Guest guest Posted October 19, 2006 Report Share Posted October 19, 2006 Hello all, I've really enjoyed reading postings. It's encouraging to read the lines of love from strangers. I wish I had been here when I was newly diagnosed. The reason why I am here now is to get some answers or read some similar experiences that will help me deal with my life after chemo. I am okay most of the time but still break down for absolutely no reason, none that is apparent anyway. I can't help but feel under represented in this pool of people. That's why I brought up the men and breast cancer/why only pink issue. I feel like I am on the fringe too. It is frustrating to get very little feedback when I bring up what health is. If anything, cancer is a wake up call to realize we could be living a purer life, that's not to say we gave it to ourselves, but to maintain a level of responsibility from now on should be our number one job. I am disappointed that this is not reflected back from many people in the group. Does no one believe cancer recurs because the same chemical pool still exists within our bodies possibly because we didn't change anything? I want to help everybody but not many seem to care to listen. This is upsetting to me because I care so much and don't know any of you. Another point is that I don't read about any after-cancer maintenance for the psyche, and spiritual self. I was hoping to come across some tips because I have such emotional days, crying on the freeway and in school or the store. Maybe it's partially because my only caregiver and I broke up after 3 1/2 years recently. No one in my family lives nearby except my dad and he did his best but wasn't particularly nurturing. I dealt with the emotional stuff alone and took what I could out on my boyfriend. Poor guy, he is only 28 but did a stellar job and took it in stride. I wanted to join a group then and tried but it was similar in that everyone was a lot older and didn't have fertility issues and many were out a couple of years or more and I was just starting chemo. Now I'm in this group and it's the opposite! Most people are newly diagnosed. I like to help where I can but I would like some help too. Maybe at least some feedback from people. I have already gone through all the surgeries, chemo, reconstruction etc. but I am far from done with this disease. I have so much fatigue, when I'm up I am going and then I am down and in bed at 2 in the afternoon. What do I do now besides juicing, coffee enemas, organic foods, herbs, exercise...?? I tried to find that other group for younger women but it is on the east coast and I would have to attend their meetings, not possible. I am still surprised it is so hard to find people like me in this situation. It's not just an age difference at all it's more a lifestyle and health difference. Us crazy health hippies in Cali may seem weird to you lot but it's perfectly normal to me! Anyway, I still hope we can learn from each other. If not I will go away. Lots of Love, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 a, I too have struggled with not finding another person with the same situation or dx and felt alone and felt that I must be bad off if I can't find another just like me. But, I have learned from all the different people bits and pieces and put it together for myself. I am 34 with E-/P-, Her2++, DCIS, Invasive ductal, Grade 3, Comedo with necrosis, 6.4 cm tumor, Mast with tram reconstruction, 14/22 nodes positive, just finished AC starting taxol with herceptin. I also have 2 young children 2 & 4, both of which I nursed. I considered myself healthy, ate organic, excersised, fed my kids organic food, maybe could have done more yoga, but needless to say I was devastated that I was diagnosed with such an aggressive and invasive tumor. I too wish I could hear more about diet and other alternatives that work, but I think overall the medical field doesn't know much, so you have to do what you know is best for yourself. I havn't been able to do much lately, the AC chemo really kicked my ass, but I do know that I have to start real soon because it will reduce my chances of it coming back. Sorry that I'm jumping around, but I want you to know that I value your input and that it is a good thing that we are all different because I beleive that it shows that science has been able to be specific and that we are all have a great things to contribute. Quick story, my family and friends have all come together to make meals for me and my family. Most people didn't know what organic food was nor where to buy it, so I believe that my cancer has helped other on how to be healthy and that we do have choices on where to buy our food. I hope this helps and I look forward to hearing from you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 a, Please don't leave. We all do what we feel is the right thing for us. I have used visualization and relaxation tapes while going through treatment and still listen to one every night when we go to bed. I've been doing it for over 16 yrs. Have you ased the dr about antidepressants? Or if you don't want them is there something organic possibly that would help? Maybe you are expecting your body to do too much. My onc told me to listen to my body and when I was tired to rest. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com from K Hello all, I've really enjoyed reading postings. It's encouraging to read the lines of love from strangers. I wish I had been here when I was newly diagnosed. The reason why I am here now is to get some answers or read some similar experiences that will help me deal with my life after chemo. I am okay most of the time but still break down for absolutely no reason, none that is apparent anyway. I can't help but feel under represented in this pool of people. That's why I brought up the men and breast cancer/why only pink issue. I feel like I am on the fringe too. It is frustrating to get very little feedback when I bring up what health is. If anything, cancer is a wake up call to realize we could be living a purer life, that's not to say we gave it to ourselves, but to maintain a level of responsibility from now on should be our number one job. I am disappointed that this is not reflected back from many people in the group. Does no one believe cancer recurs because the same chemical pool still exists within our bodies possibly because we didn't change anything? I want to help everybody but not many seem to care to listen. This is upsetting to me because I care so much and don't know any of you. Another point is that I don't read about any after-cancer maintenance for the psyche, and spiritual self. I was hoping to come across some tips because I have such emotional days, crying on the freeway and in school or the store. Maybe it's partially because my only caregiver and I broke up after 3 1/2 years recently. No one in my family lives nearby except my dad and he did his best but wasn't particularly nurturing. I dealt with the emotional stuff alone and took what I could out on my boyfriend. Poor guy, he is only 28 but did a stellar job and took it in stride. I wanted to join a group then and tried but it was similar in that everyone was a lot older and didn't have fertility issues and many were out a couple of years or more and I was just starting chemo. Now I'm in this group and it's the opposite! Most people are newly diagnosed. I like to help where I can but I would like some help too. Maybe at least some feedback from people. I have already gone through all the surgeries, chemo, reconstruction etc. but I am far from done with this disease. I have so much fatigue, when I'm up I am going and then I am down and in bed at 2 in the afternoon. What do I do now besides juicing, coffee enemas, organic foods, herbs, exercise...?? I tried to find that other group for younger women but it is on the east coast and I would have to attend their meetings, not possible. I am still surprised it is so hard to find people like me in this situation. It's not just an age difference at all it's more a lifestyle and health difference. Us crazy health hippies in Cali may seem weird to you lot but it's perfectly normal to me! Anyway, I still hope we can learn from each other. If not I will go away. Lots of Love, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 a, Please don't leave. We all do what we feel is the right thing for us. I have used visualization and relaxation tapes while going through treatment and still listen to one every night when we go to bed. I've been doing it for over 16 yrs. Have you ased the dr about antidepressants? Or if you don't want them is there something organic possibly that would help? Maybe you are expecting your body to do too much. My onc told me to listen to my body and when I was tired to rest. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com from K Hello all, I've really enjoyed reading postings. It's encouraging to read the lines of love from strangers. I wish I had been here when I was newly diagnosed. The reason why I am here now is to get some answers or read some similar experiences that will help me deal with my life after chemo. I am okay most of the time but still break down for absolutely no reason, none that is apparent anyway. I can't help but feel under represented in this pool of people. That's why I brought up the men and breast cancer/why only pink issue. I feel like I am on the fringe too. It is frustrating to get very little feedback when I bring up what health is. If anything, cancer is a wake up call to realize we could be living a purer life, that's not to say we gave it to ourselves, but to maintain a level of responsibility from now on should be our number one job. I am disappointed that this is not reflected back from many people in the group. Does no one believe cancer recurs because the same chemical pool still exists within our bodies possibly because we didn't change anything? I want to help everybody but not many seem to care to listen. This is upsetting to me because I care so much and don't know any of you. Another point is that I don't read about any after-cancer maintenance for the psyche, and spiritual self. I was hoping to come across some tips because I have such emotional days, crying on the freeway and in school or the store. Maybe it's partially because my only caregiver and I broke up after 3 1/2 years recently. No one in my family lives nearby except my dad and he did his best but wasn't particularly nurturing. I dealt with the emotional stuff alone and took what I could out on my boyfriend. Poor guy, he is only 28 but did a stellar job and took it in stride. I wanted to join a group then and tried but it was similar in that everyone was a lot older and didn't have fertility issues and many were out a couple of years or more and I was just starting chemo. Now I'm in this group and it's the opposite! Most people are newly diagnosed. I like to help where I can but I would like some help too. Maybe at least some feedback from people. I have already gone through all the surgeries, chemo, reconstruction etc. but I am far from done with this disease. I have so much fatigue, when I'm up I am going and then I am down and in bed at 2 in the afternoon. What do I do now besides juicing, coffee enemas, organic foods, herbs, exercise...?? I tried to find that other group for younger women but it is on the east coast and I would have to attend their meetings, not possible. I am still surprised it is so hard to find people like me in this situation. It's not just an age difference at all it's more a lifestyle and health difference. Us crazy health hippies in Cali may seem weird to you lot but it's perfectly normal to me! Anyway, I still hope we can learn from each other. If not I will go away. Lots of Love, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 a, Please don't leave. We all do what we feel is the right thing for us. I have used visualization and relaxation tapes while going through treatment and still listen to one every night when we go to bed. I've been doing it for over 16 yrs. Have you ased the dr about antidepressants? Or if you don't want them is there something organic possibly that would help? Maybe you are expecting your body to do too much. My onc told me to listen to my body and when I was tired to rest. