Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 Hi Marilouise- I'm not from land, but wanted to welcome you here to the board. I'm sure you will find the support here just as valuable as if we were all there in land with you! At least I felt that when I joined. I've been fortunate after two years to meet several people on this board. One suggestion would be to have your doctor give your name and number out to the other parents with children of clubfeet he treats. They can choose to call you or not and I'll bet you a couple of them call! That is what we did. We actually gave our name/number to our doctor's nurse and asked her to let the other parents know we wanted to meet someone going through the same thing. She contacted the others on our behalf and gave them our information. That way those who didn't want to meet were kept confidential. Anyway just a suggestion and welcome to the group:) and (3-22-02 with unilateral clubfoot, corrected Ponseti Method, wear DBB at night) > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: new member >Date: Tue, 06 Jul 2004 01:09:10 -0000 > >Hi all, >I have a 10 month old daughter, , who has a unilateral >clubfoot (left). Here's a summary up to now. She began casting >treatment at 3 days old by a local doctor tranined in the Ponseti >method. She had her tenatomy on November 21st and her last cast >removed on Dec 5th (almost 3 months old), did the DBB FT for 9 weeks >and now wears it at night. She continues to wear her " Last shoes " >FT during the day except for a break of 1-2 hours. >I am feeling very alone in this. I know NO ONE here (in land, >Southern MD to be exact) who is going through it. 's doctor >treats other patients but of course has strict doctor-patient >confidentiality. >In addition to her foot, was born with four congenital heart >defects and a left palm simian crease. Her heart defects are: ASD, >PDA, bicuspid Aortic valve and a tortuous Aorta. We also do not >know anyone dealing with heart conditions. will be seeing a >geneticist in September to find out if there is any genetic link to >her conditions. >I ahve SOOO many questions but don't know where to start! Is there >anyone here from land? Anyone who is also dealing with any of >the above heart condtions? Thanks! As I get more familiar here, I >am sure my questions will come out:) >Marilouise and 9/9/03 > > _________________________________________________________________ MSN 9 Dial-up Internet Access helps fight spam and pop-ups – now 2 months FREE! http://join.msn.click-url.com/go/onm00200361ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2004 Report Share Posted July 5, 2004 Hi Marilouise! I'm from Salisbury. new member Hi all, I have a 10 month old daughter, , who has a unilateral clubfoot (left). Here's a summary up to now. She began casting treatment at 3 days old by a local doctor tranined in the Ponseti method. She had her tenatomy on November 21st and her last cast removed on Dec 5th (almost 3 months old), did the DBB FT for 9 weeks and now wears it at night. She continues to wear her " Last shoes " FT during the day except for a break of 1-2 hours. I am feeling very alone in this. I know NO ONE here (in land, Southern MD to be exact) who is going through it. 's doctor treats other patients but of course has strict doctor-patient confidentiality. In addition to her foot, was born with four congenital heart defects and a left palm simian crease. Her heart defects are: ASD, PDA, bicuspid Aortic valve and a tortuous Aorta. We also do not know anyone dealing with heart conditions. will be seeing a geneticist in September to find out if there is any genetic link to her conditions. I ahve SOOO many questions but don't know where to start! Is there anyone here from land? Anyone who is also dealing with any of the above heart condtions? Thanks! As I get more familiar here, I am sure my questions will come out:) Marilouise and 9/9/03 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2004 Report Share Posted July 6, 2004 Hi , Thanks for the welcome and the idea. Don't know why I never thought to do what you suggested!! Marilouise and 9/9/03 > Hi Marilouise- > > I'm not from land, but wanted to welcome you here to the board. I'm sure > you will find the support here just as valuable as if we were all there in > land with you! At least I felt that when I joined. I've been fortunate > after two years to meet several people on this board. One suggestion would > be to have your doctor give your name and number out to the other parents > with children of clubfeet he treats. They can choose to call you or not and > I'll bet you a couple of them call! That is what we did. We actually gave > our name/number to our doctor's nurse and asked her to let the other parents > know we wanted to meet someone going through the same thing. She contacted > the others on our behalf and gave them our information. That way those who > didn't want to meet were kept confidential. Anyway just a suggestion and > welcome to the group:) > > and (3-22-02 with unilateral clubfoot, corrected Ponseti > Method, wear DBB at night) > > > >From: " Marilouise Tozier " > >Reply-To: nosurgery4clubfoot > >To: nosurgery4clubfoot > >Subject: new member > >Date: Tue, 06 Jul 2004 01:09:10 -0000 > > > >Hi all, > >I have a 10 month old daughter, , who has a unilateral > >clubfoot (left). Here's a summary up to now. She began casting > >treatment at 3 days old by a local doctor tranined in the Ponseti > >method. She had her tenatomy on November 21st and her last cast > >removed on Dec 5th (almost 3 months old), did the DBB FT for 9 weeks > >and now wears it at night. She continues to wear her " Last shoes " > >FT during the day except for a break of 1-2 hours. > >I am feeling very alone in this. I know NO ONE here (in land, > >Southern MD to be exact) who is going through it. 