Hello,

>

> had his casts off yesterday. It is lovely to see his

little

> legs and feet at last. However, he HATES the boots, just as I have

> been warned. He cries constantly, sometimes quite hysterically.

Last

> night I only got 2 or 3 hours sleep - lying in the living room on

the

> chair with on top of me. He simply would NOT go in his

crib,

> even though this was all he knew for his night sleeps. In fact, he

> would not lie on his back at all, and would only rest on my tummy.

I

> know it is unsafe to let a baby sleep on their stomachs, so I'm too

> nervous to put him down like that. Please tell me he will get used

to

> this quickly, and learn to sleep again!!!

>

> Also, how do I know if I'm getting the straps too tight? He squirms

> out of his boots quite quickly, and I had to redo the process

several

> times during the night. Even the nurse at the docs office had a

hard

> time getting him in his boots, and we landed up going home without

> them on! So now I have them REALLY tight, but I worry that I could

be

> cutting off the blood supply. With his socks on, I have no way of

> telling if blood is circulating or not.

>

> Another question.... with the bar on now, he doesn't fit into his

car

> seat. Either his legs are way up in the air, or his bottom is not

> snug at the back of the seat. Any suggestions? Do I need to get

> another car seat?

>

> Thanks,

> and bc

[Guest guest]

Hi ,

I am new to the group but not the routine. Ava is 1week in her DBB.

The first 24hrs is a nightmare. The cries are if they are being hurt

terrible. I noticed when I would lift Ava's legs together with her

it settled her a bit. Can only imagine the feeling of having your

legs being pinned down. Usually the first day is the worse and yes it

really does get better. As far as the car seat I roll up a blanket

and tuck it under her legs so they are not up in the air and her

hinny is down in the seat. Hope it helps.

KK

Livi

Ava dbb 1wk.

---

In nosurgery4clubfoot , " linda07033 "

wrote:

> Hello,

>

> had his casts off yesterday. It is lovely to see his

little

> legs and feet at last. However, he HATES the boots, just as I have

> been warned. He cries constantly, sometimes quite hysterically.

Last

> night I only got 2 or 3 hours sleep - lying in the living room on

the

> chair with on top of me. He simply would NOT go in his

crib,

> even though this was all he knew for his night sleeps. In fact, he

> would not lie on his back at all, and would only rest on my tummy.

I

> know it is unsafe to let a baby sleep on their stomachs, so I'm too

> nervous to put him down like that. Please tell me he will get used

to

> this quickly, and learn to sleep again!!!

>

> Also, how do I know if I'm getting the straps too tight? He squirms

> out of his boots quite quickly, and I had to redo the process

several

> times during the night. Even the nurse at the docs office had a

hard

> time getting him in his boots, and we landed up going home without

> them on! So now I have them REALLY tight, but I worry that I could

be

> cutting off the blood supply. With his socks on, I have no way of

> telling if blood is circulating or not.

>

> Another question.... with the bar on now, he doesn't fit into his

car

> seat. Either his legs are way up in the air, or his bottom is not

> snug at the back of the seat. Any suggestions? Do I need to get

> another car seat?

>

> Thanks,

> and bc

[Guest guest]

Hi ,

I am new to the group but not the routine. Ava is 1week in her DBB.

The first 24hrs is a nightmare. The cries are if they are being hurt

terrible. I noticed when I would lift Ava's legs together with her

it settled her a bit. Can only imagine the feeling of having your

legs being pinned down. Usually the first day is the worse and yes it

really does get better. As far as the car seat I roll up a blanket

and tuck it under her legs so they are not up in the air and her

hinny is down in the seat. Hope it helps.

KK

Livi

Ava dbb 1wk.

---

In nosurgery4clubfoot , " linda07033 "

wrote:

> Hello,

>

> had his casts off yesterday. It is lovely to see his

little

> legs and feet at last. However, he HATES the boots, just as I have

> been warned. He cries constantly, sometimes quite hysterically.

