Guest guest Posted November 1, 2008 Report Posted November 1, 2008 > > > > > > Bruce, > > > How are you? > > > What does your CT say?Does a CT scan reveal more than > > > a PFT and X-ray combine?hope you have a good report. > > > > > > Regarding the above message from Bruce, Nice to meet you! Sounds like we have a lot in common. I'm new to this board, and just out of the hospital with my surprising IPF diagnosis (after 9 days of CTs, Xrays, Pulmonoscopy and lung biopsies). I've been on a combination of Company disability and Social Security for 18 years with several co-morbidities, each with its own cluster of specialists trying differential diagnoses. Over time, most of my " idiopathic " , untreatable and incurable " Syndromes " now are accepted as everyday GP knowledge. Funny how sometimes YOU are the only one who REALLY believes in your complex symptoms. I suppose now, I can cross Chronic Fatigue Syndrome off my list! In some strange way, it is comforting to actually have a disease that is so obviously not " in my head " , or worse...Munchhausen's, of all things (an intern actually put that musing in my Vanderbilt chart in 1992...but I always request a self-copy of my records, so I was able to get his supervisor to delete that blot. Now, they call that disease, Interstitial Cystitis, and Urologists are making a bundle off attempting to treat it!) Terri Lynn Quote
Guest guest Posted November 1, 2008 Report Posted November 1, 2008 > > > > > > Bruce, > > > How are you? > > > What does your CT say?Does a CT scan reveal more than > > > a PFT and X-ray combine?hope you have a good report. > > > > > > Regarding the above message from Bruce, Nice to meet you! Sounds like we have a lot in common. I'm new to this board, and just out of the hospital with my surprising IPF diagnosis (after 9 days of CTs, Xrays, Pulmonoscopy and lung biopsies). I've been on a combination of Company disability and Social Security for 18 years with several co-morbidities, each with its own cluster of specialists trying differential diagnoses. Over time, most of my " idiopathic " , untreatable and incurable " Syndromes " now are accepted as everyday GP knowledge. Funny how sometimes YOU are the only one who REALLY believes in your complex symptoms. I suppose now, I can cross Chronic Fatigue Syndrome off my list! In some strange way, it is comforting to actually have a disease that is so obviously not " in my head " , or worse...Munchhausen's, of all things (an intern actually put that musing in my Vanderbilt chart in 1992...but I always request a self-copy of my records, so I was able to get his supervisor to delete that blot. Now, they call that disease, Interstitial Cystitis, and Urologists are making a bundle off attempting to treat it!) Terri Lynn Quote
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