hi

[Guest guest]

Hi . I change my screen name so often, sometimes I forget the

one I'm using now (lol). Congrats on the weight loss. I wish I was

under 200 again. Thanks for inviting me on the boat. I plan to stay

on without jumping back in the sea of self-pity.

Placido

[Guest guest]

,

New here also, but having buddies helps a great deal; I just try to

eat healty; watch the junk and fried foods! A good group of posters

to give support.

Liz

-- In weightlossbuddies2 , " scorpiastarr "

<celtic_souls@y...> wrote:

>

>

> Hi everyone , I'm a married mommy of four, just started back to

> school and am very frustrated by my weight problem. Basically the

> story goes... had kids gained weight, got fed up with being

> overweight lost 50lbs. in under 4 months, moved south and gained

> 70lbs. in one year. Can't seem to dredge up the will power to go

on

> another diet looking for some hope and inspiration.

>

> ~~

[Guest guest]

welcome ! I have not been with this group long but it has helped me

motivate from I think I can to dang it this is it I WILL do it! lol Best of

luck and if you are looking for caring, nice people to push u on you are at the

right place! Jill

[Guest guest]

welcome ! I have not been with this group long but it has helped me

motivate from I think I can to dang it this is it I WILL do it! lol Best of

luck and if you are looking for caring, nice people to push u on you are at the

right place! Jill

[Guest guest]

welcome ! I have not been with this group long but it has helped me

motivate from I think I can to dang it this is it I WILL do it! lol Best of

luck and if you are looking for caring, nice people to push u on you are at the

right place! Jill

[Guest guest]

Hi Cathy – welcome to the group. I am also a granola type and trying

everything possible to avoid surgery. I am 31 and was diagnosed with

fibroids 3 years ago. You should check out Healing from Fibroids

Naturally

http://groups.yahoo.com/group/HealingFromFibroidsNaturally/

The group discusses other options of treatment. I do acupuncture

which has slowed down the growth of my fibroids and many different

herbs. My acupuncturist is also treating another woman who had a

melon size fibroid – hers is now down to a orange size. There are a

bunch of different natural herbs and cream options listed on the site

also. Just read the archives and they go through lots of options.

This site and the Natural site are great ways to gather information –

the main thing you have to remember is each person is different and

the treatments respond differently. I hope you find one that works.

If you have questions, you can always email off line.

Peace and Good Health

JenM

> Hello:

>

> I have been lurking for the past couple weeks and thought I would

> finally introduce myself.

>

> My name's Cathy and I am 34 years old. I was just diagnosed with

> uterine fibroids about a month ago. The biggest one is 8c. My dr

> thinks I might have some others. My symptoms have only presented

> themselves at the beginning and during my period. Terrible cramps,

> heavy bleeding and contractions throughout my period. I am very

> active in outdoors stuff and have been a vegetarian since I was

20.

> I have also recently found out both my Mom (deceased since I was

20)

> and my aunt had hysterectomies because of fibroids. So, they

> obviously run in the family! Joy for me!

>

> My dr has suggested inducing menopause with Lupron and then a

> myomectemy. As you can tell, I am a little too granola for that.

> Seems very invasive and not necessary for me right now. I have

never

> been ill enough to have to be hospitalized. So I am pursing a

couple

> other options. I am going to get a second and possibly even third

> opinon from traditional ob/gyns as well as I just saw a

naturopathic

> dr yesterday and am going to try that as well. Not only for

fibroids

> but general health.

>

> I value all the posts I am reading, there is so much information on

> this list and it has been a god send. I am also on the healing

> fibroids naturally list as well. I know that every woman's

situation

> is different so I understand that knowing all your options is

> important. And I know that in the future I might have to have a

myo

> and I will deal with that when I get there.

>

> I have named her Gilda the Grapefruit and am wishing her to shrink

> and quietly go away. I am about to start my period this next

couple

> days so I'm making some changes right now. No dairy, no sugar

(ooooh

> that's a hard one but I have done it in the past), and am drinking

> some herbal PMS tea and drinking lots of water.

>

> Good luck to all of you having to go through surgeries coming up.

I

> hope they go well and that the fibroids leave you alone and not

> reappear.

>

> Take care! And thanks for listening.

[Guest guest]

Hello group,

Does anyone know a gyno doc in Los Angeles that I can go to ??????