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com from K Hello all, I've really enjoyed reading postings. It's encouraging to read the lines of love from strangers. I wish I had been here when I was newly diagnosed. The reason why I am here now is to get some answers or read some similar experiences that will help me deal with my life after chemo. I am okay most of the time but still break down for absolutely no reason, none that is apparent anyway. I can't help but feel under represented in this pool of people. That's why I brought up the men and breast cancer/why only pink issue. I feel like I am on the fringe too. It is frustrating to get very little feedback when I bring up what health is. If anything, cancer is a wake up call to realize we could be living a purer life, that's not to say we gave it to ourselves, but to maintain a level of responsibility from now on should be our number one job. I am disappointed that this is not reflected back from many people in the group. Does no one believe cancer recurs because the same chemical pool still exists within our bodies possibly because we didn't change anything? I want to help everybody but not many seem to care to listen. This is upsetting to me because I care so much and don't know any of you. Another point is that I don't read about any after-cancer maintenance for the psyche, and spiritual self. I was hoping to come across some tips because I have such emotional days, crying on the freeway and in school or the store. Maybe it's partially because my only caregiver and I broke up after 3 1/2 years recently. No one in my family lives nearby except my dad and he did his best but wasn't particularly nurturing. I dealt with the emotional stuff alone and took what I could out on my boyfriend. Poor guy, he is only 28 but did a stellar job and took it in stride. I wanted to join a group then and tried but it was similar in that everyone was a lot older and didn't have fertility issues and many were out a couple of years or more and I was just starting chemo. Now I'm in this group and it's the opposite! Most people are newly diagnosed. I like to help where I can but I would like some help too. Maybe at least some feedback from people. I have already gone through all the surgeries, chemo, reconstruction etc. but I am far from done with this disease. I have so much fatigue, when I'm up I am going and then I am down and in bed at 2 in the afternoon. What do I do now besides juicing, coffee enemas, organic foods, herbs, exercise...?? I tried to find that other group for younger women but it is on the east coast and I would have to attend their meetings, not possible. I am still surprised it is so hard to find people like me in this situation. It's not just an age difference at all it's more a lifestyle and health difference. Us crazy health hippies in Cali may seem weird to you lot but it's perfectly normal to me! Anyway, I still hope we can learn from each other. If not I will go away. Lots of Love, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 a, I would be sorry if you decided to this group. Both sad for you and sorry for us, as a group, because every piece of information relating to " our " diagnosis is so important. What you have to offer is something many of us cannot get from friends, family, physicians, etc. Our shared experiences combine to give us the strength and support it takes to get through all of this. I, for one, enjoy the fact that not everyone else in this group is either my age, my same diagnosis or even better, that even some with similar diagnosis are on different treatments. To me, the diversity and first hand experience of a group of B/C survivors is not found many places - and it took me well into my treatment to find this group. Not everyone responds to all posts (except nne, bless her heart) but many of us have found friendships and developed trusting relationships here that we could not have found elsewhere. I'd hate for you to miss out on that. I don't have to agree with the advise that I ask for, but am so grateful to get it - down to earth answers to some very hard questions. I have never visualized you as anyone other than " a member of this sisterhood " and I would be disappointed if you should choose to not offer your opinions and continue to ask for help. Hugs, Ellen > > Hello all, > I've really enjoyed reading postings. It's encouraging to read the lines of love from strangers. I wish I had been here when I was newly diagnosed. > > The reason why I am here now is to get some answers or read some similar experiences that will help me deal with my life after chemo. I am okay most of the time but still break down for absolutely no reason, none that is apparent anyway. > > I can't help but feel under represented in this pool of people. That's why I brought up the men and breast cancer/why only pink issue. I feel like I am on the fringe too. It is frustrating to get very little feedback when I bring up what health is. If anything, cancer is a wake up call to realize we could be living a purer life, that's not to say we gave it to ourselves, but to maintain a level of responsibility from now on should be our number one job. I am disappointed that this is not reflected back from many people in the group. Does no one believe cancer recurs because the same chemical pool still exists within our bodies possibly because we didn't change anything? I want to help everybody but not many seem to care to listen. This is upsetting to me because I care so much and don't know any of you. > > Another point is that I don't read about any after-cancer maintenance for the psyche, and spiritual self. I was hoping to come across some tips because I have such emotional days, crying on the freeway and in school or the store. Maybe it's partially because my only caregiver and I broke up after 3 1/2 years recently. No one in my family lives nearby except my dad and he did his best but wasn't particularly nurturing. I dealt with the emotional stuff alone and took what I could out on my boyfriend. Poor guy, he is only 28 but did a stellar job and took it in stride. I wanted to join a group then and tried but it was similar in that everyone was a lot older and didn't have fertility issues and many were out a couple of years or more and I was just starting chemo. Now I'm in this group and it's the opposite! Most people are newly diagnosed. I like to help where I can but I would like some help too. Maybe at least some feedback from people. I have already gone > through all the surgeries, chemo, reconstruction etc. but I am far from done with this disease. I have so much fatigue, when I'm up I am going and then I am down and in bed at 2 in the afternoon. What do I do now besides juicing, coffee enemas, organic foods, herbs, exercise...?? > > I tried to find that other group for younger women but it is on the east coast and I would have to attend their meetings, not possible. I am still surprised it is so hard to find people like me in this situation. It's not just an age difference at all it's more a lifestyle and health difference. Us crazy health hippies in Cali may seem weird to you lot but it's perfectly normal to me! Anyway, I still hope we can learn from each other. If not I will go away. > > Lots of Love, > a > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 a, I would be sorry if you decided to this group. Both sad for you and sorry for us, as a group, because every piece of information relating to " our " diagnosis is so important. What you have to offer is something many of us cannot get from friends, family, physicians, etc. Our shared experiences combine to give us the strength and support it takes to get through all of this. I, for one, enjoy the fact that not everyone else in this group is either my age, my same diagnosis or even better, that even some with similar diagnosis are on different treatments. To me, the diversity and first hand experience of a group of B/C survivors is not found many places - and it took me well into my treatment to find this group. Not everyone responds to all posts (except nne, bless her heart) but many of us have found friendships and developed trusting relationships here that we could not have found elsewhere. I'd hate for you to miss out on that. I don't have to agree with the advise that I ask for, but am so grateful to get it - down to earth answers to some very hard questions. I have never visualized you as anyone other than " a member of this sisterhood " and I would be disappointed if you should choose to not offer your opinions and continue to ask for help. Hugs, Ellen > > Hello all, > I've really enjoyed reading postings. It's encouraging to read the lines of love from strangers. I wish I had been here when I was newly diagnosed. > > The reason why I am here now is to get some answers or read some similar experiences that will help me deal with my life after chemo. I am okay most of the time but still break down for absolutely no reason, none that is apparent anyway. > > I can't help but feel under represented in this pool of people. That's why I brought up the men and breast cancer/why only pink issue. I feel like I am on the fringe too. It is frustrating to get very little feedback when I bring up what health is. If anything, cancer is a wake up call to realize