Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 Hi all, I have a 10 month old daughter, , who has a unilateral clubfoot (left). Here's a summary up to now. She began casting treatment at 3 days old by a local doctor tranined in the Ponseti method. She had her tenatomy on November 21st and her last cast removed on Dec 5th (almost 3 months old), did the DBB FT for 9 weeks and now wears it at night. She continues to wear her " Last shoes " FT during the day except for a break of 1-2 hours. I am feeling very alone in this. I know NO ONE here (in land, Southern MD to be exact) who is going through it. 's doctor treats other patients but of course has strict doctor-patient confidentiality. In addition to her foot, was born with four congenital heart defects and a left palm simian crease. Her heart defects are: ASD, PDA, bicuspid Aortic valve and a tortuous Aorta. We also do not know anyone dealing with heart conditions. will be seeing a geneticist in September to find out if there is any genetic link to her conditions. I ahve SOOO many questions but don't know where to start! Is there anyone here from land? Anyone who is also dealing with any of the above heart condtions? Thanks! As I get more familiar here, I am sure my questions will come out:) Marilouise and 9/9/03 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.