Jasmine

[Guest guest]

Dr. H. , Santa .

He's great!

Re: Re: Hi

Hello group,

Does anyone know a gyno doc in Los Angeles that I can go to ??????

Jasmine

[Guest guest]

Denese,

I am sorry that you are having discomfort/bleeding after they myo. I

haven't gotten to the myo point in my journey, but can completely

related to wanting the buggers out and being creeped out by the

unwelcome intruders!

Just this morning I was admiring the lemon that is finally growing on

the lemon tree that I have growing in a pot on the balconey. When my

eyes got out the ol ruler, I realized that my biggest bugger is

probably the same size (3cm) and it made me sick to think about.

I wasn't clear in your post, but are you still taking BCP? I have

read that it is thought that hormones feed the little buggers and

many women here have posted that they think that bcp have caused

their buggers to grow. Of course excess bleeding is a big health

concern and I know that docs often prescribe bcp to control

bleeding.

I myself don't have heavy bleeding, but do have pain/discomfort from

a intramural fibroid. I have slow growing buggers and have decided

to wait a year or so before having them removed. I have been trying

some natural herbal remedies for discomfort and have found red

rasberry leaf tea to cut down pain and have noticed that it also

greatly reduces my flow.

I hope you find a solution to your problem soon. I am not clear why

they didn't remove the other fibroids when you had your procedure.

Most women here seem to have the entire job done unless their is some

over riding health care concern.

best,

suz

[Guest guest]

Hi Denese--

I had my abdominal myo on Oct. 2. for the removal of a large fibroid in my

uterine lining, and two smaller ones withn the uterus that they discovered while

they were in there. I also had heavy bleeding after my surgery, it was the

heaviest the week after, with some clotting. I bled off and on for about 3

weeks after the surgery, it slowed to spotting gradually. I am now just over 4

weeks post surgery and am no longer bleeding, but am expecting a period anytime

now.

My emotions were also very up and down, as they were before the surgery as well.

I cried a lot and got very emotional for no reason. I am 32 and have no

children as of yet, but I do want that option. I think most of us go through a

lot of emotions with these procedures. For me, it was difficult to get through

the surgery, only to still face symptoms of bleeding, bloating and pain for

weeks following the surgery. I knew the fibroids were gone, but it was very

frustrating and upsetting to still be dealing with those symptoms. I am now, 4

weeks post-op, beginning to feel better and more like myself again.

It also seems that many people who do not have them do not understand how bad

fibroids can be, how they affect your life. This board is different, though,

everyone here understands and is very supportive. Hang in there!

[Guest guest]

Hi Denese--

I had my abdominal myo on Oct. 2. for the removal of a large fibroid in my

uterine lining, and two smaller ones withn the uterus that they discovered while

they were in there. I also had heavy bleeding after my surgery, it was the

heaviest the week after, with some clotting. I bled off and on for about 3

weeks after the surgery, it slowed to spotting gradually. I am now just over 4

weeks post surgery and am no longer bleeding, but am expecting a period anytime

now.

My emotions were also very up and down, as they were before the surgery as well.

I cried a lot and got very emotional for no reason. I am 32 and have no

children as of yet, but I do want that option. I think most of us go through a

lot of emotions with these procedures. For me, it was difficult to get through

the surgery, only to still face symptoms of bleeding, bloating and pain for

weeks following the surgery. I knew the fibroids were gone, but it was very

frustrating and upsetting to still be dealing with those symptoms. I am now, 4

weeks post-op, beginning to feel better and more like myself again.

It also seems that many people who do not have them do not understand how bad

fibroids can be, how they affect your life. This board is different, though,

everyone here understands and is very supportive. Hang in there!

[Guest guest]

Urgghh! The computer deleted my message....AGAIN!

It does sound like a long time to gather up confirmation of diagnosis.

I was diagnosed by physical examination by a GP. That was followed up

by blood tests,an external ultrasound and a gynaecologist appointment

who also did a physical examination.

The Myomectomy has been around a long time.

I'm wondering if post op bloating and healing makes some symptoms

stay around after the myo, but it's only my speculation. I was told

at pre-op to expect a period like bleed on the week of my operation.

I was lucky and had no bleeding, but it wasn't one of my fibroid

symptoms either. I still get some mornings of lower back ache but

haven't had it as bad as pre-myo.