we could be living a purer life, that's not to say we gave it to ourselves, but to maintain a level of responsibility from now on should be our number one job. I am disappointed that this is not reflected back from many people in the group. Does no one believe cancer recurs because the same chemical pool still exists within our bodies possibly because we didn't change anything? I want to help everybody but not many seem to care to listen. This is upsetting to me because I care so much and don't know any of you. > > Another point is that I don't read about any after-cancer maintenance for the psyche, and spiritual self. I was hoping to come across some tips because I have such emotional days, crying on the freeway and in school or the store. Maybe it's partially because my only caregiver and I broke up after 3 1/2 years recently. No one in my family lives nearby except my dad and he did his best but wasn't particularly nurturing. I dealt with the emotional stuff alone and took what I could out on my boyfriend. Poor guy, he is only 28 but did a stellar job and took it in stride. I wanted to join a group then and tried but it was similar in that everyone was a lot older and didn't have fertility issues and many were out a couple of years or more and I was just starting chemo. Now I'm in this group and it's the opposite! Most people are newly diagnosed. I like to help where I can but I would like some help too. Maybe at least some feedback from people. I have already gone > through all the surgeries, chemo, reconstruction etc. but I am far from done with this disease. I have so much fatigue, when I'm up I am going and then I am down and in bed at 2 in the afternoon. What do I do now besides juicing, coffee enemas, organic foods, herbs, exercise...?? > > I tried to find that other group for younger women but it is on the east coast and I would have to attend their meetings, not possible. I am still surprised it is so hard to find people like me in this situation. It's not just an age difference at all it's more a lifestyle and health difference. Us crazy health hippies in Cali may seem weird to you lot but it's perfectly normal to me! Anyway, I still hope we can learn from each other. If not I will go away. > > Lots of Love, > a > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 a, I would be sorry if you decided to this group. Both sad for you and sorry for us, as a group, because every piece of information relating to " our " diagnosis is so important. What you have to offer is something many of us cannot get from friends, family, physicians, etc. Our shared experiences combine to give us the strength and support it takes to get through all of this. I, for one, enjoy the fact that not everyone else in this group is either my age, my same diagnosis or even better, that even some with similar diagnosis are on different treatments. To me, the diversity and first hand experience of a group of B/C survivors is not found many places - and it took me well into my treatment to find this group. Not everyone responds to all posts (except nne, bless her heart) but many of us have found friendships and developed trusting relationships here that we could not have found elsewhere. I'd hate for you to miss out on that. I don't have to agree with the advise that I ask for, but am so grateful to get it - down to earth answers to some very hard questions. I have never visualized you as anyone other than " a member of this sisterhood " and I would be disappointed if you should choose to not offer your opinions and continue to ask for help. Hugs, Ellen > > Hello all, > I've really enjoyed reading postings. It's encouraging to read the lines of love from strangers. I wish I had been here when I was newly diagnosed. > > The reason why I am here now is to get some answers or read some similar experiences that will help me deal with my life after chemo. I am okay most of the time but still break down for absolutely no reason, none that is apparent anyway. > > I can't help but feel under represented in this pool of people. That's why I brought up the men and breast cancer/why only pink issue. I feel like I am on the fringe too. It is frustrating to get very little feedback when I bring up what health is. If anything, cancer is a wake up call to realize we could be living a purer life, that's not to say we gave it to ourselves, but to maintain a level of responsibility from now on should be our number one job. I am disappointed that this is not reflected back from many people in the group. Does no one believe cancer recurs because the same chemical pool still exists within our bodies possibly because we didn't change anything? I want to help everybody but not many seem to care to listen. This is upsetting to me because I care so much and don't know any of you. > > Another point is that I don't read about any after-cancer maintenance for the psyche, and spiritual self. I was hoping to come across some tips because I have such emotional days, crying on the freeway and in school or the store. Maybe it's partially because my only caregiver and I broke up after 3 1/2 years recently. No one in my family lives nearby except my dad and he did his best but wasn't particularly nurturing. I dealt with the emotional stuff alone and took what I could out on my boyfriend. Poor guy, he is only 28 but did a stellar job and took it in stride. I wanted to join a group then and tried but it was similar in that everyone was a lot older and didn't have fertility issues and many were out a couple of years or more and I was just starting chemo. Now I'm in this group and it's the opposite! Most people are newly diagnosed. I like to help where I can but I would like some help too. Maybe at least some feedback from people. I have already gone > through all the surgeries, chemo, reconstruction etc. but I am far from done with this disease. I have so much fatigue, when I'm up I am going and then I am down and in bed at 2 in the afternoon. What do I do now besides juicing, coffee enemas, organic foods, herbs, exercise...?? > > I tried to find that other group for younger women but it is on the east coast and I would have to attend their meetings, not possible. I am still surprised it is so hard to find people like me in this situation. It's not just an age difference at all it's more a lifestyle and health difference. Us crazy health hippies in Cali may seem weird to you lot but it's perfectly normal to me! Anyway, I still hope we can learn from each other. If not I will go away. > > Lots of Love, > a > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 > > > > Hello all, > > I've really enjoyed reading postings. It's encouraging to read > the lines of love from strangers. I wish I had been here when I was > newly diagnosed. > > > > The reason why I am here now is to get some answers or read some > similar experiences that will help me deal with my life after > chemo. I am okay most of the time but still break down for > absolutely no reason, none that is apparent anyway. > > > > I can't help but feel under represented in this pool of people. > That's why I brought up the men and breast cancer/why only pink > issue. I feel like I am on the fringe too. It is frustrating to > get very little feedback when I bring up what health is. If > anything, cancer is a wake up call to realize we could be living a > purer life, that's not to say we gave it to ourselves, but to > maintain a level of responsibility from now on should be our number > one job. I am disappointed that this is not reflected back from many > people in the group. Does no one believe cancer recurs because the > same chemical pool still exists within our bodies possibly because > we didn't change anything? I want to help everybody but not many > seem to care to listen. This is upsetting to me because I care so > much and don't know any of you. > > > > Another point is that I don't read about any after-cancer > maintenance for the psyche, and spiritual self. I was hoping to > come across some tips because I have such emotional days, crying on > the freeway and in school or the store. Maybe it's partially > because my only caregiver and I broke up after 3 1/2 years > recently. No one in my family lives nearby except my dad and he did > his best but wasn't particularly nurturing. I dealt with the > emotional stuff alone and took what I could out on my boyfriend. > Poor guy, he is only 28 but did a stellar job and took it in > stride. I wanted to join a group then and tried but it was similar > in that everyone was a lot older and didn't have fertility issues > and many were out a couple of years or more and I was just starting > chemo. Now I'm in this group and it's the opposite! Most people > are newly diagnosed. I like to help where I can but I would like > some help too. Maybe at least some feedback from people. I have > already gone > > through all the surgeries, chemo, reconstruction etc. but I am > far from done with this disease. I have so much fatigue, when I'm > up I am going and then I am down and in bed at 2 in the afternoon. > What do I do now besides juicing, coffee enemas, organic foods, > herbs, exercise...?? > > > > I tried to find that other group for younger women but it is on > the east coast and I would have to attend their meetings, not > possible. I am still surprised it is so hard to find people like me > in this situation. It's not just an age difference at all it's more > a lifestyle and health difference. Us crazy health hippies in Cali > may seem weird to you lot but it's perfectly normal to me! Anyway, > I still hope we can learn from each other. If not I will go away. > > > > Lots of Love, > > a > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 > > > > Hello all, > > I've really enjoyed reading postings. It's encouraging to read > the lines of love from strangers. I wish I had been here when I was > newly diagnosed. > > > > The reason why I am here now is to get some answers or read some > similar experiences that will help me deal with my life after > chemo. I am okay most of the time but still break down for > absolutely no reason, none that is apparent anyway. > > > > I can't help but feel under represented in this pool of people. > That's why I brought up the men and breast cancer/why only pink > issue. I feel like I am on the fringe too. It is frustrating to > get very little feedback when I bring up what health is. If > anything, cancer is a wake up call to realize we could be living a > purer life, that's not to say we gave it to ourselves, but to > maintain a level of responsibility from now on should be our number > one job. I am disappointed that this is not reflected back from many > people in the group. Does no one believe cancer recurs because the > same chemical pool still exists within our bodies