Last

> night I only got 2 or 3 hours sleep - lying in the living room on

the

> chair with on top of me. He simply would NOT go in his

crib,

> even though this was all he knew for his night sleeps. In fact, he

> would not lie on his back at all, and would only rest on my tummy.

I

> know it is unsafe to let a baby sleep on their stomachs, so I'm too

> nervous to put him down like that. Please tell me he will get used

to

> this quickly, and learn to sleep again!!!

>

> Also, how do I know if I'm getting the straps too tight? He squirms

> out of his boots quite quickly, and I had to redo the process

several

> times during the night. Even the nurse at the docs office had a

hard

> time getting him in his boots, and we landed up going home without

> them on! So now I have them REALLY tight, but I worry that I could

be

> cutting off the blood supply. With his socks on, I have no way of

> telling if blood is circulating or not.

>

> Another question.... with the bar on now, he doesn't fit into his

car

> seat. Either his legs are way up in the air, or his bottom is not

> snug at the back of the seat. Any suggestions? Do I need to get

> another car seat?

>

> Thanks,

> and bc

[Guest guest]

,

I wish I had some advice for you but unfortunately I am not all that

experienced with the brace at this point.

I am going to be in for it when Christian goes back to the brace. How many

people in here had children over 6 months when they started wearing it? How

long does it typically take for them to adjust to it again?

Mommy to 12/17/98

and Christian 1/30/04

> Hello,

>

> had his casts off yesterday. It is lovely to see his

little

> legs and feet at last. However, he HATES the boots, just as I have

> been warned. He cries constantly, sometimes quite hysterically.

Last

> night I only got 2 or 3 hours sleep - lying in the living room on

the

> chair with on top of me. He simply would NOT go in his

crib,

> even though this was all he knew for his night sleeps. In fact, he

> would not lie on his back at all, and would only rest on my tummy.

I

> know it is unsafe to let a baby sleep on their stomachs, so I'm too

> nervous to put him down like that. Please tell me he will get used

to

> this quickly, and learn to sleep again!!!

>

> Also, how do I know if I'm getting the straps too tight? He squirms

> out of his boots quite quickly, and I had to redo the process

several

> times during the night. Even the nurse at the docs office had a

hard

> time getting him in his boots, and we landed up going home without

> them on! So now I have them REALLY tight, but I worry that I could

be

> cutting off the blood supply. With his socks on, I have no way of

> telling if blood is circulating or not.

>

> Another question.... with the bar on now, he doesn't fit into his

car

> seat. Either his legs are way up in the air, or his bottom is not

> snug at the back of the seat. Any suggestions? Do I need to get

> another car seat?

>

> Thanks,

> and bc

[Guest guest]

Try teaching him how to kick his legs at the same time by holding the bar and

moving it up and down so the knees bend together. Yes, you may need a new car

seat, I didn't have that problem but you certainly need a safe seat!

s.

Tell me this gets better?????

Hello,

had his casts off yesterday. It is lovely to see his little

legs and feet at last. However, he HATES the boots, just as I have

been warned. He cries constantly, sometimes quite hysterically. Last

night I only got 2 or 3 hours sleep - lying in the living room on the

chair with on top of me. He simply would NOT go in his crib,

even though this was all he knew for his night sleeps. In fact, he

would not lie on his back at all, and would only rest on my tummy. I

know it is unsafe to let a baby sleep on their stomachs, so I'm too

nervous to put him down like that. Please tell me he will get used to

this quickly, and learn to sleep again!!!

Also, how do I know if I'm getting the straps too tight? He squirms

out of his boots quite quickly, and I had to redo the process several

times during the night. Even the nurse at the docs office had a hard

time getting him in his boots, and we landed up going home without

them on! So now I have them REALLY tight, but I worry that I could be

cutting off the blood supply. With his socks on, I have no way of

telling if blood is circulating or not.

Another question.... with the bar on now, he doesn't fit into his car

seat. Either his legs are way up in the air, or his bottom is not

snug at the back of the seat. Any suggestions? Do I need to get

another car seat?

