[Fwd: Tips for å family with a newborn just arrived with the condition of clubfoot]

[Guest guest]

--- Tips for å family with a newborn just arrived with the

condition of clubfoot

Date: Mon, 19 Apr 2004 00:04:12 +0200

To: nosurgery4clubfoot-owner >

Hello

We are a family from Norway that got a son last week, April 6th , with

clubfoot on both feet. He is now under treatment at " Rikshospitalet "

(National hospital)in Norway through a study originally from California

(Ponseti? (We are not sure of the name, since we just now have been

dragged into this)). He was casted on both feet after 4 days and shall

change the cast on a weekly basis until he is about 4 months old.

Surprisingly for us he look fine and is acting fine despite the cast on

both feet. He is most likely having surgery when he is about 5 weeks to

cut off the akilles on both feet.

What we would like to hear from other families is what should we look

out for /make sure is done correctly. What questions should we ask, what

can we do to make sure our baby gets the best treatment and best chances

to recover. We would like to hear about the error one quickly can get

into and though this hopefully our boy will heal quickly without too

much pain and be able to grow up almost as a " normal " child.

We will be most happy for any tips. Especially if anyone from Norway has

any experience with this.

Yours

Morten Petterson