possibly because > we didn't change anything? I want to help everybody but not many > seem to care to listen. This is upsetting to me because I care so > much and don't know any of you. > > > > Another point is that I don't read about any after-cancer > maintenance for the psyche, and spiritual self. I was hoping to > come across some tips because I have such emotional days, crying on > the freeway and in school or the store. Maybe it's partially > because my only caregiver and I broke up after 3 1/2 years > recently. No one in my family lives nearby except my dad and he did > his best but wasn't particularly nurturing. I dealt with the > emotional stuff alone and took what I could out on my boyfriend. > Poor guy, he is only 28 but did a stellar job and took it in > stride. I wanted to join a group then and tried but it was similar > in that everyone was a lot older and didn't have fertility issues > and many were out a couple of years or more and I was just starting > chemo. Now I'm in this group and it's the opposite! Most people > are newly diagnosed. I like to help where I can but I would like > some help too. Maybe at least some feedback from people. I have > already gone > > through all the surgeries, chemo, reconstruction etc. but I am > far from done with this disease. I have so much fatigue, when I'm > up I am going and then I am down and in bed at 2 in the afternoon. > What do I do now besides juicing, coffee enemas, organic foods, > herbs, exercise...?? > > > > I tried to find that other group for younger women but it is on > the east coast and I would have to attend their meetings, not > possible. I am still surprised it is so hard to find people like me > in this situation. It's not just an age difference at all it's more > a lifestyle and health difference. Us crazy health hippies in Cali > may seem weird to you lot but it's perfectly normal to me! Anyway, > I still hope we can learn from each other. If not I will go away. > > > > Lots of Love, > > a > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 Hi a....I live in southern california and im 45 and im an emotional freeway crier as of late...i have changed drastically what i eat and my lifestyle...i shop now at the co-op store an organic place..i need to do whatever i can to elimate all the factors of reoccurance!!!! Im still learning this organic way they have been very helpful to me at this store...I dont drink anymore as to that adds to the possibilty of a come back..immune boosters galore and most of all making sure i get enough sleep which i surely wasnt b4...i took my life a bit for granted i think that is the one thing i have learned to change wake up call for me..didnt sleep...very stressed out ( much of i could have controlled i think )im always so very hard on myself i need to give myself a break im trying....slow process but ill get there..may have setbacks but im not going to beat myself up anymore....i now exercise in some form daily i am a bit tired and emotional right now but i still get my butt on the bike or walk a few miles on the treadmill everyday helps clear the mind....i see things so different and its hard to get used to this new way of thinking but i have too give it my best shot as in regards to things that i can control the rest is up to God...take care and lots of love back....kassy > > a, > Please don't leave. We all do what we feel is the right thing for us. I have used visualization and relaxation tapes while going through treatment and still listen to one every night when we go to bed. I've been doing it for over 16 yrs. > > Have you ased the dr about antidepressants? Or if you don't want them is there something organic possibly that would help? > > Maybe you are expecting your body to do too much. My onc told me to listen to my body and when I was tired to rest. I will keep you in my prayers. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > BreastCancerStories.com > http://www.breastcancerstories.com/content/view/433/161/ > Angel Feather Loomer > www.angelfeatherloomer.blogspot.com > Check out my other ornaments at > www.geocities.com/chucky5741/bcornament.html > Lots of info and gifts at: > www.cancerclub.com > from K > > > Hello all, > I've really enjoyed reading postings. It's encouraging to read the lines of love from strangers. I wish I had been here when I was newly diagnosed. > > The reason why I am here now is to get some answers or read some similar experiences that will help me deal with my life after chemo. I am okay most of the time but still break down for absolutely no reason, none that is apparent anyway. > > I can't help but feel under represented in this pool of people. That's why I brought up the men and breast cancer/why only pink issue. I feel like I am on the fringe too. It is frustrating to get very little feedback when I bring up what health is. If anything, cancer is a wake up call to realize we could be living a purer life, that's not to say we gave it to ourselves, but to maintain a level of responsibility from now on should be our number one job. I am disappointed that this is not reflected back from many people in the group. Does no one believe cancer recurs because the same chemical pool still exists within our bodies possibly because we didn't change anything? I want to help everybody but not many seem to care to listen. This is upsetting to me because I care so much and don't know any of you. > > Another point is that I don't read about any after-cancer maintenance for the psyche, and spiritual self. I was hoping to come across some tips because I have such emotional days, crying on the freeway and in school or the store. Maybe it's partially because my only caregiver and I broke up after 3 1/2 years recently. No one in my family lives nearby except my dad and he did his best but wasn't particularly nurturing. I dealt with the emotional stuff alone and took what I could out on my boyfriend. Poor guy, he is only 28 but did a stellar job and took it in stride. I wanted to join a group then and tried but it was similar in that everyone was a lot older and didn't have fertility issues and many were out a couple of years or more and I was just starting chemo. Now I'm in this group and it's the opposite! Most people are newly diagnosed. I like to help where I can but I would like some help too. Maybe at least some feedback from people. I have already gone > through all the surgeries, chemo, reconstruction etc. but I am far from done with this disease. I have so much fatigue, when I'm up I am going and then I am down and in bed at 2 in the afternoon. What do I do now besides juicing, coffee enemas, organic foods, herbs, exercise...?? > > I tried to find that other group for younger women but it is on the east coast and I would have to attend their meetings, not possible. I am still surprised it is so hard to find people like me in this situation. It's not just an age difference at all it's more a lifestyle and health difference. Us crazy health hippies in Cali may seem weird to you lot but it's perfectly normal to me! Anyway, I still hope we can learn from each other. If not I will go away. > > Lots of Love, > a > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 Hi a....I live in southern california and im 45 and im an emotional freeway crier as of late...i have changed drastically what i eat and my lifestyle...i shop now at the co-op store an organic place..i need to do whatever i can to elimate all the factors of reoccurance!!!! Im still learning this organic way they have been very helpful to me at this store...I dont drink anymore as to that adds to the possibilty of a come back..immune boosters galore and most of all making sure i get enough sleep which i surely wasnt b4...i took my life a bit for granted i think that is the one thing i have learned to change wake up call for me..didnt sleep...very stressed out ( much of i could have controlled i think )im always so very hard on myself i need to give myself a break im trying....slow process but ill get there..may have setbacks but im not going to beat myself up anymore....i now exercise in some form daily i am a bit tired and emotional right now but i still get my butt on the bike or walk a few miles on the treadmill everyday helps clear the mind....i see things so different and its hard to get used to this new way of thinking but i have too give it my best shot as in regards to things that i can control the rest is up to God...take care and lots of love back....kassy > > a, > Please don't leave. We all do what we feel is the right thing for us. I have used visualization and relaxation tapes while going through treatment and still listen to one every night when we go to bed. I've been doing it for over 16 yrs. > > Have you ased the dr about antidepressants? Or if you don't want them is there something organic possibly that would help? > > Maybe you are expecting your body to do too much. My onc told me to listen to my body and when I was tired to rest. I will keep you in my prayers. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > BreastCancerStories.com > http://www.breastcancerstories.com/content/view/433/161/ > Angel Feather Loomer > www.angelfeatherloomer.blogspot.com > Check out my other ornaments at > www.geocities.com/chucky5741/bcornament.html > Lots of info and gifts at: > www.cancerclub.com > from K > > > Hello all, > I've really enjoyed reading postings. It's encouraging to read the lines of love from strangers. I wish I had been here when I was newly diagnosed. > > The reason why I am here now is to get some answers or read some similar experiences that will help me deal with my life after chemo. I am okay most of the time but still break down for absolutely no reason, none that is apparent anyway. > > I can't help but feel under represented in this pool of people. That's why I brought up the men and breast cancer/why only pink issue. I feel like I am on the fringe too. It is frustrating to get very little feedback when I bring up what health is. If anything, cancer is a wake up call to realize we could be living a purer life, that's not to say we gave it to ourselves, but to maintain a level of responsibility from now on should be our number one job. I am disappointed that this is not reflected back from many people in the group. Does no one believe cancer recurs because the same chemical pool still exists within our bodies possibly because we didn't change anything? I want to help everybody but not many seem to care to listen. This is upsetting to me because I care so much and don't know any of you. > > Another point is that I don't read about any after-cancer maintenance for the psyche, and spiritual self. I was hoping to come across some tips because I have such emotional days, crying on the freeway and in school or the store. Maybe it's partially