Re: new to the list and have a few questions

[Guest guest]

Hi

> I have a 5yr old pdd/autisic son, who is going through

> chelation for mercury and lead. He seems to do well on

> some of the supplements, I give him the epsom salt

> baths, changed many household and personal products to

> organic's.

>>Good stuff, well done!

>

> My son takes DMSA everyday, when he first started we

> were doing weekends only but then the doctor decided

> everyday. Recently he started showing strange behavior

> and very hyper (more than usual). Over the holidays a

> friend and I took him snow skiing and I left the meds

> on the counter at home. After a few days of no DMSA

> his weird behviors stopped still hyper but not as bad.

>>>He shouldn;t be taking it every day, this is a bizarre idea of your

doctors. How much do you give him and how often? Inconsistent dosing will

mobilise

metals and not give them what they need to get out of his system. The Cutler

protocol which mist of us here use is 1/8 - 1/2mg per pound of child per dose

given every 4 hours round the clock for 3 days for DMSA only. My son is 60

pounds and egts 25mg doses. Frequent low dosing reduces side effects,

redistribution and strain on the liver. You can read all abbout it in the files

section of

this group or here at this link:-

http://home.earthlink.net/~moriam/

Well done for fogetting the DMSA for your hols!!

>

> Has anyone gone through this and if so what did you do

> to make a positive change??

>>>Stopping will make the positive change as you have already seen. Not doing

it again will maintain it lol. Check out the link above

>

> The doctor did suggest the gluten free diet, because

> he is addicted to the gluten.. thats all he will eat.

> My problem is starving him till he eats the gluten

> free. At one point I did a gradual change in his diet

> and he was almost gluten free.. then I had a bug

> problem and couldn't duplicate his favorite foods. We

> are back to square one. I've done the starving thing

> and the school almost locked me up.

> Anyone have any great solutions I can try with this

> problem???

>>>I would forget trying to duplicate his foods with CFGF, I would try

enzymes instead. The ones from HNI do a better job anyways - some links for info

below. My son has been off the diet with HNI enzymes since May 2001 and made

many

more improvemenst than he did on the diet. Some people still need to remove a

few offending foods but positive success rates run at about 85% which is far

higher than the diet anyway.

www.enzymestuff.com - the book mentioned here is very good and there is a

group link there too.

www.houstonni.com for buying the enzymes

Good luck

MAndi in UK

[Guest guest]

Hi

> I have a 5yr old pdd/autisic son, who is going through

> chelation for mercury and lead. He seems to do well on

> some of the supplements, I give him the epsom salt

> baths, changed many household and personal products to

> organic's.

>>Good stuff, well done!

>

> My son takes DMSA everyday, when he first started we

> were doing weekends only but then the doctor decided

> everyday. Recently he started showing strange behavior

> and very hyper (more than usual). Over the holidays a

> friend and I took him snow skiing and I left the meds

> on the counter at home. After a few days of no DMSA

> his weird behviors stopped still hyper but not as bad.

>>>He shouldn;t be taking it every day, this is a bizarre idea of your

doctors. How much do you give him and how often? Inconsistent dosing will

mobilise

metals and not give them what they need to get out of his system. The Cutler

protocol which mist of us here use is 1/8 - 1/2mg per pound of child per dose

given every 4 hours round the clock for 3 days for DMSA only. My son is 60

pounds and egts 25mg doses. Frequent low dosing reduces side effects,

redistribution and strain on the liver. You can read all abbout it in the files

section of

this group or here at this link:-

http://home.earthlink.net/~moriam/

Well done for fogetting the DMSA for your hols!!

>

> Has anyone gone through this and if so what did you do

> to make a positive change??

>>>Stopping will make the positive change as you have already seen. Not doing

it again will maintain it lol. Check out the link above

>

> The doctor did suggest the gluten free diet, because

> he is addicted to the gluten.. thats all he will eat.