We spend a lot of time choosing the right treatment and worrying

about diet. We shouldn't neglect the post operation rest and post op

healing attitude. My advice is to postpone worries and the next

stages of fibroid investigating until after 6 weeks of recovery. Then

you'll be in a fitter state to go about that. That's what I've

done...put it all off a while. Stress won't help your recovery.

The Broder Drum book about what your doctor may not tell you

about fibroids (Red and white cover) has some useful info in it about

rthe post operative experience.

<I still have 2 other fibroids that the doctor chose to watch &

wait.>

I'm also in this situation with the same questions.

<I can't be the only one with huge mood swings & lack of focus.>

Lack of focus may be recovery period tiredness and stress. Your body

wants to concentrate on healing. It's apparently normal to feel all

emotional and depressed even after surgery. There are also some

understandable sources of stress and upset that can crop up, like

wanting to ask a doctor and having to use books and the internet

instead, or wishing people around would actually help move heavy

things instead of telling us not to! :-)

<I really want the other 2 fibroids out of my body>

I don't know, but maybe they've left them in so that if you have

children your pregnancy will go more smoothly with less uterine

cutting.

Me too, but remember a lot of women have fibroids without symptoms

and without even knowing. They've had the opportunity to have a look

at these other fibroids to be on the safe side. Also fibroids are no

more gross than all the other organs and things in our body.

<just kept switching my birth control pills>

I guess they were trying to find a less invasive solution than

surgery and to reliev the symptoms, meaning well. It can work for

some people.

I think doctors go through an inner dialogue and don't share this

with the patient, while they are weighing and balancing different

possibles.

<told me the instruments were " too clumsy " in theirs hands>

Best to avoid them then!!

<I'm 35 years old--always put my career first--I always thought--have

> children later...so many emotions..and mainly an reasonable rush of

> emotions>

Just how I feel. I want to get married, have kids and live happily

ever after. Fibroids have completely messed that up. I don't want the

fibroids to regrow before I'm ready to start a family. I don't want

to have to go through this all over again with the remaining fibroids

and I don't want to risk birth defects/problems from having children

late on. Nothing will scare off the other half more than 'Right! We

have to get married, have kids and buy a house NOW!!!!' See, I got it

all wrong. It seems what I should have done was got pregnant at 14 or

something, and then this wouldn't have happened. You're not alone and

we can share info as we find it out.

1) how long did you bleed after your myomectomy surgeries? I didn't

and then had a normal period. I have other non fibroid health hassles.

2) my emotions are out of control--I am trying to be

> constructive..

It's OK, that's normal as a post op experience.

<I signed up for volunteer work with " NUFF " to help promote educating

> women about their choices.>

Cool.

I am frustrated that there is no cure for fibroids..and that

apparently women do not openly discuss their problems with fibroids.>

Things are getting better.

<I'm 35 years old & somehow i had never heard of

> fibroids--much less their symptoms.>

It's bad, isn't it.

<I feel like I am out of control>

Trust me - Every week you'll feel better and almost every day in the

first week. The worst is over, so put your feet up.

If in doubt over symptoms, check it out, here or with doctors.

We put a lot of effort into researching treatments, so we should also

give attention and care to resting after these operations too.

There's no point in us having a great surgeon if we then do daft

things.

You should be avoiding using your stomach muscles, resting, avoiding

late nights (maybe cat nap), having short walks to keep circulation

going, and sit still in a chair when in pain. Don't life/push/pull

heavy weights. Allow 6 weeks to recouperate and even after that go

easy on your 'stomach' muscles

I'm repeating myself...I hope it helps though.

[Guest guest]

Welcome and Misty,

this group is a good group, get alot of ideas and support. Hope you

enjoy all the emails.

Marge

[Guest guest]

Welcome and Misty,

this group is a good group, get alot of ideas and support. Hope you

enjoy all the emails.