because my only caregiver and I broke up after 3 1/2 years recently. No one in my family lives nearby except my dad and he did his best but wasn't particularly nurturing. I dealt with the emotional stuff alone and took what I could out on my boyfriend. Poor guy, he is only 28 but did a stellar job and took it in stride. I wanted to join a group then and tried but it was similar in that everyone was a lot older and didn't have fertility issues and many were out a couple of years or more and I was just starting chemo. Now I'm in this group and it's the opposite! Most people are newly diagnosed. I like to help where I can but I would like some help too. Maybe at least some feedback from people. I have already gone > through all the surgeries, chemo, reconstruction etc. but I am far from done with this disease. I have so much fatigue, when I'm up I am going and then I am down and in bed at 2 in the afternoon. What do I do now besides juicing, coffee enemas, organic foods, herbs, exercise...?? > > I tried to find that other group for younger women but it is on the east coast and I would have to attend their meetings, not possible. I am still surprised it is so hard to find people like me in this situation. It's not just an age difference at all it's more a lifestyle and health difference. Us crazy health hippies in Cali may seem weird to you lot but it's perfectly normal to me! Anyway, I still hope we can learn from each other. If not I will go away. > > Lots of Love, > a > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 Hi a....I live in southern california and im 45 and im an emotional freeway crier as of late...i have changed drastically what i eat and my lifestyle...i shop now at the co-op store an organic place..i need to do whatever i can to elimate all the factors of reoccurance!!!! Im still learning this organic way they have been very helpful to me at this store...I dont drink anymore as to that adds to the possibilty of a come back..immune boosters galore and most of all making sure i get enough sleep which i surely wasnt b4...i took my life a bit for granted i think that is the one thing i have learned to change wake up call for me..didnt sleep...very stressed out ( much of i could have controlled i think )im always so very hard on myself i need to give myself a break im trying....slow process but ill get there..may have setbacks but im not going to beat myself up anymore....i now exercise in some form daily i am a bit tired and emotional right now but i still get my butt on the bike or walk a few miles on the treadmill everyday helps clear the mind....i see things so different and its hard to get used to this new way of thinking but i have too give it my best shot as in regards to things that i can control the rest is up to God...take care and lots of love back....kassy > > a, > Please don't leave. We all do what we feel is the right thing for us. I have used visualization and relaxation tapes while going through treatment and still listen to one every night when we go to bed. I've been doing it for over 16 yrs. > > Have you ased the dr about antidepressants? Or if you don't want them is there something organic possibly that would help? > > Maybe you are expecting your body to do too much. My onc told me to listen to my body and when I was tired to rest. I will keep you in my prayers. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > BreastCancerStories.com > http://www.breastcancerstories.com/content/view/433/161/ > Angel Feather Loomer > www.angelfeatherloomer.blogspot.com > Check out my other ornaments at > www.geocities.com/chucky5741/bcornament.html > Lots of info and gifts at: > www.cancerclub.com > from K > > > Hello all, > I've really enjoyed reading postings. It's encouraging to read the lines of love from strangers. I wish I had been here when I was newly diagnosed. > > The reason why I am here now is to get some answers or read some similar experiences that will help me deal with my life after chemo. I am okay most of the time but still break down for absolutely no reason, none that is apparent anyway. > > I can't help but feel under represented in this pool of people. That's why I brought up the men and breast cancer/why only pink issue. I feel like I am on the fringe too. It is frustrating to get very little feedback when I bring up what health is. If anything, cancer is a wake up call to realize we could be living a purer life, that's not to say we gave it to ourselves, but to maintain a level of responsibility from now on should be our number one job. I am disappointed that this is not reflected back from many people in the group. Does no one believe cancer recurs because the same chemical pool still exists within our bodies possibly because we didn't change anything? I want to help everybody but not many seem to care to listen. This is upsetting to me because I care so much and don't know any of you. > > Another point is that I don't read about any after-cancer maintenance for the psyche, and spiritual self. I was hoping to come across some tips because I have such emotional days, crying on the freeway and in school or the store. Maybe it's partially because my only caregiver and I broke up after 3 1/2 years recently. No one in my family lives nearby except my dad and he did his best but wasn't particularly nurturing. I dealt with the emotional stuff alone and took what I could out on my boyfriend. Poor guy, he is only 28 but did a stellar job and took it in stride. I wanted to join a group then and tried but it was similar in that everyone was a lot older and didn't have fertility issues and many were out a couple of years or more and I was just starting chemo. Now I'm in this group and it's the opposite! Most people are newly diagnosed. I like to help where I can but I would like some help too. Maybe at least some feedback from people. I have already gone > through all the surgeries, chemo, reconstruction etc. but I am far from done with this disease. I have so much fatigue, when I'm up I am going and then I am down and in bed at 2 in the afternoon. What do I do now besides juicing, coffee enemas, organic foods, herbs, exercise...?? > > I tried to find that other group for younger women but it is on the east coast and I would have to attend their meetings, not possible. I am still surprised it is so hard to find people like me in this situation. It's not just an age difference at all it's more a lifestyle and health difference. Us crazy health hippies in Cali may seem weird to you lot but it's perfectly normal to me! Anyway, I still hope we can learn from each other. If not I will go away. > > Lots of Love, > a > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 One thing I found to help relax me was yoga. I took my first class last week. It was cheap and convenient - part of the Adult Ed. at my local high school. The instructor is 59 years old, in great shape, and was teaching a month after a hip replacement! This was yoga for beginners. It was very low key and mellow, but I felt like I got alot of it physically and spiritually. The one problem was we were told to keep our eyes closed as much as possible to concentrate on the movements and breathing. At the end of the class when I opened my eyes my contacts were completely dried out! So next time I'll bring my eyedrops or wear glasses. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 One thing I found to help relax me was yoga. I took my first class last week. It was cheap and convenient - part of the Adult Ed. at my local high school. The instructor is 59 years old, in great shape, and was teaching a month after a hip replacement! This was yoga for beginners. It was very low key and mellow, but I felt like I got alot of it physically and spiritually. The one problem was we were told to keep our eyes closed as much as possible to concentrate on the movements and breathing. At the end of the class when I opened my eyes my contacts were completely dried out! So next time I'll bring my eyedrops or wear glasses. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2006 Report Share Posted October 20, 2006 One thing I found to help relax me was yoga. I took my first class last week. It was cheap and convenient - part of the Adult Ed. at my local high school. The instructor is 59 years old, in great shape, and was teaching a month after a hip replacement! This was yoga for beginners. It was very low key and mellow, but I felt like I got alot of it physically and spiritually. The one problem was we were told to keep our eyes closed as much as possible to concentrate on the movements and breathing. At the end of the class when I opened my eyes my contacts were completely dried out! So next time I'll bring my eyedrops or wear glasses. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 , Thank you SO much for your response. I also found a relazing yoga was very beneficial when I felt like it. Problem was I seldom felt like it. When I had had energy, I always chose to clean. Women! Thanks again... yoga is so great and I found baths were so nice as well. K wrote: One thing I found to help relax me was yoga. I took my first class last week. It was cheap and convenient - part of the Adult Ed. at my local high school. The instructor is 59 years old, in great shape, and was teaching a month after a hip replacement! This was yoga for beginners. It was very low key and mellow, but I felt like I got alot of it physically and spiritually. The one problem was we were told to keep our eyes closed as much as possible to concentrate on the movements and breathing. At the end of the class when I opened my eyes my contacts were completely dried out! So next time I'll bring my eyedrops or wear glasses. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 , Thank you SO much for your response. I also found a relazing yoga was very beneficial when I felt like it. Problem was I seldom felt like it. When I had had energy, I always chose to clean. Women! Thanks again... yoga is so great and I found baths were so nice as well. K wrote: One thing I found to help relax me was yoga. I took my first class last week. It was cheap and convenient - part of the Adult Ed. at my local high school. The instructor is 59 years old, in great shape, and was teaching a month after a hip replacement! This was yoga for beginners. It was very low key and mellow, but I felt like I got alot of it physically and spiritually. The one problem was we were told to keep our eyes closed as much as possible to concentrate on the movements and breathing. At the end of the class when I opened my eyes my contacts were completely dried out! So next time I'll bring my eyedrops or wear glasses. