RE: TO ALL MEMBERS......

[Guest guest]

HELLO EVERYONE, ITS AMEY. I KNOW I DONT POST ALOT. I USUALLY JUST

ANSWER QUESTIONS IN A PERSONAL MATTER. BUT,,, THIS I COULD NOT HOLD

BACK ANY LONGER...

I WISH SOME PEOPLE WOULD PLEASE " STOP " CHASING FOR A CURE!! THERE

IS " NONE " ! GET IT THRU YOUR HEAD!! I AM NOT BEING MEAN I AM SIMPLY

TELLING YOU THE TRUTH. AND I BELEIVE IN BEING HONEST.. I ALWAYS

HAVE... HONESTY IS THE BEST POLICY..

I AM HAVING A HARD TIME WITH SOME PEOPLE HAVING 6 AND 10 BLOCKS A

WEEK AND THESE STUPID TESTS THAT COST THOUSANDS OF DOLLARS THAT DO

NOTHING BUT MAKE YOUR DR'S AND HOSPITALS RICHER!! THERES NO POINT!!

THERE ARE A FEW SIMPLE THINGS THAT HELP WITH RSD AND THATS IT!!

AND " NEUROTTIN IS " NOT " FOR RSD " !!!

1. NEUROPATHIC PAIN DRUGS ie. topamax, effexor

2. SPINAL CORD STIMULATORS ans

3. BREAK THRU CANCER MEDS (WHICH ALL RSD'ERS NEED)

4. PAIN MEDICATIONS ie. VICODIN, DAVOCET, ECT.

5. A DOCTOR THAT KNOWS WHAT THE HELL HES TALKING ABOUT!!

GIVE IT UP! THERE IS NOOOO CURE AND THESE DRS ARE TAKING ADVANTGE OF

OUR " NOT SO " KNOWLEDGABLE FACTS ON RSD... THE MORE YOU DO THESE

THINGS TO YOUR BODIES THE MORE YOU ARE SPREADING IT AND MAKING IT

WORSE!! ITS MORE STRESS ON THE BODY WHICH MEANS SPREADING OF THE

DISEASE AND IN MORE PAIN!! I WISH YOU WOULD PLEASE REALISE THIS...

THE ONLY THINGS THAT ARE OUT THERE ARE THINGS TO KEEP US COMFY. IM

SORRY, IM NOT BEING MEAN IM JUST SAYING UPFRONT WHAT IS WHAT... I

HATE TO SEE PEOPLE SUFFER NEEDLESSLY. AND DO ALL THESE STUPID TESTS

AND PROCEDURES THAT DONT TELL THESE DRS ANYTHING MORE THAN WHAT THEY

ALREADY KNOW. ANY " REAL " RSD DR THAT KNOWS WHAT IT IS JUST HAS TO

TAKE ONE LOOK AT YOU AND KNOW IF YOU HAVE IT OR NOT! NOT BLOCK AFTER

BLOCK AND THERMOGRAPHS (SERIOUS JOKE TEST), HYPERBERIC CHAMBERS, AND

SUCH. ITS ALL CRAP AND ONLY A TEMPORARY FIX NOT FOR THE LONG HALL...

WHEN IT WEARS OFF WHERE ARE YOU THEN???? BACK TO WHERE YOU WERE IN

THE 1ST PLACE AND ACTUALLY WORSE! AND THEN YOU FEEL EVEN WORSE

MENTALLY BECAUSE YOUR THINKING " IT DIDNT WORK WHAT AM I GOING TO

DOOOO??? " YOU DONT NEED THAT! WELL, I HOPE EVERYBODY IS OK AND IM

NOT POINTING ANY FINGERS JUST EXPRESSING MY OPINION... IGNORE ME IF

YA WANT DELETE ME IF YA WANT BECAUSE I REALLY DONT CARE. BUT WHAT

I " DO " CARE ABOUT IS EVERYONE IN HERE... WE NEED EACH OTHERS SUPPORT

ON WATEVER WE ALL DO!!!! ISNT THAT WHAT THIS ROOM IS FOR IN THE 1ST

PLACE??? I THINK YOU ALL FORGOT THAT... NEVER FORGET THAT 1ST

PERSON YOU TALKED TO THAT HELPED YOU THRU THAT FIRST FLARE UP YOU HAD

FOR DAYS STRAITE..... TAKE CARE GUYS,,, AND GENTLE HUGS,,, AMEY ((THE

RAMBLER))