Marge

[Guest guest]

Hi Misty; Welcome. I just came on board this week too! I also have a long way

to go. I know you can do it. Because we are all together in this battle. And I

believe we will win. Time is all we need. Best of luck. Pat

Hi

Hi I am a new member here.I would like to say Thank You for letting

me join this group.I would also like to say Hi to everyone.From the

messages I have read so far this looks like a great group that is

very supportive.I just started on Weight Watchers and Have a long way

to go but know I can do it.I hope to talk to you all soon! Misty

[Guest guest]

Hi Misty; Welcome. I just came on board this week too! I also have a long way

to go. I know you can do it. Because we are all together in this battle. And I

believe we will win. Time is all we need. Best of luck. Pat

Hi

Hi I am a new member here.I would like to say Thank You for letting

me join this group.I would also like to say Hi to everyone.From the

messages I have read so far this looks like a great group that is

very supportive.I just started on Weight Watchers and Have a long way

to go but know I can do it.I hope to talk to you all soon! Misty

[Guest guest]

Hi and welcome to the group Misty! This is a wonderful group for support,

encouragement, and advice. I look forward to getting to know you.

Maureen

Hi

Hi I am a new member here.I would like to say Thank You for letting

me join this group.I would also like to say Hi to everyone.From the

messages I have read so far this looks like a great group that is

very supportive.I just started on Weight Watchers and Have a long way

to go but know I can do it.I hope to talk to you all soon! Misty

[Guest guest]

Hi Prasad,

A very warm welcome to the group. I am sorry you have been diagnosed with

IgAN. The best place to start for information is our sister site at

_www.igan.ca_ (http://www.igan.ca) if you have not yet checked that site out.

As far as pain, many people with IgAN get what is called flank pain, which

is a pain that is located in the lower back just under the ribs. Muscle or

bone pain should not typically accompany IgAN unless your kidney function is

very advanced and your PTH and CA levels are way out of whack. That can cause

some bone pain if too much calcium is being pulled out of your bones, but you

do not indicate what your kidney function so I don't know if that could be

related or not. That is usually when you are 20% function or below.

If you are having significant pain in other parts of your body, you may want

to make an appointment with your primary care physician to get that checked

out.

Welcome again.

In a message dated 5/15/2005 1:39:19 P.M. Pacific Daylight Time,

prasadbvss@... writes:

I recently new that i have IGa Nephropathy. I am

getting some pains in the body. I am not sure whether

they are muscle pain or bone pain. I am unable to

decide. Can anyone please clarify it.

Thanks,

Prasad

[Guest guest]

Hi Jozef,

How wonderful that you will have the chance to travel for a full month!

What you are describing does sound like the flank pain that some of us with

IgAN

gets as far as the location of it, but not that it occurs only upon

movement. That sounds more like muscle pain if it is intermittent and only

with

movement on that side, but remember that I am not a doctor and no one should

take

anything said here as medical advice. Since you are traveling for such an

extended trip, you may want to get it checked out just so be sure.

In a message dated 5/15/2005 5:16:50 P.M. Pacific Daylight Time,

malobejf@... writes:

Talking about pain and accurately pin pointing where

it comes from, is also a question of mine. I hope some

of you can provide an answer. A couple of days ago I

noticed some discomfort/pain in my right side. It

actually occurs in the kidney area. A year ago I was

diagnosed with nephropathy but only now am I

witnessing this pain. The closest that I can describe

the pain to is as if someone were to punch you on the

side of your lower back. The pain only really occurs

whenever I make any movement when turning or bending

to the side. I'll be traveling oversees for a month

soon and wanted to know if anyone thinks I should go

see a doctor about this.

Thank you for any suggestion or advice you can give

me.

Jozef

[Guest guest]

Hi Jozef,

How wonderful that you will have the chance to travel for a full month!

What you are describing does sound like the flank pain that some of us with

IgAN

gets as far as the location of it, but not that it occurs only upon

movement. That sounds more like muscle pain if it is intermittent and only

with

movement on that side, but remember that I am not a doctor and no one should

take

anything said here as medical advice. Since you are traveling for such an

extended trip, you may want to get it checked out just so be sure.

In a message dated 5/15/2005 5:16:50 P.M. Pacific Daylight Time,

malobejf@... writes:

Talking about pain and accurately pin pointing where

it comes from, is also a question of mine. I hope some

of you can provide an answer. A couple of days ago I

noticed some discomfort/pain in my right side. It

actually occurs in the kidney area. A year ago I was

diagnosed with nephropathy but only now am I

witnessing this pain. The closest that I can describe

the pain to is as if someone were to punch you on the

side of your lower back. The pain only really occurs

whenever I make any movement when turning or bending

to the side. I'll be traveling oversees for a month

soon and wanted to know if anyone thinks I should go

see a doctor about this.