Thanks,

and bc

[Guest guest]

Oh, also try to swaddle him tight to sleep so his legs don't move.

s.

> had his casts off yesterday. It is lovely to see his

little

> legs and feet at last. However, he HATES the boots, just as I have

> been warned. He cries constantly, sometimes quite hysterically.

Last

> night I only got 2 or 3 hours sleep - lying in the living room on

the

> chair with on top of me. He simply would NOT go in his

crib,

> even though this was all he knew for his night sleeps. In fact, he

> would not lie on his back at all, and would only rest on my tummy.

I

> know it is unsafe to let a baby sleep on their stomachs, so I'm too

> nervous to put him down like that. Please tell me he will get used

to

> this quickly, and learn to sleep again!!!

>

> Also, how do I know if I'm getting the straps too tight? He squirms

> out of his boots quite quickly, and I had to redo the process

several

> times during the night. Even the nurse at the docs office had a

hard

> time getting him in his boots, and we landed up going home without

> them on! So now I have them REALLY tight, but I worry that I could

be

> cutting off the blood supply. With his socks on, I have no way of

> telling if blood is circulating or not.

>

> Another question.... with the bar on now, he doesn't fit into his

car

> seat. Either his legs are way up in the air, or his bottom is not

> snug at the back of the seat. Any suggestions? Do I need to get

> another car seat?

>

> Thanks,

> and bc

[Guest guest]

>

> I am going to be in for it when Christian goes back to the brace.

How many

> people in here had children over 6 months when they started wearing

it? How

> long does it typically take for them to adjust to it again?

..

it DOES get better. Hang in there. Some kids are more sensitive to

the sensation of the brace than others.

Will you remind us, who your doctor is and how the treatment has gone

so far? Do 's feet look completely corrected?

If he continues to be inconsolable, there is likely a reason.. but if

the brace has been set up right and the feet are corrected, things

will get better soon.

..

to encourage you.. my daughter went into the brace for the first time

at about 6 months old, and we didn't have any trouble. She adjusted

right away.

I know some babies do take some time to get used to it, and that an

easy ride isn't always the case, but just want to let you know that

it also isn't a given that it will be difficult. In fact, there's a

poll here at the site in which the majority who answered, I believe,

said that their babies didn't have trouble.

Hope this helps, and , please let us know if we can help you get

through this. Take care..

and Claire

[Guest guest]

At 10:40 AM 9/1/2004, you wrote:

>I have been seeing Dr. Feldman in NY. He seems satisfied with the progress

> has made. I'm a little more conservative in my view I think. His

>left foot looks great, but his right foot seems to lie sideways a bit.

>Will this get fully corrected with the brace do you think?

>

If you see it turning, and it's not just baby turning which is normal... I

can't imagine that the brace will correct it. Because the brace doesn't

correct. This may be why you're having so many problems. Have you seen

the tips post I send to the list every couple of weeks? Have you tried all

the things there? Pay special attention to the heel. It absolutely MUST

be seated 100% at the bottom of the shoes. There is no negotiation on

this. Baby really should be comfortable once this happens.

Has baby spent much time with the DBB off recently? If so, yes, correction

may have been lost. You're not seeing any black and blue/purplish marks

are you? Red marks are actually ok, as long as they don't get worse. They

may not go away in the hour out of the shoes like you see written, but if

they don't get worse they're ok. Darbi has had red marks on the tops of

her feet for over a year now. They're just red marks. No sores.

>Any clues on getting the feet to STAY in the brace? Even though I make it

>sooooo tight, he still escapes. I have marked where his toes should be if

>his heel is positioned correctly (I think I did it right), but somehow

>they still come out every few hours.