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 , Thank you SO much for your response. I also found a relazing yoga was very beneficial when I felt like it. Problem was I seldom felt like it. When I had had energy, I always chose to clean. Women! Thanks again... yoga is so great and I found baths were so nice as well. K wrote: One thing I found to help relax me was yoga. I took my first class last week. It was cheap and convenient - part of the Adult Ed. at my local high school. The instructor is 59 years old, in great shape, and was teaching a month after a hip replacement! This was yoga for beginners. It was very low key and mellow, but I felt like I got alot of it physically and spiritually. The one problem was we were told to keep our eyes closed as much as possible to concentrate on the movements and breathing. At the end of the class when I opened my eyes my contacts were completely dried out! So next time I'll bring my eyedrops or wear glasses. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Oh Kassy, thank you. I can't explain without complaining how hard it is to find someone who can relate to me. I live in Socal too but I may as well live on Jupiter because most people are so out of range by my standards, even for California. I work at an organic farm now because of all this. I can't stress how important it is for us to be hyper aware now of each and every thing we put into our bodies. I like to drink, I love wine, saki, vodka, but now it is like weight watchers it's like measuring everything, but what's the alternative? Death? Pain? I feel pretty-very good most every day. I am better than I was before except for the fatigue. If there's any point I'd like to stress to all the people out there it is this, How you feel is about what you eat, and exercise is the other part of that equation. There is no shortcut and the sooner you accept this the better. The better you eat, the better you feel. Thanks for listening, K kplattus wrote: Hi a....I live in southern california and im 45 and im an emotional freeway crier as of late...i have changed drastically what i eat and my lifestyle...i shop now at the co-op store an organic place..i need to do whatever i can to elimate all the factors of reoccurance!!!! Im still learning this organic way they have been very helpful to me at this store...I dont drink anymore as to that adds to the possibilty of a come back..immune boosters galore and most of all making sure i get enough sleep which i surely wasnt b4...i took my life a bit for granted i think that is the one thing i have learned to change wake up call for me..didnt sleep...very stressed out ( much of i could have controlled i think )im always so very hard on myself i need to give myself a break im trying....slow process but ill get there..may have setbacks but im not going to beat myself up anymore....i now exercise in some form daily i am a bit tired and emotional right now but i still get my butt on the bike or walk a few miles on the treadmill everyday helps clear the mind....i see things so different and its hard to get used to this new way of thinking but i have too give it my best shot as in regards to things that i can control the rest is up to God...take care and lots of love back....kassy > > a, > Please don't leave. We all do what we feel is the right thing for us. I have used visualization and relaxation tapes while going through treatment and still listen to one every night when we go to bed. I've been doing it for over 16 yrs. > > Have you ased the dr about antidepressants? Or if you don't want them is there something organic possibly that would help? > > Maybe you are expecting your body to do too much. My onc told me to listen to my body and when I was tired to rest. I will keep you in my prayers. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > BreastCancerStories.com > http://www.breastcancerstories.com/content/view/433/161/ > Angel Feather Loomer > www.angelfeatherloomer.blogspot.com > Check out my other ornaments at > www.geocities.com/chucky5741/bcornament.html > Lots of info and gifts at: > www.cancerclub.com > from K > > > Hello all, > I've really enjoyed reading postings. It's encouraging to read the lines of love from strangers. I wish I had been here when I was newly diagnosed. > > The reason why I am here now is to get some answers or read some similar experiences that will help me deal with my life after chemo. I am okay most of the time but still break down for absolutely no reason, none that is apparent anyway. > > I can't help but feel under represented in this pool of people. That's why I brought up the men and breast cancer/why only pink issue. I feel like I am on the fringe too. It is frustrating to get very little feedback when I bring up what health is. If anything, cancer is a wake up call to realize we could be living a purer life, that's not to say we gave it to ourselves, but to maintain a level of responsibility from now on should be our number one job. I am disappointed that this is not reflected back from many people in the group. Does no one believe cancer recurs because the same chemical pool still exists within our bodies possibly because we didn't change anything? I want to help everybody but not many seem to care to listen. This is upsetting to me because I care so much and don't know any of you. > > Another point is that I don't read about any after-cancer maintenance for the psyche, and spiritual self. I was hoping to come across some tips because I have such emotional days, crying on the freeway and in school or the store. Maybe it's partially because my only caregiver and I broke up after 3 1/2 years recently. No one in my family lives nearby except my dad and he did his best but wasn't particularly nurturing. I dealt with the emotional stuff alone and took what I could out on my boyfriend. Poor guy, he is only 28 but did a stellar job and took it in stride. I wanted to join a group then and tried but it was similar in that everyone was a lot older and didn't have fertility issues and many were out a couple of years or more and I was just starting chemo. Now I'm in this group and it's the opposite! Most people are newly diagnosed. I like to help where I can but I would like some help too. Maybe at least some feedback from people. I have already gone > through all the surgeries, chemo, reconstruction etc. but I am far from done with this disease. I have so much fatigue, when I'm up I am going and then I am down and in bed at 2 in the afternoon. What do I do now besides juicing, coffee enemas, organic foods, herbs, exercise...?? > > I tried to find that other group for younger women but it is on the east coast and I would have to attend their meetings, not possible. I am still surprised it is so hard to find people like me in this situation. It's not just an age difference at all it's more a lifestyle and health difference. Us crazy health hippies in Cali may seem weird to you lot but it's perfectly normal to me! Anyway, I still hope we can learn from each other. If not I will go away. > > Lots of Love, > a > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Oh Kassy, thank you. I can't explain without complaining how hard it is to find someone who can relate to me. I live in Socal too but I may as well live on Jupiter because most people are so out of range by my standards, even for California. I work at an organic farm now because of all this. I can't stress how important it is for us to be hyper aware now of each and every thing we put into our bodies. I like to drink, I love wine, saki, vodka, but now it is like weight watchers it's like measuring everything, but what's the alternative? Death? Pain? I feel pretty-very good most every day. I am better than I was before except for the fatigue. If there's any point I'd like to stress to all the people out there it is this, How you feel is about what you eat, and exercise is the other part of that equation. There is no shortcut and the sooner you accept this the better. The better you eat, the better you feel. Thanks for listening, K kplattus wrote: Hi a....I live in southern california and im 45 and im an emotional freeway crier as of late...i have changed drastically what i eat and my lifestyle...i shop now at the co-op store an organic place..i need to do whatever i can to elimate all the factors of reoccurance!!!! Im still learning this organic way they have been very helpful to me at this store...I dont drink anymore as to that adds to the possibilty of a come back..immune boosters galore and most of all making sure i get enough sleep which i surely wasnt b4...i took my life a bit for granted i think that is the one thing i have learned to change wake up call for me..didnt sleep...very stressed out ( much of i could have controlled i think )im always so very hard on myself i need to give myself a break im trying....slow process but ill get there..may have setbacks but im not going to beat myself up anymore....i now exercise in some form daily i am a bit tired and emotional right now but i still get my butt on the bike or walk a few miles on the treadmill everyday helps clear the mind....i see things so different and its hard to get used to this new way of thinking but i have too give it my best shot as in regards to things that i can control the rest is up to God...take care and lots of love back....kassy > > a, > Please don't leave. We all do what we feel is the right thing for us. I have used visualization and relaxation tapes while going through treatment and still listen to one every night when we go to bed. I've been doing it for over 16 yrs. > > Have you ased the dr about antidepressants? Or if you don't want them is there something organic possibly that would help? > > Maybe you are expecting your body to do too much. My onc told me to listen to my body and when I was tired to rest. I will keep you in my prayers. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > BreastCancerStories.com > http://www.breastcancerstories.com/content/view/433/161/ > Angel Feather Loomer > www.angelfeatherloomer.blogspot.com > Check out my other ornaments at > www.geocities.com/chucky5741/bcornament.html > Lots of info and gifts at: > www.cancerclub.com > from K > > > Hello all, > I've really enjoyed reading postings. It's encouraging to read the lines of love from strangers. I wish I had been here when I was newly diagnosed. > > The reason why I am here now is to get some answers or read some similar experiences that will help me deal with my life after chemo. I am okay most of the time but still break down for absolutely no reason, none that is apparent anyway. > > I can't help but feel under represented in this pool of people. That's why I brought up the men and breast cancer/why only pink issue. I feel like I am on the fringe too. It is frustrating to get very little feedback when I bring up what health is. If anything, cancer is a wake up call to realize we could be living a purer life, that's not to say we gave it to ourselves, but to maintain a level of responsibility from now on should be our number one job. I am disappointed that this is not reflected back from many people in the group. Does no one believe cancer recurs because the same chemical pool still exists within our bodies possibly because we didn't change anything? I want to help everybody but not many seem to care to listen. This is upsetting to me because I care so much and don't know any of you. > > Another point is that I don't read about any after-cancer maintenance for the psyche, and spiritual self. I was hoping to come across some tips because I have such emotional days, crying on the freeway and in school or the store. Maybe it's partially because my only caregiver and I broke up after 3 1/2 years recently. No one in my family lives nearby except my dad and he did his best but wasn't particularly nurturing. I dealt with the emotional stuff alone and took what I could out on my boyfriend. Poor guy, he is only 28 but did a stellar job and took it in stride. I wanted to join a group then and tried but it was similar in that everyone was a lot older and didn't have fertility issues and many were out a couple of years or more and I was just starting chemo. Now I'm in this group and it's the opposite! Most people are newly diagnosed. I like to help where I can but I would like some help too. Maybe at least some feedback from people. I have already gone > through all the surgeries, chemo, reconstruction etc. but I am far from done with this disease. I have so much fatigue, when I'm up I am going and then I am down and in bed at 2 in the afternoon. What do I do now besides juicing, coffee enemas, organic foods, herbs, exercise...?? > > I tried to find that other group for younger women but it is on the east coast and I would have to attend their meetings, not possible. I am still surprised it is so hard to find people like me in this situation. It's not just an age difference at all it's more a lifestyle and health difference. Us crazy health hippies in Cali may seem weird to you lot but it's perfectly normal to me! Anyway, I still hope we can learn from each other. If not I will go away. > > Lots of Love, > a > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Oh Kassy, thank you. I can't explain without complaining how hard it is to find someone who can relate to me. I live in Socal too but I may as well live on Jupiter because most people are so out of range by my standards, even for California. I work at an organic farm now because of all this. I can't stress how important it is for us to be hyper aware now of each and every thing we put into our bodies. I like to drink, I love wine, saki, vodka, but now it is like weight watchers it's like measuring everything, but what's the alternative? Death? Pain? I feel pretty-very good most every day. I am better than I was before except for the fatigue. If there's any point I'd like to stress to all the people out there it is this, How you feel is about what you eat, and exercise is the other part of that equation. There is no shortcut and the sooner you accept this the better. The better you eat, the better you feel. Thanks for listening, K kplattus wrote: Hi a....I live in southern california and im 45 and im an emotional freeway crier as of late...i have changed drastically what i eat and my lifestyle...i shop now at the co-op store an organic place..i need to do whatever i can to elimate all the factors of reoccurance!!!! Im still learning this organic way they have been very helpful to me at this store...I dont drink anymore as to that adds to the possibilty of a come back..immune boosters galore and most of all making sure i get enough sleep which i surely wasnt b4...i took my life a bit for granted i think that is the one thing i have learned to change wake up call for me..didnt sleep...very stressed out ( much of i could have controlled i think )im always so very hard on myself i need to give myself a break im trying....slow process but ill get there..may have setbacks but im not going to beat myself up anymore....i now exercise in some form daily i am a bit tired and emotional right now but i still get my butt on the bike or walk a few miles on the treadmill everyday helps clear the mind....i see things so different and its hard to get used to this new way of thinking but i have too give it my best shot as in regards to things that i can control the rest is up to God...take care and lots of love back....kassy > > a, > Please don't leave. We all do what we feel is the right thing for us. I have used visualization and relaxation tapes while going through treatment and still listen to one every night when we go to bed. I've been doing it for over 16 yrs. > > Have you ased the dr about antidepressants? Or if you don't want them is there something organic possibly that would help? > > Maybe you are expecting your body to do too much. My onc told me to listen to my body and when I was tired to rest. I will keep you in my prayers. > Hugs > nne > Breast Cancer Patients Soul Mates for Life > http://www.geocities.com/chucky5741/breastcancerpatients.html > BreastCancerStories.com > http://www.breastcancerstories.com/content/view/433/161/ > Angel Feather Loomer > www.angelfeatherloomer.blogspot.com > Check out my other ornaments at > www.geocities.com/chucky5741/bcornament.html > Lots of info and gifts at: > www.cancerclub.com > from K > > > Hello all, > I've really enjoyed reading postings. It's encouraging to read the lines of love from strangers. I wish I had been here when I was newly diagnosed. > > The reason why I am here now is to get some answers or read some similar experiences that will help me deal with my life after chemo. I am okay most of the time but still break down for absolutely no reason, none that is apparent anyway. > > I can't help but feel under represented in this pool of people. That's why I brought up the men and breast cancer/why only pink issue. I feel like I am on the fringe too. It is frustrating to get very little feedback when I bring up what health is. If anything, cancer is a wake up call to realize we could be living a purer life, that's not to say we gave it to ourselves, but to maintain a level of responsibility from now on should be our number one job. I am disappointed that this is not reflected back from many people in the group. Does no one believe cancer recurs because the same chemical pool still exists within our bodies possibly because we didn't change anything? I want to help everybody but not many seem to care to listen. This is upsetting to me because I care so much and don't know any of you. > > Another point is that I don't read about any after-cancer maintenance for the psyche, and spiritual self. I was hoping to come across some tips because I have such emotional days, crying on the freeway and in school or the store. Maybe it's partially because my only caregiver and I broke up after 3 1/2 years recently. No one in my family lives nearby except my dad and he did his best but wasn't particularly nurturing. I dealt with the emotional stuff alone and took what I could out on my boyfriend. Poor guy, he is only 28 but did a stellar job and took it in stride. I wanted to join a group then and tried but it was similar in that everyone was a lot older and didn't have fertility issues and many were out a couple of years or more and I was just starting chemo. Now I'm in this group and it's the opposite! Most people are newly diagnosed. I like to help where I can but I would like some help too. Maybe at least some feedback from people. I have already gone > through all the surgeries, chemo, reconstruction etc. but I am far from done with this disease. I have so much fatigue, when I'm up I am going and then I am down and in bed at 2 in the afternoon. What do I do now besides juicing, coffee enemas, organic foods, herbs, exercise...?? > > I tried to find that other group for younger women but it is on the east coast and I would have to attend their meetings, not possible. I am still surprised it is so hard to find people like me in this situation. It's not just an age difference at all it's more a lifestyle and health difference. Us crazy health hippies in Cali may seem weird to you lot but it's perfectly normal to me! Anyway, I still hope we can learn from each other. If not I will go away. > > Lots of Love, > a > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Thank you Anne, it is easy to get discouraged so I appreciate your words of kindness. I am very active when I feel like it. I have been an athlete my whole life and feel guilty if I don't do something every day. I agree, it makes a big difference in how we feel. I respect you for dedicating that much time every day to exercise. My oldest living great aunt walked 2 miles every day. Tha'ts not that much if you do it often but it is for a women in her 80's and well above! That's great. Just think, a walk is so nice, it can be relaxing because we are breathing the air in a different way, increasing circulation, we sleep better, we can work thoughts out, it breaks up the monotony...during chemo I wanted to just sleep and never could. People told me to exercise but it seemed so impossible, walking up the stairs was a challenge. But they were right! Walk the block!!!! It helped,when I could manage, I had to force myself but it helped. Thank you for your input you have no idea how much this means to me. a wrote: > > > > Hello all, > > I've really enjoyed reading postings. It's encouraging to read > the lines of love from strangers. I wish I had been here when I was > newly diagnosed. > > > > The reason why I am here now is to get some answers or read some > similar experiences that will help me deal with my life after > chemo. I am okay most of the time but still break down for > absolutely no reason, none that is apparent anyway. > > > > I can't help but feel under represented in this pool of people. > That's why I brought up the men and breast cancer/why only pink > issue. I feel like I am on the fringe too. It is frustrating to > get very little feedback when I bring up what health is. If > anything, cancer is a wake up call to realize we could be living a > purer life, that's not to say we gave it to ourselves, but to > maintain a level of responsibility from now on should be our number > one job. I am disappointed that this is not reflected back from many > people in the group. Does no one believe cancer recurs because the > same chemical pool still exists within our bodies possibly because > we didn't change anything? I want to help everybody but not many > seem to care to listen. This is upsetting to me because I care so > much and don't know any of you. > > > > Another point is that I don't read about any after-cancer > maintenance for the psyche, and spiritual self. I was hoping to > come across some tips because I have such emotional days, crying on > the freeway and in school or the store. Maybe it's partially > because my only caregiver and I broke up after 3 1/2 years > recently. No one in my family lives nearby except my dad and he did > his best but wasn't particularly nurturing. I dealt with the > emotional stuff alone and took what I could out on my boyfriend. > Poor guy, he is only 28 but did a stellar job and took it in > stride. I wanted to join a group then and tried but it was similar > in that everyone was a lot older and didn't have fertility issues > and many were out a couple of years or more and I was just starting > chemo. Now I'm in this group and it's the opposite! Most people > are newly diagnosed. I like to help where I can but I would like > some help too. Maybe at least some feedback from people. I have > already gone > > through all the surgeries, chemo, reconstruction etc. but I am > far from done with this disease. I have so much fatigue, when I'm > up I am going and then I am down and in bed at 2 in the afternoon. > What do I do now besides juicing, coffee enemas, organic foods, > herbs, exercise...?? > > > > I tried to find that other group for younger women but it is on > the east coast and I would have to attend their meetings, not > possible. I am still surprised it is so hard to find people like me > in this situation. It's not just an age difference at all it's more > a lifestyle and health difference. Us crazy health hippies in Cali > may seem weird to you lot but it's perfectly normal to me! Anyway, > I still hope we can learn from each other. If not I will go away. > > > > Lots of Love, > > a > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Thank you Anne, it is easy to get discouraged so I appreciate your words of kindness. I am very active when I feel like it. I have been an athlete my whole life and feel guilty if I don't do something every day. I agree, it makes a big difference in how we feel. I respect you for dedicating that much time every day to exercise. My oldest living great aunt walked 2 miles every day. Tha'ts not that much if you do it often but it is for a women in her 80's and well above! That's great. Just think, a walk is so nice, it can be relaxing because we are breathing the air in a different way, increasing circulation, we sleep better, we can work thoughts out, it breaks up the monotony...during chemo I wanted to just sleep and never could. People told me to exercise but it seemed so impossible, walking up the stairs was a challenge. But they were right! Walk the block!!!! It helped,when I could manage, I had to force myself but it helped. Thank you for your input you have no idea how much this means to me. a wrote: > > > > Hello all, > > I've really enjoyed reading postings. It's encouraging to read > the lines of love from strangers. I wish I had been here when I was > newly diagnosed. > > > > The reason why I am here now is to get some answers or read some > similar experiences that will help me deal with my life after > chemo. I am okay most of the time but still break down for > absolutely no reason, none that is apparent anyway. > > > > I can't help but feel under represented in this pool of people. > That's why I brought up the men and breast cancer/why only pink > issue. I feel like I am on the fringe too. It is frustrating to > get very little feedback when I bring up what health is. If > anything, cancer is a wake up call to realize we could be living a > purer life, that's not to say we gave it to ourselves, but to > maintain a level of responsibility from now on should be our number > one job. I am disappointed that this is not reflected back from many > people in the group. Does no one believe cancer recurs because the > same chemical pool still exists within our bodies possibly because > we didn't change anything? I want to help everybody but not many > seem to care to listen. This is upsetting to me because I care so > much and don't know any of you. > > > > Another point is that I don't read about any after-cancer > maintenance for the psyche, and spiritual self. I was hoping to > come across some tips because I have such emotional days, crying on > the freeway and in school or the store. Maybe it's partially > because my only caregiver and I broke up after 3 1/2 years > recently. No one in my family lives nearby except my dad and he did > his best but wasn't particularly nurturing. I dealt with the > emotional stuff alone and took what I could out on my boyfriend. > Poor guy, he is only 28 but did a stellar job and took it in > stride. I wanted to join a group then and tried but it was similar > in that everyone was a lot older and didn't have fertility issues > and many were out a couple of years or more and I was just starting > chemo. Now I'm in this group and it's the opposite! Most people > are newly diagnosed. I like to help where I can but I would like > some help too. Maybe at least some feedback from people. I have > already gone > > through all the surgeries, chemo, reconstruction etc. but I am > far from done with this disease. I have so much fatigue, when I'm > up I am going and then I am down and in bed at 2 in the afternoon. > What do I do now besides juicing, coffee enemas, organic foods, > herbs, exercise...?? > > > > I tried to find that other group for younger women but it is on > the east coast and I would have to attend their meetings, not > possible. I am still surprised it is so hard to find people like me > in this situation. It's not just an age difference at all it's more > a lifestyle and health difference. Us crazy health hippies in Cali > may seem weird to you lot but it's perfectly normal to me! Anyway, > I still hope we can learn from each other. If not I will go away. > > > > Lots of Love, > > a > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2006 Report Share Posted October 21, 2006 Thanks Ellen, I know you don't speak for everyone but right then it seemed like you did. I feel better now than I did. This whole thing is hard for all of us. I read the pain in all the newly diagnosed and a different more seasoned pain in the recurring. But we are all humans facing the reality that we are mortal. I appreciate every kindness extended as if it were a personal look-in-the-eye exchange. It's the little things that aren't so little. Thank You, a Ellen wrote: a, I would be sorry if you decided to this group. Both sad for you and sorry for us, as a group, because every piece of information relating to " our " diagnosis is so important. What you have to offer is something many of us cannot get from friends, family, physicians, etc. Our shared experiences combine to give us the strength and support it takes to get through all of this. I, for one, enjoy the fact that not everyone else in this group is either my age, my same diagnosis or even better, that even some with similar diagnosis are on different treatments. To me, the diversity and first hand experience of a group of B/C survivors is not found many places - and it took me well into my treatment to find this group. Not everyone responds to all posts (except nne, bless her heart) but many of us have found friendships and developed trusting relationships here that we could not have found elsewhere. I'd hate for you to miss out on that. I don't have to agree with the advise that I ask for, but am so grateful to get it - down to earth answers to some very hard questions. I have never visualized you as anyone other than " a member of this sisterhood " and I would be disappointed if you should choose to not offer your opinions and continue to ask for help. Hugs, Ellen > > Hello all, > I've really enjoyed reading postings. It's encouraging to read the lines of love from strangers. I wish I had been here when I was newly diagnosed. > > The reason why I am here now is to get some answers or read some similar experiences that will help me deal with my life after chemo. I am okay most of the time but still break down for absolutely no reason, none that is apparent anyway. > > I can't help but feel under represented in this pool of people. That's why I brought up the men and breast cancer/why only pink issue. I feel like I am on the fringe too. It is frustrating to get very little feedback when I bring up what health is. If anything, cancer is a wake up call to realize we could be living a purer life, that's not to say we gave it to ourselves, but to maintain a level of responsibility from now on should be our number one job. I am disappointed that this is not reflected back from many people in the group. Does no one believe cancer recurs because the same chemical pool still exists within our bodies possibly because we didn't change anything? I want to help everybody but not many seem to care to listen. This is upsetting to me because I care so much and don't know any of you. > > Another point is that I don't read about any after-cancer maintenance for the psyche, and spiritual self. I was hoping to come across some tips because I have such emotional days, crying on the freeway and in school or the store. Maybe it's partially because my only caregiver and I broke up after 3 1/2 years recently. No one in my family lives nearby except my dad and he did his best but wasn't particularly nurturing. I dealt with the emotional stuff alone and took what I could out on my boyfriend. Poor guy, he is only 28 but did a stellar job and took it in stride. I wanted to join a group then and tried but it was similar in that everyone was a lot older and didn't have fertility issues and many were out a couple of years or more and I was just starting chemo. Now I'm in this group and it's the opposite! Most people are newly diagnosed. I like to help where I can but I would like some help too. Maybe at least some feedback from people. I have already gone > through all the surgeries, chemo, reconstruction etc. but I am far from done with this disease. I have so much fatigue, when I'm up I am going and then I am down and in bed at 2 in the afternoon. What do I do now besides juicing, coffee enemas, organic foods, herbs, exercise...?? > > I tried to find that other group for younger women but it is on the east coast and I would have to attend their meetings, not possible. I am still surprised it is so hard to find people like me in this situation. It's not just an age difference at all it's more a lifestyle and health difference. Us crazy health hippies in Cali may seem weird to you lot but it's perfectly normal to me! Anyway, I still hope we can learn from each other. If not I will go away. > > Lots of Love, > a > > > Quote Link to comment Share on other sites More sharing options...
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