's doctor > >treats other patients but of course has strict doctor-patient > >confidentiality. > >In addition to her foot, was born with four congenital heart > >defects and a left palm simian crease. Her heart defects are: ASD, > >PDA, bicuspid Aortic valve and a tortuous Aorta. We also do not > >know anyone dealing with heart conditions. will be seeing a > >geneticist in September to find out if there is any genetic link to > >her conditions. > >I ahve SOOO many questions but don't know where to start! Is there > >anyone here from land? Anyone who is also dealing with any of > >the above heart condtions? Thanks! As I get more familiar here, I > >am sure my questions will come out:) > >Marilouise and 9/9/03 > > > > > > _________________________________________________________________ > MSN 9 Dial-up Internet Access helps fight spam and pop-ups – now 2 months > FREE! http://join.msn.click-url.com/go/onm00200361ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2004 Report Share Posted July 6, 2004 Our Ortho called us to ask if it was okay to share our number with another family he was treating. I was happy to okay that and now that mom is a member here as well. It's nice to have someone close that can understand what you are going through. Let your Drs know you are interested. I'm sure they will be happy to help you in that way! Chris new member > >Date: Tue, 06 Jul 2004 01:09:10 -0000 > > > >Hi all, > >I have a 10 month old daughter, , who has a unilateral > >clubfoot (left). Here's a summary up to now. She began casting > >treatment at 3 days old by a local doctor tranined in the Ponseti > >method. She had her tenatomy on November 21st and her last cast > >removed on Dec 5th (almost 3 months old), did the DBB FT for 9 weeks > >and now wears it at night. She continues to wear her " Last shoes " > >FT during the day except for a break of 1-2 hours. > >I am feeling very alone in this. I know NO ONE here (in land, > >Southern MD to be exact) who is going through it. 's doctor > >treats other patients but of course has strict doctor-patient > >confidentiality. > >In addition to her foot, was born with four congenital heart > >defects and a left palm simian crease. Her heart defects are: ASD, > >PDA, bicuspid Aortic valve and a tortuous Aorta. We also do not > >know anyone dealing with heart conditions. will be seeing a > >geneticist in September to find out if there is any genetic link to > >her conditions. > >I ahve SOOO many questions but don't know where to start! Is there > >anyone here from land? Anyone who is also dealing with any of > >the above heart condtions? Thanks! As I get more familiar here, I > >am sure my questions will come out:) > >Marilouise and 9/9/03 > > > > > > _________________________________________________________________ > MSN 9 Dial-up Internet Access helps fight spam and pop-ups - now 2 months > FREE! http://join.msn.click-url.com/go/onm00200361ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2004 Report Share Posted July 6, 2004 I'll second that! It is definitely nice to have others to talk to. You know you're not going through all of this alone and the advice and tips are soooo helpful. I wouldn't have even known this group existed if we hadn't talked to Chris. and BCF 03/25/2004 DBB 23/7 new member > > >Date: Tue, 06 Jul 2004 01:09:10 -0000 > > > > > >Hi all, > > >I have a 10 month old daughter, , who has a unilateral > > >clubfoot (left). Here's a summary up to now. She began casting > > >treatment at 3 days old by a local doctor tranined in the Ponseti > > >method. She had her tenatomy on November 21st and her last cast > > >removed on Dec 5th (almost 3 months old), did the DBB FT for 9 > weeks > > >and now wears it at night. She continues to wear her " Last shoes " > > >FT during the day except for a break of 1-2 hours. > > >I am feeling very alone in this. I know NO ONE here (in land, > > >Southern MD to be exact) who is going through it. 's > doctor > > >treats other patients but of course has strict doctor-patient > > >confidentiality. > > >In addition to her foot, was born with four congenital > heart > > >defects and a left palm simian crease. Her heart defects are: > ASD, > > >PDA, bicuspid Aortic valve and a tortuous Aorta. We also do not > > >know anyone dealing with heart conditions. will be > seeing a > > >geneticist in September to find out if there is any genetic link > to > > >her conditions. > > >I ahve SOOO many questions but don't know where to start! Is > there > > >anyone here from land? Anyone who is also dealing with any of > > >the above heart condtions? Thanks! As I get more familiar here, > I > > >am sure my questions will come out:) > > >Marilouise and 9/9/03 > > > > > > > > > > _________________________________________________________________ > > MSN 9 Dial-up Internet Access helps fight spam and pop-ups - now 2 > months > > FREE! http://join.msn.click-url.com/go/onm00200361ave/direct/01/ > > > > Quote Link to comment Share on other sites More sharing options...
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