Pull the laces way out and push the heel into the bottom of the shoe. Then

mark on the heel/ankle with a pen where the top of the boot is. Then take

the foot out and measure exactly from the sole to the top of the

boot. Then compare to the mark on the baby's heel. Even if it's off a mm

or two... it's off. You have to PUSH the foot into the shoes at the

knee. Bend the knee and SHOVE that foot in. Hold the strap in place with

your thumb very tightly and tighten that buckle as tight as you can. Then

bend the knee again and push it in again, press on the strap again tightly

and see if you can get the strap a hole or two tighter. Keep doing this

till you can get no more cinching on that strap. If you can cinch it more,

but there's no hole get someone to punch a hole in between the factory

holes for you.

If his feet keep coming out after that it's probable that you are still not

getting that heel down. Don't be afraid to push that foot into the

shoe. The alternatives are worse than a little heavy handed shoving on his

leg. Trust me.

Oh, and about that carseat... what kind of carseat is it? How long is the

bar? Have you compared it to his shoulders yet? (hold the brace up to his

shoulders and see if the shoe heels are the same as the shoulders. Most

times people post that the baby doesn't fit in the carseat is because the

bar is too long. Which is another factor in feet that pull out.

Which bar do you have anyway? Gold non adjustable or adjustable? Red

adjustable or non adjustable? If you have the gold bar take those shoes OFF

the bar to put them on. Mark on the bar with a sharpie where they're

supposed to be set (mark the plate too). If you can't get the nut off use

a wrench. Don't re-tighten it with a wrench though.

Also, do you have the last cast? Compare it to the angle on the

DBB. Point the knee at 0 degrees (straight in front) and check to see that

the shoe is the same.

Hang in there, there are answers to your problems. We're here to help. LMK

if you need the tips post.

Big hugs! Many of us have been right where you are now, we

understand. There IS a light at the end of the tunnel though. Promise!

Kori

[Guest guest]

At 10:40 AM 9/1/2004, you wrote:

>I have been seeing Dr. Feldman in NY. He seems satisfied with the progress

> has made. I'm a little more conservative in my view I think. His

>left foot looks great, but his right foot seems to lie sideways a bit.

>Will this get fully corrected with the brace do you think?

>

If you see it turning, and it's not just baby turning which is normal... I

can't imagine that the brace will correct it. Because the brace doesn't

correct. This may be why you're having so many problems. Have you seen

the tips post I send to the list every couple of weeks? Have you tried all

the things there? Pay special attention to the heel. It absolutely MUST

be seated 100% at the bottom of the shoes. There is no negotiation on

this. Baby really should be comfortable once this happens.

Has baby spent much time with the DBB off recently? If so, yes, correction

may have been lost. You're not seeing any black and blue/purplish marks

are you? Red marks are actually ok, as long as they don't get worse. They

may not go away in the hour out of the shoes like you see written, but if

they don't get worse they're ok. Darbi has had red marks on the tops of

her feet for over a year now. They're just red marks. No sores.

>Any clues on getting the feet to STAY in the brace? Even though I make it

>sooooo tight, he still escapes. I have marked where his toes should be if

>his heel is positioned correctly (I think I did it right), but somehow

>they still come out every few hours.

Pull the laces way out and push the heel into the bottom of the shoe. Then

mark on the heel/ankle with a pen where the top of the boot is. Then take

the foot out and measure exactly from the sole to the top of the

boot. Then compare to the mark on the baby's heel. Even if it's off a mm

or two... it's off. You have to PUSH the foot into the shoes at the

knee. Bend the knee and SHOVE that foot in. Hold the strap in place with

your thumb very tightly and tighten that buckle as tight as you can. Then

bend the knee again and push it in again, press on the strap again tightly

and see if you can get the strap a hole or two tighter. Keep doing this

till you can get no more cinching on that strap. If you can cinch it more,

but there's no hole get someone to punch a hole in between the factory

holes for you.

If his feet keep coming out after that it's probable that you are still not

getting that heel down. Don't be afraid to push that foot into the

shoe. The alternatives are worse than a little heavy handed shoving on his

leg. Trust me.

Oh, and about that carseat... what kind of carseat is it? How long is the

bar? Have you compared it to his shoulders yet? (hold the brace up to his

shoulders and see if the shoe heels are the same as the shoulders. Most

times people post that the baby doesn't fit in the carseat is because the

bar is too long. Which is another factor in feet that pull out.