Thank you for any suggestion or advice you can give

me.

Jozef

[Guest guest]

It's hard to say with pain, because pain could be felt in one area but be

referred pain from another part of the torso. Pain associated with movement

is probably more muscle or skeletal-related somehow, but, I would never make

any assumptions that a pain like that is related to the IgAN. Better let a

professional check it out. As I've posted before, there was a time more than

a decade ago when I thought I had pain from my right kidney, and it turned

out to be gallbladder disease. I eventually had the gallbladder taken out.

Other times I've had a bout of pancreatitis, the pain tended to be in the

right flank too, and totally not related to having kidney disease.

Pierre

RE: Hi

> Talking about pain and accurately pin pointing where

> it comes from, is also a question of mine. I hope some

> of you can provide an answer. A couple of days ago I

> noticed some discomfort/pain in my right side. It

> actually occurs in the kidney area. A year ago I was

> diagnosed with nephropathy but only now am I

> witnessing this pain. The closest that I can describe

> the pain to is as if someone were to punch you on the

> side of your lower back. The pain only really occurs

> whenever I make any movement when turning or bending

> to the side. I'll be traveling oversees for a month

> soon and wanted to know if anyone thinks I should go

> see a doctor about this.

>

> Thank you for any suggestion or advice you can give

> me.

> Jozef

>

[Guest guest]

In a message dated 10/4/2005 7:53:07 PM Pacific Standard Time,

sweetcuteandspoiled@... writes:

I have also recently signed up for the walk here in Nashville.

Hi Terri,

I'm glad you found our groups. Hopefully you have found the HSP List too.

Going to Nashville will be a very positive experience for you. I think

there are going to be several in our HSP/PLS community attending.

Gentner, PLS

sp-foundation

Alone we can do so little. Together we can do so much.

Helen Keller (1880-1968)

[Guest guest]

I'm sorry, Terri, I didn't explain well enough. I'm not going to Nashville

but I do know Jim is expecting about 30 people in Nashville. I have PLS and

I live in California but I just returned from our national conference that

was held in Columbus, Ohio this past weekend. Jim and I both are on the Board

of the SPF. We held our Board meeting in Nashville last March and Jim held a

Connection for HSP/PLS folks at the time and several people attended. Are

you a member of the HSP List?

[Guest guest]

I look forward to meeting you. Since you are in the Nashville area, if

you don't mind me asking, who is your Neurologist?

Terri

>

>

> In a message dated 10/4/2005 7:53:07 PM Pacific Standard Time,

> sweetcuteandspoiled@y... writes:

>

> I have also recently signed up for the walk here in Nashville.

>

>

>

> Hi Terri,

>

> I'm glad you found our groups. Hopefully you have found the HSP

List too.

> Going to Nashville will be a very positive experience for you. I think

> there are going to be several in our HSP/PLS community attending.

>

> Gentner, PLS

> sp-foundation

>

> Alone we can do so little. Together we can do so much.

> Helen Keller (1880-1968)

>

>

>

[Guest guest]

Nothing to be sorry for, I should not have assumed what I did. I met

Jim a few months ago, and I just recently (a couple of weeks ago)

found out that he also has HSP. He was the one that began telling me

about the organization. Unfortunately, I did not find out in enough

time to sign up for the National Conference, but I did find out in

time to be a part of the Team Walk in Nashville. I have just recently

signed up as a member on the HSP list. Up until I met Jim, I thought

that HSP was something the doctors had just told me to blow me off. No

one acted as if they believed me. Unfortunately, the one doctor (Jim's

Neurologist) was my doctor about 10 years ago, but due to

complications with his staff, I decided to look elsewhere for a

Neurologist. No one I've been to since seems to know anything about

HSP. I even tried to contact the MAYO Clinic in Florida about a year

and a half ago to see if they could help me. They too acted as if this

was all in my head.

Terri

>

> I'm sorry, Terri, I didn't explain well enough. I'm not going to

Nashville

> but I do know Jim is expecting about 30 people in Nashville. I

have PLS and

> I live in California but I just returned from our national

conference that

> was held in Columbus, Ohio this past weekend. Jim and I both are

on the Board

> of the SPF. We held our Board meeting in Nashville last March and

Jim held a

> Connection for HSP/PLS folks at the time and several people

attended. Are

> you a member of the HSP List?

>

>

>

>

>