> My problem is starving him till he eats the gluten

> free. At one point I did a gradual change in his diet

> and he was almost gluten free.. then I had a bug

> problem and couldn't duplicate his favorite foods. We

> are back to square one. I've done the starving thing

> and the school almost locked me up.

> Anyone have any great solutions I can try with this

> problem???

>>>I would forget trying to duplicate his foods with CFGF, I would try

enzymes instead. The ones from HNI do a better job anyways - some links for info

below. My son has been off the diet with HNI enzymes since May 2001 and made

many

more improvemenst than he did on the diet. Some people still need to remove a

few offending foods but positive success rates run at about 85% which is far

higher than the diet anyway.

www.enzymestuff.com - the book mentioned here is very good and there is a

group link there too.

www.houstonni.com for buying the enzymes

Good luck

MAndi in UK

[Guest guest]

> My son takes DMSA everyday, when he first started we

> were doing weekends only but then the doctor decided

> everyday. Recently he started showing strange behavior

> and very hyper (more than usual).

Sounds like probably yeast

http://www.danasview.net/yeast.htm

It can also be over-stress on the liver and kidneys from having to

process metals every day without a break to rest and recover.

> The doctor did suggest the gluten free diet, because

> he is addicted to the gluten.. thats all he will eat.

> My problem is starving him till he eats the gluten

> free. At one point I did a gradual change in his diet

> and he was almost gluten free.. then I had a bug

> problem and couldn't duplicate his favorite foods. We

> are back to square one. I've done the starving thing

> and the school almost locked me up.

> Anyone have any great solutions I can try with this

> problem???

Try giving enzymes. Then if you still want/need to remove gluten, it

*should* be easier to do so.

http://www.houstonni.com/

Dana

[Guest guest]

> Hi everyone

>

> I have a 5yr old pdd/autisic son, who is going through

> chelation for mercury and lead. He seems to do well on

> some of the supplements, I give him the epsom salt

> baths, changed many household and personal products to

> organic's.

>

> My son takes DMSA everyday,

Stop it. DMSA must be given every 4 hours or more often, day and

night, or not at all.

If your doctor doesn't know this he isn't competent to supervise

chelation and shouldn't be doing it.

> when he first started we

> were doing weekends only but then the doctor decided

> everyday.

Remember, lots of people got into this mess because their doctor

decided the thimerosal in vaccinations was just fine. Just because the

doctor decides some really bad thing is OK to do to your kid doesn't

mean your kid won't get sick from it.

> Recently he started showing strange behavior

> and very hyper (more than usual).

As expected in response to an inappropriate chelation protocol.

> Over the holidays a

> friend and I took him snow skiing and I left the meds

> on the counter at home. After a few days of no DMSA

> his weird behviors stopped still hyper but not as bad.

Gee, you inadvertently did the correct experiment to prove that the

doctor was hurting your kid through inappropriate prescribing.

> Has anyone gone through this

Tens of thousands of people (at least) have gone through this kind of

thing with assorted harmful and inappropriate chelation protocols. It

isn't new.

> and if so what did you do

> to make a positive change??

You have to chelate properly so as to remove the extra mercury that has

been slammed into his brain by the harmful protocol. Proper chelation

involves giving the agents adequately frequently to maintain reasonably

constant blood levels, e. g. every 3-4 hours (or more often) for ALA,

every 4 for DMSA, every 8 for DMPS.

> The doctor did suggest the gluten free diet, because

> he is addicted to the gluten.. thats all he will eat.

> My problem is starving him till he eats the gluten

> free. At one point I did a gradual change in his diet

> and he was almost gluten free.. then I had a bug

> problem and couldn't duplicate his favorite foods. We

> are back to square one. I've done the starving thing

> and the school almost locked me up.

Either home school him while doing it or have the doctor write orders

to do it and give them to the school. It is farily hard for them to

explain to CPS why they turned you in for following doctor's orders so

they are unlikely to try.

> Anyone have any great solutions I can try with this

> problem???

Soiunds like you had it right the first time, just start down that path

again and be patient.

> Take care

> Suzanne