Which bar do you have anyway? Gold non adjustable or adjustable? Red

adjustable or non adjustable? If you have the gold bar take those shoes OFF

the bar to put them on. Mark on the bar with a sharpie where they're

supposed to be set (mark the plate too). If you can't get the nut off use

a wrench. Don't re-tighten it with a wrench though.

Also, do you have the last cast? Compare it to the angle on the

DBB. Point the knee at 0 degrees (straight in front) and check to see that

the shoe is the same.

Hang in there, there are answers to your problems. We're here to help. LMK

if you need the tips post.

Big hugs! Many of us have been right where you are now, we

understand. There IS a light at the end of the tunnel though. Promise!

Kori

[Guest guest]

At 10:40 AM 9/1/2004, you wrote:

>I have been seeing Dr. Feldman in NY. He seems satisfied with the progress

> has made. I'm a little more conservative in my view I think. His

>left foot looks great, but his right foot seems to lie sideways a bit.

>Will this get fully corrected with the brace do you think?

>

If you see it turning, and it's not just baby turning which is normal... I

can't imagine that the brace will correct it. Because the brace doesn't

correct. This may be why you're having so many problems. Have you seen

the tips post I send to the list every couple of weeks? Have you tried all

the things there? Pay special attention to the heel. It absolutely MUST

be seated 100% at the bottom of the shoes. There is no negotiation on

this. Baby really should be comfortable once this happens.

Has baby spent much time with the DBB off recently? If so, yes, correction

may have been lost. You're not seeing any black and blue/purplish marks

are you? Red marks are actually ok, as long as they don't get worse. They

may not go away in the hour out of the shoes like you see written, but if

they don't get worse they're ok. Darbi has had red marks on the tops of

her feet for over a year now. They're just red marks. No sores.

>Any clues on getting the feet to STAY in the brace? Even though I make it

>sooooo tight, he still escapes. I have marked where his toes should be if

>his heel is positioned correctly (I think I did it right), but somehow

>they still come out every few hours.

Pull the laces way out and push the heel into the bottom of the shoe. Then

mark on the heel/ankle with a pen where the top of the boot is. Then take

the foot out and measure exactly from the sole to the top of the

boot. Then compare to the mark on the baby's heel. Even if it's off a mm

or two... it's off. You have to PUSH the foot into the shoes at the

knee. Bend the knee and SHOVE that foot in. Hold the strap in place with

your thumb very tightly and tighten that buckle as tight as you can. Then

bend the knee again and push it in again, press on the strap again tightly

and see if you can get the strap a hole or two tighter. Keep doing this

till you can get no more cinching on that strap. If you can cinch it more,

but there's no hole get someone to punch a hole in between the factory

holes for you.

If his feet keep coming out after that it's probable that you are still not

getting that heel down. Don't be afraid to push that foot into the

shoe. The alternatives are worse than a little heavy handed shoving on his

leg. Trust me.

Oh, and about that carseat... what kind of carseat is it? How long is the

bar? Have you compared it to his shoulders yet? (hold the brace up to his

shoulders and see if the shoe heels are the same as the shoulders. Most

times people post that the baby doesn't fit in the carseat is because the

bar is too long. Which is another factor in feet that pull out.

Which bar do you have anyway? Gold non adjustable or adjustable? Red

adjustable or non adjustable? If you have the gold bar take those shoes OFF

the bar to put them on. Mark on the bar with a sharpie where they're

supposed to be set (mark the plate too). If you can't get the nut off use

a wrench. Don't re-tighten it with a wrench though.

Also, do you have the last cast? Compare it to the angle on the

DBB. Point the knee at 0 degrees (straight in front) and check to see that

the shoe is the same.

Hang in there, there are answers to your problems. We're here to help. LMK

if you need the tips post.

Big hugs! Many of us have been right where you are now, we

understand. There IS a light at the end of the tunnel though. Promise!

Kori